Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Dear Kristie, I'm very sorry to hear about your grandmother. I will soon be 80, but I have lived with CML for nearly 12 years. If your grandmother is experiencing nervousness, I would suggest her seeing a neurologist who could evaluate her and give her something for her problem. There are many new drugs and tests. I know because I see a neurologist for pain, neuropathy and anxiety. She could have a problem with Gleevec. There are drug induced tremors and it sounds like what you are describing. You can use the search engines as resources. I have given you one to start your search: http://www.healthline.com/adamcontent/drug-induced-tremor Have her bring the instructions in her packet of Gleevec or call the Novartis Hotline to get information to bring her doctor. I know there are a lot of websites with articles on Chemo Brain that I have brought to my neurologist. He was very skeptical, but I challenged him to read the articles and then tell me there was no such thing as Chemo brain. At my last visit, he told me he had been reading about Chemo brain and all it took was one patient with a problem. Also remember at 80 years of age, she will not have the same memory she had when she was younger. They have tests for that, too. I had a P.E.T. brain scan and they found nothing in my brain, LOL, so it is chemo and aging process. Medicare will pay for this if it is only a head scan. Please pass this on to her, and if she needs help in getting information I know you will be available for her. Bless you for taking care of your grandmother even with your own set of problems. Sharing the love in your heart can make peace a reality, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 I am sorry if you get this twice, but after I sent it the first time, it was returned to me, so I am trying again. Dear Kristie, I'm very sorry to hear about your grandmother. I will soon be 80, but I have lived with CML for nearly 12 years. If your grandmother is experiencing nervousness, I would suggest her seeing a neurologist who could evaluate her and give her something for her problem. There are many new drugs and tests. I know because I see a neurologist for pain, neuropathy and anxiety. She could have a problem with Gleevec. There are drug induced tremors and it sounds like what you are describing. You can use the search engines as resources. I have given you one to start your search: http://www.healthline.com/adamcontent/drug-induced-tremor Have her bring the instructions in her packet of Gleevec or call the Novartis Hotline to get information to bring her doctor. I know there are a lot of websites with articles on Chemo Brain that I have brought to my neurologist. He was very skeptical, but I challenged him to read the articles and then tell me there was no such thing as Chemo brain. At my last visit, he told me he had been reading about Chemo brain and all it took was one patient with a problem. Also remember at 80 years of age, she will not have the same memory she had when she was younger. They have tests for that, too. I had a P.E.T. brain scan and they found nothing in my brain, LOL, so it is chemo and aging process. Medicare will pay for this if it is only a head scan. Please pass this on to her, and if she needs help in getting information I know you will be available for her. Bless you for taking care of your grandmother even with your own set of problems. Sharing the love in your heart can make peace a reality, Lottie Quote Link to comment Share on other sites More sharing options...
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