Guest guest Posted July 18, 1999 Report Share Posted July 18, 1999 Dear , For the burning stomach and or ulcer and or diarrhea, I highly recommended two Prilosec - one am and two PM. It just takes care of it for me. When I started on Arava and I felt invincible -- then realities sink in! All my best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 > Mostly what does is the following: > > Sd: What's a train have? > : Whistle train. > > In this case, another suggestion was to try to with lightning speed go to > the next Sd before he could add on the word train. This is VERY hard to > do. Mostly what works for us is to do the echoic and then prompt the > correct response that I described first.a > > Lynda We had a similiar problem after teaching Tillman to count 1-5 with his fingers. When we would ask " How old are you? " he'd reply " 4...5 " . To stop the chaining we literally shoved a reinforcer into his mouth and would respond...'That's right, you're four years old " . Now, 'years old' has gone into echoics to clear it up for expanding his age response. But we can now rotate in " How old are you? " with other SD's but it took a little isolation (OK, OK a bit of mass trialing 3-5x) and reinforcing at lightening speed to get it cleaned up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2002 Report Share Posted October 12, 2002 , For what it's worth, I want to respond to your post and say yes, my daughter is a " nebulizer " kid--I didn't even know what a nebulizer was until she came into my life (she was adopted from China). Prior to age 2, if she got the sniffles she would be wheezing by the end of the day but fortunately since she turned 2 she has only needed to nebulizer a few times and usually just catches colds and gets over in a week or so like other kids. I'm thankful that she appears to be outgrowing it, we'll see. Kara did not do the high pitched screaming. She did have diarrhea but that was because she had giardia (a parasite) so the diarrhea cleared up immediately when the giardia was treated. I am also curious about other's opinions about seeing a pediatric neurologist. Kara was diagnosed with mild apraxia by an SLP who is also certified in the PROMPT method. I have an appointment with a pediatric neurologist a month from now (I made the appointment last July) and am wondering if I should keep it or not. I probably will keep it because I want to make sure I've pursued every avenue possible, but also have a gut feeling that I won't learn anything new. Did others on this list get your diagnosis from an SLP or from a pediatric neugologist? Thanks, Janice San Diego > > 1: if I'm confident about him having apraxia, why should I bother > > with having a neurologist " certify " him as being apraxic? > > 2: if we decide to take my son to see a specialist, whether speech > > or neurologist, where is the best place in Michigan to go? If we >do > > pursue something like further speech services than what our school > > system can offer or if we do decide to see a neurologist I would > > want to go to someplace with a pediatric neurologist and speech > > therapist highly knowledgeable in apraxia all under one roof. > > 3: it's easier for me to look back upon my son as an infant and > > wonder if all of his HIGH pitched screaming, instead of babbling, > > for what he wanted, was a part of the early signs for apraxia. I > > wonder if his frequent bouts of asthma, his need for nebulizer > > treatments, constant, above normal amounts of spitting up, and > > _long_ bouts of diarrhea were also a part of the 'hidden' picture > > for him, or just unrelated coinsidences(sp)? Have any of you >fellow > > moms experienced the same with your apraxic child? > > > > Thank you. > > Love and God Bless, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2002 Report Share Posted October 13, 2002 > Did others on this list get your diagnosis from an SLP or from a > pediatric neugologist? > > Thanks, > > Janice > San Diego Our initial dx was from our SLP who had been treating our daughter for 6 months prior to the dx. Our ped neuro said apraxia is more of a therapist term and he uses developmental coordination disorder (which is the same as dyspraxia/apraxia). Our ped neuro also said it is poor wiring, which I agree because the signals are not getting to where they should be. Our dev ped also said dev coor disorder, but recognized apraxia as a dx. Traci, mom to Kennedy 2.5, apraxia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi carol, thanks for writing me back. It makes total sense. It makes me sad that these little bodies and minds get sooo overwelmed. I wish I was a mind reader sometimes just to relieve the stress. Just to say its ok buddy you'll get it. thanks for writing these emails they make me understand a little bit more about the tics or " stims " . I have family who I think, think I'm in denial that my son is PDD or autistic because of these tics or stims. I am teacher who teaches autistic children I know what a stim is, how can they think I'm in denial. This is why your e-mail is sooo important to me. I just couldn't explain why to them. Now I can thanks Carol chris Holt <kcholt11@...> wrote: , No one seems to know WHY he does this in response to fatigue, stress, hearing loss. But remember that he has low tone and global apraxia and some left-sided weakness in his body and hearing loss on his left ear. We don't know why he has all of these either but it makes a lot of sense that these would make him fatigue much faster than the average kid. he sweats more too. Also I think a lot of times the stress is internal.....having a sense that things are not right and that I am falling too much, missing what people are saying, misinterpreting sounds, hearing a high squeal noise in my ear, etc. etc. So even though the stress on the outside does not seem extreme for the average person, it is stressful and tiring for my son. I am still trying to find the direct connection to the hearing loss, other than what I said above, but the ENT said that people do have behavioral differences when they aren't hearing as well. Also, I should say that the " stimming " looked more like " tics " to me, although at times you could have called it " stimming " . But the doctor said because they weren't all the time and you could interrupt them they could not technically be called those. He is really into jokes right now. here are two: " What do you call a seagull circling the bay? " A BAGEL. " What do you call something with six legs that only uses four of them? " A horse and his rider. all for now, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Dear , It was dejavu when I read your post. I had some of the most difficult menses with severe cramps and everything else you encountered. I remembered my classmates making a chair with their arms and carrying me to a bed in Home Ec. I was embarrased to no end to leave such a messy bed when I got up. Now I have read that they have a simple surgery for that. I had premature menopause after a hysterectomy at age 38. The night sweats soon followed. I often thought, " Is this my reward for the difficult menses and childbearing? " I suppose I was blessed, as I only had them at night when I lay down. I was diagnosed at 67, so that part was history for me. Before my diagnosis, I did experience severe sweats 24/7, especially when I was outside working in my flower beds. I had large beads of sweat rolling from my scalp onto my eyeballs that would obscure my vision and burn my eyes. I began to wear a sweat band to try to contain some of it. Head sweating in such volume was new to me. A severe case of GERD brought me to ER and the rest is history. My " change of life " was not menopause, but CML. I often think of Peck's book, where he begins with the sentence, " Life is difficult. " I didn't know how relevant it would be to me for several years. Everything else up to that point had been transient. We all have a knight in shining armor, Dr. Druker, who for the most part, brought us from out of the dark hole CML had brought us in with the advent of Gleevec. Everyone clamored to get it, STI was on the lips of everyone with CML and we all sought after that holy grail. Many of us have moved on to other drugs, but it will always be the gold standard. I don't have the statistics, but I think there are more people on Gleevec than any other drug for CML. If there are any men in the group who don't understand and don't have a clue, well so be it. LOL. Thanks to Zavie for inviting me to your group. Best Wishes, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Thanks to Zavie for inviting me to your group. > > Best Wishes, > Lottie > ******************************************* Welcome to the group Lottie! It's always an honour when a " veteran CMLer " joins the group. I'm sure your words will be very comforting to many members and hearing of your experiences will be invaluable to us all. Tracey dx Jan 2002 Quote Link to comment Share on other sites More sharing options...
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