Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Hello, I have been on Sprycel for about 6 months. I have been very happy with my response. Gleevec made me so sick from the side effects and I developed the mutated gene that stopped it from working so I was switched to Sprcel. With Sprycel I have had almost none. I still haven't shown any PC Response but everything else is stable. My dilemma is this. Out of the blue my Hematologist referred me to the head of PMH Hematology Dept. and he wants me to go into a trial for a new drug called HHT. (It has another name but I can't remember it.) My family and I as was my Family Physician were told that I was doing well with Sprycel. Not at the level some people achieve after 6 months but it was working well. If Sprycel is working for me why should I risk what I have achieved in the last 6 months....feel good, gained wieght, am able to work part time,blood counts are stable.....for a drug they know little about that may in fact set me back in my condition? Is anyone in the group going to be in the trials for HHT? If so could you please let me know what made you decide to become involved in the trial of HHT? Thank You Penny(Lusty Lady) Quote Link to comment Share on other sites More sharing options...
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