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Re: Update on Beth

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Hi Ray,

It's great to hear how well Beth is doing. Has she tried Imodium for

the diarreah? I find it works perfectly for me but some have had to

get stronger, prescription anti-diarreah medication. Either way, she

should be able to control it with one or the other.

Take care,

Tracey

--- In , " monkeyfun_16901 " <monkeyfun_16901@...>

wrote:

>

> Hi, folks I have been reading these posts allmost every day but not

> posting much. As you recall Beth was diagnosed back in Oct.

Initially

> after starting gleevec she had some issues with nuetropenia but

that

> has resolved and may have been a residual effect of having been on

> hydroxuria for a couple weeks. Since then life has been very good.

> Beth is working her full time schedule. She finds she can avoid

nause

> by drinking milk with her 400mg. dose of gleevec. She does seem to

> fatique easier. The most annoying side effect so far has been

diahrea.

> She has come to think that eating chocolate makes it worse. Any

others

> out there with this same issue? Does the diahrea go away after a

bit?

> With so little side effects we have no complaints but if anyone has

> advice on dealing with the diahrea we sure would like to hear from

you.

> Thanks so much for being there. It's a great source of comfort for

us

> to read all the posts.

> Ray

>

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dear ray: i took an imodium every morning. my experience with gleevec first

year, side effects came and went. they gave me a rest from gleevec

occasionally. i found after a few years on gleevec, it built up such a toxicity

in me that the side effects i had previously were magnified going into years

2-4. the fifth and final year i just told my doctor i had to try something else.

meds during 2-4 to counteract the side effects include: blood pressure meds,

stomach meds, pain meds, diuretics meds. you have to watch individually how the

meds are affecting you. tell the doctor and if that doctor won't listen tell

another, make sure they chart it for you. having " the runs " all the time is

fatigue enough. taking a preventative for me worked a whole lot better than

trying to play catch up.

ann grimm

dxd 10.2003

gleevec 03-07

sprycel 2008

[ ] Update on Beth

Hi, folks I have been reading these posts allmost every day but not

posting much. As you recall Beth was diagnosed back in Oct. Initially

after starting gleevec she had some issues with nuetropenia but that

has resolved and may have been a residual effect of having been on

hydroxuria for a couple weeks. Since then life has been very good.

Beth is working her full time schedule. She finds she can avoid nause

by drinking milk with her 400mg. dose of gleevec. She does seem to

fatique easier. The most annoying side effect so far has been diahrea.

She has come to think that eating chocolate makes it worse. Any others

out there with this same issue? Does the diahrea go away after a bit?

With so little side effects we have no complaints but if anyone has

advice on dealing with the diahrea we sure would like to hear from you.

Thanks so much for being there. It's a great source of comfort for us

to read all the posts.

Ray

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  • 2 years later...
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>

> Hello Group,

>

> Heard from Beth today, e-mailed me herself from ICU, her post was short but

she said pain was difficult, and hadn't gotten to talk with her doc. I'll update

you further when I hear from her or her family again.

>

>

>

In my thoughts Beth!!

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