Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Member on this site also. CMML/ The following (copied & pasted from other site......too much typing....easier this way).....CMML conditions/problems....with husband. Thought I'd clue you in on happenings with husband.(I believe he was diagnosed with CMML about April/May of 2006......didn't have any obvious symptoms.....detected through blood tests.....as yet...not on any medications for disease) He also developed a rash…mostly on legs…because of high white cell count….not fighting infections…..comes and goes….treating with creams. His 'out-patient' ordeal (on Oct.10, 2007) lasted until the 19th. (I guess if anymore....OUT-PATIENT ordeals.....we will pack for a weeks stay....at least. He stayed 4 days last year when he had stent implanted as an out-patient) They removed a tumor from the bladder....about the size of a quarter (cancerous)...didn't/don't know (as yet) if benign or malignate (guess Doc will let us know today). Had him hooked up to I-V in left arm..keep hydrated....and also added platelettes.....and catheter......trying to flush out (blood) from bladder......on Monday (15th) and after going through about 60+ bags of the flushing solution (about 3 liters each....and passing some very painful clots.....giving him some oxygen.....and thingy's on legs to massage...keep circulation going)....went back to surgery......removed a blood clot about the size of a baseball. Gave him 2 units of blood (right arm).......still flushing bladder.....about 18 more bags of solution. Then his poop turned black. Wednesday (17th).....they put him out....again....endoscopy......a tube down his throat.....see if bleeding internally.....nope.....given 2 more units of blood. Did find he had a hyenal hernia (sp).......why he always gets heartburn.....so treating him for that. Anyway...decided to release him on Friday (19th)........if B- M....didn't clear up would probably do a colonoscopy later. Ya-Hoo.........bladder/urine.......poop......a l l clear. We have an appointment this afternoon (Oct.22…3 pm) with urologist..consultation...to find out treatment for the bladder cancer. " I " think it's worse than what Max does....(haven't told him that).....someone (don't know who.....somewhere along the line) told him in comparison to skin cancer..low grade cancer....very few people die from skin cancer. Looking through pamphlet....doctor gave us.....and source on internet.... http://www.medicinenet.com/bladder_cancer/page4.htm 3 grades....Doc says Max is in grade 3...(so not a 'low grade')......levels range from 0 - 4...... " I " think his is a level 3...at least. We'll see........... Got back a little while ago from consultation.....(and supper while we were out). Max is going to be getting radiation trearments for the bladder cancer. It must be in the 4th stages....urologist said it was the invasive kind…….think that is a level 4. Hasn't spread …yet….eo any other areas. Not sure when they will be starting treatments....have to meet with a radiologist (up on North Meridian Street.....9000 block). When they do start treaments....will be 5 days a week for 3 weeks.... (on N. Mer. St.). (Naturally he's hoping it won't interfer with the COLTS November 4th game...........N.E. Patriots......must see!!) He is still NOT on the Plavix or aspirin....because of trouble with bleeding......which has cleared up...as of now......urine clear. Urologist doesn't want to do any surgery (removal of bladder)...because of age (75...Dec. 5th))....the CMML (Lukemia)...and combination of the heart problem (stent)......has never had a scenerio like that before......doesn't want to take any chances. All for now......later. Quote Link to comment Share on other sites More sharing options...
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