Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 > Alisa- > hi jp tiwari one can raise the red blood cells with diet? this would be awsome i was taking repliva and my dr. said it was a waste because when the proble is faulty cell production in the bine marrow, supplements don't work that was disscorageing for me \cause i've always been a nutrition nut what exactlly is BIOc? and is there anyone else from rochester n.ny.? best wishes to all aliza > I have been diagnosed for just under 3 years now. I was 33 years old at the > time with 3 little children. I am doing much better. I still have good > days and bad days but the good days far outweigh the bad now. > > I have shortness of breath too. I also have chest pain and find it most > annoying as I become dehydrated. So, when you are having these pains, see if > not increasing your fluid intake helps. Also, when my hemoglobin drops under > 11, I notice more chest discomfort as well as increased shortness of breath. > So, I can usually go in and have blood drawn as see why I am having increased > symptoms. If I can relate it, then I am okay with it. Weird but, then I > don't have to worry that it is something else. It usually last a day or two > and then goes away until the next time. > > I would check with your insurance and make sure in fact that your counts > have to be a certain level before procrit. My experience has been if you are > symptomatic and your doctor feels it would benefit you, he can normally make a > call or send in a letter of explanation and get it approved. This normally > just involves a phone call. > > Use this site to verbalize your questions, comments, questions and fears. > It is a great therapeutic avenue especially on the bad days. We have all > walked in your shoes at on time or another and it is important that we are all > here to support one another. Cancer is scary and we all need the support no > matter where we are in our CML juorney. > > Hugs and Hope- > > 35 > CML 5/13/05 > Gleevec 800mg until 8/07 > Spyrcel 100 mg since 9/07 > Wife and mother of 3 (12,9,7) > > > > **************It's Tax Time! Get tips, forms, and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 shalo haver good to see you here though the circumtances stink, but we hv to hang on in ther . B'H' for the wonderful people on this list their knowledge and courage is stregnthening. lov yuo all aliza yaffa **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2008 Report Share Posted March 22, 2008 I too was diagnosed with arthritis in the knees as I was in horrible pain, that was 18mos before dx. Now no knee pain at all. Another thing I had a strange bout with was TMJ and I have ironically heard others mention this too. Sometimes I wonder if this is all related especially when you try and determine how long you had CML for. Regards, Donna > > hi group > I knew something was wrong years ago when i felt low gradw fevers and bone > pains that were dianosed as inflamatory artheritis and as such i lived on xtra > strenghth tylanol. once dx in 2007 3weeks after taking gleevec, all gone, i > get ocational bone pain but nothing like b4. > aliza yaffa > > > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15? ncid=aolhom00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
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