Re: Tasigna-

[Guest guest]

Hi ,

Thank you so much for the kind words and encouragment. I have been

following your husband's journey through the site, and the one thing

I greatly admire is YOU. You really show support and great love and

devotion to your husband, and I truely believe that that love is one

element that truely helps the patient in this CML Odyssey.

We all have different battles to face with CML, but as a group unit,

we are a very strong bunch of people in this fight.

I tell my kids that I'm going to live to be 100 so watch out! Then

they laugh and say, " You can live at MY house! " Can you imagine if

we can overcome and survive CML, live long enough to get the cure,

and then have a long productive life? Sign me UP, because I certainly

didn't sign up for this disease!

Much love,

Lynn

> > > Hello my CML friends and

caregivers,> >> > Is there anyone active on this group that is taking

the newly > > approved,> > Tasigna(AMN)drug?> >> > I've been on

Gleevec for almost 4 years now, and although I look great> > on paper,

(labs, PCR's, etc.) Gleevec has really kicked my butt with> > side

effects and things really came to a head last week.> >> > I am

currently on a Dr. approved break off of Gleevec, and I feel> >

amazing now. (been off less than a week) and want to know if anyone >

> can> > give me any input as to this new drug and how you are doing?

I will be> > either going back onto Gleevec or possibly starting

Tasigna. Will know> > more next week at my next Dr. visit.> >> > Any

all advice would be much appreciated,> >> > Lynn> > Dx'd 12/03> >

PCRU> >> >> > > >> > > [Non-text portions of this message have been

removed]>

>

>

>

>

>

>

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[Guest guest]

Ok, I am new to this message board stuff and this is my first attempt on

this web site. I am taking AMN 107 since April of this year. I was

newly diagnosed and was accepted on a study at MDA Houston.

I have had some side effects, I am 53, and still working. I felt so

good a month or so ago, I thought this is great. Now I am tired and

dragging. I was wondering if this is normal and if every continued to

work and lead normal lives.

But, as far as AMN, it seems from all I read of people taking Gleevec,

it is easier. I have headaches and some minimal side effects. Any

particular questions, please let me know.

> > > Hello my CML friends and

> caregivers,> >> > Is there anyone active on this group that is taking

> the newly > > approved,> > Tasigna(AMN)drug?> >> > I've been on

> Gleevec for almost 4 years now, and although I look great> > on paper,

> (labs, PCR's, etc.) Gleevec has really kicked my butt with> > side

> effects and things really came to a head last week.> >> > I am

> currently on a Dr. approved break off of Gleevec, and I feel> >

> amazing now. (been off less than a week) and want to know if anyone >

> > can> > give me any input as to this new drug and how you are doing?

> I will be> > either going back onto Gleevec or possibly starting

> Tasigna. Will know> > more next week at my next Dr. visit.> >> > Any

> all advice would be much appreciated,> >> > Lynn> > Dx'd 12/03> >

> PCRU> >> >> > > >> > > [Non-text portions of this message have been

> removed]>

> >

> >

> >

> >

> >

> >

> > _________________________________________________________________

> > Boo! Scare away worms, viruses and so much more! Try Windows Live

> OneCare!

> > http://onecare.live.com/standard/en-us/purchase/trial.aspx?

> s_cid=wl_hotmailnews

> >

> >