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Chad,

Quite a coincidence, your employer lets you go after finding out you

have CMT. Definite discrimination. Can you still do your job? Can you

still do your job if your employer makes modifications to accomodate

your needs? You said your 'employer felt it would be best for you to

sttep down'. Did YOU have a say in this decision? Was your doctor

informed? Did your doctor ever tell you that you would need to step

down from your work? Did you ask for a meeting to try to appeal your

employer's decision? (like one that includes you, your employer, your

medical rep and legal rep)

Assumming you can still do any job as you said, immediately file for

unemployment benefits. This will bring in some $, but better than

nothing for now.Since you're able to work, I'd suggest filing for unemployment;

the offices will also have job postings/leads. If your CMT in no way affects

your work or your quality of work or the kind of work you do, I would not

mention it to future employers.

Or, if you are not able to do your former job, see if your State has

State disability. This is only temporary in some states for 1 year,

but would be helpful to you financially right now to get into. But,

you cannot claim both unemployment and disability at the same time.

State Rehab services are generally for those disabled people already

receiving disability benefits who need to be retrained for another

job. They do not offer $.

Fight that employer's " decision " ! Look up the ADA and review their

site. They have an 800 number as well.

~ Gretchen

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  • 2 years later...

Hi my name is dante.. yeah i heard about that! my question im recieving social

security disability checks.. will this affect my checks if i enroll from the

LLS? Thanks!

donnaberry99 <no_reply > wrote: This is probably old

news to some of you but.......are you guys aware

that you can get up to $500 a year from the Leukemia/Lymphoma Society?

It is for the cost of co-pays and various medical expenses (they pay

gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If anyone

is interested let me know I will get you the info on how to claim.

Donna

---------------------------------

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I'm interested on more information but wondering if it's based on income.

Thank you as I was not aware of this!

donnaberry99 <no_reply > wrote:

This is probably old news to some of you but.......are you guys aware

that you can get up to $500 a year from the Leukemia/Lymphoma Society?

It is for the cost of co-pays and various medical expenses (they pay

gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If anyone

is interested let me know I will get you the info on how to claim.

Donna

---------------------------------

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It is not based on income. Anyone who is diagnosed with certain

blood cancers (including CML) is eligible. We contacted our local

chapter of the Leukemia & Lymphoma Society and requested information

on the patient financial aid program. You can also get all of the

information, including the application, on their website.

It was super easy to apply, turn in the request and we actually

received our first $500 check 2 weeks ago. As I am sure you know,

every little bit helps. Especially if you, like us, are traveling to

other states for treatment. Those costs can add up quick!

Good luck to you.

Laurie

Wife of Robb (diagnosed on 12/24/06)

In remission since 10/18/07

> This is probably old news to some of you but.......are

you guys aware

> that you can get up to $500 a year from the Leukemia/Lymphoma

Society?

> It is for the cost of co-pays and various medical expenses (they

pay

> gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If

anyone

> is interested let me know I will get you the info on how to claim.

> Donna

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

>

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Thank you soooo much and yes, every little bit helps.

" law.williams717 " <rwilli72@...> wrote: It is not based on

income. Anyone who is diagnosed with certain

blood cancers (including CML) is eligible. We contacted our local

chapter of the Leukemia & Lymphoma Society and requested information

on the patient financial aid program. You can also get all of the

information, including the application, on their website.

It was super easy to apply, turn in the request and we actually

received our first $500 check 2 weeks ago. As I am sure you know,

every little bit helps. Especially if you, like us, are traveling to

other states for treatment. Those costs can add up quick!

Good luck to you.

Laurie

Wife of Robb (diagnosed on 12/24/06)

In remission since 10/18/07

> This is probably old news to some of you but.......are

you guys aware

> that you can get up to $500 a year from the Leukemia/Lymphoma

Society?

> It is for the cost of co-pays and various medical expenses (they

pay

> gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If

anyone

> is interested let me know I will get you the info on how to claim.

> Donna

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

>

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No it's not based on income at all.

From: pmiller789@...

Date: Thu, 20 Dec 2007 05:52:23 -0800

Subject: Re: [ ] Financial Help

I'm interested on more information but wondering if it's based on

income.

Thank you as I was not aware of this!

donnaberry99 <no_reply > wrote:

This is probably old news to some of you but.......are you guys aware

that you can get up to $500 a year from the Leukemia/Lymphoma Society?

It is for the cost of co-pays and various medical expenses (they pay

gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If anyone

is interested let me know I will get you the info on how to claim.

Donna

---------------------------------

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In going into the web site it's not based on income and no bearing whether you

are working or not. It's based on the fact that we are surviving CML and

assistance is out there.

Rosen Lum <rrosenlum@...> wrote:

No it's not based on income at all.

From: pmiller789@...

Date: Thu, 20 Dec 2007 05:52:23 -0800

Subject: Re: [ ] Financial Help

I'm interested on more information but wondering if it's based on income.

Thank you as I was not aware of this!

donnaberry99 <no_reply > wrote:

This is probably old news to some of you but.......are you guys aware

that you can get up to $500 a year from the Leukemia/Lymphoma Society?

It is for the cost of co-pays and various medical expenses (they pay

gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If anyone

is interested let me know I will get you the info on how to claim.

Donna

---------------------------------

Looking for last minute shopping deals? Find them fast with Search.

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> This is probably old news to some of you but.......are you guys aware

> that you can get up to $500 a year from the Leukemia/Lymphoma Society?

> It is for the cost of co-pays and various medical expenses (they pay

> gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If anyone

> is interested let me know I will get you the info on how to claim.

> Donna

>

> i am very interested in learning how to get some reimbursement for the

cost of gleevec. We pay $2,500.00 per month for insurance for my

husband and I (who by the way also has cancer) and after insurance pays

it's share my cost out of pocket on Gleevec is $800.00. With my

husbands prescriptions and my other ones, our pharmacy bill is around

$1800.00 per month, so we are paying over $4,000. per month out of

pocket. We have been forced to sell our business so we can be on a

larger group policy. I was diagnosed in April of '06, my husband this

past March. I would appreciate if you would tell me how I can apply

for t his money as it surely would help. We drive 90 miles to our

oncologist. My husband drove this daily for 33 days for radiation!

I appreciate your help at email rontina@... thank you

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>

> This is probably old news to some of you but.......are you guys

aware

> that you can get up to $500 a year from the Leukemia/Lymphoma

Society?

> It is for the cost of co-pays and various medical expenses (they pay

> gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If

anyone

> is interested let me know I will get you the info on how to claim.

> Donna

>

Hi Donna,

I am interested in how to recieve help.

Thanks,

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  • 1 month later...

How do you claim dr. visits?

T

-------------- Original message ----------------------

From: donnaberry99 <no_reply >

> This is probably old news to some of you but.......are you guys aware

> that you can get up to $500 a year from the Leukemia/Lymphoma Society?

> It is for the cost of co-pays and various medical expenses (they pay

> gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If anyone

> is interested let me know I will get you the info on how to claim.

> Donna

>

>

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I submitted to have my office visits and the expenses medicare did not cover

for my last BMB and got an email back from the local Leukemia Society that

they do not cover Doc visits or BMB's!?!?? I was pretty shocked and ticked

off because the bill was under $500. The lady said she was going to send me

$5 for milage..I felt that was like a smack in the face. Why the hell would

the Leukemia Society not cover BMB " S???

On Feb 2, 2008 1:24 PM, <mtadros9@...> wrote:

> How do you claim dr. visits?

>

> T

> -------------- Original message ----------------------

> From: donnaberry99 <no_reply <no_reply%40>>

> > This is probably old news to some of you but.......are you guys aware

> > that you can get up to $500 a year from the Leukemia/Lymphoma Society?

> > It is for the cost of co-pays and various medical expenses (they pay

> > gas allowance of 5c a mile to Dr visits,plane tickets etc.,) If anyone

> > is interested let me know I will get you the info on how to claim.

> > Donna

> >

> >

>

>

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Hi Terry,

I am sorry that the LLS couldn't help you. Here are some links that

describe their financial assistance programs:

http://www.leukemia-lymphoma.org/all_page?item_id=452658

http://www.leukemia-lymphoma.org/all_page?item_id=4603

A description of what is/isn't covered is on the webpages along with

downloadable application forms.

Barb Neddo

http://www.caringbridge.org/wi/tomneddo Tom's Bone Marrow Transplant

Journey

> .

>

>

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Thanks Barb I will look into it but I am so disillusioned with them saying

BMB's are not covered??

On Feb 3, 2008 12:11 PM, Barb Neddo <barb.neddo@...> wrote:

> Hi Terry,

> I am sorry that the LLS couldn't help you. Here are some links that

> describe their financial assistance programs:

> http://www.leukemia-lymphoma.org/all_page?item_id=452658

> http://www.leukemia-lymphoma.org/all_page?item_id=4603

> A description of what is/isn't covered is on the webpages along with

> downloadable application forms.

> Barb Neddo

>

> http://www.caringbridge.org/wi/tomneddo Tom's Bone Marrow Transplant

> Journey

>

> > .

> >

> >

>

>

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