RE: Tasigna---JEN!!

November 8, 2007

Jen!

I was wondering how you are doing! Sounds AWESOME!!!! I am so happy for you--so

happy to hear you have your life back!

Praise God---

Thanks for sharing your Sprycel experience..

@...: vegasrnjen@...: Thu, 8 Nov 2007 11:08:17

-0500Subject: Re: [ ] Tasigna LYNN READ!!!! anyone who has alot of Gleevec

side effects

Hi all-Just wanted to add my 2 cents to this communication as I haven't been on

for a while.As many of you know, I had horrendous side effects with Gleevec (800

mg) but had really good results. I stuck it out with numerous hospitalizations

to the point of IV's at home 2x weekly. I had every side effects imaginable

including losing my pigmentation in my skin as well as strawberry hair turned

platinum blonde. I was walking around trying to breath with no energy to do

simple things, like shower and retaining so much fluid. I had effusions and

didn't know it. I had to file disability and was approved quickly. All this at

34 years old. I really wanted to stay on Gleevec as it was giving me great

results and a great remission status.However, I have switched to Spyrcel (100 mg

daily). WHAT a difference!!!! I still have side effects such as fatigue and

foggy memory, mild nausea and diarrhea (every now and then) but nothing is as

bad as it was on Gleevec. All this being said, I no longer feel like I am just

" existing " I feel like I am Living again! I also dropped 16 pounds within 2

weeks which was ALL fluid.What I am trying to babble along and say is if you

aren't handling Gleevec, give Spyrcel a try. I was completely against changing

but I am SO thankful that I did. I was so worried about all the effusions that

everyone was talking about with Spyrcel. I haven't had any as well as a matter

of fact, I don't have the fluid retention that I had with Gleevec and 3 months

later, I am still 16 pounds lighter then I was when I was on Gleevec. No more of

all that fluid and trying to breath with so much fatigue.If you aren't

tolerating Gleevec, switch drugs and see how you do! What do you have to lose?

Give it 90 days and see how you feel. It has giving me my life back. I cant tell

you how much I enjoy things now.The good things about this disease is that we

have choices now with these drugs. I thought Gleevec was all I needed, but I am

SO thankful that Spyrcel has come along. Don't suffer, Live!my 2 cents!hugs and

hopeCML 5/13/05Spyrcel 100 mg dailyWife and mother of 3

(12,8,6)************************************** See what's new at

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