Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 --- hi guys i am new to the cml world was diognosed 11/2 ago on gleevec and my dr. says i'm in remission was feeling great for a while but lately not so good. i had many tooth extraction since so glad to know the effect on teeth thaks for the info lottie . lately i've been scared to death not knowing what i'm feeling and my dr. has no answers. so glad to have found the group aliza rochester n.y. p.s. is 29 crit very low? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 > > Hi Aliza, > > You say that your doctor says that you are in remission. Did he give you any > more information? I am always looking for more Zero Club members. To get a > number, you have to be at CCR (Complete Cytogenic Response). This is 0/20 > via a Bone Marrow test or less than 5% by a FISH test or a 2 log reduction > by a PCR test. > > I know that you are new to CML and these terms may not mean anything to you. > Just ask questions on this list and we will answer them. > > I have copied this email to 2 people in the Zero Club from Rochester NY and > maybe they can suggest a CML specialist in the area. > > Zavie > > Zavie (age 69) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.2 log reduction Jun/07 > 3.6 log reduction Sep/07 > 3.5 log reduction Feb/08 > e-mail: zmiller@... > Tel: 613-726-1117 > Fax: 309-296-0807 > Cell: 613-202-0204 > ID: zaviem > YM: zaviemiller > Skype: Zavie > > _____ > > From: [mailto: ] On Behalf Of > alizayaffagutierrez > Sent: March 3, 2008 8:32 PM > > Subject: [ ] Re: BMT vs Therapy > > --- hi guys i am new to the cml world was diognosed 11/2 ago on gleevec > and my dr. says i'm in remission was feeling great for a while but > lately not so good. i had many tooth extraction since so glad to know > the effect on teeth thaks for the info lottie . lately i've been scared > to death not knowing what i'm feeling and my dr. has no answers. so > glad to have found the group > aliza rochester n.y. p.s. is 29 crit very low? > > > > Quote Link to comment Share on other sites More sharing options...
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