Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Beside what Tracey already said, there is no reason to consider a stem cell or bone marrow transplant when gleevec is working, even for younger people. The risk and impact on quality of life of a transplant is without comparison with staying on gleevec as long as it works. The drug is now proven to be effective in the long term and the side effects are minimal for most people. And we can hope for a cure in the next decade. With a transplant you are at best exchanging the leukemia against graft versus host disease, which even when it is low grade, impacts quite a bit on quality of life. And it is for ever. It took me one year to reach the level of remission you had in 3 months, and I am still not at 3 logs after 3 years, but the numbers are still slowly decreasing and I am staying at 400mg/day. I am 41 and doing great. Side effects went away after a few months, hang in there. Cheers, Marcos. On Feb 19, 2008 5:33 AM, Malseed <rodorbal@...> wrote: > > > > > Hi Marcos and Tracey, > > Thank you for your kind words and words of wisdom I like you will question > further if I am to up my dose rate - I think the main reason is that by not > increasing the dose, it may be possible to get mutations down the track? As > I said the Australian way seems to be to keep upping the dose to 800mg. I'm > positive I will never cope with this. > > As always, once you get home you have more questions to ask and this group > is so helpful. My haem/t also brought up that as I am doing so well and so > young still at 50 <huge grin, I love that man> that I should also give > thought to going down the donor track....now that is something I am not at > all keen about and very risky, while we have these excellent drugs coming > along. > > To top my good week off, my daughter had her 2nd baby a little boy, so it > has been lovely babysitting my nearly 2 year old grand daughter and visiting > mum and bub in hospital. > > Regards, > > > > _____ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 I agree with you 100% Marcos Perreau Guimaraes <montereyunderwater@...> wrote: Beside what Tracey already said, there is no reason to consider a stem cell or bone marrow transplant when gleevec is working, even for younger people. The risk and impact on quality of life of a transplant is without comparison with staying on gleevec as long as it works. The drug is now proven to be effective in the long term and the side effects are minimal for most people. And we can hope for a cure in the next decade. With a transplant you are at best exchanging the leukemia against graft versus host disease, which even when it is low grade, impacts quite a bit on quality of life. And it is for ever. It took me one year to reach the level of remission you had in 3 months, and I am still not at 3 logs after 3 years, but the numbers are still slowly decreasing and I am staying at 400mg/day. I am 41 and doing great. Side effects went away after a few months, hang in there. Cheers, Marcos. On Feb 19, 2008 5:33 AM, Malseed <rodorbal@...> wrote: > > > > > Hi Marcos and Tracey, > > Thank you for your kind words and words of wisdom I like you will question > further if I am to up my dose rate - I think the main reason is that by not > increasing the dose, it may be possible to get mutations down the track? As > I said the Australian way seems to be to keep upping the dose to 800mg. I'm > positive I will never cope with this. > > As always, once you get home you have more questions to ask and this group > is so helpful. My haem/t also brought up that as I am doing so well and so > young still at 50 <huge grin, I love that man> that I should also give > thought to going down the donor track....now that is something I am not at > all keen about and very risky, while we have these excellent drugs coming > along. > > To top my good week off, my daughter had her 2nd baby a little boy, so it > has been lovely babysitting my nearly 2 year old grand daughter and visiting > mum and bub in hospital. > > Regards, > > > > _____ > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.