Thank you for welcoming me.

[Guest guest]

Sounds like you have a good attitude anyway. Since I have been dx there

have been a couple of improvements already. They were using what they now

call " monotherapy " , which was interferon alone and then

non-responders went on the " combo " , which was ribavarin and

interferon. The results were so much better, they stopped trying the

monotherapy first. I got the combo, and the pegylated version was just

becoming available, but not in combo with the ribavarin. Some kind of

licensing or patent thing. I think with monotherapy they only had

10 or 15% success. With the combo it was up to 30%, and I believe they

are getting around 50% now, so as they (the government and fda) pull

their head out of their nether regions and realize the scope of this

problem, I think they'll dedicate more time and resources to better

treatments. -dz-

At 02:00 PM 1/22/2005, you wrote:

I appreciate being welcomed

to the group.

I tested positive for HepC in 2001. I got it around that time

because

I was tested in 2000 and was found negative. I'm glad it was

detected

on time for early treatment. That's the good news. The bad

news is

that I have treated it twice already with no response. I just stop

my

second try. I'm unhappy that I went through all the side effects

and

very few of the benefits. Yet, life goes on. Not giving

up.

[Guest guest]

Hi Zavie, Tracey, Tammy and ,

Thank you guys. Hope you and your family are all well. I will start

with Glivec treatment in 2 weeks and my starting dose will be 600 mg. I

will be switched to Tesigna (Nilotinib) if I am not responding well

with Glivek. This is the new clinical trial designed by Prof. .

This group is amazing. Ths spirit and mood is so uplifting and

optimistic. I hope to learn many things about CML through this support

group.

Take care everyone.

Ray

[Guest guest]

Hi Ray,

Best of luck with your treatment.I am on day 9 now - my bloods were good

this week except my WCC is still up of course. I spoke to my haem/ about

my symptoms with the headache and puffy sore eyes and he said I could go

to Glivec every 2nd day, but they are resolving a little - not as intense

thank goodness. I'm happy to stay on 400mg daily to get on top of this

pesky thing. Yeah my Dr said he would put me on that drug(Nilotinib) also

if no result. He is off to a conference in QLD next week, of which one of

the topics is CML and the lastest treatment!

I showed my dogs for the first time today since starting Glivec and

thought I wasn't going to make it round the ring the first time......but I

did and survived and had a successful day! There is no way I am going to

let this beat me. The other problem is I have now got reflux and my

oesophagus is getting inflamed and as happens, now have gone onto a acid

reducer to fix this LOL.

Good luck and take care,

Rodorbal Labradors and Dachshund Smooths

www.geocities.com/rodorbal

> Hi Zavie, Tracey, Tammy and ,

>

> Thank you guys. Hope you and your family are all well. I will start

> with Glivec treatment in 2 weeks and my starting dose will be 600 mg. I

> will be switched to Tesigna (Nilotinib) if I am not responding well

> with Glivek. This is the new clinical trial designed by Prof. .

>

> This group is amazing. Ths spirit and mood is so uplifting and

> optimistic. I hope to learn many things about CML through this support

> group.

>

> Take care everyone.

>

> Ray

>

>

[Guest guest]

Hi and Ray,

I want to echo , by wishing you good luck with your treatment Ray. I am

a bit concerned by the high dosage level they seem to be starting people out

at with Gleevec lately though. From my understanding 400mg's is the normal

level to start on. At least that is what they started me on and I have never

had to raise my dosage. Of course I am not a doctor and everyone's body is

different and reacts differently to medications. For allot of people the

side effects they have do get better, and some do not have many side effects

at all. So hang in there:)

Terry

DXed April 04

40 years old

On 10/5/07, Malseed <rodorbal@...> wrote:

>

> Hi Ray,

>

> Best of luck with your treatment.I am on day 9 now - my bloods were good

> this week except my WCC is still up of course. I spoke to my haem/ about

> my symptoms with the headache and puffy sore eyes and he said I could go

> to Glivec every 2nd day, but they are resolving a little - not as intense

> thank goodness. I'm happy to stay on 400mg daily to get on top of this

> pesky thing. Yeah my Dr said he would put me on that drug(Nilotinib) also

> if no result. He is off to a conference in QLD next week, of which one of

> the topics is CML and the lastest treatment!

>

> I showed my dogs for the first time today since starting Glivec and

> thought I wasn't going to make it round the ring the first time......but I

> did and survived and had a successful day! There is no way I am going to

> let this beat me. The other problem is I have now got reflux and my

> oesophagus is getting inflamed and as happens, now have gone onto a acid

> reducer to fix this LOL.

>

> Good luck and take care,

>

>

> Rodorbal Labradors and Dachshund Smooths

>

> www.geocities.com/rodorbal

>

> > Hi Zavie, Tracey, Tammy and ,

> >

> > Thank you guys. Hope you and your family are all well. I will start

> > with Glivec treatment in 2 weeks and my starting dose will be 600 mg. I

> > will be switched to Tesigna (Nilotinib) if I am not responding well

> > with Glivek. This is the new clinical trial designed by Prof. .

> >

> > This group is amazing. Ths spirit and mood is so uplifting and

> > optimistic. I hope to learn many things about CML through this support

> > group.

> >

> > Take care everyone.

> >

> > Ray

> >

> >

>

>

>