Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Hi everyone, I posted about lymphoma/CML, but now I need your help again, please. A little background. Dx 11/2007. Gleevac x 3 weeks. Horrible muscle pain etc..stopped it. (My white count got back down to normal right before I stopped it). Today is day 15 on Sprycel. I just saw doc on Friday and WBC back down to 9,000. (GREAT) I was just telling him how I thought I could handle it and everything would be cool. Well, Friday night had bad muscle pain again (mostly in my arms). Slept. Woke feeling fine. By lunch my stomach was really hurting (after I ate) as it has done a couple of times since starting the Sprycel (70 mg twice a day, 140 mg a day). A few hours later I had worsening stomach pain right above my navel and upper back pain, and a fever, I think. 1. Anyone else on 140 mg? Is that too much. 2. Muscle pain common with Sprycel too? (I knew it was with gleevac.) 3. What's with my stomach? I do take Protonix twice a day and also took first dose of some Reglan doc rx to help with the tummy issues, but I don't know that it helped all that much. 4. Can you take Ibuprofen with CML/Sprycel. I stopped it because of my tummy, but need something for muscle pain. 5. I think my onco are slightly clueless. (How do I get a second opinion from Stanford without insurance (applied for Medicaide and WAITING!) 6. How did you all get so smart????????????????????????????????????????????????????????????????? Thanks...Cheers... You all are wonderful Marrianne Quote Link to comment Share on other sites More sharing options...
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