sorry

March 29, 2002

Thanks Marci, I hope you are doing well too!

Anne

March 29, 2002

I'm here , just busy as ever! No time for the computer these

days. Spring cleaning, over active psycho toddler, more spring

cleaning more crazy toddler are keeping me busy busy busy. There are

days when I do not even get a chance to shower!! Curse Swear!!!

Anne

Mom of Livia

DOC Grad 12/01

CANADA

> Nice to hear from you again Anne!! I was wondering where you

went

>

> ' Mom

March 29, 2002

Kendra, How are you feeling these days? I hope all is well with

you and your little peanut! Oh and hubby too huh lol. Has he found

work yet? Hows the teeny tiny wee one? everything going ok?

lol soo many questions!

Anne

> Good to hear from you Anne! )

> Kendra

> Sorry

>

> Hi guys, I am so sorry to have not been very active lately. I

keep

> meaning to pop by on Tuesdays for chat but by the time I

remember,

> it is too late and I am ready for bed. Livia has been keeping me

> very busy these days, and I am finding little time for myself

other

> than when she sleeps at night and by that time i am exhausted

and

> trying to do the million things I have forgotten to do earlier.

lol

>

> I will try my darndest to become active again in this community,

but

> I might not get to all the posts.lol There are so many!!

>

> I just thought I would let you all know " whats up " in Anne

world,

> and let you know I have not forgotten about all you wonderful

moms

> and dads, and certainly not all the beautiful babys!

>

> Anne

> Mom of Livia

> DOC Grad 12/01

> Canada

>

March 29, 2002

Darci,

I am in Edmonton and Liv recieved treatment at the University Hosp.

Occupational therapy clinic.

Anne

> Hi Anne, where in Canada are you from? Where did you go to get

the DOC

> band? (i guess you must be in Calgary?)

>

> Darcy (father to Madeleine)

> Toronto

>

> Sorry

>

> Hi guys, I am so sorry to have not been very active lately. I keep

> meaning to pop by on Tuesdays for chat but by the time I remember,

> it is too late and I am ready for bed. Livia has been keeping me

> very busy these days, and I am finding little time for myself

other

> than when she sleeps at night and by that time i am exhausted and

> trying to do the million things I have forgotten to do earlier. lol

>

> I will try my darndest to become active again in this community,

but

> I might not get to all the posts.lol There are so many!!

>

> I just thought I would let you all know " whats up " in Anne world,

> and let you know I have not forgotten about all you wonderful moms

> and dads, and certainly not all the beautiful babys!

>

> Anne

> Mom of Livia

> DOC Grad 12/01

> Canada

>

> For more plagio info

March 29, 2002

Everything's good here Anne! Thanx for asking!

Hanna is great - but sooooooo 2!!! She's really stubborn and EVERYTHING is a challenge these days. She's not going shopping for a while, that's for sure! Bed time is the worst. It takes a good hour to get her to bed. *sigh*

As for the "wee one", he's doing good. Very squirmy and growing quickly! I feel so huge already, and we're only 1/2 way there!

still hasn't found work. It's been 4 months now. He hasn't been looking very hard tho. I think he enjoys his home life a little too much!!! Time to get his butt in gear tho! The severance will run out soon!

How are things with you? How's your leg? I hear Livia is keeping you very busy! ;o) How is Preston liking his job?

Keep in touch!

Kendra

Sorry> > > Hi guys, I am so sorry to have not been very active lately. I keep > meaning to pop by on Tuesdays for chat but by the time I remember, > it is too late and I am ready for bed. Livia has been keeping me > very busy these days, and I am finding little time for myself other > than when she sleeps at night and by that time i am exhausted and > trying to do the million things I have forgotten to do earlier. lol> > I will try my darndest to become active again in this community, but > I might not get to all the posts.lol There are so many!!> > I just thought I would let you all know "whats up" in Anne world, > and let you know I have not forgotten about all you wonderful moms > and dads, and certainly not all the beautiful babys!> > > Anne> Mom of Livia> DOC Grad 12/01> Canada> > >

March 30, 2002

Kendra, It is so good to hear that everything is going great with

the pregnancy. Hard to believe when just a few short months ago I

said I was probably not going to have any more when just today I was

throwing the idea around in my head lol. (babies are like tattoo's,

you can't only have one!)

So Hanna's horns have sprouted huh? Don't worry it will only get

worse!(just kidding) I hope she does not sprout the tail when her

baby brother arrives. I am keeping my eyes and ears open, hoping

to have " the perfect job " pop out, so that you can get out

from underfoot. I know what a pain that can be.

Preston is in the groove of his job. I have not heard any complaints

YET. My knee is still screwed, but I can expect that for the rest of

my life. It pops in and out at will, and will continue to do so

until I go have surgery. It is not an option at the moment. We need

my meager 2days a week paycheck to get by, and chasing a toddler on

crutches would not be very easy.

Well, I have to run to work now (ICK!)

Anne

> > Good to hear from you Anne! )

> > Kendra

> > Sorry

> >

> > Hi guys, I am so sorry to have not been very active lately.

I

> keep

> > meaning to pop by on Tuesdays for chat but by the time I

> remember,

> > it is too late and I am ready for bed. Livia has been

keeping me

> > very busy these days, and I am finding little time for

myself

> other

> > than when she sleeps at night and by that time i am

exhausted

> and

> > trying to do the million things I have forgotten to do

earlier.

> lol

> >

> > I will try my darndest to become active again in this

community,

> but

> > I might not get to all the posts.lol There are so many!!

> >

> > I just thought I would let you all know " whats up " in Anne

> world,

> > and let you know I have not forgotten about all you

wonderful

> moms

> > and dads, and certainly not all the beautiful babys!

> >

> > Anne

> > Mom of Livia

> > DOC Grad 12/01

> > Canada

> >

August 4, 2002

I am sleep deprived and when I get this way I clean ...figure I will

burn myself out and the body will crash...when I clean I think....so

excuse the length of this but I have to get it out...I found this

group trying to help my sister-in-law...who had called me hysterically

after being diagnosed with RA...she figured having scleroderma-lupus I

could help. I told her i didnt know much about RA and suggested a

group so she could read and learn and she asked me to find one as she

was a compuetr newbie. I reluctantly agreed as I had just decided to

not do the support group thing anymore...here is why ...I signed up

for a scleroderma group...the is 5 women who basically -++++are the

group..members were welcomed when they first signed up...but if you

asked a question it was ignored...there was constant drivvel amongst

the five about men-in-tool belts but never any concrete info..one of

the newbies said something and was told to get a life....if she was

looking for information hit the scleroderma sights....and if she

wanted to cry and whine find a local support group...and the drivvle

went on...one asked what was the matter that they didnt want to talk

to her and she got lamb basted...then me being redheaded and the

person they lambbasted a cyber friend I shot off my mouth...ok fingers

....and was told I was a grouchy pants....so I left and decided that

was it....when I found this group...I was amazed the moderators did

not snippety-do-da the messages...not every message had to go through

them...there was a wealth of information as well as real people that

cared and communicated with each other..I looked at the message

activity and was amazed at all the different people that were

posting...I felt welcomed ...I understand in any group there is people

for whatever reason you will seem to bond with and others not...but

this group seems to accept all...I have never felt unwelcome even with

the fact I didnt have RA...the combo of

articles...humor...crying...caring cyber hugs and the rest...all make

this group a real group....I have found another scleroderma group that

is kind...and have digest sent to me to keep current with all new info

in the scleroderma field and with others symptoms..I barely ever post

there as for me it is more for info...this group as others has said is

like family....I realize opinions are like a$$$holes and evryone has

one...but in this group I have always felt it was OK to give

mine....and the saying you can please some of the people some of the

time but not all the people all the time does come to mind...people in

this group are sick and in pain and sometimes things are said that may

be taken wrong by others that are sick and in pain...but on the whole

it is a great group...I am sorry this is so long ...and once again I

am expressing an opinion but I had to get this out...Kathi in OK

August 4, 2002

Kathi in OK,

Your message is extremely eloquent and straight from the heart. I

couldn't agree with you more about this group.

Personally, I feel grateful every day to have found you.

My love to all.

Al in IL

> I am sleep deprived and when I get this way I clean ...figure I

will

> burn myself out and the body will crash...when I clean I

think....so

> excuse the length of this but I have to get it out...I found this

> group trying to help my sister-in-law...who had called me

hysterically

> after being diagnosed with RA...she figured having scleroderma-

lupus I

> could help. I told her i didnt know much about RA and suggested a

> group so she could read and learn and she asked me to find one as

she

> was a compuetr newbie. I reluctantly agreed as I had just decided

to

> not do the support group thing anymore...here is why ...I signed up

> for a scleroderma group...the is 5 women who basically -++++are the

> group..members were welcomed when they first signed up...but if you

> asked a question it was ignored...there was constant drivvel

amongst

> the five about men-in-tool belts but never any concrete info..one

of

> the newbies said something and was told to get a life....if she was

> looking for information hit the scleroderma sights....and if she

> wanted to cry and whine find a local support group...and the

drivvle

> went on...one asked what was the matter that they didnt want to

talk

> to her and she got lamb basted...then me being redheaded and the

> person they lambbasted a cyber friend I shot off my mouth...ok

fingers

> ...and was told I was a grouchy pants....so I left and decided that

> was it....when I found this group...I was amazed the moderators did

> not snippety-do-da the messages...not every message had to go

through

> them...there was a wealth of information as well as real people

that

> cared and communicated with each other..I looked at the message

> activity and was amazed at all the different people that were

> posting...I felt welcomed ...I understand in any group there is

people

> for whatever reason you will seem to bond with and others not...but

> this group seems to accept all...I have never felt unwelcome even

with

> the fact I didnt have RA...the combo of

> articles...humor...crying...caring cyber hugs and the rest...all

make

> this group a real group....I have found another scleroderma group

that

> is kind...and have digest sent to me to keep current with all new

info

> in the scleroderma field and with others symptoms..I barely ever

post

> there as for me it is more for info...this group as others has said

is

> like family....I realize opinions are like a$$$holes and evryone

has

> one...but in this group I have always felt it was OK to give

> mine....and the saying you can please some of the people some of

the

> time but not all the people all the time does come to mind...people

in

> this group are sick and in pain and sometimes things are said that

may

> be taken wrong by others that are sick and in pain...but on the

whole

> it is a great group...I am sorry this is so long ...and once again

I

> am expressing an opinion but I had to get this out...Kathi in OK

August 4, 2002

Hi Al,

I just had to say that you are the nicest guy. A lot of men are less

communicative, but you are such fun to have in the group.

Hugs,

Carol

[ ] Re: Sorry

Kathi in OK,

Your message is extremely eloquent and straight from the heart. I

couldn't agree with you more about this group.

Personally, I feel grateful every day to have found you.

My love to all.

Al in IL

> I am sleep deprived and when I get this way I clean ...figure I

will

> burn myself out and the body will crash...when I clean I

think....so

> excuse the length of this but I have to get it out...I found this

> group trying to help my sister-in-law...who had called me

hysterically

> after being diagnosed with RA...she figured having scleroderma-

lupus I

> could help. I told her i didnt know much about RA and suggested a

> group so she could read and learn and she asked me to find one as

she

> was a compuetr newbie. I reluctantly agreed as I had just decided

to

> not do the support group thing anymore...here is why ...I signed up

> for a scleroderma group...the is 5 women who basically -++++are the

> group..members were welcomed when they first signed up...but if you

> asked a question it was ignored...there was constant drivvel

amongst

> the five about men-in-tool belts but never any concrete info..one

of

> the newbies said something and was told to get a life....if she was

> looking for information hit the scleroderma sights....and if she

> wanted to cry and whine find a local support group...and the

drivvle

> went on...one asked what was the matter that they didnt want to

talk

> to her and she got lamb basted...then me being redheaded and the

> person they lambbasted a cyber friend I shot off my mouth...ok

fingers

> ...and was told I was a grouchy pants....so I left and decided that

> was it....when I found this group...I was amazed the moderators did

> not snippety-do-da the messages...not every message had to go

through

> them...there was a wealth of information as well as real people

that

> cared and communicated with each other..I looked at the message

> activity and was amazed at all the different people that were

> posting...I felt welcomed ...I understand in any group there is

people

> for whatever reason you will seem to bond with and others not...but

> this group seems to accept all...I have never felt unwelcome even

with

> the fact I didnt have RA...the combo of

> articles...humor...crying...caring cyber hugs and the rest...all

make

> this group a real group....I have found another scleroderma group

that

> is kind...and have digest sent to me to keep current with all new

info

> in the scleroderma field and with others symptoms..I barely ever

post

> there as for me it is more for info...this group as others has said

is

> like family....I realize opinions are like a$$$holes and evryone

has

> one...but in this group I have always felt it was OK to give

> mine....and the saying you can please some of the people some of

the

> time but not all the people all the time does come to mind...people

in

> this group are sick and in pain and sometimes things are said that

may

> be taken wrong by others that are sick and in pain...but on the

whole

> it is a great group...I am sorry this is so long ...and once again

I

> am expressing an opinion but I had to get this out...Kathi in OK

August 4, 2002

Hi Carol,

What a sweet and nice thing to say. Thank you very much.

Hugs,

Al

> > I am sleep deprived and when I get this way I clean ...figure I

> will

> > burn myself out and the body will crash...when I clean I

> think....so

> > excuse the length of this but I have to get it out...I found this

> > group trying to help my sister-in-law...who had called me

> hysterically

> > after being diagnosed with RA...she figured having scleroderma-

> lupus I

> > could help. I told her i didnt know much about RA and suggested a

> > group so she could read and learn and she asked me to find one as

> she

> > was a compuetr newbie. I reluctantly agreed as I had just decided

> to

> > not do the support group thing anymore...here is why ...I signed

up

> > for a scleroderma group...the is 5 women who basically -++++are

the

> > group..members were welcomed when they first signed up...but if

you

> > asked a question it was ignored...there was constant drivvel

> amongst

> > the five about men-in-tool belts but never any concrete info..one

> of

> > the newbies said something and was told to get a life....if she

was

> > looking for information hit the scleroderma sights....and if she

> > wanted to cry and whine find a local support group...and the

> drivvle

> > went on...one asked what was the matter that they didnt want to

> talk

> > to her and she got lamb basted...then me being redheaded and the

> > person they lambbasted a cyber friend I shot off my mouth...ok

> fingers

> > ...and was told I was a grouchy pants....so I left and decided

that

> > was it....when I found this group...I was amazed the moderators

did

> > not snippety-do-da the messages...not every message had to go

> through

> > them...there was a wealth of information as well as real people

> that

> > cared and communicated with each other..I looked at the message

> > activity and was amazed at all the different people that were

> > posting...I felt welcomed ...I understand in any group there is

> people

> > for whatever reason you will seem to bond with and others

not...but

> > this group seems to accept all...I have never felt unwelcome even

> with

> > the fact I didnt have RA...the combo of

> > articles...humor...crying...caring cyber hugs and the rest...all

> make

> > this group a real group....I have found another scleroderma group

> that

> > is kind...and have digest sent to me to keep current with all new

> info

> > in the scleroderma field and with others symptoms..I barely ever

> post

> > there as for me it is more for info...this group as others has

said

> is

> > like family....I realize opinions are like a$$$holes and evryone

> has

> > one...but in this group I have always felt it was OK to give

> > mine....and the saying you can please some of the people some of

> the

> > time but not all the people all the time does come to

mind...people

> in

> > this group are sick and in pain and sometimes things are said that

> may

> > be taken wrong by others that are sick and in pain...but on the

> whole

> > it is a great group...I am sorry this is so long ...and once again

> I

> > am expressing an opinion but I had to get this out...Kathi in OK

>

August 4, 2002

Kathi, no need to apologize for anything you've said. I feel as you do about our

group. And, of course, you were and are always welcome here! And so are OT

posts. Says so right in the description of our group at the site. We do

need fun and interesting stories and jokes and consolation and to get to know

one another.

Everyone is entitled to her or his opinion here and is free to express it as

long as no unkindness toward others is involved. We've been very lucky that

there has been very little nastiness or controversy in the history of the group.

More than that, we are blessed to have each other and in that we are able to

interact on a variety of levels in a strongly positive way.

As you point out, many people are sick and tired. They have limited energy.

Sometimes the mail is overwhelming. Last month was a record - 2094 posts! When

people join, they don't know what to expect. Or sometimes the group changes

character a bit. Or the mail load changes. Or the person's own situation

changes. If an individual chooses to leave, he or she has an opportunity to send

a reason to the moderators. The most common reason for leaving is too much mail.

That's OK though. See that as just a fact, not necessarily a negative criticism.

Don't let it cramp your style. You either, Debs! As you and others have pointed

out, there are ways to minimize how much mail one has to go through.

All work and no play makes RA-Support a dull group. Besides, the boring stuff is

my department.

PS. How many extra emails have we generated on this topic, LOL????

[ ] RE: Sorry

> I am sleep deprived and when I get this way I clean ...figure I will

> burn myself out and the body will crash...when I clean I think....so

> excuse the length of this but I have to get it out...I found this

> group trying to help my sister-in-law...who had called me hysterically

> after being diagnosed with RA...she figured having scleroderma-lupus I

> could help. I told her i didnt know much about RA and suggested a

> group so she could read and learn and she asked me to find one as she

> was a compuetr newbie. I reluctantly agreed as I had just decided to

> not do the support group thing anymore...here is why ...I signed up

> for a scleroderma group...the is 5 women who basically -++++are the

> group..members were welcomed when they first signed up...but if you

> asked a question it was ignored...there was constant drivvel amongst

> the five about men-in-tool belts but never any concrete info..one of

> the newbies said something and was told to get a life....if she was

> looking for information hit the scleroderma sights....and if she

> wanted to cry and whine find a local support group...and the drivvle

> went on...one asked what was the matter that they didnt want to talk

> to her and she got lamb basted...then me being redheaded and the

> person they lambbasted a cyber friend I shot off my mouth...ok fingers

> ...and was told I was a grouchy pants....so I left and decided that

> was it....when I found this group...I was amazed the moderators did

> not snippety-do-da the messages...not every message had to go through

> them...there was a wealth of information as well as real people that

> cared and communicated with each other..I looked at the message

> activity and was amazed at all the different people that were

> posting...I felt welcomed ...I understand in any group there is people

> for whatever reason you will seem to bond with and others not...but

> this group seems to accept all...I have never felt unwelcome even with

> the fact I didnt have RA...the combo of

> articles...humor...crying...caring cyber hugs and the rest...all make

> this group a real group....I have found another scleroderma group that

> is kind...and have digest sent to me to keep current with all new info

> in the scleroderma field and with others symptoms..I barely ever post

> there as for me it is more for info...this group as others has said is

> like family....I realize opinions are like a$$$holes and evryone has

> one...but in this group I have always felt it was OK to give

> mine....and the saying you can please some of the people some of the

> time but not all the people all the time does come to mind...people in

> this group are sick and in pain and sometimes things are said that may

> be taken wrong by others that are sick and in pain...but on the whole

> it is a great group...I am sorry this is so long ...and once again I

> am expressing an opinion but I had to get this out...Kathi in OK

August 5, 2002

Oops, we¹re generating another one

I just have to add my two cents. We¹ve always shared our lives other than

our illnesses.

It¹s nice to hear about things going on in everyone¹ life. This group is an

extension of my family.

Yes, It¹s a large one with many different personalities that makes it so

interesting. When we have a lot of people leaving due to the large amount

of mail, I try to think about what I can do to accommodate everyone, but I

just can¹t. Other than marking the subject OT, there is nothing else we can

do.

There are several options to help deal with the large quantity, either

getting the digest or reading it from the website. Occasionally you will

see me mention that these other options exist, and this if for the benefit

of those that are having a difficult time managing the mail. It is not said

to curtail conversations in any way. I just want the new members to know

that there are alternatives to mail delivery. To restrict the quantity of

mail is to strip away the personality of the list. We just can¹t talk about

being ill 24/7.

I¹ve always wondered if only nice people get RA since our group is full of

wonderful, caring, and considerate people who do what they can to comfort

and support a fellow sufferer. It is a pleasure to see how we all get

along so well.

a

August 5, 2002

Kathi,

I¹m sorry the scleraderma group was like that, but sure glad you found us.

Although this group was originally started for RA, it has grown to include

any of the autoimmune diseases. They are all related, but just affects a

different part of our body. Many of these diseases are treated the same.

I hope our group can always remain a free spirit, with no censorship.