Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 welcome carey aliza yaffa **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with CML on December 19, 2007 (Merry Christmas too me) and began taking Gleevec 400mg on December 20, 2007. I have responded very well to Gleevec so far and reached hematologic remission on February 27, 2008. I had a PCR done on that date and will get the info about that on March 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem. I have been reading the board for a while now, and decided it was time to post and introduce myself. I thank you all for the information you have given me. It is so nice to know that I am not alone. I have several side effects, but knowing there are many people going through them too makes me feel better some how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Welcome Carey I rarely post but read every thing every day. You will find a world of information, compassion and meet the most upbeat people in the world. I am 75 yrs young and was dx in June 2006 with CML. I started on 400mgs of Gleevec and still on it. I am still working 3 days a week even though I get tired very easily, but work is therapy. My last cytogenitic blood test was great. I have been 0% since Aug 2006. Outside of some side effects, I think I am doing okay. My husband is 81 and not well. He has bladder cancer and a very bad heart, but we keep moving along. I call us the walking wounded. I am in Zavie's 0 club and very proud of it. So hang in there and we will be here for you. You are in the best company of people that you can be in. Love & Hugs Ceil **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Hi Carey, Welcome to the club that nobody really wants to be a member of. You will find a wealth of information here a great bunch of people who have already travelled the journey that you have just started. The really good news is that most people will live a full life with this disease. After a while you will actually understand my signature. Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 3.6 log reduction Sep/07 3.5 log reduction Feb/08 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of cnickels_nc Sent: March 19, 2008 2:51 PM Subject: [ ] New to the group... My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with CML on December 19, 2007 (Merry Christmas too me) and began taking Gleevec 400mg on December 20, 2007. I have responded very well to Gleevec so far and reached hematologic remission on February 27, 2008. I had a PCR done on that date and will get the info about that on March 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem. I have been reading the board for a while now, and decided it was time to post and introduce myself. I thank you all for the information you have given me. It is so nice to know that I am not alone. I have several side effects, but knowing there are many people going through them too makes me feel better some how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Thank you for the warm welcome Zavie. > > Hi Carey, > > Welcome to the club that nobody really wants to be a member of. > > You will find a wealth of information here a great bunch of people who have > already travelled the journey that you have just started. > > The really good news is that most people will live a full life with this > disease. > > After a while you will actually understand my signature. > > Zavie > > Zavie (age 69) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.2 log reduction Jun/07 > 3.6 log reduction Sep/07 > 3.5 log reduction Feb/08 > e-mail: zmiller@... > Tel: 613-726-1117 > Fax: 309-296-0807 > Cell: 613-202-0204 > ID: zaviem > YM: zaviemiller > Skype: Zavie > > _____ > > From: [mailto: ] On Behalf Of > cnickels_nc > Sent: March 19, 2008 2:51 PM > > Subject: [ ] New to the group... > > My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with > CML on December 19, 2007 (Merry Christmas too me) and began taking > Gleevec 400mg on December 20, 2007. I have responded very well to > Gleevec so far and reached hematologic remission on February 27, 2008. > I had a PCR done on that date and will get the info about that on March > 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem. > > I have been reading the board for a while now, and decided it was time > to post and introduce myself. I thank you all for the information you > have given me. It is so nice to know that I am not alone. I have > several side effects, but knowing there are many people going through > them too makes me feel better some how. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Yeah, it really did make Chirstmas hard. It was hard to take all of this info in and give my 8yo and 6yo a happy day. > > Welcome Carey sounds like you are doing well .I was a Christmas Dx also Dec 23 /05 I,m66 sure ruined Christmas in 05 > > > [ ] New to the group... > > My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with > CML on December 19, 2007 (Merry Christmas too me) and began taking > Gleevec 400mg on December 20, 2007. I have responded very well to > Gleevec so far and reached hematologic remission on February 27, 2008. > I had a PCR done on that date and will get the info about that on March > 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem. > > I have been reading the board for a while now, and decided it was time > to post and introduce myself. I thank you all for the information you > have given me. It is so nice to know that I am not alone. I have > several side effects, but knowing there are many people going through > them too makes me feel better some how. > > > > > > ______________________________________________________________________ ______________ > Looking for last minute shopping deals? > Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 I'm in TN west of Knoxville .The effects of Gleevec should subside over time ,You ladies seem to have more swelling than us guys.I think it is your design.You will get a lot of help here a great group. ----- ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 G'day Carey - welcome from Australia. Sorry to hear you have joined our club - it is a fantastic source of information and support. I don't know what it is about CML, how we seem to get dx on birthdays and events such as Christmas. Take care and great to know you are doing well. Cheers, from Downunder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 > > G'day Carey - welcome from Australia. Sorry to hear you have joined our club > - it is a fantastic source of information and support. > > I don't know what it is about CML, how we seem to get dx on birthdays and > events such as Christmas. Take care and great to know you are doing well. > > > > Cheers, > > > > from Downunder Good Evening All I too am from Australia (Western Australia) and I was also diagnosed on my birthday Amazing Sue > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 I was dx on the fourth of July. I guess that makes it easier for us to remember the date??? Sharon _____ From: [mailto: ] On Behalf Of suehurt28 Sent: Thursday, March 20, 2008 4:42 AM Subject: Re: [ ] New to the group... > > G'day Carey - welcome from Australia. Sorry to hear you have joined our club > - it is a fantastic source of information and support. > > I don't know what it is about CML, how we seem to get dx on birthdays and > events such as Christmas. Take care and great to know you are doing well. > > > > Cheers, > > > > from Downunder Good Evening All I too am from Australia (Western Australia) and I was also diagnosed on my birthday Amazing Sue > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 I don't know that you need a holiday to remember the date either. Though I count mine as August 13th. They day they took my spleen out. The docs said we think it is Luekemia on the 14th, and finally said it is for sure about a week later. Tammy _____ From: [mailto: ] On Behalf Of Sharon & Denny Sent: Thursday, March 20, 2008 9:10 AM Subject: RE: [ ] New to the group... I was dx on the fourth of July. I guess that makes it easier for us to remember the date??? Sharon _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of suehurt28 Sent: Thursday, March 20, 2008 4:42 AM groups (DOT) <mailto:%40> com Subject: Re: [ ] New to the group... > > G'day Carey - welcome from Australia. Sorry to hear you have joined our club > - it is a fantastic source of information and support. > > I don't know what it is about CML, how we seem to get dx on birthdays and > events such as Christmas. Take care and great to know you are doing well. > > > > Cheers, > > > > from Downunder Good Evening All I too am from Australia (Western Australia) and I was also diagnosed on my birthday Amazing Sue > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Sorry that you have to join the group but so glad you found us. There is a tremendous amount of support here. Support you cannot find from your family, friends and heath care professionals. Please keep reading, absorbing and posting. ez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Welcome, Carey. Glad to hear you're responding quickly and well to Imatinib (Gleevec). Looking forward to learning about your PCR. There are people here who will be helpful with information and during the bad times and good will provide a listening ear and a smile to help you to keep going. L [ ] New to the group... My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with CML on December 19, 2007 (Merry Christmas too me) and began taking Gleevec 400mg on December 20, 2007. I have responded very well to Gleevec so far and reached hematologic remission on February 27, 2008. I had a PCR done on that date and will get the info about that on March 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem. I have been reading the board for a while now, and decided it was time to post and introduce myself. I thank you all for the information you have given me. It is so nice to know that I am not alone. I have several side effects, but knowing there are many people going through them too makes me feel better some how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Hi Carey, My name is Esther it is very nice to meet you. You have found a wonderful site with so many people who can help you with all your questions. I was dx 2 weeks before my sons wedding [oCT.25/ 06 ] that sure put a damper on things. I vomitted for 3 months, had leg and joint pain and had no energy,but it slowly went away. I actually feel pretty good now.Good luck on your pcr looking forward to seeing your results. PS could not have gotten thru all this without this group,they have been better than my family,just because you look good they just don't get how you might feel inside. Love to all Esther Zavie#1092 > > My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with > CML on December 19, 2007 (Merry Christmas too me) and began taking > Gleevec 400mg on December 20, 2007. I have responded very well to > Gleevec so far and reached hematologic remission on February 27, 2008. > I had a PCR done on that date and will get the info about that on March > 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem. > > I have been reading the board for a while now, and decided it was time > to post and introduce myself. I thank you all for the information you > have given me. It is so nice to know that I am not alone. I have > several side effects, but knowing there are many people going through > them too makes me feel better some how. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 Hi Lorna, My son is 16 now. His EBV igG is 3,050 and fatigued (sleeps 19 hrs/day). He'll visit Dr. G on 9-30. I'll expect that Dr. G. will give him some anti-viral med. as well. How high is your son's EBV IgG? is he fatigued or not? Viral kids need anti-viral therapy. A lot of children are having (or have had) anti-viral therapies. We parents are overwhelmed and anxious a lot of times during the process. I think your son is in good hands. Lucy > > Hi Group! > > We just started with Dr. G. a few weeks ago. Our son showed high (very high) Igg for Epstein, HHV-6, CMV, I and II. We are still overwhelmed by this. Dr. G. Prescribed Famvir and we have been on it for three weeks now and we have not noticed any changes. Dr. G wants us to keep using this famvir and in a couple of days use Paxil. I have been reading about this medication and is really freaking me out! Does anyone has anything good to say about this medication? My little one is 5 and for the last 2 years we have treated his " autism " he never had used this kind of meds. Any info will be greatly appreciated! > > thanks > Lorna > Quote Link to comment Share on other sites More sharing options...
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