Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 I'd like to know what everyone experiences as they continue on Gleevec. MY doctor is convinced I'm in remission (wbc is 4,500 down from only 39,000 - but the Bone Marrow test confirmed the presence of the Philadelphia Chromosone) I have swelling around the eyes and cheeks.....I take a Lasix type pill when it becomes bad. I have irritable bowel sydrome......(may have had this before Gleevec but now it's worse) I am very tired (slightly anemic....10.3)....and have all kinds of aches and pains which I can't differentiate from the normal arthritis. And muscle cramping in my legs and hands (even with potassium supplement). The doc suggested tonic water to alleviate this. I also have non-specific bumps, or hives, in various places that itch? Benedry seems to help but makes me sleepy. So am I a complainer or amongst you? in Arizona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 I had all those symptoms and more the first few months of gleevec but after almost 12 months, most symptoms have mostly gone except for fatigue and some muscle cramps and bone aches but drinking lotsa water seems to help. Hang in there, it'll get better Margaret Yrulooknback <yrulooknback@...> wrote: Dear Eborchew, Sorry to hear about your symptoms. Disappointing News: I fear you are not alone Other Hand: You can get off of that list, I believe. I too have experienced your symptoms from the IBS to itching and cramps (wow, tell me about those...). What helped me was similar to what your doctor had mentioned. Though not tonic water, I drink plenty of water. Good ole plain water, and plenty off it. I'm no doctor, nor do I play one on TV. I do believe that since I've been drinking plenty of H2O (something which I never cared for), my cramps are almost non-existent. I say almost for when I get beyond " myself " and cease to drinking the water in buckets, the cramps return. Also, the itching, swelling around the eyes (try more rest) and the other symptoms have all gone. Now this may not work for all but I'll swear by it. I now see the effects of remaining hydrated; Water Works! Of course you'll go to the bathroom more and sometimes perform both functions in there but it's worth it to free my bodies of those other aches and pains. Good Luck... Yrulooknback eborchew <eborchew@...> wrote: I'd like to know what everyone experiences as they continue on Gleevec. MY doctor is convinced I'm in remission (wbc is 4,500 down from only 39,000 - but the Bone Marrow test confirmed the presence of the Philadelphia Chromosone) I have swelling around the eyes and cheeks.....I take a Lasix type pill when it becomes bad. I have irritable bowel sydrome......(may have had this before Gleevec but now it's worse) I am very tired (slightly anemic....10.3)....and have all kinds of aches and pains which I can't differentiate from the normal arthritis. And muscle cramping in my legs and hands (even with potassium supplement). The doc suggested tonic water to alleviate this. I also have non-specific bumps, or hives, in various places that itch? Benedry seems to help but makes me sleepy. So am I a complainer or amongst you? in Arizona Remember to smile at people, someone may see you and return the favor! Keyon --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hi You are not in remission,We only get to .000000 if we are lucky. I am 2years on 400 Gleevec count started up onc uped me to 600.You have all the side effects,some say drink plenty of water,tonic water has helped some.I take 520 mg of Dandelion a herb seems to keep me in check. I get scabs like bumps on my scalp that eitch,I will be 2 years this Chrismas some gift .I'm 66 trying to adjust. in TN. We are all here for each other. [ ] Gleevec side effects I'd like to know what everyone experiences as they continue on Gleevec. MY doctor is convinced I'm in remission (wbc is 4,500 down from only 39,000 - but the Bone Marrow test confirmed the presence of the Philadelphia Chromosone) I have swelling around the eyes and cheeks.....I take a Lasix type pill when it becomes bad. I have irritable bowel sydrome..... .(may have had this before Gleevec but now it's worse) I am very tired (slightly anemic....10. 3)....and have all kinds of aches and pains which I can't differentiate from the normal arthritis. And muscle cramping in my legs and hands (even with potassium supplement). The doc suggested tonic water to alleviate this. I also have non-specific bumps, or hives, in various places that itch? Benedry seems to help but makes me sleepy. So am I a complainer or amongst you? in Arizona ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Wow! I never heard of magnesium for muscle cramps before. I'm heading for the health food store! From: rodorbal@... Date: Sat, 24 Nov 2007 15:01:43 +1100 Subject: RE: [ ] Gleevec side effects G’day , You are definitely not a complainer! I have been on Glivec since late September and had nasty side effects like everyone. I actually had to stop for 10 days due to severe migraines, but with the help of a small dose of an antidepression drug which is being used to treat migraines, I then restarted Glivec 2nd daily for 2 weeks and back to everyday now and no problems yay!!!! I have the eye swelling, but fortunately for me all the aches and pains I had previously went after 2 weeks of Glivec. I too have inflammatory bowel disease and initially had problems with diarrhoea and tummy rumbles, but always make sure I eat lots of yoghurt, eat bananas and have a high fibre diet which helps for me. For breakfast I eat a high fibre fruit cereal and yoghurt which helps heaps. Try and avoid any acidic foods – I find this irritates the stomach as Glivec is a gastric irritant, hence the yoghurt. Also, I take Glivec half way through the meal. My haem/t also told me to take 2 tablets of magnesium 3 times a day to stop the muscle cramps and has worked a treat (as long as I remember to take them). I also drink at least 2 litres of water a day and at least 1 glass of water when I take Glivec. Regards, (in Australia) said: I'd like to know what everyone experiences as they continue on Gleevec. MY doctor is convinced I'm in remission (wbc is 4,500 down from only 39,000 - but the Bone Marrow test confirmed the presence of the Philadelphia Chromosone) I have swelling around the eyes and cheeks.....I take a Lasix type pill when it becomes bad. I have irritable bowel sydrome..... .(may have had this before Gleevec but now it's worse) I am very tired (slightly anemic....10. 3)....and have all kinds of aches and pains which I can't differentiate from the normal arthritis. And muscle cramping in my legs and hands (even with potassium supplement). The doc suggested tonic water to alleviate this. I also have non-specific bumps, or hives, in various places that itch? Benedry seems to help but makes me sleepy. So am I a complainer or amongst you? in Arizona __________________________________________________________ Never miss a thing. Make your home page. http://www.. <http://www./r/hs> com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hi , Both calcium and magnesium can help with the muscle cramps. Be aware though, that magnesium can cause diarreah. Take care, Tracey > > > Wow! I never heard of magnesium for muscle cramps before. I'm heading for the health food store! > > > > > From: rodorbal@... > Date: Sat, 24 Nov 2007 15:01:43 +1100 > Subject: RE: [ ] Gleevec side effects > > > > > > > > > > > > > > > > > > > > > G'day , > > > > You are definitely not a complainer! > > > > I have been on Glivec since late September and had nasty side effects like > > everyone. I actually had to stop for 10 days due to severe migraines, but > > with the help of a small dose of an antidepression drug which is being used > > to treat migraines, I then restarted Glivec 2nd daily for 2 weeks and back > > to everyday now and no problems yay!!!! > > > > I have the eye swelling, but fortunately for me all the aches and pains I > > had previously went after 2 weeks of Glivec. I too have inflammatory bowel > > disease and initially had problems with diarrhoea and tummy rumbles, but > > always make sure I eat lots of yoghurt, eat bananas and have a high fibre > > diet which helps for me. For breakfast I eat a high fibre fruit cereal and > > yoghurt which helps heaps. Try and avoid any acidic foods – I find this > > irritates the stomach as Glivec is a gastric irritant, hence the yoghurt. > > Also, I take Glivec half way through the meal. > > > > My haem/t also told me to take 2 tablets of magnesium 3 times a day to stop > > the muscle cramps and has worked a treat (as long as I remember to take > > them). I also drink at least 2 litres of water a day and at least 1 glass of > > water when I take Glivec. > > > > Regards, > > > > > > > > (in Australia) > > > > said: > > > > I'd like to know what everyone experiences as they continue on Gleevec. MY > > doctor is > > convinced I'm in remission (wbc is 4,500 down from only 39,000 - but the > > Bone Marrow test > > confirmed the presence of the Philadelphia Chromosone) > > > > I have swelling around the eyes and cheeks.....I take a Lasix type pill when > > it becomes bad. > > > > I have irritable bowel sydrome..... .(may have had this before Gleevec but > > now it's worse) > > > > I am very tired (slightly anemic....10. 3)....and have all kinds of aches > > and pains which I can't > > differentiate from the normal arthritis. > > > > And muscle cramping in my legs and hands (even with potassium supplement). > > The doc > > suggested tonic water to alleviate this. > > > > I also have non-specific bumps, or hives, in various places that itch? > > Benedry seems to help > > but makes me sleepy. > > > > So am I a complainer or amongst you? > > > > in Arizona > > > > __________________________________________________________ > > Never miss a thing. Make your home page. > > http://www.. <http://www./r/hs> com/r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 I drink on occasion but not nearly the amount I used to..lol. I don't think a drink now and then will hurt you, just don't get hammered to often;) Terry Dxed April 04 40 years old On Nov 24, 2007 1:54 PM, eborchew <eborchew@...> wrote: > > > > > Thanks guys for the encouragement....will try all your suggestions....don't > know about yogurt > as I have always been lactaose intolerant.....but maybe this new > stuff...activa....anyone still > drinking alcohol out there? > > from sunny Arizona > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 I still drink wine and my LFTs are normal. ________________________________ From: eborchew@... Date: Sat, 24 Nov 2007 18:54:21 +0000 Subject: [ ] gleevec side effects Thanks guys for the encouragement....will try all your suggestions....don't know about yogurt as I have always been lactaose intolerant.....but maybe this new stuff...activa....anyone still drinking alcohol out there? from sunny Arizona _________________________________________________________________ Share life as it happens with the new Windows Live.Download today it's FREE! http://www.windowslive.com/share.html?ocid=TXT_TAGLM_Wave2_sharelife_112007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 I do drink a glass of wine or a cocktail once in a while, I never been much of a drinker so I hadn't to change anything. My liver counts are and always have been very good, I would watch that before drinking anything if you are starting with gleevec. The liver toxicity of gleevec varies a lot depending on the individuals. Cheers, Marcos. On Nov 25, 2007 9:29 AM, Rosemary Delaney <rosiedel59@...> wrote: > > > > > > I still drink wine and my LFTs are normal. > > ________________________________ > > > From: eborchew@... > Date: Sat, 24 Nov 2007 18:54:21 +0000 > Subject: [ ] gleevec side effects > > > Thanks guys for the encouragement....will try all your suggestions....don't > know about yogurt > as I have always been lactaose intolerant.....but maybe this new > stuff...activa....anyone still > drinking alcohol out there? > > from sunny Arizona > > __________________________________________________________ > Share life as it happens with the new Windows Live.Download today it's FREE! > http://www.windowslive.com/share.html?ocid=TXT_TAGLM_Wave2_sharelife_112007 > > > -- Marcos Perreau Guimaraes Suppes Brain Lab Ventura Hall - CSLI Stanford University 220 Panama street Stanford CA 94305-4101 650 614 2305 650 630 5015 (cell) marcospg@... montereyunderwater@... www.stanford.edu/~marcospg/ Quote Link to comment Share on other sites More sharing options...
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