RE: High Platelets- Sharon

[Guest guest]

Hi Tracey, when I was dx my platelets were 369 two weeks later 340 then 352,

and within a month they were down to 101, the lowest it has ever been.

So maybe your theory is right. I was off all medication (waiting to start

Tasigna) for almost a month and that is when the platlets went up.

Hopefully todays will show it going down because I have been on Tasigna for

a week. I am waiting for the results to be emailed to me. I will let you

know when they come in.

Thank you for your help

Sharon

_____

From: [mailto: ] On Behalf Of Tracey

Sent: Wednesday, March 19, 2008 6:27 PM

Subject: [ ] High Platelets- Sharon

Hi Sharon,

Did you have high platelets when you were diagnosed? What is your

history with platelets in terms of the numbers. There really isn't a

big difference between 519 and 501 and those numbers are only

slightly elevated anyway.

Rising platelets can SOMETIMES be an indication of disease activity

(which is probably why your doctor mentioned the possibility of

raising your dose) but there are also other reasons that could

explain why they rose.

When I was diagnosed my platelets were 1600 (or 1.6 million) and they

took quite a while to get to normal, much longer than my white

count. My white count was normal in 3 weeks but my platelets took

about 6 weeks so if your count rose due to you being off all drugs,

it might take a little bit of time for them to come back down.

Let us know how your next tests go,

Tracey

>

> NEW TOPIC

>

>

>

> Has anyone ever had high Platlets? Mine was 519 then 501 within

three

> weeks. I just got back from having another CBC and my Onocologist

Pharmacist

> said if they do not go down he wants to increase the Tasagna. I

said " no " I

> do not want to. My feelings are that the platlets went up while I

was off

> all medication-what has that got to do with increasing the

dosage????

>

> I will know later if they went down. I sure hope so. Because I am

feeling

> great on 400mg.

>

> Sharon

>

>

[Guest guest]

Tracey

My test results came in late last night,. I was so excited to get to them

this morning. My platelets dropped to 274. You were right!!!

My WbC is 3.2 (a little low) (maybe I am taking too much Tasi)

Thank you for y our help and info. This has made my day.

Sharon

_____

From: [mailto: ] On Behalf Of Sharon

& Denny

Sent: Wednesday, March 19, 2008 7:36 PM

Subject: RE: [ ] High Platelets- Sharon

Hi Tracey, when I was dx my platelets were 369 two weeks later 340 then 352,

and within a month they were down to 101, the lowest it has ever been.

So maybe your theory is right. I was off all medication (waiting to start

Tasigna) for almost a month and that is when the platlets went up.

Hopefully todays will show it going down because I have been on Tasigna for

a week. I am waiting for the results to be emailed to me. I will let you

know when they come in.

Thank you for your help

Sharon

_____

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

Tracey

Sent: Wednesday, March 19, 2008 6:27 PM

groups (DOT) <mailto:%40> com

Subject: [ ] High Platelets- Sharon

Hi Sharon,

Did you have high platelets when you were diagnosed? What is your

history with platelets in terms of the numbers. There really isn't a

big difference between 519 and 501 and those numbers are only

slightly elevated anyway.

Rising platelets can SOMETIMES be an indication of disease activity

(which is probably why your doctor mentioned the possibility of

raising your dose) but there are also other reasons that could

explain why they rose.

When I was diagnosed my platelets were 1600 (or 1.6 million) and they

took quite a while to get to normal, much longer than my white

count. My white count was normal in 3 weeks but my platelets took

about 6 weeks so if your count rose due to you being off all drugs,

it might take a little bit of time for them to come back down.

Let us know how your next tests go,

Tracey

>

> NEW TOPIC

>

>

>

> Has anyone ever had high Platlets? Mine was 519 then 501 within

three

> weeks. I just got back from having another CBC and my Onocologist

Pharmacist

> said if they do not go down he wants to increase the Tasagna. I

said " no " I

> do not want to. My feelings are that the platlets went up while I

was off

> all medication-what has that got to do with increasing the

dosage????

>

> I will know later if they went down. I sure hope so. Because I am

feeling

> great on 400mg.

>

> Sharon

>

>

[Guest guest]

Hi Sharon,

I'm so glad that your platelets are back down to normal. Don't worry

about your white count, many, many of us have counts in the 3's and

it's not a problem. What you want to look at is your Absolute

Neutrophil Count (or ANC). As long as that's above 1, you're doing

fine.

Tracey

> >

> > NEW TOPIC

> >

> >

> >

> > Has anyone ever had high Platlets? Mine was 519 then 501 within

> three

> > weeks. I just got back from having another CBC and my Onocologist

> Pharmacist

> > said if they do not go down he wants to increase the Tasagna. I

> said " no " I

> > do not want to. My feelings are that the platlets went up while I

> was off

> > all medication-what has that got to do with increasing the

> dosage????

> >

> > I will know later if they went down. I sure hope so. Because I am

> feeling

> > great on 400mg.

> >

> > Sharon

> >

> >

>

>