Re: Memory problems

[Guest guest]

-, Do you know, is the neuro aspect more associated with barts

than lyme?-- In , avalonf@... wrote:

>

> Patti & et al

>

> Along with more common Lyme symptoms, I too had neuro problems

which

> went unrecognized until I saw Dr. S here in Baltimore. Once he

heard a

> description of my neuro symptoms, he zeroed in on a co-infection,

> Bartonella. Having been treated with Levaquin for two months seems

to

> have mitigated most of my symptoms.

>

> W

>

>

[Guest guest]

Ditto here, and learning ANY new information is terribly hard!

> >

> > My mother was diagnosed with Lyme about 7 yrs ago and has severe

> memory

> > problems--especially remembering and understanding common

words. She

> > has great difficulty having a normal conversation and is very

> > frustrated and depressed. Does anyone else have similar

problems?

> >

>

[Guest guest]

Hi Patty, I only got my lyme positive test back a week ago, and have

just started treatment not to long ago. So no not yet. I have had lyme

about 16 yrs i think

>

> ,

>

> Has any treatment helped you with these problems?

>

> Patti

>

>

>

[Guest guest]

As they say " all I know is what I read in the papers. " There is tons of

info on the net, but most seems very technical. However, here is one

reference from a Lyme site which may be of value:

http://www.lymeout.org/bartonella.html

loveznature wrote:

>

> -, Do you know, is the neuro aspect more associated with barts

> than lyme?-- In

> <mailto: %40>, avalonf@... wrote:

> >

> > Patti & et al

> >

> > Along with more common Lyme symptoms, I too had neuro problems

> which

> > went unrecognized until I saw Dr. S here in Baltimore. Once he

> heard a

> > description of my neuro symptoms, he zeroed in on a co-infection,

> > Bartonella. Having been treated with Levaquin for two months seems

> to

> > have mitigated most of my symptoms.

> >

> > W

> >

> >

>

>

[Guest guest]

Thank you , that is a good description of Barts. I probably

have that, and will hopefully have that evaluated with the new doc

locally that i will see on Tuesday. Im so overwhelmed lately that i

can barely comprehend all of the stuff that I have falling on my

shoulders at this time. Between the lyme and the barts, it amazes

me that i haven't totally " lost it " emotionally. Hate this. : (

I am just having a really bad day.

> > >

> > > Patti & et al

> > >

> > > Along with more common Lyme symptoms, I too had neuro problems

> > which

> > > went unrecognized until I saw Dr. S here in Baltimore. Once he

> > heard a

> > > description of my neuro symptoms, he zeroed in on a co-

infection,

> > > Bartonella. Having been treated with Levaquin for two months

seems

> > to

> > > have mitigated most of my symptoms.

> > >

> > > W

> > >

> > >

> >

> >

>

[Guest guest]

re this thread on memory - a problem for me- Wonder if anyone has

tried any exercises which may improve memory?

It seems to me that practice, and using whatever part of the brain

controls memory might bring about an improvement.

I'm not talking about those things where if you want to remember to

buy bread, make an association with your mother who used to bake

bread, which always seemed silly to me.

I mean something where you practice memorizing something. I'm

looking on the web, will let you know if I find anything.

[A friend of mine practices Latin declensions to keep her memory up!]

ellen

> > > >

> > > > Patti & et al

> > > >

> > > > Along with more common Lyme symptoms, I too had neuro

problems

> > > which

> > > > went unrecognized until I saw Dr. S here in Baltimore. Once

he

> > > heard a

> > > > description of my neuro symptoms, he zeroed in on a co-

> infection,

> > > > Bartonella. Having been treated with Levaquin for two months

> seems

> > > to

> > > > have mitigated most of my symptoms.

> > > >

> > > > W

> > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

Hello there:

I can sympathize with you. I am that forgetful sometimes that when one

of sons went for a sleepover one evening. I was frantic when I

realized when he wasn't in his room!! until his twin told me , Mom, you

know that he went to Devon's house for the night, I heard you tell him

it was okay! Isn't this awful and scary? I now keep a daily journal,

everything is wrote down so I can feel safer and more comfortable.

Every couple of days, I will go back over some days before to make sure

I didn't forget anything. I keep this journal separate from the

medical journal which I keep for medical updates, appts, tests, etc. I

find this helps alot. I hope it could help you as well. I asked

several of my doctors about the memory loss-some of the meds that I am

on shows this as one of the side effects. The doctors say it is

stress, I believe it is the meds. I am pretty good at handling stress

most times. One day at a time, I say. Chow for Now, Margareto3002---

In , " jensabeamer " <jensabeamer@...> wrote:

>

> Does anyone have the same problem that I have with my memory? I feel

> like I forget everything. Maybe it's because of stress. It seems like

> every since I got diagnosed with MS I became miss forgetful. My kids

> get mad at me sometimes because of it. I try to explain to them that I

> can't help it but they don't really understand. Well maybe somebody

> out there can give me some advise on how to remember things. Thanks,

>

>

[Guest guest]

Sounds stress related. Have you looked for an MS support group in your area? That might help out.

sue

For a REALLY HOT time check out http://www.peternoone.com and

http://www.mikesmith1964.com

memory problems

Does anyone have the same problem that I have with my memory? I feellike I forget everything. Maybe it's because of stress. It seems likeevery since I got diagnosed with MS I became miss forgetful. My kidsget mad at me sometimes because of it. I try to explain to them that Ican't help it but they don't really understand. Well maybe somebodyout there can give me some advise on how to remember things. Thanks,

[Guest guest]

Gleevec also has an effect on phosphorus level, what's important for

basic cell function, what could be also a factor. But on the other

hand, stress, anxiety, depression all affect cognition and memory, I

think it is hard to tell if gleevec has something to do with it,

beside indirectly by impacting life quality for people who have strong

side effects.

So far I didn't notice anything out of the ordinary (I can get pretty

distracted when I am focused on my work), but that's just me and I am

on the 400mg/day dose with a low plasma level (600ng).

Marcos.

On Jan 4, 2008 3:50 PM, Tracey <traceyincanada@...> wrote:

>

>

>

>

> Hi Everyone,

>

> This issue comes up regularly and it's obvious that many of us suffer

> some sort of cognitive impairment.

>

> For me, I used to think that it was my memory that was impaired but

> then after thinking about it more, I realized that it's not so much

> my 'memory' but my ability to concentrate that is impaired.

>

> For example, if I'm watching tv and someone talks to me, I know I

> won't remember much of what they said later because I can only do one

> thing at a time. So it's not that I 'forgot' what the person said,

> but rather that I wasn't able to concentrate on it long enough to

> commit it to my memory because I was distracted by the tv.

>

> Some times I can be driving somewhere and suddenly I won't remember

> where the heck I'm going. After careful thought, I do remember and

> then continue to drive to wherever that is. So you see, it isn't

> my 'memory' that is impaired because I am able to remember it

> eventually, but my ability to concentrate on the task I'm doing

> requires all of my attention. Apparently I can't drive and think

> about where I'm going at the same time

>

> I suspect that this is the same thing that is happening to you

> because after your husband pointed out that you had left the

> oven on, you did 'remember' that you had also been using the two

> front burners so it wasn't your 'memory' that was absent since you

> did eventually remember it. I suspect that after supper you got

> distracted with something which took your attention off the stove.

>

> As pointed out, Gleevec doesn't pass the blood brain barrier

> so there's no direct link between the drug and our cognitive function

> however, Gleevec does cause some imbalances with our electrolytes,

> specifically magnesium. Magnesium is known to be important for

> cognitive function so if you're low on magnesium, it could very

> likely cause you to have cognitive difficulties.

>

> I remember several years ago, there were a few of us who started to

> take to magnesium supplements to see if it made a difference and sure

> enough, it did for some. , if you're reading this, I think you

> were one that said you felt a big improvement after taking the

> magnesium???

>

> My problem is that I'm never consistent with the supplement because

> it invariably causes diarreah for me so I start and stop all the

> time.

>

> All this to say that yes, many of us do have cognitive impairment but

> I haven't been able to find any scientific link to Gleevec as the

> direct cause of it. I've just come to the conclusion that it's the

> other things that Gleevec does that causes the impairment.

>

> Take care,

> Tracey

> dx Jan 2002

>

>

--

Marcos Perreau Guimaraes

Suppes Brain Lab

Ventura Hall - CSLI

Stanford University

220 Panama street

Stanford CA 94305-4101

650 614 2305

650 630 5015 (cell)

marcospg@...

montereyunderwater@...

www.stanford.edu/~marcospg/

[Guest guest]

Excellent points Marcos. Aside from Gleevec's effect on virtually

all of the electrolytes, living from test to test wondering if

the " other shoe will eventually drop " one day is bound to cause some

stress for some people and effect their mental well being.

Tracey

> >

> >

> >

> >

> > Hi Everyone,

> >

> > This issue comes up regularly and it's obvious that many of us

suffer

> > some sort of cognitive impairment.

> >

> > For me, I used to think that it was my memory that was impaired

but

> > then after thinking about it more, I realized that it's not so

much

> > my 'memory' but my ability to concentrate that is impaired.

> >

> > For example, if I'm watching tv and someone talks to me, I know I

> > won't remember much of what they said later because I can only do

one

> > thing at a time. So it's not that I 'forgot' what the person said,

> > but rather that I wasn't able to concentrate on it long enough to

> > commit it to my memory because I was distracted by the tv.

> >

> > Some times I can be driving somewhere and suddenly I won't

remember

> > where the heck I'm going. After careful thought, I do remember and

> > then continue to drive to wherever that is. So you see, it isn't

> > my 'memory' that is impaired because I am able to remember it

> > eventually, but my ability to concentrate on the task I'm doing

> > requires all of my attention. Apparently I can't drive and think

> > about where I'm going at the same time

> >

> > I suspect that this is the same thing that is happening to you

> > because after your husband pointed out that you had left

the

> > oven on, you did 'remember' that you had also been using the two

> > front burners so it wasn't your 'memory' that was absent since you

> > did eventually remember it. I suspect that after supper you got

> > distracted with something which took your attention off the stove.

> >

> > As pointed out, Gleevec doesn't pass the blood brain

barrier

> > so there's no direct link between the drug and our cognitive

function

> > however, Gleevec does cause some imbalances with our electrolytes,

> > specifically magnesium. Magnesium is known to be important for

> > cognitive function so if you're low on magnesium, it could very

> > likely cause you to have cognitive difficulties.

> >

> > I remember several years ago, there were a few of us who started

to

> > take to magnesium supplements to see if it made a difference and

sure

> > enough, it did for some. , if you're reading this, I think you

> > were one that said you felt a big improvement after taking the

> > magnesium???

> >

> > My problem is that I'm never consistent with the supplement

because

> > it invariably causes diarreah for me so I start and stop all the

> > time.

> >

> > All this to say that yes, many of us do have cognitive impairment

but

> > I haven't been able to find any scientific link to Gleevec as the

> > direct cause of it. I've just come to the conclusion that it's the

> > other things that Gleevec does that causes the impairment.

> >

> > Take care,

> > Tracey

> > dx Jan 2002

> >

> >

>

>

>

> --

> Marcos Perreau Guimaraes

> Suppes Brain Lab

> Ventura Hall - CSLI

> Stanford University

> 220 Panama street

> Stanford CA 94305-4101

> 650 614 2305

> 650 630 5015 (cell)

> marcospg@...

> montereyunderwater@...

> www.stanford.edu/~marcospg/

>

[Guest guest]

I also have experienced memory problems since being on LDN (4mg / night) starting July 2010. I am taking LDN for several autoimmune issues including R.A. and Hashimoto's.

My RA got much worse for awhile but is now a bit better. I don't know if my thyroid is better but I have not been able to decrease my Armour thyroid. However, my colon issues have gotten much better, so I'm very pleased about that. And I sleep much more soundly.

I do worry a lot about my increased memory problems but plan to continue LDN anyway.

I have wondered, too, if anyone else on LDN has experienced this memory loss.

I got headaches when I started LDN and each time I increased the dose and wonder if this is involved with the memory loss. Gayle

[Guest guest]

Hi Bridget,I also have MS and have been taking LDN for about 1 1/2 years. It seems to have STOPPED the progression of my MS. I have noticed that my thinking has become much clearer. It has definitely helped with memory problems such as remembering how to spell words. LDN is awesome and I encourage you to try it ASAP! Have a great day,AnitaOn Apr 26, 2011, at 12:22 PM, Bridget wrote: Hello Everybody! I'm Bridget and I've just been diagnosed with MS. Does LDN help with memory problems - whether it be short term (seconds or minutes) or long term? If not does anybody know of anything that does or a doctor that specializes in MS and the memory issue. I'm only 33 and I feel this is ruining my life.....Thanks in advance.

[Guest guest]

hi bridget / anita

agree on the ldn issue, due to my neuro muscular leg problems i take 2ml in the morning as night dose gives me severe sleep deprevation

good luck and stay tuned

regards/peter/london/ppms

From: Anita Meyers <anitabmeyers@...>Bridget <briffa77@...>; low dose naltrexone Sent: Tuesday, 26 April 2011, 21:25Subject: [low dose naltrexone] Re: Memory Problems

Hi Bridget,

I also have MS and have been taking LDN for about 1 1/2 years. It seems to have STOPPED the progression of my MS. I have noticed that my thinking has become much clearer. It has definitely helped with memory problems such as remembering how to spell words. LDN is awesome and I encourage you to try it ASAP!

Have a great day,

Anita

On Apr 26, 2011, at 12:22 PM, Bridget wrote:

Hello Everybody! I'm Bridget and I've just been diagnosed with MS. Does LDN help with memory problems - whether it be short term (seconds or minutes) or long term? If not does anybody know of anything that does or a doctor that specializes in MS and the memory issue. I'm only 33 and I feel this is ruining my life.....Thanks in advance.