Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 I feel so bad for you. Matt was diagnosed 2 years ago. Alot of the same diagnoses Elias has. My ex moved out 2 days later!!!!! I can certainly relate. My family is 400 miles away and due to the rather abusive nature of my ex and the usual problems with Matt - I have very few friends. It's just me and my boys against the world. Try the meds - it has helped so much. I still have problems with Matt but he is a new kid most of the time. It really helps. He isn't a zombied out kid. The meds (prozac) just make it easier for him to get his temper under control. It has been alife saver. Good Luck!!!!!!!!!! ( ) New diagnoses I just got off the phone with the school psychologist, who has so far impressed me as very competent, thorough and compassionate and has a minor expertise in autistic children, so I trust her opinion quite a bit. She's been running full psych evaluations on Elias, who will turn 6 in February, for the last 2 weeks. He hasn't had any thorough evaluations since he was 3, since we moved to FL when he was due to be reevaluated at age 4, and we didn't have any insurance until he finally qualified for Medicaid this past September. She's concluded that there's " no question in her mind " that he has moderate (not mild as we thought) Asperger's Syndrome, severe dysgraphia, severe hand/eye and fine motor skills delays, " one of the most severe cases of ADHD [she] has ever seen, " and moderate Oppositional Defiance Disorder, which, she says, will probably get worse as he gets older. Oh, and a genius IQ. This has come as a major blow to me. I know his behavior has gotten terrible this past year; I was chalking it up to having moved from the only house he'd ever lived in his whole life in Massachusetts, to Florida away from his dad and everything he'd known. His tantrums, which had almost disappeared in MA, came back in full force in FL. He's become physically aggressive to me and other children. He gets anxiety attacks over his handwriting homework every night due to the dysgraphia and hand/eye delays - he writes beautiful sentences that, no matter how hard he tries, come out completely illegible. Last night's anxiety attack escalated into a full blown tantrum which ended with him punching me in the face. I have severe bronchitis right now, and I got so overwhelmed and upset about it that made me have an asthma attack. I read on the Internet that married parents of autistic children have stress levels up to 85% higher than married parents of NT kids. I'm a single parent with little to no local support - does that mean my stress levels are at 170% higher? Heh. Anyway, they're now saying that they think he obviously has a lot of neurological problems and that he needs a full work up from a medical psychiatrist as well. The shrink says I need to stay open to medication, which in her opinion he really needs. That's all fine, he has an appointment in January with one, who will probably recommend a neurologist. The psychologist is also now saying that she doesn't think the self-contained classroom is AT ALL appropriate for Elias because they're all children who are severely autistic with only one other Aspie among the 12 students there, and she doesn't have the ADHD/ODD and the other disabilities. The other autistic kids though are all academically delayed; my son is nearly at a 3rd grade level right now. The psychologist said that " between her and me " I should fight if they try to stick him in that classroom and try to find a " more appropriate and beneficial " solution, and implied that the school administrators were going to try to find a pat convenient solution that wouldn't necessarily work with Eli's full intellectual potential OR serve his social and psychological needs. I really appreciated hearing that; it was diplomatically said, but very honest. Right now he's in a regular classroom (where the teacher has really and truly gone above and beyond the call of duty has done everything under the sun to accommodate him to no avail) with 2 hours a day with a " varying exceptionalities " teacher who works on more challenging schoolwork with him as well as behavioral issues. He hates his schoolwork in kindergarten, and has started refusing to do any of the (admittedly time-wasting and stupid) homework that his regular kindergarten teacher sends home. The school psychologist says they ought to put him with the varying exceptionalities teacher permanently. But, my only family in this area has reacted with abject horror at the thought that my son has a BIOLOGICALLY based disability that needs medication. They're my only support right now, and I know they're going to give me hassle on a near daily basis if I medicate him. I mean I do think children are sometimes too easily medicated these days, but I KNOW my kid isn't one of those cases and I *know* he needs it. But they're like " It'll mess up his brain! Those things are addictive! It's so selfish to medicate him because he's hard on you! " etc.. And they don't listen to me when I show them reports that say otherwise. So I know this will be constant harassment from them. Sorry to vent and rant. I'm just totally dismayed that it's much worse than I thought with him. Does anyone else have a child with Oppositional Defiance Disorder? The school psychologist said that it's fairly common among Aspies if they're the type that can't understand the logic behind behavioral rules at all (he doesn't understand why he can't play in the classroom AND the playground, for example, and constantly gets into trouble because he wants to play with the kids in the classroom too.) On the one hand this is such GOOD news - it ought to help us get a lot more services for him and help with the application for SSI - but on the other hand... the road ahead looks much longer and harder now. Thanks for reading if you made it this far. Any insight y'all may have will be appreciated. God bless, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 , if the doc wants to medicate the child, and you want to medicate, then it's nobody else's business. I'd tell the relatives to butt out of it, and give them no information at all. If they can't handle that, then you don't need the extra stress of having to deal with them, sorry to say. You need your energy to cope with your child, and any help they would provide would be overshadowed by the additional stress. They'll come around eventually, especially when they find out how well your child will be doing on meds. / 4makelas@... Way, Way Up in Northern Ontario ----- Original Message ----- From: " L. " <andrea@...> > But, my only family in this area has reacted with abject horror at the > thought that my son has a BIOLOGICALLY based disability that needs > medication. They're my only support right now, and I know they're going to > give me hassle on a near daily basis if I medicate him. I mean I do think > children are sometimes too easily medicated these days, but I KNOW my kid > isn't one of those cases and I *know* he needs it. But they're like " It'll > mess up his brain! Those things are addictive! It's so selfish to medicate > him because he's hard on you! " etc.. And they don't listen to me when I show > them reports that say otherwise. So I know this will be constant harassment > from them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 Hi ...my older son was evaluated by a neuropsychologist about a year ago. It really gave us alot of insight into how he functions. She said he showed symptoms of Asperger's and Oppositional Defiant Disorder (just not enough to warrant a full diagnosed of the ODD). He definitely has trouble with rules and authority. Last year was a nightmare with a nightmare teacher. This year he started middle school (7th) and he is really doing well behaviorally. He is still very disorganized, his grades really reflect the fact that he doesn't do homework enough, LOL, and two of his teachers say he sometimes impulsively shouts out in class. He has been on Zoloft for several years now and a low dose has really helped with his negative affect, self regulation and outbursts. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 Hi , Hey, I'm impressed you've got such a great school psych! That's a huge plus to have her on your side and to be knowledgeable!! This is my opinion, I'm just a parent. I think that once Elias begins to receive the proper supports for his Aspergers, ADHD, etc., AND his high IQ, that behaviors will improve some on their own. Might even lose the ODD diagnosis later. Things just can change overnight, unfortunately! Regarding medication - well, perhaps you can just tell your family regarding not the AS but the other, something like: his brain isn't sending the right signals/messages and medication will help to correct that for now. They don't have to look at it as being on medication for a lifetime. I don't have a son with ADHD or ODD. One of my sons, almost 15, does have OCD (obsessive-compulsive disorder) and that's sort of how we explain how meds help him. He doesn't have any behavior problems luckily, it's just to help him deal with all the wrong messages OCD is sending his brain, it reduces the anxiety, helps him cope better, fight the compulsions, etc. He also has a dysgraphia diagnosis. And his fine & gross motor skills were delayed/behind growing up. I just got him diagnosed with HFA/Aspergers earlier this year (!) at age 14. He's also in the gifted classes at school, no genius, just above average on testing, etc., higher in some areas than others. Having a learning disability and being gifted can cause behavior problems also, as you already can tell with your son refusing some of the easier, less challenging work. You are doing such a great job and I'm so glad your school seems so supportive! Please keep us updated on how things are going and you do what you feel is right for your child. Gotta go! - single mom, 3 sons - > I just got off the phone with the school psychologist, who has so far > impressed me as very competent, thorough and compassionate and has a minor > expertise in autistic children, so I trust her opinion quite a bit. She's > been running full psych evaluations on Elias, who will turn 6 in February, > for the last 2 weeks. He hasn't had any thorough evaluations since Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 I agree with 100%. It's none of their business! Meredith (who thinks Noah has ODD as well) > , if the doc wants to medicate the child, and you want to medicate, > then it's nobody else's business. I'd tell the relatives to butt out of it, > and give them no information at all. If they can't handle that, then you > don't need the extra stress of having to deal with them, sorry to say. > > You need your energy to cope with your child, and any help they would > provide would be overshadowed by the additional stress. They'll come around > eventually, especially when they find out how well your child will be doing > on meds. > > / 4makelas@s... > Way, Way Up in Northern Ontario > > > ----- Original Message ----- > From: " L. " <andrea@p...> > > But, my only family in this area has reacted with abject horror at the > > thought that my son has a BIOLOGICALLY based disability that needs > > medication. They're my only support right now, and I know they're going > to > > give me hassle on a near daily basis if I medicate him. I mean I do think > > children are sometimes too easily medicated these days, but I KNOW my kid > > isn't one of those cases and I *know* he needs it. But they're like > " It'll > > mess up his brain! Those things are addictive! It's so selfish to medicate > > him because he's hard on you! " etc.. And they don't listen to me when I > show > > them reports that say otherwise. So I know this will be constant > harassment > > from them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 In a message dated 12/3/2003 4:28:28 PM Eastern Standard Time, haleyk@... writes: Thanks for reading if you made it this far. Any insight y'all may have will be appreciated. where in Fla do you live and a lot of times remember kids look worse when they are younger, when my son was younger he had a lot more behavioral issues then he has now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Michele, Thank you so much, I really needed to hear that. =) >>a lot of times remember kids look worse when they are younger, when my son was younger he had a lot more behavioral issues then he has now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 Thank you all so much for your responses and support. Honestly this has got to be the best mailing list on the Internet. At least I think so. =) Roxanna wrote: >>ODD would be eliminated from anything to do with my kid. Make sure that the school psych is allowed to hand out dx's like this. Is she a ph.d.? << No, but she made it clear she's " just doing an evaluation for placement purposes " and that he should get a diagnosis from a clinical psychiatrist. He has an appointment with one January 15 but this means that this is all going to take TIME. At least the vice principal of the school today assured me that his " official label " would be autism and agreed that an ODD label with an AS child was totally inappropriate, but she insisted that " oppositional " and " defiant " were " appropriate descriptors for his behavior. " Which I agree with, personally, but on paper it carries far different implications. >>Of course he doesn't want to do school work that is boring and useless to him. My 7 yo is in 2nd grade this year and I've worked it out with past teachers to exempt him from busy work like that. For instance, when they were teaching the number line last year, he refused to do it. And it was not necessary to make him since he already knew how to add and subtract. I don't consider this kind of behavior ODD at all. His teachers have been smart and knew he found some things redundant so they never pushed him on these kinds of things at all. << His teachers are currently sympathetic to all that, but they're still sending home the busywork. My son is reading at a near 3rd grade level and they're still making him do collages of the letter N. Ugh. >>There is no good way to place a child like yours. At least, since I have one like this, I haven't figured it out. I have a friend with a child like this also who is flopping along like me, playing it one day at a time as to how to balance it all. << The vice principal and I had a long talk today and she said that she felt that because his tantrums had increased and his aggression had worsened these past few weeks. She asked several times what had changed; I wanted to say that I didn't know, that things had been pretty much on an even keel (i.e., consistently horrible) at home with him for over a year and nothing had worsened, but I only brought up an incident the other day at Sunday school where he finally had a " breakthrough " and realized that some other children were ridiculing him and things like that. So now he's become really aggressive to other children. The VP says that she DOES believe the self-contained classroom is the best environment for him because his main difficulty is with transitions, which the autism teachers are specially trained in. But then she said that with his increase in aggression towards himself, property, and others, she was going to have to start " documenting " every incident of aggression and that I had to " prepare for the possibility " that he was going to have to be SUSPENDED FROM SCHOOL FOR 2 DAYS AT A TIME if it came to the point where they just couldn't deal with him. And that I should be prepared to receive calls like that if things continue. Did I mention he's 5 and in kindergarten? ly I was speechless. I felt like saying, if you can't deal with him when he's 5, what good are you people going to be when he's 12? If you're having to suspend a special needs kindergartener, doesn't that make *you* a complete failure? Granted, this is the best program for autistic children in my county. Sad. I politely told her that this seemed way more hassle than it was worth, and that if it came to the point where they were suspending him every 5 minutes, I would just pull him out of school and go back to homeschooling. That was when the fun started. She immediately started begging - literally begging, y'all - to give her a chance to work with him and see if they can find a better placement (it's clear that mainstreamed with " resource help " isn't it). I thought her pleading was really odd, but whatever, I said OK. THEN she had the appalling bad taste to say that she felt that homeschooling was a " big mistake " because he needed the " socialization " component. GRRRRRRRRRRR. That " But he needs to socialize! " is the biggest pet peeve most homeschoolers have when talking to people who are skeptical of HS. HELLO, of COURSE he does, and it's not like I plan to lock him in the damn closet all day! There are plenty of things to do where he can " socialize " with kids that don't involve forcing the kid to make books of ladybugs counting up to 5 (when he's adding and subtracting to 2 places these days) and sit quietly for 7 hours a day (boyscouts, sports, playgroups.) Meanwhile they're going to be building up a long list of " documented " incidents of acting out and probable suspensions. I really, really wish I could afford to homeschool again. I am so upset. I'm looking in to scholarships for HSing single parents and things like that. It's hard on me to spend so much time with him, but I just have the feeling this is going to end up badly. I mean, I feel like they're writing him off and he's only 5! Ahhh. I guess I ranted again. Sorry about that. =) Anyway, y'all, thanks so much for being there for me. It really does make such a huge difference knowing people out there understand what's going on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 > > >>ODD would be eliminated from anything to do with my kid. Make sure that the school psych is allowed to hand out dx's like this. Is she a ph.d.? << > > No, but she made it clear she's " just doing an evaluation for placement purposes " and that he should get a diagnosis from a clinical psychiatrist. He has an appointment with one January 15 but this means that this is all going to take TIME. At least the vice principal of the school today assured me that his " official label " would be autism and agreed that an ODD label with an AS child was totally inappropriate, but she insisted that " oppositional " and " defiant " were " appropriate descriptors for his behavior. " Which I agree with, personally, but on paper it carries far different implications. > > >>Of course he doesn't want to do school work that is boring and useless to him. My 7 yo is in 2nd grade this year and I've worked it out with past teachers to exempt him from busy work like that. For instance, when they were teaching the number line last year, he refused to do it. And it was not necessary to make him since he already knew how to add and subtract. I don't consider this kind of behavior ODD at all. His teachers have been smart and knew he found some things redundant so they never pushed him on these kinds of things at all. << > > His teachers are currently sympathetic to all that, but they're still sending home the busywork. My son is reading at a near 3rd grade level and they're still making him do collages of the letter N. Ugh. > > >>There is no good way to place a child like yours. At least, since I have one like this, I haven't figured it out. I have a friend with a child like this also who is flopping along like me, playing it one day at a time as to how to balance it all. << > > The vice principal and I had a long talk today and she said that she felt that because his tantrums had increased and his aggression had worsened these past few weeks. She asked several times what had changed; I wanted to say that I didn't know, that things had been pretty much on an even keel (i.e., consistently horrible) at home with him for over a year and nothing had worsened, but I only brought up an incident the other day at Sunday school where he finally had a " breakthrough " and realized that some other children were ridiculing him and things like that. So now he's become really aggressive to other children. > > The VP says that she DOES believe the self-contained classroom is the best environment for him because his main difficulty is with transitions, which the autism teachers are specially trained in. But then she said that with his increase in aggression towards himself, property, and others, she was going to have to start " documenting " every incident of aggression and that I had to " prepare for the possibility " that he was going to have to be SUSPENDED FROM SCHOOL FOR 2 DAYS AT A TIME if it came to the point where they just couldn't deal with him. And that I should be prepared to receive calls like that if things continue. > > Did I mention he's 5 and in kindergarten? ly I was speechless. I felt like saying, if you can't deal with him when he's 5, what good are you people going to be when he's 12? If you're having to suspend a special needs kindergartener, doesn't that make *you* a complete failure? Granted, this is the best program for autistic children in my county. Sad. > > I politely told her that this seemed way more hassle than it was worth, and that if it came to the point where they were suspending him every 5 minutes, I would just pull him out of school and go back to homeschooling. That was when the fun started. She immediately started begging - literally begging, y'all - to give her a chance to work with him and see if they can find a better placement (it's clear that mainstreamed with " resource help " isn't it). I thought her pleading was really odd, but whatever, I said OK. THEN she had the appalling bad taste to say that she felt that homeschooling was a " big mistake " because he needed the " socialization " component. GRRRRRRRRRRR. That " But he needs to socialize! " is the biggest pet peeve most homeschoolers have when talking to people who are skeptical of HS. HELLO, of COURSE he does, and it's not like I plan to lock him in the damn closet all day! There are plenty of things to do where he can " socialize " with kids that don't involve forcing the kid to make books of ladybugs counting up to 5 (when he's adding and subtracting to 2 places these days) and sit quietly for 7 hours a day (boyscouts, sports, playgroups.) Meanwhile they're going to be building up a long list of " documented " incidents of acting out and probable suspensions. > > I really, really wish I could afford to homeschool again. I am so upset. I'm looking in to scholarships for HSing single parents and things like that. It's hard on me to spend so much time with him, but I just have the feeling this is going to end up badly. I mean, I feel like they're writing him off and he's only 5! > > Ahhh. I guess I ranted again. Sorry about that. =) Anyway, y'all, thanks so much for being there for me. It really does make such a huge difference knowing people out there understand what's going on. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 In a message dated 12/5/2003 10:39:41 PM Eastern Standard Time, andrea@... writes: Ahhh. I guess I ranted again. Sorry about that. =) Anyway, y'all, thanks so much for being there for me. It really does make such a huge difference knowing people out there understand what's going on. , I am surprised she did not take you up on homeschooling so her " problems " would go away, It must mean she is willing to work with your son. Have they done a behavior plan on him too see when he is aggressive what is causing the change in him? Does he have an aide? What things are they willing to implement in order too help him? Make sure you also document everything even if it means faxing too the school everyday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 wrote: >> , I am surprised she did not take you up on homeschooling so her " problems " would go away, It must mean she is willing to work with your son. << I think that's true tosome extent, but there is a bit of snobbery going on, too. They all have made comments about how they think this is the best school in the district. It's in a very wealthy section of a very poor area. Plus, like I said, she seemed to look down on homeschooling a lot. >> Have they done a behavior plan on him too see when he is aggressive what is causing the change in him? << They know what causes his aggression - transitions. And he has a hard time with not talking while doing work, probably because when I was homeschooling him last year, I let him ask all the questions he wanted and I didn't see anything particularly wrong with his habit of humming while reading or writing. >>Does he have an aide? What things are they willing to implement in order too help him? Make sure you also document everything even if it means faxing too the school everyday. << I am documenting this by writing it all down. They're hedging on just providing transportation - it was part of his now-expired IEP in Massachusetts. We didn't add it to his new IEP here in FL because of the fact that we lived 3 blocks away from the school at the time it was made, but I wasn't able to afford that apartment and had to move much farther away, and I don't have a car. Because of his autistic label, we're able to let him stay in the current school, but my mother is commuting nearly 3 hours a day just to drive him to the school and back, and that can't keep happening. I would be shocked if they would provide him with an aide; I brought it up before at the staffing meeting and they all exchanged incredulous looks and literally ignored me. Just like they ignore me when I say that the reason he acts out in the mainstream clas is because it's completely boring to him. I'm just really freaked out and upset by the fact that they're documenting every tantrum and threatening to PUNISH him by suspending him if he has a meltdown when he's only 5 and has only been in their system for 2 1/2 months. That doesn't seem like they're willing to work with him at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 Thank you, Pam!!! Re: ( ) New diagnoses Hi ...my older son was evaluated by a neuropsychologist about a year ago. It really gave us alot of insight into how he functions. She said he showed symptoms of Asperger's and Oppositional Defiant Disorder (just not enough to warrant a full diagnosed of the ODD). He definitely has trouble with rules and authority. Last year was a nightmare with a nightmare teacher. This year he started middle school (7th) and he is really doing well behaviorally. He is still very disorganized, his grades really reflect the fact that he doesn't do homework enough, LOL, and two of his teachers say he sometimes impulsively shouts out in class. He has been on Zoloft for several years now and a low dose has really helped with his negative affect, self regulation and outbursts. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 >>, if the doc wants to medicate the child, and you want to medicate, then it's nobody else's business. I'd tell the relatives to butt out of it, and give them no information at all. If they can't handle that, then you don't need the extra stress of having to deal with them, sorry to say.<< , This is pretty much the stance I've decided to adopt. I don't plan to tell them anything about the medication unless they're responsible for giving it to him. Thank you!!! =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 And stick to your guns, . I really suggest that you avoid having them responsible for him at all, at all costs. I've always had caregivers for my children that I knew would follow my instructions explicitly. I can't imagine having someone looking after them who would do otherwise or question my judgement. / 4makelas@... Way, Way Up in Northern Ontario ----- Original Message ----- From: " L. " <andrea@...> > This is pretty much the stance I've decided to adopt. I don't plan to tell them anything about the medication unless they're responsible for giving it to him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Roxanna, This reminds me of when my kids were younger and had this sort of assignment. My kids would come up with expressions involving factorials, cube roots, division by fractions, and other things that the the teachers didn't seem to understand and would mark wrong. (Or maybe they just couldn't read the writing!) Oh yeah, and sometimes there were also Roman numerals involved in the expressions. in Massachusetts > When my 7 yo has to do a math problem that has the kids listing 10 ways to state the value of 10, he goes into super-speed and thinks of things like, " 990 - 980 = 10 " instead of the usual, " 11 - 1 = 10 " that the other kids will come up with. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 >Find a clinical psychologist who specializes in Greenspan's DIR model (this includes Floor Time as part of it). I think you will be very happy if you do.< Thank you, . I'm reading about it right now on the 'net, and liking what read very much. Thanks for your suggestion!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 In a message dated 12/6/2003 10:38:35 AM Eastern Standard Time, andrea@... writes: I'm just really freaked out and upset by the fact that they're documenting every tantrum and threatening to PUNISH him by suspending him if he has a meltdown when he's only 5 and has only been in their system for 2 1/2 months. That doesn't seem like they're willing to work with him at all. have they done a Functional Behavior Assessment? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 <<<<<I'm just really freaked out and upset by the fact that they're documenting every tantrum and threatening to PUNISH him by suspending him if he has a meltdown when he's only 5 and has only been in their system for 2 1/2 months That doesn't seem like they're willing to work with him at all.>> NO it does not. do you ahve alternatives ? F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 F wrote: <<<<<I'm just really freaked out and upset by the fact that they're documenting every tantrum and threatening to PUNISH him by suspending him if he has a meltdown when he's only 5 and has only been in their system for 2 1/2 months That doesn't seem like they're willing to work with him at all.>> >>NO it does not. do you ahve alternatives ? Yes, I've disenrolled him out of public school altogether. I've decided to homeschool him for the rest of the year; we're both really excited about it, and he's only had one tantrum in over 2 weeks since he's been out of public school (he was up to 3 or 4 PER DAY while in PS). ly, my son is a big boy, the size of a 7 or 8 yo even though he's not even 6 yet, and he does get aggressive during tantrums and does hit and kick people, so all these posts about the cops being called on AS kids kind of reconfirms that I've made the right decision to keep him away from any school administration for now. (My son is emotionally and socially about age 3 even though intellectually and physically he's 7/8.) If they were going to be suspending him for a tantrum at age 5, they were going to be calling the cops on him at 6 or 7, like that's going to help anyone. Good Lord, sometimes my son says things like " I want to blow everything up " or " I want to conquer the world " which isn't even expressing hostility but might be something he saw on TV; I can see him being expelled or worse in the 2nd grade for saying things like this. What a nightmare. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 I understand what you are saying, . My own sd wa atiny steop away from getting a complaint at the police station a number of times, I think it is only becasue tehy knew he had an insistent Borg mom that they did not do it in the end, and i am talking aobut three different schools. -------Original <<<<<I'm just really freaked out and upset by the fact that they're documenting every tantrum and threatening to PUNISH him by suspending him if he has a meltdown when he's only 5 and has only been in their system for 2 1/2 months That doesn't seem like they're willing to work with him at all.>> >>NO it does not. do you ahve alternatives ? Yes, I've disenrolled him out of public school altogether. I've decided to homeschool him for the rest of the year; we're both really excited about it, and he's only had one tantrum in over 2 weeks since he's been out of public school (he was up to 3 or 4 PER DAY while in PS). ly, my son is a big boy, the size of a 7 or 8 yo even though he's not even 6 yet, and he does get aggressive during tantrums and does hit and kick people, so all these posts about the cops being called on AS kids kind of reconfirms that I've made the right decision to keep him away from any school administration for now. (My son is emotionally and socially about age 3 even though intellectually and physically he's 7/8.) If they were going to be suspending him for a tantrum at age 5, they were going to be calling the cops on him at 6 or 7, like that's going to help anyone. Good Lord, sometimes my son says things like " I want to blow everything up " or " I want to conquer the world " which isn't even expressing hostility but might be something he saw on TV; I can see him being expelled or worse in the 2nd grade for saying things like this. What a nightmare. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Hi , Welcome to the club that nobody really wants to be a member of. We have all been down this road and can offer lots of help. Side effects usually manifest themselves in the first month or two and then diminish. Body aches and tiredness are common side effects and diminish over time. After a while you will be able to make sense of my signature, Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 3.6 log reduction Sep/07 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of Fiol Sent: January 15, 2008 3:08 PM Subject: [ ] New Diagnoses In December I was in the hospital for vomiting and unable to hold anything down and I was told I have CML. I have done a lot of research on this cancer and found some systems of CML. I am now on Gleevek, about 2 weeks and I get these radiating fevers and a lot of body aching and tiredness. I would love to learn more from you all. Thank You --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Be serious about taken your drugs and always do your routine check -up,all will be fine and you do not have to think about CML as a stress but just be nice to your self i assure you will be okay Once more wellcome to the club roll ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 --- In , Fiol <rachel_art_design@...> wrote: > > In December I was in the hospital for vomiting and unable to hold anything down and I was told I have CML. > I have done a lot of research on this cancer and found some systems of CML. > I am now on Gleevek, about 2 weeks and I get these radiating fevers and a lot of body aching and tiredness. I would love to learn more from you all. > Thank You > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
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