Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 In a message dated 2/22/03 12:50:05 PM Mountain Standard Time, rhondabikerbabe@... writes: > Hepcnonresponderbuddies@... > If you are a nonresponder,please check them out! They just got > started and are looking for people who have not had any luck with all > the Interferon treatments. > > > Have a Great Day, > Rhonda > > That sounds great Rhonda, and when people just want to hang out with friends treatment or not, feeling well or not, hep c or cured you can come and just relax in the Hepperpad - bring a joke! I'll check out your site but I only failed interferon by itself and I've been to chicken to try it again with the combination stuff. My group is growing too so I guess it was needed Keep laughing! - hugs, Kerry HepperPad/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 > Hi! > Just wanted to let everyone know that there's a new group out there > for all the non responders. We need all the support we can get! It > really helps to talk to other non responders when you are one > yourself. The group is called: Hepcnonresponderbuddies@y... > If you are a nonresponder,please check them out! They just got > started and are looking for people who have not had any luck with all > the Interferon treatments.> > > Have a Great Day, > Rhonda I can't find it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 Yea I been getting those emails too, from many . Thank god i didnt open any either whew lol Bon > Hey, > I just ran my virus scan and I had the worm file, I don't know where I got it, but I have gotten rid of it and if you get any attachments from me delete them with out opening them up....I hope this didn't happen... > > Let me know if ya'll have recieved this...thanks > > erin > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 Hi, Would you like a copy of the " welcome e-mail " It has a number of links and some attachments for LDN and MS. Just let me know and I will send you a copy. Kind regards Aletha [low dose naltrexone] Hey Everyone! >I am new to MS seeing as I just got officially diagnosed this past > January. I am now currently taking Copaxone, and am not incredibley > enthused with adminstering the sho, especially because it is painful > and causes swelling. I am very interested in LDN and need some help > navigating my way to a doctor that will provide a consultation and > issue the prescripition here in NYC.Thanks Everyone > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 Yes, please send me the information. From: "Aletha Wittmann" <Aletha@...>Reply-low dose naltrexone To: <low dose naltrexone >Subject: Re: [low dose naltrexone] Hey Everyone!Date: Thu, 16 Mar 2006 20:02:33 -0800MIME-Version: 1.0X-Originating-IP: 216.228.2.126X-Sender: Aletha@...Received: from n4a.bullet.scd. ([66.94.237.38]) by bay0-mc2-f10.bay0.hotmail.com with Microsoft SMTPSVC(6.0.3790.1830); Thu, 16 Mar 2006 20:03:10 -0800Received: from [66.218.69.1] by n4.bullet.scd. with NNFMP; 17 Mar 2006 04:02:54 -0000Received: from [66.218.66.99] by t1.bullet.scd. with NNFMP; 17 Mar 2006 04:02:54 -0000Received: (qmail 58258 invoked from network); 17 Mar 2006 04:02:50 -0000Received: from unknown (66.218.66.218) by m34.grp.scd. with QMQP; 17 Mar 2006 04:02:50 -0000Received: from unknown (HELO mail-fs2.redshift.com) (216.228.2.126) by mta3.grp.scd. with SMTP; 17 Mar 2006 04:02:50 -0000Received: (qmail 15537 invoked by uid 89); 17 Mar 2006 04:02:31 -0000Received: by simscan 1.2.0 ppid: 15514, pid: 15523, t: 0.1462s scanners: attach: 1.2.0 clamav: 0.88/m:36/d:1318Received: from unknown (HELO Basil) (216.228.11.141) by mail-fs2.redshift.com with SMTP; 17 Mar 2006 04:02:31 -0000Hi,Would you like a copy of the "welcome e-mail" It has a number of links and some attachments for LDN and MS. Just let me know and I will send you a copy.Kind regardsAletha [low dose naltrexone] Hey Everyone!>I am new to MS seeing as I just got officially diagnosed this past> January. I am now currently taking Copaxone, and am not incredibley> enthused with adminstering the sho, especially because it is painful> and causes swelling. I am very interested in LDN and need some help> navigating my way to a doctor that will provide a consultation and> issue the prescripition here in NYC.Thanks Everyone>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 HI JANET I KNOW THE FEELING I STILL AM WAITING TO GO TO INDIANAPOLIS AND SEE IF THEY WILL EVEN TREAT MY HEP SINCE I HAVE CHRONES THE DOC HERE WONT I FEEL LIKE CRAP AND I AM SICK OF ITJanet <jfw4359@...> wrote: JUST THOUGHT I'D POP IN AND SAY HI..I HAVE BEEN DEALING WITH ALOT OF CRAP THAT I HAVE BEEN FINDING OUT ABOUT MY OLDEST DAUGHTER..IF I TOLD YALL YOU WOULDN'T BELEIVE ME..ANYWAY I HAVE BEEN UNDER ALOT OF STRESS AND DEPRESSION..NOT GOOD..HAD T ODOUBLE UP ON MY MEDS FOR THE OLE HEAD..NOW A M FINALLY GETTING OU OF MY ROOM AND IT SEEMS THAT I AM RUNING LIKE A CHICKEN WITH MY HEAD CUT OFF..I HAVE BEEN BUSY AND STILL HAVE A DR APPT FOR MY SON THIS AFTERNOON..GEEEEEZ..I'LL BE GLAD WHEN I AM FINISHED..HOPE EVERYONE HAS A GOOD WEEKEND..MISS ALL OF YA!! Jan __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 O!!! YIPPEEE!!! Number 1121 in the Zero Club Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 3.6 log reduction Sep/07 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of addieoh Sent: October 31, 2007 5:44 PM Subject: [ ] Hey everyone! Hey everybody. Sorry I haven't written in a while. Life has been prettyy crazy especially with school. But I have some awesome news! August 9th I got a bone marrow test and the results showed that my bone marrow is completely normal. I'm in complete remission. My doctor couldn't believe it. I was only diagnosed in March. I hope everyone else is doing well! And sorry I haven't been on here to post much at all lately. -Addie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 That's wonderful news Addie, congratulations!! No need to apologize, I'm glad to hear that you're living your life as a regular teenager. Tracey > > Hey everybody. Sorry I haven't written in a while. Life has been > prettyy crazy especially with school. But I have some awesome news! > August 9th I got a bone marrow test and the results showed that my > bone marrow is completely normal. I'm in complete remission. My doctor > couldn't believe it. I was only diagnosed in March. > > I hope everyone else is doing well! And sorry I haven't been on here > to post much at all lately. > > -Addie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Congratulations [ ] Re: Hey everyone! That's wonderful news Addie, congratulations! ! No need to apologize, I'm glad to hear that you're living your life as a regular teenager. Tracey > > Hey everybody. Sorry I haven't written in a while. Life has been > prettyy crazy especially with school. But I have some awesome news! > August 9th I got a bone marrow test and the results showed that my > bone marrow is completely normal. I'm in complete remission. My doctor > couldn't believe it. I was only diagnosed in March. > > I hope everyone else is doing well! And sorry I haven't been on here > to post much at all lately. > > -Addie > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 That is like WAAAAAAAY spectacular, I can't believe it! Re: [ ] Re: Hey everyone! Congratulations [ ] Re: Hey everyone! That's wonderful news Addie, congratulations! ! No need to apologize, I'm glad to hear that you're living your life as a regular teenager. Tracey > > Hey everybody. Sorry I haven't written in a while. Life has been > prettyy crazy especially with school. But I have some awesome news! > August 9th I got a bone marrow test and the results showed that my > bone marrow is completely normal. I'm in complete remission. My doctor > couldn't believe it. I was only diagnosed in March. > > I hope everyone else is doing well! And sorry I haven't been on here > to post much at all lately. > > -Addie > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Yessssss !!!! Very very happy for you . Congratulations and welcome in the Zavie's Club Emile # 527 of the Zavie's Club August 9th I got a bone marrow test and the results showed that my bone marrow is completely normal. I'm in complete remission. My doctor couldn't believe it. I was only diagnosed in March. -Addie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Hi Addie - congratulations, that is awesome news for you and you are a teenager? Are you on Gleevec? Regards, _____ From: [mailto: ] On Behalf Of addieoh Sent: Thursday, 1 November 2007 8:44 AM Subject: [ ] Hey everyone! Hey everybody. Sorry I haven't written in a while. Life has been prettyy crazy especially with school. But I have some awesome news! August 9th I got a bone marrow test and the results showed that my bone marrow is completely normal. I'm in complete remission. My doctor couldn't believe it. I was only diagnosed in March. I hope everyone else is doing well! And sorry I haven't been on here to post much at all lately. -Addie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 I would go to an otologist instead of an ENT and figure out why your ear still hurts so badly. Worrying about pain medication will only treat a symptom of a potentially greater problem. On Mon, Jun 8, 2009 at 10:01 PM, chadblud <chadblud@...> wrote: I had my surgery a year and a half ago. I have really bad pain in my right ear (the ear which had the surgery). I go in for a check up and this is the first time ive been back to the doctor since my surgery, does anyone still have pain in there ear after so long? It just sucks because i go to non-ENT doctors and they prescribe me Meloxycam and it doesnt help and they wont give me anything strong for my head pain should i ask my ENT for pain killers? -- })i({ Melinda Kaye Spille })i({Very Proud Wife of Captain " Big Al " Super Blessed Mommy of Trinity, Emelia & TreyRomans 8:28, Ephesians 3:20(\__/) (='.'=) ( " )_( " ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 > > > > > > > I had my surgery a year and a half ago. I have really bad pain in my right > > ear (the ear which had the surgery). I go in for a check up and this is the > > first time ive been back to the doctor since my surgery, does anyone still > > have pain in there ear after so long? It just sucks because i go to non-ENT > > doctors and they prescribe me Meloxycam and it doesnt help and they wont > > give me anything strong for my head pain should i ask my ENT for pain > > killers? > > > > > > > > > > -- > })i({ Melinda Kaye Spille })i({ > Very Proud Wife of Captain " Big Al " > Super Blessed Mommy of Trinity, Emelia & Trey > Romans 8:28, Ephesians 3:20 > (\__/) > (='.'=) > ( " )_( " ) > I meant Ontologist lol Quote Link to comment Share on other sites More sharing options...
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