Hubby & CMML

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Member on this site also.

CMML/

The following (copied & pasted from other site......too much

typing....easier this way).....CMML conditions/problems....with

husband.

Thought I'd clue you in on happenings with husband.(I believe he was

diagnosed with CMML about April/May of 2006......didn't have any

obvious symptoms.....detected through blood tests.....as yet...not

on any medications for disease)

He also developed a rash…mostly on legs…because of high white cell

count….not fighting infections…..comes and goes….treating with creams.

His 'out-patient' ordeal (on Oct.10, 2007) lasted until the 19th.

(I guess if anymore....OUT-PATIENT ordeals.....we will pack for a

weeks stay....at least. He stayed 4 days last year when he had stent

implanted as an out-patient)

They removed a tumor from the bladder....about the size of a quarter

(cancerous)...didn't/don't know (as yet) if benign or malignate

(guess Doc will let us know today).

Had him hooked up to I-V in left arm..keep hydrated....and also added

platelettes.....and catheter......trying to flush out (blood) from

bladder......on Monday (15th) and after going through about 60+ bags

of the flushing solution (about 3 liters each....and passing some

very painful clots.....giving him some oxygen.....and thingy's on

legs to massage...keep circulation going)....went back to

surgery......removed a blood clot about the size of a baseball.

Gave him 2 units of blood (right arm).......still flushing

bladder.....about 18 more bags of solution.

Then his poop turned black.

Wednesday (17th).....they put him out....again....endoscopy......a

tube down his throat.....see if bleeding

internally.....nope.....given 2 more units of blood.

Did find he had a hyenal hernia (sp).......why he always gets

heartburn.....so treating him for that.

Anyway...decided to release him on Friday (19th)........if B-

M....didn't clear up would probably do a colonoscopy later.

Ya-Hoo.........bladder/urine.......poop......a l l clear.

We have an appointment this afternoon (Oct.22…3 pm) with

urologist..consultation...to find out treatment for the bladder

cancer.

" I " think it's worse than what Max does....(haven't told him

that).....someone (don't know who.....somewhere along the line) told

him in comparison to skin cancer..low grade cancer....very few people

die from skin cancer.

Looking through pamphlet....doctor gave us.....and source on

internet....

http://www.medicinenet.com/bladder_cancer/page4.htm

3 grades....Doc says Max is in grade 3...(so not a 'low

grade')......levels range from 0 - 4...... " I " think his is a level

3...at least.

We'll see...........

Got back a little while ago from consultation.....(and supper while

we were out).

Max is going to be getting radiation trearments for the bladder

cancer. It must be in the 4th stages....urologist said it was the

invasive kind…….think that is a level 4. Hasn't spread …yet….eo any

other areas.

Not sure when they will be starting treatments....have to meet with a

radiologist (up on North Meridian Street.....9000 block).

When they do start treaments....will be 5 days a week for 3 weeks....

(on N. Mer. St.).

(Naturally he's hoping it won't interfer with the COLTS November 4th

game...........N.E. Patriots......must see!!)

He is still NOT on the Plavix or aspirin....because of trouble with

bleeding......which has cleared up...as of now......urine clear.

Urologist doesn't want to do any surgery (removal of

bladder)...because of age (75...Dec. 5th))....the CMML

(Lukemia)...and combination of the heart problem (stent)......has

never had a scenerio like that before......doesn't want to take any

chances.

All for now......later.