Re: Re: Gleevac Side Effects-

[Guest guest]

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Wow, Gleevec doesn't cause fatigue? That is the number one side effect in

my book. Is there a way you can see a CML specialist? If your having to

educate your doctor as you go along, that could be a dangerous conversation if

you ever started getting sicker. That my 2 cents though. When I was first

diagnosed, the hospital assigned me to an oncologist who later I found out that

he was a lung cancer specialist. I fired him and went with a doctor who

actually knew of CML and knew how to treat it after he pretty much brushed me

off

with 3-5 years to live and a horrendous bone marrow biopsy where he

mulitated me.

The difference with a doctor who knows the disease is worth millions. They

are on top of research, new drugs, programs and clinical trials. They also

should have other CML patients. I don't know but for me it was a wonderful

change.

I am glad you are doing well on the medication and wish you nothing but the

best.

35

CML 5/13/05

Spyrcel 100 mg

(Gleevec 800 mg until 8/07)

Wife and mother of 3 (12,8,6)

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