Guest guest Posted December 26, 2007 Report Share Posted December 26, 2007 Mandy- I was on Gleevec 800mg with horrendous side effects yet response was really good. I switched over in Early September and I LOVE this drug. I still have mild symptoms such as the fatigue, diarrhea and nausea every now and again but seems like even all that is less then I had while on Gleevec. I take mine before bed to sleep through the major side effects. I still have bone pain as well but not as bad as on Gleevec. I am finally " living again " , as I was just existing on Gleevec. I feel alive and am bale to due a majority on the things again. I still get tired but I have learned to pace myself. This has been a blessing thus far!. An added plus, I retained so much fluid on Gleevec always have a swooshing in my ear and a puffy belly and face. With in 9 days of being off Gleevec, I dropped 16 pounds, and it hasn't come back.. It was ALL fluid. No wonder I was always short of breath with any activity.... Best wishes and good luck, its a great drug! 35 CML 5/13/05 Spyrcel 100mg daily Gleevec 800mg until 8/07 Wife and mother of 3 (12,8,6) **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
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