Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hi Donna, If you weren't negative with the left-over trauma still not that far back, you wouldn't be normal. However, I know many CML patients who have had various traumas in addition to the diagnosis itself, turn to mental health professionals for help and often take anti-depressants. I suggest you have your oncologist or someone you trust, recommend a psychiatrist for an evaluation. Then there are the usual ideas for exercise and doing anything that makes you happy. Good luck! Something will help. L [ ] Manic Days Dear All, I was diagnosed in May with CML, " presented " with a white blood count of half a million making it seem more like AML, was given 6 days of chemo which brought the WBC down but plumetted everything else after many blood and platelette transfusions and with the final diadnosis of CML I guess you could say I am doing well, latest tests showed only 0.6 of bad stuff in my blood but 96% still in bone marrow. I am on 400mg of Gleevec daily my Dr. tells me I am where he would have expected me to be at a year (a good thing apparently). I am 48 years old and a Mother of 4 I am tired alot now and find it hard to face the fact that I cant do what I did before. I seem to tick along OK then something sets me off and I am depressed and angry for days, is this " normal " how can I stop being negative?? Regards Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 > > Hi Donna, > > If you weren't negative with the left-over trauma still not that far back, you wouldn't be normal. However, I know many CML patients who have had various traumas in addition to the diagnosis itself, turn to mental health professionals for help and often take anti- depressants. I suggest you have your oncologist or someone you trust, recommend a psychiatrist for an evaluation. Then there are the usual ideas for exercise and doing anything that makes you happy. > > Good luck! Something will help. > > L > [ ] Manic Days > > > Dear All, > I was diagnosed in May with CML, " presented " with a white blood count > of half a million making it seem more like AML, was given 6 days of > chemo which brought the WBC down but plumetted everything else after > many blood and platelette transfusions and with the final diadnosis of > CML I guess you could say I am doing well, latest tests showed only 0.6 > of bad stuff in my blood but 96% still in bone marrow. I am on 400mg > of Gleevec daily my Dr. tells me I am where he would have expected me > to be at a year (a good thing apparently). I am 48 years old and a > Mother of 4 I am tired alot now and find it hard to face the fact that > I cant do what I did before. I seem to tick along OK then something > sets me off and I am depressed and angry for days, is this " normal " how > can I stop being negative?? > Regards Donna > > Hi Thanks for the reply...funny you should say that...I have a bottle of Paxil sitting on my Kitchen counter, if only I could give in and take one!!! Donna > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hi Donna, Welcome to the club that nobody really wants to be a member of. Fatigue is a common side affect of Gleevec treatment. The good news is that it usually goes away after a while. In my own case, it took about 9 months before it went away. Don't give up. Can you tell me what test was used to give you the 0.6 result? If feeling negative is something new for you, then I would definitely see a health professional about it. Good luck, Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 3.6 log reduction Sep/07 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of donnaberry99 Sent: October 22, 2007 10:06 AM Subject: [ ] Manic Days Dear All, I was diagnosed in May with CML, " presented " with a white blood count of half a million making it seem more like AML, was given 6 days of chemo which brought the WBC down but plumetted everything else after many blood and platelette transfusions and with the final diadnosis of CML I guess you could say I am doing well, latest tests showed only 0.6 of bad stuff in my blood but 96% still in bone marrow. I am on 400mg of Gleevec daily my Dr. tells me I am where he would have expected me to be at a year (a good thing apparently). I am 48 years old and a Mother of 4 I am tired alot now and find it hard to face the fact that I cant do what I did before. I seem to tick along OK then something sets me off and I am depressed and angry for days, is this " normal " how can I stop being negative?? Regards Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hi Donna, You didn’t decide to stare at your Gleevec before you gave in to take the pill. Are you thinking that giving in to take Paxel is showing some sign of weakness? Depression is a medical condition and there are drugs that work well for that problem. Sorry if I’m abrupt. I normally respond this way in a private message but I don’t see your email address. Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 3.6 log reduction Sep/07 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of donnaberry99 Sent: October 22, 2007 11:08 AM Subject: Re: [ ] Manic Days > > Hi Donna, > > If you weren't negative with the left-over trauma still not that far back, you wouldn't be normal. However, I know many CML patients who have had various traumas in addition to the diagnosis itself, turn to mental health professionals for help and often take anti- depressants. I suggest you have your oncologist or someone you trust, recommend a psychiatrist for an evaluation. Then there are the usual ideas for exercise and doing anything that makes you happy. > > Good luck! Something will help. > > L > [ ] Manic Days > > > Dear All, > I was diagnosed in May with CML, " presented " with a white blood count > of half a million making it seem more like AML, was given 6 days of > chemo which brought the WBC down but plumetted everything else after > many blood and platelette transfusions and with the final diadnosis of > CML I guess you could say I am doing well, latest tests showed only 0.6 > of bad stuff in my blood but 96% still in bone marrow. I am on 400mg > of Gleevec daily my Dr. tells me I am where he would have expected me > to be at a year (a good thing apparently). I am 48 years old and a > Mother of 4 I am tired alot now and find it hard to face the fact that > I cant do what I did before. I seem to tick along OK then something > sets me off and I am depressed and angry for days, is this " normal " how > can I stop being negative?? > Regards Donna > > Hi Thanks for the reply...funny you should say that...I have a bottle of Paxil sitting on my Kitchen counter, if only I could give in and take one!!! Donna > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hi Donna, I am new to this group, but I'm certainly not new to depression. We live in a world where we are taught to just tough it out, and only the weak need pills to handle depression. It takes courage to step over and treat the disease. We have taken such a huge hit, it's hard to get our mind around it all. THis is cancer. This is scary. On top of that, your body is weakened, and you have fatigue. I think you were very brave to share your negative feelings, and I hope you choose the best treatment to get through. I personally could never handle this ordeal without help, but that is my body chemistry. I just hate to hear of people suffering when they may be able to get help. One thing though, with depression, I've learned, sometimes it takes a little while to find the right treatment. Please don't give up if all doesn't go well right away. Remember, you are not alone in this, many people experience depression, and it can be debiltating. I wish the best for you. Just know that most people wouldn't think you were weak for getting help. And those who would don't need to know all the details. So, I hope that all made sense. Because of my depression and CML, I'm not always clear. I was just moved to respond. Take care of yourself. H. > > > > Hi Donna, > > > > If you weren't negative with the left-over trauma still not that > far back, you wouldn't be normal. However, I know many CML patients > who have had various traumas in addition to the diagnosis itself, > turn to mental health professionals for help and often take anti- > depressants. I suggest you have your oncologist or someone you > trust, recommend a psychiatrist for an evaluation. Then there are > the usual ideas for exercise and doing anything that makes you happy. > > > > Good luck! Something will help. > > > > L > > [ ] Manic Days > > > > > > Dear All, > > I was diagnosed in May with CML, " presented " with a white blood > count > > of half a million making it seem more like AML, was given 6 days > of > > chemo which brought the WBC down but plumetted everything else > after > > many blood and platelette transfusions and with the final > diadnosis of > > CML I guess you could say I am doing well, latest tests showed > only 0.6 > > of bad stuff in my blood but 96% still in bone marrow. I am on > 400mg > > of Gleevec daily my Dr. tells me I am where he would have > expected me > > to be at a year (a good thing apparently). I am 48 years old and > a > > Mother of 4 I am tired alot now and find it hard to face the fact > that > > I cant do what I did before. I seem to tick along OK then > something > > sets me off and I am depressed and angry for days, is > this " normal " how > > can I stop being negative?? > > Regards Donna > > > > Hi > Thanks for the reply...funny you should say that...I have a bottle of > Paxil sitting on my Kitchen counter, if only I could give in and take > one!!! > Donna > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hello Donna, I was diagnosed with CML on Oct. 16, 2007, and I have to admit that I have cried a lot since than. I am faced now with two options; a) continue to cry b)Face this head on with God's help and try to live with the side effects. I hope this helps Claudemir >From: donnaberry99 <no_reply > >Reply- > >Subject: [ ] Manic Days >Date: Mon, 22 Oct 2007 14:05:59 -0000 >MIME-Version: 1.0 >X-Originating-IP: 69.147.64.166 >Received: from bay0-mc9-f23.bay0.hotmail.com ([65.54.245.2]) by >bay0-imc1-s20.bay0.hotmail.com with Microsoft SMTPSVC(6.0.3790.2444); Mon, >22 Oct 2007 07:28:32 -0700 >Received: from n34.bullet.mail.sp1. ([66.163.168.48]) by >bay0-mc9-f23.bay0.hotmail.com with Microsoft SMTPSVC(6.0.3790.2668); Mon, >22 Oct 2007 07:28:27 -0700 >Received: from [216.252.122.218] by n34.bullet.mail.sp1. with >NNFMP; 22 Oct 2007 14:28:27 -0000 >Received: from [66.218.69.4] by t3.bullet.sp1. with NNFMP; 22 Oct >2007 14:28:27 -0000 >Received: from [66.218.66.97] by t4.bullet.scd. with NNFMP; 22 Oct >2007 14:28:27 -0000 >Received: (qmail 81900 invoked from network); 22 Oct 2007 14:28:25 -0000 >Received: from unknown (66.218.67.97) by m57.grp.scd. with QMQP; >22 Oct 2007 14:28:25 -0000 >Received: from unknown (HELO n13b.bullet.sp1.) (69.147.64.113) by >mta18.grp.scd. with SMTP; 22 Oct 2007 14:28:25 -0000 >Received: from [216.252.122.216] by n13.bullet.sp1. with NNFMP; 22 >Oct 2007 14:28:25 -0000 >Received: from [66.218.69.5] by t1.bullet.sp1. with NNFMP; 22 Oct >2007 14:28:24 -0000 >Received: from [66.218.66.85] by t5.bullet.scd. with NNFMP; 22 Oct >2007 14:28:24 -0000 >X-Message-Delivery: Vj0zLjQuMDt1cz0wO2k9MDtsPTA7YT0w >X-Message-Info: >R00BdL5giqol9wyllATtXz0HwuaPBCF0HDQTrigSmpuF21mDuu1QOE050QgSkfmYkHq/RZyVYDH+4NC\ xgu0wuw== >Comment: DomainKeys? See http://antispam./domainkeys >DomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=lima; >d=;b=hAcVdptMhHoFUZ3OzOkKEcwcjF4E0IpXg7lA87vR5czalnelPAf5PFfj3t8\ zdGHeNtm7aoxvWOMfH5kVcF8dlYQlzCx9IS+jxH/gx2asFqiiBDIOcGITurpB+epuXc0J; >X--Newman-Id: 14762801-m6850 >X-Apparently- >X-Received: (qmail 90579 invoked from network); 22 Oct 2007 14:06:03 -0000 >X-Received: from unknown (66.218.67.96) by m47.grp.scd. with >QMQP; 22 Oct 2007 14:06:03 -0000 >X-Received: from unknown (HELO n7b.bullet.sp1.) (69.147.64.166) >by mta17.grp.scd. with SMTP; 22 Oct 2007 14:06:03 -0000 >X-Received: from [216.252.122.218] by n7.bullet.sp1. with NNFMP; >22 Oct 2007 14:06:00 -0000 >X-Received: from [66.218.69.3] by t3.bullet.sp1. with NNFMP; 22 >Oct 2007 14:06:00 -0000 >X-Received: from [66.218.66.87] by t3.bullet.scd. with NNFMP; 22 >Oct 2007 14:06:00 -0000 >User-Agent: eGroups-EW/0.82 >X-Mailer: Message Poster >X-eGroups-Msg-Info: 1:12:0:0:0 >X--Profile: donnaberry99 >X-eGroups-Approved-By: traceyincanada <traceyincanada@...> via web; >22 Oct 2007 14:28:24 -0000 >Mailing-List: list ; contact -owner >Delivered-mailing list >List-Id: <.> >Precedence: bulk >List-Unsubscribe: <mailto:-unsubscribe > >X--Newman-Property: groups-email-ff-m >Return-Path: >sentto-14762801-6850-1193063306-sito3=hotmail.com@... >X-OriginalArrivalTime: 22 Oct 2007 14:28:27.0485 (UTC) >FILETIME=[CF9DB8D0:01C814B7] > >Dear All, >I was diagnosed in May with CML, " presented " with a white blood count >of half a million making it seem more like AML, was given 6 days of >chemo which brought the WBC down but plumetted everything else after >many blood and platelette transfusions and with the final diadnosis of >CML I guess you could say I am doing well, latest tests showed only 0.6 >of bad stuff in my blood but 96% still in bone marrow. I am on 400mg >of Gleevec daily my Dr. tells me I am where he would have expected me >to be at a year (a good thing apparently). I am 48 years old and a >Mother of 4 I am tired alot now and find it hard to face the fact that >I cant do what I did before. I seem to tick along OK then something >sets me off and I am depressed and angry for days, is this " normal " how >can I stop being negative?? >Regards Donna > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar - get it now! http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 I think many of us go through that when we are first dxed. You will have to eventually face it but everyone does that on their own time. Just as medications effect people differently, so are how people cope with diseases such as the one we all have. Terry On 10/22/07, Claudemir Tavares <sito3@...> wrote: > > Hello Donna, > > I was diagnosed with CML on Oct. 16, 2007, and I have to admit that I have > > cried a lot since than. > I am faced now with two options; > > a) continue to cry > b)Face this head on with God's help and try to live with the side effects. > > I hope this helps > > Claudemir > > >From: donnaberry99 <no_reply <no_reply%40> > > > >Reply- <%40> > > <%40> > >Subject: [ ] Manic Days > >Date: Mon, 22 Oct 2007 14:05:59 -0000 > >MIME-Version: 1.0 > >X-Originating-IP: 69.147.64.166 > >Received: from bay0-mc9-f23.bay0.hotmail.com ([65.54.245.2]) by > >bay0-imc1-s20.bay0.hotmail.com with Microsoft SMTPSVC(6.0.3790.2444); > Mon, > >22 Oct 2007 07:28:32 -0700 > >Received: from n34.bullet.mail.sp1. ([66.163.168.48]) by > >bay0-mc9-f23.bay0.hotmail.com with Microsoft SMTPSVC(6.0.3790.2668); Mon, > > >22 Oct 2007 07:28:27 -0700 > >Received: from [216.252.122.218] by n34.bullet.mail.sp1. with > >NNFMP; 22 Oct 2007 14:28:27 -0000 > >Received: from [66.218.69.4] by t3.bullet.sp1. with NNFMP; 22 > Oct > >2007 14:28:27 -0000 > >Received: from [66.218.66.97] by t4.bullet.scd. with NNFMP; 22 > Oct > >2007 14:28:27 -0000 > >Received: (qmail 81900 invoked from network); 22 Oct 2007 14:28:25 -0000 > >Received: from unknown (66.218.67.97) by m57.grp.scd. with QMQP; > > >22 Oct 2007 14:28:25 -0000 > >Received: from unknown (HELO n13b.bullet.sp1.) (69.147.64.113) > by > >mta18.grp.scd. with SMTP; 22 Oct 2007 14:28:25 -0000 > >Received: from [216.252.122.216] by n13.bullet.sp1. with NNFMP; > 22 > >Oct 2007 14:28:25 -0000 > >Received: from [66.218.69.5] by t1.bullet.sp1. with NNFMP; 22 > Oct > >2007 14:28:24 -0000 > >Received: from [66.218.66.85] by t5.bullet.scd. with NNFMP; 22 > Oct > >2007 14:28:24 -0000 > >X-Message-Delivery: Vj0zLjQuMDt1cz0wO2k9MDtsPTA7YT0w > >X-Message-Info: > > >R00BdL5giqol9wyllATtXz0HwuaPBCF0HDQTrigSmpuF21mDuu1QOE050QgSkfmYkHq/RZyVYDH+4NC\ xgu0wuw== > >Comment: DomainKeys? See http://antispam./domainkeys > >DomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=lima; > >d= > ;b=hAcVdptMhHoFUZ3OzOkKEcwcjF4E0IpXg7lA87vR5czalnelPAf5PFfj3t8zdGHeNtm7aoxvWOMfH\ 5kVcF8dlYQlzCx9IS+jxH/gx2asFqiiBDIOcGITurpB+epuXc0J; > >X--Newman-Id: 14762801-m6850 > >X-Apparently- <%40> > >X-Received: (qmail 90579 invoked from network); 22 Oct 2007 14:06:03 > -0000 > >X-Received: from unknown (66.218.67.96) by m47.grp.scd. with > >QMQP; 22 Oct 2007 14:06:03 -0000 > >X-Received: from unknown (HELO n7b.bullet.sp1.) (69.147.64.166) > >by mta17.grp.scd. with SMTP; 22 Oct 2007 14:06:03 -0000 > >X-Received: from [216.252.122.218] by n7.bullet.sp1. with NNFMP; > > >22 Oct 2007 14:06:00 -0000 > >X-Received: from [66.218.69.3] by t3.bullet.sp1. with NNFMP; 22 > >Oct 2007 14:06:00 -0000 > >X-Received: from [66.218.66.87] by t3.bullet.scd. with NNFMP; 22 > > >Oct 2007 14:06:00 -0000 > >User-Agent: eGroups-EW/0.82 > >X-Mailer: Message Poster > >X-eGroups-Msg-Info: 1:12:0:0:0 > >X--Profile: donnaberry99 > >X-eGroups-Approved-By: traceyincanada <traceyincanada@...<traceyincanada%40>> > via web; > >22 Oct 2007 14:28:24 -0000 > >Mailing-List: list <%40>; contact > -owner <-owner%40> > >Delivered-mailing list <%40> > >List-Id: <.> > >Precedence: bulk > >List-Unsubscribe: <mailto:-unsubscribe <-unsubscribe%40> > > > >X--Newman-Property: groups-email-ff-m > >Return-Path: > > > sentto-14762801-6850-1193063306-sito3=hotmail.com@...<sentt\ o-14762801-6850-1193063306-sito3%3Dhotmail.com%40returns.> > >X-OriginalArrivalTime: 22 Oct 2007 14:28:27.0485 (UTC) > >FILETIME=[CF9DB8D0:01C814B7] > > > >Dear All, > >I was diagnosed in May with CML, " presented " with a white blood count > >of half a million making it seem more like AML, was given 6 days of > >chemo which brought the WBC down but plumetted everything else after > >many blood and platelette transfusions and with the final diadnosis of > >CML I guess you could say I am doing well, latest tests showed only 0.6 > >of bad stuff in my blood but 96% still in bone marrow. I am on 400mg > >of Gleevec daily my Dr. tells me I am where he would have expected me > >to be at a year (a good thing apparently). I am 48 years old and a > >Mother of 4 I am tired alot now and find it hard to face the fact that > >I cant do what I did before. I seem to tick along OK then something > >sets me off and I am depressed and angry for days, is this " normal " how > >can I stop being negative?? > >Regards Donna > > > > __________________________________________________________ > FREE pop-up blocking with the new MSN Toolbar - get it now! > http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ > > > Quote Link to comment Share on other sites More sharing options...
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