Re: Work Leave of Absence

[Guest guest]

I just have to mention that my girlfirend, who is the one with CML and on

gleevec has not missed any work because of illness since taking gleevec and that

was over 2 years ago.

in Florida

best friend diagnosed with CML

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[Guest guest]

Hello

I was released from work for the first 6 months after being DX. I

was 22 years old with my white blood counts at 343. They didnt even

want me leaving the house. I was able to work my full time job since

then. I was DX in November of 2003.

>

> I have a general question, and would welcome your responses. My

Onc. has excused me

> from work for 4 weeks. I'm worried that I just won't be able to

work after that---at least

> until I adjust to the Gleevec and it does it's job. Just out of

curiosity, what has been some of

> your experiences with working? Were you able to work through it?

I know everyone is

> different, but it helps me to balance my thinking when I hear

other's experiences.

>

> Thanks so much,

>

> H.

>

[Guest guest]

Hi ,

My husband was diagnosed October 2006. He has never missed work for

CML or from side effects of gleevec. He DOES have side effects but

works as best through it as he can. He takes the gleevec in the

evenings but had severe bone pain, muscle cramps and nausea for the

first 3 mths. He missed his regular workouts for the first 3 mths but

after that period, he works out, runs marathons and plays hockey. Now

for some it does knock them a lot harder but I think if you try to

work with your side effects you may be surprised at how much you can do.

-shalyn

> I have a general question, and would welcome your responses. My

> Onc. has excused me

> from work for 4 weeks. I'm worried that I just won't be able to

> work after that---at least

> until I adjust to the Gleevec and it does it's job. Just out of

> curiosity, what has been some of

> your experiences with working? Were you able to work through it? I

> know everyone is

> different, but it helps me to balance my thinking when I hear

> other's experiences.

>

> Thanks so much,

>

> H.

>

>

[Guest guest]

Hi - after toughing things out at work, I had some serious deadlines I

had to meet, my GP said I had to take 3 weeks off as my body is doing it

" tough " coping with Glivec. The worse problems being my puffy sore eyes and

headaches, heart pounding at times and my blood pressure is a bit unstable.

My haem/t right from the start said to me I had to " balance " what was

important to me LOL.

I know others in OZ who were told by their haem/t to take off 4 weeks

initially while your body adjusts to the changes. In hindsight (such a

lovely word), it would have been better for me to delay starting Glivec a

week and taking the time off.

Regards,

_____

From: [mailto: ] On Behalf Of

Sent: Tuesday, 23 October 2007 8:14 AM

Subject: [ ] Work Leave of Absence

I have a general question, and would welcome your responses. My Onc. has

excused me

from work for 4 weeks. I'm worried that I just won't be able to work after

that---at least

until I adjust to the Gleevec and it does it's job. Just out of curiosity,

what has been some of

your experiences with working? Were you able to work through it? I know

everyone is

different, but it helps me to balance my thinking when I hear other's

experiences.

Thanks so much,

H.

[Guest guest]

Both CML and Gleevec effects everyone differently.

When I first started I had terrible stomach cramps for

up to 4 hours. So I took my medicine at night and

spent some pretty rough nights but I didn' miss work.

I was pretty tired becuase I had insomnia and the

muscle cramps in my legs and feet would wake me

several times a night. I wasn't always the best

looking worker with my puffy eyes and a skin rash all

over my body. Now after 6 months I am able to take

my meds at lunch and I am rarely sick from them. I

can go out to dinner with friends again.

Also other than being pretty tired I didn't have any

big symptoms of CML. Your doc may be looking at your

labs and feeling that your immune system is going to

be compromised by the medication when it drops your

white blood count or you may be so anemic he may want

to shore you up with rest etc. He may not want you

being exposed to germs- what kind of work do you do?

Maybe you can do a wait and see if you feel well

enough to work. But you have to get a buy off from

your doc. I had a trip planned for the week following

dx. I went AMA but I told him I was going- we have

hospitals and docters where I'm from.. I saw my

family and many friends and was fine. But everyone is

different. You could be flat on your back.

For me the first 3 months were the worse. Sometimes I

had nausea no matter how much water I drank or what I

ate. Traveling bone pain was an interesting side

effect. Oh and I got fluffy from the edema. Now that

I think about it maybe I should have stayed home. I

feel great 98% of the time now. So hang in there.

Whatever you decide- please let us know how you are

doing.

Chi

--- <untilpayday@...> wrote:

> I have a general question, and would welcome your

> responses. My Onc. has excused me

> from work for 4 weeks. I'm worried that I just

> won't be able to work after that---at least

> until I adjust to the Gleevec and it does it's job.

> Just out of curiosity, what has been some of

> your experiences with working? Were you able to

> work through it? I know everyone is

> different, but it helps me to balance my thinking

> when I hear other's experiences.

>

> Thanks so much,

>

> H.

>

>

__________________________________________________

[Guest guest]

Hi ,

As many have said..Most people are able to go back to work once they are

used to the Gleevec, I unfortunately am not one of them. That does not mean

you will have any problems, just make sure when you go back your ready. I

really wish I was able to work, it would mean allot more money then I bring

in now..lol

Terry

Dxed April 04

40 years old

On 10/22/07, china neal <chimera46@...> wrote:

>

> Both CML and Gleevec effects everyone differently.

> When I first started I had terrible stomach cramps for

> up to 4 hours. So I took my medicine at night and

> spent some pretty rough nights but I didn' miss work.

> I was pretty tired becuase I had insomnia and the

> muscle cramps in my legs and feet would wake me

> several times a night. I wasn't always the best

> looking worker with my puffy eyes and a skin rash all

> over my body. Now after 6 months I am able to take

> my meds at lunch and I am rarely sick from them. I

> can go out to dinner with friends again.

>

> Also other than being pretty tired I didn't have any

> big symptoms of CML. Your doc may be looking at your

> labs and feeling that your immune system is going to

> be compromised by the medication when it drops your

> white blood count or you may be so anemic he may want

> to shore you up with rest etc. He may not want you

> being exposed to germs- what kind of work do you do?

>

> Maybe you can do a wait and see if you feel well

> enough to work. But you have to get a buy off from

> your doc. I had a trip planned for the week following

> dx. I went AMA but I told him I was going- we have

> hospitals and docters where I'm from.. I saw my

> family and many friends and was fine. But everyone is

> different. You could be flat on your back.

>

> For me the first 3 months were the worse. Sometimes I

> had nausea no matter how much water I drank or what I

> ate. Traveling bone pain was an interesting side

> effect. Oh and I got fluffy from the edema. Now that

> I think about it maybe I should have stayed home. I

> feel great 98% of the time now. So hang in there.

>

> Whatever you decide- please let us know how you are

> doing.

>

> Chi

>

> --- <untilpayday@... <untilpayday%40aol.com>> wrote:

>

> > I have a general question, and would welcome your

> > responses. My Onc. has excused me

> > from work for 4 weeks. I'm worried that I just

> > won't be able to work after that---at least

> > until I adjust to the Gleevec and it does it's job.

> > Just out of curiosity, what has been some of

> > your experiences with working? Were you able to

> > work through it? I know everyone is

> > different, but it helps me to balance my thinking

> > when I hear other's experiences.

> >

> > Thanks so much,

> >

> > H.

> >

> >

>

> __________________________________________________

>

[Guest guest]

Hey ,

I am one of the unfortunate ones. I have bad side effects, diarea, nausia,

fatigue, headaches, etc. and am working 2 days a week but can not do more. I am

fighting right now with my disability to keep working 2 days. I don't know what

I'd do if they said I had to go back to full time. I was dx in Oct 05.

Thanks,

<untilpayday@...> wrote:

I have a general question, and would welcome your responses. My Onc.

has excused me

from work for 4 weeks. I'm worried that I just won't be able to work after

that---at least

until I adjust to the Gleevec and it does it's job. Just out of curiosity, what

has been some of

your experiences with working? Were you able to work through it? I know everyone

is

different, but it helps me to balance my thinking when I hear other's

experiences.

Thanks so much,

H.

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