Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 You are not the only one at all. I suffered terrible with this on Gleevec. It is much more tolerable now that I am on Sprycel. While on Gleevec I would have 8-10 bouts per day including throughout the night. Lets put it this way, it wasn't always pretty!!! I also dehydrated frequently because of this and ended up having home IV's 2 times weekly. I ended up in the ER or hospitalized about once every 6 weeks. 35 CML 5/13/05 Gleevec 800mg until 8/07 Spyrcel 100mg since 9/07 Wife and mother of 3 (12,9,7) **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Absolutely not! My husband, Robb, was diagnosed on Christmas Eve 2006 and has been on Gleevec since February 2007. Over the rest of 2007 his dosage was increased and he has been on 800 mg daily since July. This is really hard on his stomach on a daily basis. He takes immodium every single day. The good news is, this is really the only side effect he has to deal with. We are just thankful that he is in remission and living a normal life. I hope it makes you feel better knowing that you are not alone. Good luck to you! Laurie wife of Robb, diagnosed 12/24/06 > > Am I the only one who can't leave the house without taking Imodium? Is the from CML or > Gleevec? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Hi , No, you're not the only one. It's from the Gleevec. If you're taking Magnesium, that'll make it even worse. There was a time that I was buying Imodium from Costco in bulk (I think there was 78 in the pack). I can only imagine what the cashier thought! It's better now but I still need to use it occasionally. Tracey > > Am I the only one who can't leave the house without taking Imodium? Is the from CML or > Gleevec? > Quote Link to comment Share on other sites More sharing options...
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