Re: Absolute Neutroophil Count

[Guest guest]

Sounds like you need to find yourself another Oncologist and fast...

Blood test frequency varies depending upon how well you are doing. If ANC counts

are below one, they should be repeated even on a daily basis, until you get it

over 1 and in view of chronic low ANC problems (something I know something about

because my wife suffers from such side effect) you should get them on a weekly

basis. You can ask to just have the blood tests done and then a visit only if

the numbers are too low.

Please be aware that there are medications given to fake the bone marrow into

believing an infection is present, tricking it into raising WBC and particularly

ANC cells. The one my wife takes is called Neupogen.

I would also suggest you get a booklet from Novartis to make your Oncologist

read (and you can point to the paragraph...) about fatigue being a common side

effect.

Good luck and don't wait: dump the Onc! And find yourself another Oncologist who

is not only up to date but sympathetic to your plight.

Good luck,

________________________________

From: [mailto: ] On Behalf Of

Sent: Monday, December 03, 2007 4:24 PM

Subject: [ ] Absolute Neutroophil Count

Hi Everyone,

I'm going to my Onc. tomorrow, and I need some info. Last month, I didn't know

the proper

terms, so when I asked him how my immune system was, he told me that took very

specialized tests, and that we couldn't test for everything. My confidence in

him has become

quite shaken, especially since he insisted that Gleevec didn't cause fatigue,

and referred me

to my psychiatrist.

Well, tomorrow is the deciding appointment. What I need to know is how often I

should

expect ad Absolute Neutrophil Count , or ANC be done. My visit to the onc came

the same

week one of our members died of pneumonia due to being Neutropenic. I couldn't

think of

the term at the time of my appt.

Thanks so much,

-----------------------------------------

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[Guest guest]

Thanks ,

I am considering leaving the Onc.  At this time, I am just building a " case " so

to speak, in order to justify a referral outside my group.  If there are no

problems, how often is the ANC done?

[ ] Absolute Neutroophil Count

Hi Everyone,

I'm going to my Onc. tomorrow, and I need some info. Last month, I didn't know

the proper

terms, so when I asked him how my immune system was, he told me that took very

specialized tests, and that we couldn't test for everything. My confidence in

him has become

quite shaken, especially since he insisted that Gleevec didn't cause fatigue,

and referred me

to my psychiatrist.

Well, tomorrow is the deciding appointment. What I need to know is how often I

should

expect ad Absolute Neutrophil Count , or ANC be done. My visit to the onc came

the same

week one of our members died of pneumonia due to being Neutropenic. I couldn't

think of

the term at the time of my appt.

Thanks so much,

-----------------------------------------

This message and any attachments are intended only for the use of

the addressee and may contain information that is privileged and

confidential. If the reader of the message is not the intended

recipient or an authorized representative of the intended

recipient, you are hereby notified that any dissemination of this

communication is strictly prohibited. If you have received this

communication in error, notify the sender immediately by return

email and delete the message and any attachments from your system.

[Guest guest]

The ANC is part of the overall blood profile test, which should be done

every time you go visit your Oncologist, who should set his appointments

with you based on how well you are doing.

The Oncologist should know, as part of his/her expertise, how often you

need to be seen.

My wife who is now prcu gets it done on a monthly basis and if at any

visit the ANC goes below 1, then she takes a Neupogen shot and we set

the visits 2 weeks apart until things get better again.

Best wishes,

mario

________________________________

From: [mailto: ] On Behalf Of

untilpayday@...

Sent: Monday, December 03, 2007 4:47 PM

Subject: Re: [ ] Absolute Neutroophil Count

Thanks ,

I am considering leaving the Onc. At this time, I am just building a

" case " so to speak, in order to justify a referral outside my group. If

there are no problems, how often is the ANC done?

[ ] Absolute Neutroophil Count

Hi Everyone,

I'm going to my Onc. tomorrow, and I need some info. Last month, I

didn't know the proper

terms, so when I asked him how my immune system was, he told me that

took very

specialized tests, and that we couldn't test for everything. My

confidence in him has become

quite shaken, especially since he insisted that Gleevec didn't cause

fatigue, and referred me

to my psychiatrist.

Well, tomorrow is the deciding appointment. What I need to know is how

often I should

expect ad Absolute Neutrophil Count , or ANC be done. My visit to the

onc came the same

week one of our members died of pneumonia due to being Neutropenic. I

couldn't think of

the term at the time of my appt.

Thanks so much,

-----------------------------------------

This message and any attachments are intended only for the use of

the addressee and may contain information that is privileged and

confidential. If the reader of the message is not the intended

recipient or an authorized representative of the intended

recipient, you are hereby notified that any dissemination of this

communication is strictly prohibited. If you have received this

communication in error, notify the sender immediately by return

email and delete the message and any attachments from your system.

[Guest guest]

Hi ,

Your doctor's response reflects the reality. The " immune system " is

composed of many elements and dynamics and can not be tested with one

single test.

Do you keep copies of your blood test results? In my case, the

#neutrophil and %neutrophil show systematicaly on every blood test.

all my best,

myriam

On Mon, 03 Dec 2007 21:23:59 -0000, " " <untilpayday@...> said:

> Hi Everyone,

>

> I'm going to my Onc. tomorrow, and I need some info. Last month, I

> didn't know the proper

> terms, so when I asked him how my immune system was, he told me that took

> very

> specialized tests, and that we couldn't test for everything. My

> confidence in him has become

> quite shaken, especially since he insisted that Gleevec didn't cause

> fatigue, and referred me

> to my psychiatrist.

>

> Well, tomorrow is the deciding appointment. What I need to know is how

> often I should

> expect ad Absolute Neutrophil Count , or ANC be done. My visit to the

> onc came the same

> week one of our members died of pneumonia due to being Neutropenic. I

> couldn't think of

> the term at the time of my appt.

>

> Thanks so much,

>

>

>

>

>

>

>

[Guest guest]

Hi ,

The ANC is part of the CBC (complete blood count)--the test which

counts the number of the different types of cells in your blood. If

you have a problem with your ANC the test should be done more often

than if you don't. Also your level of remission and how long you have

had cml is all part of what determines how often to get a CBC. I have

had cml for over 7 years and have had a low ANC much of the time. The

timing of my testing is determined by my doctor at MDACC where I was

on an early trial of Gleevec. I initially had a cbc once every 6

weeks but now get one every 3 months because I have been stable for

such a long time. If I get a CBC that shows an ANC of 1.2 or less I

would get another CBC in 6 weeks rather than waiting 3 months. When I

first started treatment however, I did get a CBC every week for the

first couple months until things leveled out. At that time my ANC

was below 1 so it was watched carefully. Hope this helps.

Best wishes,

Dorothy

On Dec 3, 2007, at 4:47 PM, untilpayday@... wrote:

> Thanks ,

>

> I am considering leaving the Onc. At this time, I am just building

> a " case " so to speak, in order to justify a referral outside my

> group. If there are no problems, how often is the ANC done?

>

>

>

> [ ] Absolute Neutroophil Count

>

> Hi Everyone,

>

> I'm going to my Onc. tomorrow, and I need some info. Last month, I

> didn't know the proper

>

> terms, so when I asked him how my immune system was, he told me that

> took very

>

> specialized tests, and that we couldn't test for everything. My

> confidence in him has become

>

> quite shaken, especially since he insisted that Gleevec didn't cause

> fatigue, and referred me

>

> to my psychiatrist.

>

> Well, tomorrow is the deciding appointment. What I need to know is

> how often I should

>

> expect ad Absolute Neutrophil Count , or ANC be done. My visit to

> the onc came the same

>

> week one of our members died of pneumonia due to being Neutropenic.

> I couldn't think of

>

> the term at the time of my appt.

>

> Thanks so much,

>

>

>

> -----------------------------------------

>

> This message and any attachments are intended only for the use of

>

> the addressee and may contain information that is privileged and

>

> confidential. If the reader of the message is not the intended

>

> recipient or an authorized representative of the intended

>

> recipient, you are hereby notified that any dissemination of this

>

> communication is strictly prohibited. If you have received this

>

> communication in error, notify the sender immediately by return

>

> email and delete the message and any attachments from your system.

>

>