Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 Hey , When you're up to it, I'd have another x-ray done too. It may not be an obvious break, but fractures hurt like heck! I had a " hairline " fracture on my right leg bone at the bottom nearest my ankle and it drove me " batty! " . They did put a light weight cast on it just to reduce the stress and pressure from moving my leg around during dressing and transfers. I hope your recovery is quick and less painful. Angie On 2005.04.26 22:52, a B. wrote: > Oh my God!! That's awful! Please tell her I will pray for her. If she is > still in excruciating pain in the next few days I'd encourage her to go > back for more X-rays. Two summers ago I was dropped during a transfer and > broke my left femur. I went to the ER and they initially said " nothing was > broken " and sent me home on pain meds (they were also very poor in their > care for me). Five days later I was still miserable and practically dragged > in to see my regular GP doc who took an X-ray at her office and immediately > could tell it was broken. Go figure?! > > > > Biancucci <laurenmarie791@...> wrote:Hi friends of rebecca, > > Hi guys... > got this news today below about rebecca (our list manager) and her > sis-in-law later emailed me asking to pass it along....lets all hope she > recovers okay and is back w/ us soon!... ~ ---------- > > I am tracy, beck's former sister-in-law...some of you know me. Beck fell > from her sling yesterday from a few feet above the bath tub. She was taken > by ambulance to the hospital where they did xrays and eventually sent her > back home on pain meds. she is unable to sit up, and thus unable to go on > her computer. She is also sick right now with a cold and a high fever. > This is potentially a dangerous combination and we all need to stick by her > and help her get through this. The ER docs did very little with her...they > were extremely busy and distracted by other emergencies...she is not sure > if she has sufferred injuries they may have missed due to the failure to > examine her properly. She is also at risk for pneumonia. > > I will update everyone when I can. I can deliver emails to her if you'd > like...just reply to this email. > > > wrote: > > There are 3 messages in this issue. > > Topics in this digest: > > 1. Re: Quebec accessibility? > From: Bettylou Ross > 2. Re: Quebec accessibility? > From: Joy > 3. Three online classes about cooking as a person with disabilities > From: " Alana R. Theriault " > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Mon, 25 Apr 2005 13:52:56 -0400 > From: Bettylou Ross > Subject: Re: Quebec accessibility? > > Where in Quebec? I know a few SMA families there, maybe can put you in > touch to ask them. > also congrats Amy!! > bettylou > > Joy wrote: > > This is a question for the Canadian's on the list... > > > > Can you tell me about the accessibility in Quebec? Looks like I'll get > > to visit this summer with my hubby as his work is sending him there! > > Thanks for any info and ideas you can share! > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Thank you so much Lottie! I've been feeling like I must be crazy, because the have checked for blood clots and found nothing. I feel so much anxiety about taking the Gleevec again, because I know what to expect. I feel much better from your post, because I feel that I am armed and educated. Thanks again Lottie Duthu <lotajam@...> wrote: Dear , Something similiar happened to me for one day. I couldn't walk, my husband had to push me around in a wheel chair. My oncologist was not on duty, so I saw the hematologist. My poor husband pushed me back and forth several times from the hospital atrium to the labs and in between I slept on a sofa in the waiting room. I was there until the office closed and they never found out what the trouble was, but it was hurting from the groin to my ankle. He said he had good news/bad news. The good news is they didn't find anything and the bad news was they didn't find anything. When I saw your post, I said, " Oh my gosh, that sounds so like what I had. " I know yours lasted longer and I don't want to minimize the reality of your pain, it is real. Physical therapy is the last thing I want to do with that kind of pain. I do hope they can give you something for pain, or if you are that intolerant, you may want to search for another drug or trial. I understand from the people in AMN107, they can only take 1/2 the dose, which is 400. They tried 800 and were intolerant and had all kinds of side effects, including acne. There is something out there for you, just keep looking and don't give up in your search. When I was first diagnosed, I did my own sleuthing and here is something I found and it has nothing to do with your pain, but what they are doing in search of a cure. The title of the short article was " Understaning the Mysteries of Life " . " Leukemia has served as a model for the understanding and treatment of all cancers. Much of the early work on AIDS were done by leukemia researachers. " If you are wondering why, it's because leukemia cells are found in the blood and bone marrow, cell structure and their behavior is studied under the microscope. This is the era of immunology and molecular genetics. Leukemia researachers continue to be at the forefront of cancer research. When this article was written, Gleevec was only in someone's dreams - Dr. Druker at OSHU. Have you noticed that many patents for new drugs are for leukemia? They are making giant strides because leukemia is the easiest for them to understand. So now they are at the forefront of all cancer research. Their revolutionary techiniques are unraveling the mysteries of the life of a cell, thereby finding the most basic questions about cancer and solving them for you and me. Parts were taken from www.leukemia.org/docs/med_res_edu.html dated 8/1/96 and parts were my own words interjected. The site has changed to if you want to explore there further: http://www.leukemia.org/hm_lls It now and features news and podcasts. Here is an excerpt from another leukemia support group: http://www.cmlsupport.com/cmlgleevecsideeffectsguide.htm The problem: Some experts believe that bone pain is the result of Gleevec killing so many cancerous cells. Still, some patients have said it's so bad that it even hurts to cry. Some say the pain is the worst in the thigh bones and shin bones. Some report that bone pain is worse shortly after starting Gleevec but then diminishes over time, as there are fewer cancer cells to kill off. If Lynne A. is reading this, she can tell you more about bone pain and what she has done about it. O. K., Lynne, it's your turn. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Dear , I did not see your original post but is your pain drug-related or just from the CML? What are you being treated? with, Gleevec? - Lynne s When I saw your post, I said, " Oh my gosh, that sounds so like what I had. " I know yours lasted longer and I don't want to minimize the reality of your pain, it is real. Physical therapy is the last thing I want to do with that kind of pain. I do hope they can give you something for pain, or if you are that intolerant, you may want to search for [ ] 's Pain Dear , Something similiar happened to me for one day. I couldn't walk, my husband had to push me around in a wheel chair. My oncologist was not on duty, so I saw the hematologist. My poor husband pushed me back and forth several times from the hospital atrium to the labs and in between I slept on a sofa in the waiting room. I was there until the office closed and they never found out what the trouble was, but it was hurting from the groin to my ankle. He said he had good news/bad news. The good news is they didn't find anything and the bad news was they didn't find anything. When I saw your post, I said, " Oh my gosh, that sounds so like what I had. " I know yours lasted longer and I don't want to minimize the reality of your pain, it is real. Physical therapy is the last thing I want to do with that kind of pain. I do hope they can give you something for pain, or if you are that intolerant, you may want to search for another drug or trial. I understand from the people in AMN107, they can only take 1/2 the dose, which is 400. They tried 800 and were intolerant and had all kinds of side effects, including acne. There is something out there for you, just keep looking and don't give up in your search. When I was first diagnosed, I did my own sleuthing and here is something I found and it has nothing to do with your pain, but what they are doing in search of a cure. The title of the short article was " Understaning the Mysteries of Life " . " Leukemia has served as a model for the understanding and treatment of all cancers. Much of the early work on AIDS were done by leukemia researachers. " If you are wondering why, it's because leukemia cells are found in the blood and bone marrow, cell structure and their behavior is studied under the microscope. This is the era of immunology and molecular genetics. Leukemia researachers continue to be at the forefront of cancer research. When this article was written, Gleevec was only in someone's dreams - Dr. Druker at OSHU. Have you noticed that many patents for new drugs are for leukemia? They are making giant strides because leukemia is the easiest for them to understand. So now they are at the forefront of all cancer research. Their revolutionary techiniques are unraveling the mysteries of the life of a cell, thereby finding the most basic questions about cancer and solving them for you and me. Parts were taken from www.leukemia.org/docs/med_res_edu.html dated 8/1/96 and parts were my own words interjected. The site has changed to if you want to explore there further: http://www.leukemia.org/hm_lls It now and features news and podcasts. Here is an excerpt from another leukemia support group: http://www.cmlsupport.com/cmlgleevecsideeffectsguide.htm The problem: Some experts believe that bone pain is the result of Gleevec killing so many cancerous cells. Still, some patients have said it's so bad that it even hurts to cry. Some say the pain is the worst in the thigh bones and shin bones. Some report that bone pain is worse shortly after starting Gleevec but then diminishes over time, as there are fewer cancer cells to kill off. If Lynne A. is reading this, she can tell you more about bone pain and what she has done about it. O. K., Lynne, it's your turn. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Hi lynne, Thank you, yes it's from Gleevec I have been for almost 2 weeks & I feel good...no pain...woohoo. I see my Onc. of Friday for alternatives. MoonQn1@... wrote: Dear , I did not see your original post but is your pain drug-related or just from the CML? What are you being treated? with, Gleevec? - Lynne s When I saw your post, I said, " Oh my gosh, that sounds so like what I had. " I know yours lasted longer and I don't want to minimize the reality of your pain, it is real. Physical therapy is the last thing I want to do with that kind of pain. I do hope they can give you something for pain, or if you are that intolerant, you may want to search for [ ] 's Pain Dear , Something similiar happened to me for one day. I couldn't walk, my husband had to push me around in a wheel chair. My oncologist was not on duty, so I saw the hematologist. My poor husband pushed me back and forth several times from the hospital atrium to the labs and in between I slept on a sofa in the waiting room. I was there until the office closed and they never found out what the trouble was, but it was hurting from the groin to my ankle. He said he had good news/bad news. The good news is they didn't find anything and the bad news was they didn't find anything. When I saw your post, I said, " Oh my gosh, that sounds so like what I had. " I know yours lasted longer and I don't want to minimize the reality of your pain, it is real. Physical therapy is the last thing I want to do with that kind of pain. I do hope they can give you something for pain, or if you are that intolerant, you may want to search for another drug or trial. I understand from the people in AMN107, they can only take 1/2 the dose, which is 400. They tried 800 and were intolerant and had all kinds of side effects, including acne. There is something out there for you, just keep looking and don't give up in your search. When I was first diagnosed, I did my own sleuthing and here is something I found and it has nothing to do with your pain, but what they are doing in search of a cure. The title of the short article was " Understaning the Mysteries of Life " . " Leukemia has served as a model for the understanding and treatment of all cancers. Much of the early work on AIDS were done by leukemia researachers. " If you are wondering why, it's because leukemia cells are found in the blood and bone marrow, cell structure and their behavior is studied under the microscope. This is the era of immunology and molecular genetics. Leukemia researachers continue to be at the forefront of cancer research. When this article was written, Gleevec was only in someone's dreams - Dr. Druker at OSHU. Have you noticed that many patents for new drugs are for leukemia? They are making giant strides because leukemia is the easiest for them to understand. So now they are at the forefront of all cancer research. Their revolutionary techiniques are unraveling the mysteries of the life of a cell, thereby finding the most basic questions about cancer and solving them for you and me. Parts were taken from www.leukemia.org/docs/med_res_edu.html dated 8/1/96 and parts were my own words interjected. The site has changed to if you want to explore there further: http://www.leukemia.org/hm_lls It now and features news and podcasts. Here is an excerpt from another leukemia support group: http://www.cmlsupport.com/cmlgleevecsideeffectsguide.htm The problem: Some experts believe that bone pain is the result of Gleevec killing so many cancerous cells. Still, some patients have said it's so bad that it even hurts to cry. Some say the pain is the worst in the thigh bones and shin bones. Some report that bone pain is worse shortly after starting Gleevec but then diminishes over time, as there are fewer cancer cells to kill off. If Lynne A. is reading this, she can tell you more about bone pain and what she has done about it. O. K., Lynne, it's your turn. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Hi lynne, Thank you, yes it's from Gleevec I have been for almost 2 weeks & I feel good...no pain...woohoo. I see my Onc. of Friday for alternatives. MoonQn1@... wrote: Dear , I did not see your original post but is your pain drug-related or just from the CML? What are you being treated? with, Gleevec? - Lynne s When I saw your post, I said, " Oh my gosh, that sounds so like what I had. " I know yours lasted longer and I don't want to minimize the reality of your pain, it is real. Physical therapy is the last thing I want to do with that kind of pain. I do hope they can give you something for pain, or if you are that intolerant, you may want to search for [ ] 's Pain Dear , Something similiar happened to me for one day. I couldn't walk, my husband had to push me around in a wheel chair. My oncologist was not on duty, so I saw the hematologist. My poor husband pushed me back and forth several times from the hospital atrium to the labs and in between I slept on a sofa in the waiting room. I was there until the office closed and they never found out what the trouble was, but it was hurting from the groin to my ankle. He said he had good news/bad news. The good news is they didn't find anything and the bad news was they didn't find anything. When I saw your post, I said, " Oh my gosh, that sounds so like what I had. " I know yours lasted longer and I don't want to minimize the reality of your pain, it is real. Physical therapy is the last thing I want to do with that kind of pain. I do hope they can give you something for pain, or if you are that intolerant, you may want to search for another drug or trial. I understand from the people in AMN107, they can only take 1/2 the dose, which is 400. They tried 800 and were intolerant and had all kinds of side effects, including acne. There is something out there for you, just keep looking and don't give up in your search. When I was first diagnosed, I did my own sleuthing and here is something I found and it has nothing to do with your pain, but what they are doing in search of a cure. The title of the short article was " Understaning the Mysteries of Life " . " Leukemia has served as a model for the understanding and treatment of all cancers. Much of the early work on AIDS were done by leukemia researachers. " If you are wondering why, it's because leukemia cells are found in the blood and bone marrow, cell structure and their behavior is studied under the microscope. This is the era of immunology and molecular genetics. Leukemia researachers continue to be at the forefront of cancer research. When this article was written, Gleevec was only in someone's dreams - Dr. Druker at OSHU. Have you noticed that many patents for new drugs are for leukemia? They are making giant strides because leukemia is the easiest for them to understand. So now they are at the forefront of all cancer research. Their revolutionary techiniques are unraveling the mysteries of the life of a cell, thereby finding the most basic questions about cancer and solving them for you and me. Parts were taken from www.leukemia.org/docs/med_res_edu.html dated 8/1/96 and parts were my own words interjected. The site has changed to if you want to explore there further: http://www.leukemia.org/hm_lls It now and features news and podcasts. Here is an excerpt from another leukemia support group: http://www.cmlsupport.com/cmlgleevecsideeffectsguide.htm The problem: Some experts believe that bone pain is the result of Gleevec killing so many cancerous cells. Still, some patients have said it's so bad that it even hurts to cry. Some say the pain is the worst in the thigh bones and shin bones. Some report that bone pain is worse shortly after starting Gleevec but then diminishes over time, as there are fewer cancer cells to kill off. If Lynne A. is reading this, she can tell you more about bone pain and what she has done about it. O. K., Lynne, it's your turn. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
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