Kaiser

[Guest guest]

Thanks, any info helps. I don't think doxy works in late stage Lyme.

I tried tetra but between the severe sun damage plus horrendous

increase in appetite, I had to stop it. Still, info helps.

aewinchell@... wrote:

>

> Here is a copy of the uses of tetracyclines from the Kaiser home

> page. You have to be a member to access this, so I copied it:

> Once a medicine has been approved for marketing for a certain use,

> experience may show that it is also useful for other medical

> problems. Although these uses are not included in product labeling,

> tetracyclines are used in certain patients with the following medical

> conditions:

>

> Gonococcal arthritis

> Leprosy (for minocycline)

> Lyme disease (for doxycycline and tetracycline)

> Malaria treatment (for doxycycline and tetracycline)

> Nocardiosis (a type of bacterial infection) (for doxycycline and

> minocycline)

> Ocular rosacea (a type of eye infection) (for doxycycline and

> tetracycline)

> Pneumothorax (a pocket of air in the space surrounding the lungs)

> (for doxycycline and tetracycline)

> Rheumatoid arthritis (for minocycline)

> Shigellosis (a type of intestinal infection) (for doxycycline and

> tetracycline)

> Syndrome of inappropriate antidiuretic hormone (SIADH) (for

> demeclocycline)

>

> For patients taking this medicine for SIADH :

>

> ------------------------------------------------------------------------

> Make new friends, find the old at Classmates.com:

> 1/5530/0/_/532797/_/961527067/

> ------------------------------------------------------------------------

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

> ----- Original Message -----

> From: <BGraham107@...>

This came from someone who is interested in getting insurance companies to

pay for alternative approaches. In this case, it is Kaiser. He is

interested in talking to anyone who has tried to get their insurance company

(HMO) in this case to pay for their treatments.

_____

I am interested in speaking with anyone who has tried to get their HMO to

pay for alternative therapy, such as that provided by Stella Maris Clinic.

Bruce Graham

Attorney At Law

Contact info: Bruce Graham - email BGraham107@...

______

I would also be interested in feedback if you could cc me -

cure@.... or if you have tried billing PPO as well, though Bruce

appears to be considering going after Kaiser.

Melinda Wiman

www.cancure.org

The Cancer Cure Foundation

(800) 282-2873

Information and referrals on alternative approaches to treating cancer

[Guest guest]

Hi Sue & Gidget,

Yes Kaiser Permanente is an HMO and they didn'y bark at my entire treatment from August to almost March.

Since I had genotype 2b

, they might have opted to cut it short..not a minute too soon..I really needed a break.

ted

Re: [ ] Re:Ted's success story

Teda, isn't kaiser part of Group Health? That's the hmo we have and Greg is on the treatment, body allowing, for 48 weeks.sue and gidget

[Guest guest]

Hi ,

Welcome to the group! Wow, triplets, you do have your hands full

then. I looked in our insurance database and I see two Kaiser

families listed, one paid 50% and one paid 80%. You'll need to read

your contract to see if there are any DME or orthotic exclusions.

What area do you live in? We have so many members that we might

have one in your area that could point you in the direction for

treatment.

Natasha

Atlanta, GA

--- In Plagiocephaly , " cpdevries " <cdevries@c...>

wrote:

>

> Hello, I just joined the group, I have a set of triplets who will

be

> 7 months old on Saturday. One of them, my son, has torticollis

which

> has been passed off the last 7 months. I finally got a referral

to

> the OT but I am worried that I should go to see a craniofacial

team.

> I have been told to push for a helmet. Does anyone have any

> experience with Kaiser on this. I am really want to get this

taken

> care of. His face is lopsided and his ears are misaligned. One

ear

> is about 2 inches further back from the other when you look from

the

> top of his head. The torticollis was mentioned at his Great

Starts

> appointment (6 days old) but I didn't really know what it was and

I

> was told to try and make him do things on his right side as much

as

> possible. I guess I didn't really know how serious it was and at

the

> 1, 2, and 4 month checkups it wasn't made a big deal about and I

feel

> like I would have just walked out of the doctors office at their 6

> month checkup with the same answers had I not really been upset

about

> it. Any suggestions????

> Thanks,

>

[Guest guest]

Hello and welcome to our group. First of all, you are my

hero!!! Triplets!!! I can barely keep up with my twins who will

turn 16 months old this friday.

One of my twins, Ignacio, also had tort but it was a mild case. He

was also born with plagio due to in uterus constraint. His tort was

resolved with exercises, most of them done by dh and I at home, and

he got the Doc Band for the plagio with very good results. I really

dont know anything about Kaiser but I would definetely go for a band

if you think he needs one. Only a mom knows what best for our kids.

We have some other parents of multiples so you are in good company;-)

Please, give us a little more info about you and your family...

maybe we can help a little more.

Annie

Mom to twins, Ignacio (DOC Grad 5/17/04) &

San , PR

--- In Plagiocephaly , " cpdevries " <cdevries@c...>

wrote:

>

> Hello, I just joined the group, I have a set of triplets who will

be

> 7 months old on Saturday. One of them, my son, has torticollis

which

> has been passed off the last 7 months. I finally got a referral

to

> the OT but I am worried that I should go to see a craniofacial

team.

> I have been told to push for a helmet. Does anyone have any

> experience with Kaiser on this. I am really want to get this

taken

> care of. His face is lopsided and his ears are misaligned. One

ear

> is about 2 inches further back from the other when you look from

the

> top of his head. The torticollis was mentioned at his Great

Starts

> appointment (6 days old) but I didn't really know what it was and

I

> was told to try and make him do things on his right side as much

as

> possible. I guess I didn't really know how serious it was and at

the

> 1, 2, and 4 month checkups it wasn't made a big deal about and I

feel

> like I would have just walked out of the doctors office at their 6

> month checkup with the same answers had I not really been upset

about

> it. Any suggestions????

> Thanks,

>

[Guest guest]

Hi ,

Welcome to the group! I'm sure you're sick of hearing it, but

triplets, wow! You're amazing and I don't even know you, lol.

Where do you live? I know nothing about Kaiser, but we're bound to

have someone in your area from our group. It sounds like your son

has some pretty significant facial assymetry. Can you post any

pictures? We have some severity assessment forms in our links

section that may give you an idea of his severity. If I were you

I'd definitely see a craniofacial doc or neurosurgeon who is

plagio/band friendly. Your ped can also write a script if you know

you want to go the banding route. Thats great he'll be getting

therapy for the tort. Banding gets better/faster results the

earlier you do it, so if you think that's a road you may take, the

sooner you can the better. I'd love to see pics of your little ones

if you want to post any! My daugher's before and after pics are in

the photos/before and after/DOCband/ Hannah B folder if you're

interested. She required 3 bands to treat her severe plagio. She

didn't have tort though, her plagio began inutero.

, mom to Hannah, DOCgrad 7/29

Cape Cod, Ma

--- In Plagiocephaly , " cpdevries " <cdevries@c...>

wrote:

>

> Hello, I just joined the group, I have a set of triplets who will

be

> 7 months old on Saturday. One of them, my son, has torticollis

which

> has been passed off the last 7 months. I finally got a referral

to

> the OT but I am worried that I should go to see a craniofacial

team.

> I have been told to push for a helmet. Does anyone have any

> experience with Kaiser on this. I am really want to get this

taken

> care of. His face is lopsided and his ears are misaligned. One

ear

> is about 2 inches further back from the other when you look from

the

> top of his head. The torticollis was mentioned at his Great

Starts

> appointment (6 days old) but I didn't really know what it was and

I

> was told to try and make him do things on his right side as much

as

> possible. I guess I didn't really know how serious it was and at

the

> 1, 2, and 4 month checkups it wasn't made a big deal about and I

feel

> like I would have just walked out of the doctors office at their 6

> month checkup with the same answers had I not really been upset

about

> it. Any suggestions????

> Thanks,

>

[Guest guest]

Hi CHristine...welcome to the group. From your description of your

son's ears, it sounds like he has a pretty significant assymmetry.

My suggestion would be to find a specialist, craniofacial or pede

neurosurgeon who can give you some guidance as to whether your ds

should be banded (I think if his ears are as off as you say, he will

probably benefit from a band or helmet). Don't let any doctors push

you around or brush off your concerns. You are the mom and you know

best about your son. I don't know anything about kaiser...my dd is

a repo baby. But please keep in touch and let us know what you

decide to do.

Becky ('s mom) in Pgh, PA

> >

> > Hello, I just joined the group, I have a set of triplets who

will

> be

> > 7 months old on Saturday. One of them, my son, has torticollis

> which

> > has been passed off the last 7 months. I finally got a referral

> to

> > the OT but I am worried that I should go to see a craniofacial

> team.

> > I have been told to push for a helmet. Does anyone have any

> > experience with Kaiser on this. I am really want to get this

> taken

> > care of. His face is lopsided and his ears are misaligned. One

> ear

> > is about 2 inches further back from the other when you look from

> the

> > top of his head. The torticollis was mentioned at his Great

> Starts

> > appointment (6 days old) but I didn't really know what it was

and

> I

> > was told to try and make him do things on his right side as much

> as

> > possible. I guess I didn't really know how serious it was and

at

> the

> > 1, 2, and 4 month checkups it wasn't made a big deal about and I

> feel

> > like I would have just walked out of the doctors office at their

6

> > month checkup with the same answers had I not really been upset

> about

> > it. Any suggestions????

> > Thanks,

> >

[Guest guest]

hi ,

Welcome to the group. Ok I'll get it out of the way. WOW

triplets! I would love to see pics.

Let me see if I understand your situation.

You are concerned about your son's head shape.

You son is currently in OT being treated for tort.

You have Kaiser insurance.

Ok now my questions.

Where are you located?

Does your ped recognize the headshape abnormalities?

How do the other two look?

Have you tried repositioning in the past (7 months is kind of old to

begin repo)?

Was he born with the tort and/or plagio?

Will your ped refer you to a cranial facial surgeon, neruo surgeon,

or plastic surgeon who specializes in plagio diagnosis and treatment?

Are there any Cranial Technologies offices near you? (They offer free

evaluations).

Does your OT believe he is a good candidate for helmet/band therapy?

You ped can write the RX for the helmet if he/she is comfortab;e with

that.

You have to have an RX and usually a letter of medical necessity. We

have some examples you could provide to your dr if he needs

assistance. Insurance can be tough on helmet therapy. You usually

need to be pre-approved or pre-denied before beginning treatment. If

denied we can help you with the appeal - we have a huge insurance

section under files.

mom to na

DOC Grad

Tort Resolved

SC

--- In Plagiocephaly , " cpdevries " <cdevries@c...>

wrote:

>

> Hello, I just joined the group, I have a set of triplets who will

be

> 7 months old on Saturday. One of them, my son, has torticollis

which

> has been passed off the last 7 months. I finally got a referral to

> the OT but I am worried that I should go to see a craniofacial

team.

> I have been told to push for a helmet. Does anyone have any

> experience with Kaiser on this. I am really want to get this taken

> care of. His face is lopsided and his ears are misaligned. One ear

> is about 2 inches further back from the other when you look from

the

> top of his head. The torticollis was mentioned at his Great Starts

> appointment (6 days old) but I didn't really know what it was and I

> was told to try and make him do things on his right side as much as

> possible. I guess I didn't really know how serious it was and at

the

> 1, 2, and 4 month checkups it wasn't made a big deal about and I

feel

> like I would have just walked out of the doctors office at their 6

> month checkup with the same answers had I not really been upset

about

> it. Any suggestions????

> Thanks,

>

[Guest guest]

He are some answers to some of your

questions. I thank everyone for their help in this. I am

really feeling a little lost and not too sure as to what my goals should

be. I will take a look at some of the stuff I was referred to on

the site (the surveys and stuff) to do a self evaluation of his

condition. I will also try to take some pictures to refer back to

as that really sounded like a good idea and a realistic expectation that

I won't remember what was, compared to what is, in a couple of

months.

You are concerned about your son's head shape.

Yes, the left side of the back of his head had flattened and his face and

forehead are further out on the one side and his ears are no aligned with

each other.

You son is currently in OT being treated for tort.

Yes, he had his first session with the OT Friday October 1. and has

another appt. scheduled for November 8. We are on the cancellation wait

list to try and get in sooner though since the OT said she wants to

pursue aggressive therapy and see him every other week, unfortunately she

only works 2 mornings and 1 afternoon a week.

You have Kaiser insurance.

Yes.

Where are you located?

Southern California, about 45minutes-1hour east of Los Angeles

Does your ped recognize the headshape abnormalities?

She has, and I was very concerned at their 6 month appointment so she

went ahead and gave us the referral to the OT at that time.

How do the other two look?

Kennedy has a flat spot on the right side of the back of her head (not as

bad as Grant’s) but she doesn’t have tort. She did not get a

referral to the OT since she does not have the tort. Madison is going to

see the OT for brush therapy since she is so fussy and sensitive to

touch. She does not have a flat spot at all, in fact the OT pointed

out the opposite, that she has an unusual point in the back of her

head. It is near or at the soft spot and it is a pretty prominent

point. She asked that I speak to our Ped about it but I haven’t

called her on it yet so I still don’t know what it is. I am just

trying to get a referral on Grant right now for his head.

Have you tried repositioning in the past (7 months is kind of old to

begin repo)?

No, we have only done some neck exercises, but not much, mostly just

making him eat facing the other side and trying to get him to lay on his

other side (which is mostly unsuccessful).

Was he born with the tort and/or plagio?

I assume he was born with the tort since it was noticed by the NP at his

great starts appointment at 6 days old. Unfortunately it wasn’t

made a big deal of and I didn’t know any better. I just heard that

he would grow out of it. I didn’t really notice any plagio but I

wasn’t all there either. I was kind of out if the first couple of

months, recovering from a terrible c-section experience and no sleep as I

was combo bottle feeding/nursing (and pumping) with the triplets and only

help from my partner who was back at work when they were only 1.5 wks

old.

Will your ped refer you to a cranial facial surgeon, neruo surgeon,

or plastic surgeon who specializes in plagio diagnosis and

treatment?

I called yesterday morning and asked for a referral to the craniofacial

team, but I haven’t gotten a call back yet. I will call again

tomorrow if I don’t hear back.

Are there any Cranial Technologies offices near you? (They offer free

evaluations).

I didn’t know this. I actually just really started looking into all

this a couple of days ago when I went to see the NP who evaluated him at

6 days old and diagnosed the tort. She was really upset that I

wasn’t at the OT sooner and suggested I be really nasty if I had to be

with Kaiser because they probably don’t want to pay for the

treatment.

Does your OT believe he is a good candidate for helmet/band therapy?

She mentioned the helmet being an option if the therapy doesn’t help

after 6 months to 1 year. She brought it up (at the time I didn’t

know what she was really talking about) and said that it and surgery was

a last resort since they don’t like to put the kids through wearing a

helmet since it is so uncomfortable and unpleasant for them. I

agreed that I didn’t want to torture my son if it (the helmet) was that

bad.

You should post some pictures.

I will try to take a look at the different pictures on the website and

see if I can get a few angle shots of his face, forehead, ears and the

back of his head. I think taking the pictures might be easier for

me than actually posting them to you site though. Wish me luck on

the picture posting adventure.

Thanks again everyone for your help!

Mom to Grant, Kennedy and Madison born 03/09/04

[Guest guest]

A class with other plagio parents sounds like a great way to meet

others in your situation. Is it optional though or a requirement

before getting banded? Three more weeks is a long time to wait just

to get more information. It can takes weeks to get the insurance

stuff out of the way, plus the helmet takes a couple weeks to come in

after casting/scanning. Are there any other local options for you to

look into? Sounds like you're doing a good job keeping her off her

head in the meantime, but it is hard to wait. Let us know what

happens.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> Has anyone gone through the banding process with Kaiser? I feel

really

> in the dark about what's going to happen, how long it will take, how

> much it will cost, etc. I was just assigned to go to a class with

> other parents of plagio kids. It doesn't even take place for

another 3

> weeks. I feel like Catie's plagio (brachio) is getting worse by the

> day even though I'm using the noggin nest, tummy time, memory foam,

and

> Baby Bjorn to try correct it or at least stop it from getting any

> worse. Catie is 17 weeks old and I'd like to get this going as soon

as

> possible. If your child is a Kaiser patient, I would appreciate any

> info/feedback you can give me. We live in the San Francisco Bay

Area

> (Marin County) if it makes a difference. Thanks,

[Guest guest]

I'm also with Kaiser in N. Cal. I live in Sacramento and have a very

good oncologist at the Morse Hospital facility in Sac. I am also a

patient of Dr. Shah at UCSF--he's my CML specialist, and my onc at

Kaiser is happy to work with him. I pay for visits to Dr. Shah, but my

onc has arranged to get my PCRs done at the UCSF facility, which is

where Dr. Shah recommended, so I don't have to pay separately (or at

least any more than the $10 co-pay) for the PCR tests. I was dx June

1, went onto Gleevec at 400 mg about June 7, and as of late December I

have a 1.5 log reduction (BMB/BMA showed 1 philly).

[Guest guest]

,

How much distilled water if you are n 4.5 mg dose daily?

[low dose naltrexone] Kaiser

Hi

50 mg Naltrexone tabs are covered by most insurances. You can easily make LDN from it by dissolving tablet in disstiled water.