Night sweats

[Guest guest]

I woke up with night sweats this 3 am. Should I be alarmed I am (47)

maybe just change of life? I have a dr. and blood work appts this tues.

Am on 90 mg of sprycel since may 2006, dx'd april 2007,I reached

cystogenic remission for less than a month in nov.. Was dx'd CML blast

crisis and 2nd doctor said I had maybe 2 yrs because I was in blast

crisis when dx'd. So needless I feel concerned. Hoping you guys would

relieve my mind.

All in put would be greatly appreciated.

God Bless Anita

[Guest guest]

Anita,

Of course, anything that happens, always bothers me. Night sweats were one

of my original symptoms, so the first time I had some, I was freaked. But,

then it was just that one time. I let the Onc know. I had one the other day.

I guess I have gotten used to little things popping up, so unless they stay

around, like all the time, I would not be too alarmed, that is the approach

I use for me. Now, you start having them all the time, I would be sure to be

pushing your Dr on the fact this is worrying you. You may also want maybe

mention this to your GP Dr. Sometimes I get the impression some specialty

Dr's do gloss over symptom's that are more garden variety than what they

diagnose and treat on a daily bases, though, the night sweats are a CML

symptom.

These days, I have gotten pretty laid back on little occasional things

happening, I make note of it to mention to the Onc, but I seriously do not allow

myself to get all worked up. That just leads to more problems, for me.

God Bless,

Chris

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

I was having the night sweats in the beginning and the dr was telling me

menapause.. but I was finally dx'd 6 mths later with CML and the sprycel I

fianlly stopped the sweats, and all the other symptoms. My white cells and

platelets have been on an incline for 2 mths and have had 2 bmb with not enough

marrow (per dr words) to proper analyze. But they know I still have the Philly

chromosone. And want to do another bmb.

I appreciate you taking te time to answer me Thank you for the information it is

greatly appreciated.

Anita

[ ] night sweats

Anita...my hubby is now 48 & has night sweats....so just attribute that to

many issues. Between your age, crazy weather, your home conditions & add

CML in....just no way to be sure. I have been hot for years and all day

too.....so, everybody processes their internal temps differently.

also, when he was diagnosed three years ago, Nov, the docs were ready to

ship him off to hospice because they just assumed he was dying with his high

white count & blast crisis. They can only guess!!! You need to

FIGHT......get the help you need......and believe me we have begged & become

very

humble in order to keep my dh alive. Due to our financial situation, it would

have been very easy for doc offices to blow us off & let him just die. I

swallowed my pride, was aggressive in asking for appts, and tests, and even

for the drugs he needed. Hubby is even working fulltime finally..... so, don't

just accept what they tell you as gospel.

also, folks have been talking about BMB's....my dh has one every 3 months

since diagnosis... .....for me, it gives me piece of mind instead of worrying

about slight changes. Sure, you can't control some of the changes, but it

does make you aware of your current status. Unless the white cell count goes

up in spite of the chemo, this is the other way to know if there are serious

changes going on.

He is doing so much better on Sprycel, we expect the study doc to let him go

6 months until his next bmb, but we won't know that till Wed when we got to

UTSW. Since, we can't go to a CML specialist, we have to go with the

knowledge of the docs who treat dh....and then I read & read to educate myself

as

best I can to know what to ask about the next visit.

Lora

************ **Start the year off right. Easy ways to stay in shape.

http://body. aol.com/fitness/ winter-exercise? NCID=aolcmp00300 000002489

[Guest guest]

Hi Anita,

I totally understand the fear you are experiencing with the night

sweats. That was my only symptom on diagnosis so now I automatically

associate any night sweats with active CML.

The reality though is that night sweats are not necessarily due to

CML. I've been on Gleevec for 6 years now and have had a 3 log

reduction for the last couple of years yet I still have occasional

night sweats.

I suspect that hormones play a role as do many other factors. I've

noticed that even my husband (who's perfectly healthy) has occasional

night sweats as well so don't worry right away that your night sweats

are due to CML.

Many doctors recommend bone marrow transplants for patients who were

diagnosed in blast crisis, even if they respond well to drug therapy.

Is this something you've considered?

Tracey

>

> I woke up with night sweats this 3 am. Should I be alarmed I am (47)

> maybe just change of life? I have a dr. and blood work appts this

tues.

> Am on 90 mg of sprycel since may 2006, dx'd april 2007,I reached

> cystogenic remission for less than a month in nov.. Was dx'd CML

blast

> crisis and 2nd doctor said I had maybe 2 yrs because I was in blast

> crisis when dx'd. So needless I feel concerned. Hoping you guys would

> relieve my mind.

> All in put would be greatly appreciated.

> God Bless Anita

>