Absolute Neutrophil Count -

[Guest guest]

Hello

I do not post much on this site as my situation is

not the same as many on here. I do not like to give

advice as there will be many who will not agree.

but.... I am alway neutropenia.. yep always

my ANC Absolute Neutrophil Count runs anywhere

from 600 down to around 300. my white count and Hgb

are alway low and so are my platelets.. Maybe because

I am most likely the longest survivor with this

problem or there is nothing they can do except watch,

I am not sure... but my doc says I am doing fine on

Nilotinib.. which is the big brother to Gleevec.

my report goes something like= " Interprative Messages

Laukopenia, Neutroenia plt interpretation not

possible= " .on that report my ANC was around 500..

how you get the exact reading is to multiply your wbc

by Neutrophil (wbc X Nytrophil) for instance if your

WBC is 2.3

your NE is 28.1 your ANC is 640. As for being tired

I think you may have misunderstood your doctor, any

blood disorders will make you tired. I would question

him again.. when my Hgb is down below 100 I hear the

thump thump in my ears and it gets louder as it

drops..and then I am very tired around the 800 mark,I

wish you well, I have lived with this problem for 30

years... and have not suffered to badly in fact I feel

great.. relax it is a long ride.. If your not

comfortable with your Hem doc ask for another and

another until you feel comfortable.. it will take

time.

ANC below 2000 is considered to be neutropenia

ANC between 1000-1500 fairly low risk of infection.

Chemotherapy will usually be given in this range, but

not below it.

ANC between 500-1000 - moderate risk of infection

ANC below 500 - severe neutropenia - high risk of

infection

--- <untilpayday@...> wrote:

> Hi Everyone,

>

> I'm going to my Onc. tomorrow, and I need some info.

> Last month, I didn't know the proper

> terms, so when I asked him how my immune system was,

> he told me that took very

> specialized tests, and that we couldn't test for

> everything. My confidence in him has become

> quite shaken, especially since he insisted that

> Gleevec didn't cause fatigue, and referred me

> to my psychiatrist.

>

> Well, tomorrow is the deciding appointment. What I

> need to know is how often I should

> expect ad Absolute Neutrophil Count , or ANC be

> done. My visit to the onc came the same

> week one of our members died of pneumonia due to

> being Neutropenic. I couldn't think of

> the term at the time of my appt.

>

> Thanks so much,

>

>

>

>

SkipD

Dx'ed Dec 1978

on Myleran(busulfan) 26 yrs

on Hydroxyurea for about 1 year

on Gleevec for approx 1.5 years

on AMN107(Nilotinib) to now

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