Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 Hi Everyone, I did read with interest 's Message and although I usually don't write, I just like to mention that I am still on 100 mg Dasatinib, since almost 2 years and am doing alright with some side effects like headaches, sore neck or Joints. CML was not detectable since my last 2 BMB's. I am now awaiting the results for my last BMB which was done 7 days ago. The fluid which had been detected with my last chest xray some 9 months ago seem to have disappeared, although my breathing becomes somewhat heavy when walking a small hill or upstairs. Since many many weeks I do have hourly sweats every night, sleeping for about one hour at the time, then waking wet and hot. It is the same during day, with burning hot flushes and sweats. I feels as if I'm burning from inside. I started taking my Temperature when the flushes occur and thereafter. It seems that my Temperature is always between 37.2 and 37.8. Lower when no flushes and higher when the burning sensation occurs. I am on HRT and don't think it has anything to do with hormones, even if it had it would not show as Temperature. I am wondering if anyone else is experiencing the same? Wishing everyone Health and Happiness! Ursula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 Hi Ursula, You've had quite a ride lately. I haven't had those heat flashes but I'd suggest that you get posssibly more frequent blood tests and I'm just assuming you've kept your onc fully informed. If you haven't then I'd suggest you see him. These side efffects are often more than just uncomfortable. So glad you've overcome pleural effusion to a great degree. It gives me hope, too. Bests, L [ ] Dasatinib Trial Hi Everyone, I did read with interest 's Message and although I usually don't write, I just like to mention that I am still on 100 mg Dasatinib, since almost 2 years and am doing alright with some side effects like headaches, sore neck or Joints. CML was not detectable since my last 2 BMB's. I am now awaiting the results for my last BMB which was done 7 days ago. The fluid which had been detected with my last chest xray some 9 months ago seem to have disappeared, although my breathing becomes somewhat heavy when walking a small hill or upstairs. Since many many weeks I do have hourly sweats every night, sleeping for about one hour at the time, then waking wet and hot. It is the same during day, with burning hot flushes and sweats. I feels as if I'm burning from inside. I started taking my Temperature when the flushes occur and thereafter. It seems that my Temperature is always between 37.2 and 37.8. Lower when no flushes and higher when the burning sensation occurs. I am on HRT and don't think it has anything to do with hormones, even if it had it would not show as Temperature. I am wondering if anyone else is experiencing the same? Wishing everyone Health and Happiness! Ursula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Ursula, I'm 35 on now 100mg once day. Just when I thought there was a side affect that was my imagination. I've been having " hot " flashes. My temp is usually slightly elevated at 100.4 F or so. I don't start sweating because it's been so cold. I just adjusted my dose down yesterday from 140 a day. I've been getting winded this past week. I know the hot flashes are not hormonal as my periods are pretty regular and I'm only 35! Just thought you'd like to know. I don't find Ibubuprofen makes a difference with the hot flashes (not a fever.) I don't get night sweats, but kick off the blankets etc. Take care. --- In , " cosmicgoddess1 " <cosmicgoddess1@...> wrote: > > > Hi Everyone, > > I did read with interest 's Message and although I usually don't > write, I just like to mention that I am still on 100 mg Dasatinib, > since almost 2 years and am doing alright with some side effects like > headaches, sore neck or Joints. > CML was not detectable since my last 2 BMB's. > > I am now awaiting the results for my last BMB which was done 7 days ago. > The fluid which had been detected with my last chest xray some 9 > months ago seem to have disappeared, although my breathing becomes > somewhat heavy when walking a small hill or upstairs. > > Since many many weeks I do have hourly sweats every night, sleeping > for about one hour at the time, then waking wet and hot. > > It is the same during day, with burning hot flushes and sweats. > I feels as if I'm burning from inside. > > I started taking my Temperature when the flushes occur and thereafter. > It seems that my Temperature is always between 37.2 and 37.8. > Lower when no flushes and higher when the burning sensation occurs. > > I am on HRT and don't think it has anything to do with hormones, even > if it had it would not show as Temperature. > > I am wondering if anyone else is experiencing the same? > > Wishing everyone Health and Happiness! > > Ursula > Quote Link to comment Share on other sites More sharing options...
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