Re: CHECK - IN !!! Turk? Bill?

[Guest guest]

Hi Guys;We are all doing a good job of checking in.  I am worried that we have not heard from Turk or Bill yet.  Bill lives a few hours away from me, and goes to the same Clinic as I, so perhaps I can do some research...  Anyone close to Turk in New York??

Everyone:  Keep checking in....My update is:  My battery is at 2.64 and we replace at 2.61, so I will be up for my FOURTH ICD relatively soon.  This one has been 6 1/2 years so far...  I will be 54 in a few days, and was originally implanted at the age of 41!  It will be interesting to see what sort of new unit is available today.  My leads are going on 13 years old, no one is talking replacement yet.  I am not in a hurry to have them replaced, but since I have very small veins, I'd rather have them replaced sooner, rather than later!

Great to hear from everyone!~guin

[Guest guest]

Hi again! I was at 264 in May and should have beepedfor low battery by now as I am set for 262, not sure if I am hearing it.....I am 61, was implanted in June 05. So good to hear from all. Hoping good news with Turk and Bill.Judi McIntosh, President/CEOSwimsational Swim School, LLCwww.swimsational.netOn Jul 16, 2012, at 8:01 PM, Guin Van Dyke <guin@...> wrote:

Hi Guys;We are all doing a good job of checking in. I am worried that we have not heard from Turk or Bill yet. Bill lives a few hours away from me, and goes to the same Clinic as I, so perhaps I can do some research... Anyone close to Turk in New York??

Everyone: Keep checking in....My update is: My battery is at 2.64 and we replace at 2.61, so I will be up for my FOURTH ICD relatively soon. This one has been 6 1/2 years so far... I will be 54 in a few days, and was originally implanted at the age of 41! It will be interesting to see what sort of new unit is available today. My leads are going on 13 years old, no one is talking replacement yet. I am not in a hurry to have them replaced, but since I have very small veins, I'd rather have them replaced sooner, rather than later!

Great to hear from everyone!~guin

[Guest guest]

Hi, folks--

Still here. The battery's running down on the ICD I got in May '06, even though

it's never gone off and I rarely get paced. I guess in addition to the lead

problem, this Medtronic has a battery problem they tell me. So some time in the

next 18 months I get a new unit. Not looking forward to it from a PTSD

standpoint.

Lynn S.

[Guest guest]

Lynn;Sounds like your Medtronic is on Target.  I use mine the same as you (no shocks, very little pacing),  mine was implanted Mar 06.  They do tend to last around 6 years...The replacement are very simple, much less than initial implant.  If your leads don't have to be replaced, then it is a simple in and out, and home in a few hours.  I hope this will ease your worrying, from a PTSD standpoint.  They say - it is a 'piece of cake'!!!

Good luck to you!~guinOn Mon, Jul 16, 2012 at 8:18 PM, Lynn Siprelle <lynn@...> wrote:

 

Hi, folks--

Still here. The battery's running down on the ICD I got in May '06, even though it's never gone off and I rarely get paced. I guess in addition to the lead problem, this Medtronic has a battery problem they tell me. So some time in the next 18 months I get a new unit. Not looking forward to it from a PTSD standpoint.

Lynn S.

[Guest guest]

> We are all doing a good job of checking in. I am worried that we have not

heard from Turk or Bill yet. Bill lives a few hours away from me, and goes to

the same Clinic as I, so perhaps I can do some research... Anyone close to Turk

in New York??

Turk passed away over a year ago. I was one of his FB friends.

Sue

^'^ ^'^ ^'^ ^'^ ^'^ ^'^

“Live as if you were to die tomorrow. Learn as if you were to live

forever.” -- Gandhi

Sky Paintings and Science Stuff:

http://auroraborealispage.net/aurora.html

Where My Spirit Lives:

http://auroraborealispage.net/alaska.html

Toby, the Owl Who Flew Away:

http://www.auroraborealispage.net/owl.html

[Guest guest]

I am so sorry to hear that Turk has passed away.

Sydney

Re: CHECK - IN !!! Turk? Bill?

> We are all doing a good job of checking in. I am worried that we have not

> heard from Turk or Bill yet. Bill lives a few hours away from me, and

> goes to the same Clinic as I, so perhaps I can do some research... Anyone

> close to Turk in New York??

Turk passed away over a year ago. I was one of his FB friends.

Sue

^'^ ^'^ ^'^ ^'^ ^'^ ^'^

“Live as if you were to die tomorrow. Learn as if you were to live

forever.” -- Gandhi

Sky Paintings and Science Stuff:

http://auroraborealispage.net/aurora.html

Where My Spirit Lives:

http://auroraborealispage.net/alaska.html

Toby, the Owl Who Flew Away:

http://www.auroraborealispage.net/owl.html

------------------------------------

Be sure to visit and use other ZapLife.org services:

The ZapperBBS at

http://zaplife.org/phpBB2/viewforum.php?f=1

1 - Email list forum at

/

2 - Email delivery of the Zapper Newsletter at

2/

3 - Email list forum for those involved in ICD litigation at

3/

ZapChat - Real time online support group (Thursdays 8PM EST) at

http://www.zaplife.org/chat.html

ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at

http://www.zaplife.org/zap4.htm

The ZAPPER Home page at

http://www.zaplife.org/

[Guest guest]

Awe, very sad about Turk:( This was one of the first sites I reached out to

when I was diagnosed and got the ICD.

Judi McIntosh, President/CEO

Swimsational Swim School, LLC

www.swimsational.net

On Jul 17, 2012, at 9:57 PM, " Sydney " <konkontu2011@...> wrote:

> I am so sorry to hear that Turk has passed away.

>

> Sydney

>

>

> Re: CHECK - IN !!! Turk? Bill?

>

>

>> We are all doing a good job of checking in. I am worried that we have not

>> heard from Turk or Bill yet. Bill lives a few hours away from me, and

>> goes to the same Clinic as I, so perhaps I can do some research... Anyone

>> close to Turk in New York??

>

> Turk passed away over a year ago. I was one of his FB friends.

> Sue

>

>

> ^'^ ^'^ ^'^ ^'^ ^'^ ^'^

> “Live as if you were to die tomorrow. Learn as if you were to live

> forever.†-- Gandhi

> Sky Paintings and Science Stuff:

> http://auroraborealispage.net/aurora.html

> Where My Spirit Lives:

> http://auroraborealispage.net/alaska.html

> Toby, the Owl Who Flew Away:

> http://www.auroraborealispage.net/owl.html

>

>

> ------------------------------------

>

> Be sure to visit and use other ZapLife.org services:

>

> The ZapperBBS at

> http://zaplife.org/phpBB2/viewforum.php?f=1

> 1 - Email list forum at

> /

> 2 - Email delivery of the Zapper Newsletter at

> 2/

> 3 - Email list forum for those involved in ICD litigation at

> 3/

> ZapChat - Real time online support group (Thursdays 8PM EST) at

> http://www.zaplife.org/chat.html

> ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at

> http://www.zaplife.org/zap4.htm

> The ZAPPER Home page at

> http://www.zaplife.org/

[Guest guest]

I concur with Guin, I too have PTSD and the replacement is easy peasy it's the lead changes that scare the begezies our of me. I've had mine nearly 15 yrs - SCA at the age of 31 and have had two shocks since.

Good luck to you Lynn!!!

In a message dated 7/17/2012 8:40:54 A.M. Pacific Daylight Time, guin@... writes:

Lynn;

Sounds like your Medtronic is on Target. I use mine the same as you (no shocks, very little pacing), mine was implanted Mar 06. They do tend to last around 6 years...

The replacement are very simple, much less than initial implant. If your leads don't have to be replaced, then it is a simple in and out, and home in a few hours. I hope this will ease your worrying, from a PTSD standpoint. They say - it is a 'piece of cake'!!!

Good luck to you!

~guin

On Mon, Jul 16, 2012 at 8:18 PM, Lynn Siprelle <lynn@...> wrote:

Hi, folks--Still here. The battery's running down on the ICD I got in May '06, even though it's never gone off and I rarely get paced. I guess in addition to the lead problem, this Medtronic has a battery problem they tell me. So some time in the next 18 months I get a new unit. Not looking forward to it from a PTSD standpoint.Lynn S.

[Guest guest]

On Jul 17, 2012, at 10:20 PM, Neajo@... wrote:

>

>

> I concur with Guin, I too have PTSD and the replacement is easy peasy it's the

lead changes that scare the begezies our of me. I've had mine nearly 15 yrs -

SCA at the age of 31 and have had two shocks since.

Thanks for the reassurances, guys, that helps.

Lynn S.

------

Mama, homeschooler, writer, activist, dancer, spinner & knitter

Portfolio: http://www.siprelle.com

For feminist homemakers: http://www.TheNewHomemaker.com

NOTICE: The National Security Agency may have read this email without warning,

warrant, or notice.

[Guest guest]

May he rest in peace...

In a message dated 7/17/2012 7:58:06 P.M. Pacific Daylight Time, konkontu2011@... writes:

I am so sorry to hear that Turk has passed away.Sydney Re: CHECK - IN !!! Turk? Bill?> We are all doing a good job of checking in. I am worried that we have not > heard from Turk or Bill yet. Bill lives a few hours away from me, and > goes to the same Clinic as I, so perhaps I can do some research... Anyone > close to Turk in New York?? Turk passed away over a year ago. I was one of his FB friends. Sue^'^ ^'^ ^'^ ^'^ ^'^ ^'^“Live as if you were to die tomorrow. Learn as if you were to liveforever.†-- GandhiSky Paintings and Science Stuff:http://auroraborealispage.net/aurora.htmlWhere My Spirit Lives:http://auroraborealispage.net/alaska.htmlToby, the Owl Who Flew Away:http://www.auroraborealispage.net/owl.html------------------------------------Be sure to visit and use other ZapLife.org services:The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=11 - Email list forum at /2 - Email delivery of the Zapper Newsletter at 2/3 - Email list forum for those involved in ICD litigation at 3/ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.htmlZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htmThe ZAPPER Home page at http://www.zaplife.org/

[Guest guest]

Guin,

I also have very small veins and last year

when they had to replace a wire, he put 2 wires in the same artery. He said

it was quite tight but he did it. My left arm now swells some and he told me

if it swells a lot that I need to call him. It really makes me nervous that I

am going to have to get leads taken out next time I need a new one.

Ruth

From: [mailto: ] On Behalf Of Guin Van Dyke

Sent: Monday, July 16, 2012 9:02

PM

Subject: Re: CHECK - IN

!!! Turk? Bill?

Hi Guys;

We are all doing a good job of checking in. I am worried that we

have not heard from Turk or Bill yet. Bill lives a few hours away from

me, and goes to the same Clinic as I, so perhaps I can do some research...

Anyone close to Turk in New

York??

Everyone: Keep checking in....

My update is: My battery is at 2.64 and we replace at 2.61, so I

will be up for my FOURTH ICD relatively soon. This one has been 6 1/2

years so far... I will be 54 in a few days, and

was originally implanted at the age of 41! It will be

interesting to see what sort of new unit is available today. My leads are

going on 13 years old, no one is talking replacement yet. I am not in a

hurry to have them replaced, but since I have very small veins, I'd rather have

them replaced sooner, rather than later!

Great to hear from everyone!

~guin

[Guest guest]

Oh Ruth, ouch! What questions should I be asking as I'm going to be due for replacement too and u have one if those faulty Fidelis leads. They want to remove, but I am so afraid I can't make myself do it. Replacement doesn't bother me, it's the lead removal.Judi McIntosh, President/CEOSwimsational Swim School, LLCwww.swimsational.netOn Jul 19, 2012, at 2:37 PM, "Ruth Hirsch" <sishirsch@...> wrote:

Guin,

I also have very small veins and last year

when they had to replace a wire, he put 2 wires in the same artery. He said

it was quite tight but he did it. My left arm now swells some and he told me

if it swells a lot that I need to call him. It really makes me nervous that I

am going to have to get leads taken out next time I need a new one.

Ruth

From: [mailto: ] On Behalf Of Guin Van Dyke

Sent: Monday, July 16, 2012 9:02

PM

Subject: Re: CHECK - IN

!!! Turk? Bill?

Hi Guys;

We are all doing a good job of checking in. I am worried that we

have not heard from Turk or Bill yet. Bill lives a few hours away from

me, and goes to the same Clinic as I, so perhaps I can do some research...

Anyone close to Turk in New

York??

Everyone: Keep checking in....

My update is: My battery is at 2.64 and we replace at 2.61, so I

will be up for my FOURTH ICD relatively soon. This one has been 6 1/2

years so far... I will be 54 in a few days, and

was originally implanted at the age of 41! It will be

interesting to see what sort of new unit is available today. My leads are

going on 13 years old, no one is talking replacement yet. I am not in a

hurry to have them replaced, but since I have very small veins, I'd rather have

them replaced sooner, rather than later!

Great to hear from everyone!

~guin

[Guest guest]

Yes, Ruth, my arteries, some were so small they couldn't even put one lead in...  I don't look forward to lead removal but I would rather have them removed, while I am younger, and the lead hasn't been in for years an years...  The sooner they come out, the easier it is...  Of course we need skilled surgeons, and we need to make sure a thorasic surgeon is standing by in case you bleed out and a have to be opened up for immediate repair.  This happens in 1% of lead removal, and I have only heard of it happening once - to my friend this last Monday.  One of her veins developed a hole and bled out - she had to be opened for immediate repair.  She is fine, but it will be alooong recovery.

Don't be afraid to ask questions, and definately ask what there % rate is of infection, or having to be opened up...  Also talk about abandoning the lead in the vein, and finding a new vein for the new lead.

Good luck!~guinOn Thu, Jul 19, 2012 at 1:02 PM, McIntosh <winmmacranch@...> wrote:

 

Oh Ruth, ouch!  What questions should I be asking as I'm going to be due for replacement too and u have one if those faulty Fidelis leads.  They want to remove, but I am so afraid I can't make myself do it.  Replacement doesn't bother me, it's the lead removal.

Judi McIntosh, President/CEOSwimsational Swim School, LLCwww.swimsational.netOn Jul 19, 2012, at 2:37 PM, " Ruth Hirsch " <sishirsch@...> wrote:

 

Guin,

I also have very small veins and last year

when they had to replace a wire, he put 2 wires in the same artery.   He said

it was quite tight but he did it.   My left arm now swells some and he told me

if it swells a lot that I need to call him.  It really makes me nervous that I

am going to have to get leads taken out next time I need  a new one.

Ruth

 

From: [mailto: ] On Behalf Of Guin Van Dyke

Sent: Monday, July 16, 2012 9:02

PM

Subject: Re: CHECK - IN

!!! Turk? Bill?

 

 

Hi Guys;

 

We are all doing a good job of checking in.  I am worried that we

have not heard from Turk or Bill yet.  Bill lives a few hours away from

me, and goes to the same Clinic as I, so perhaps I can do some research...

 Anyone close to Turk in New

York??

 

Everyone:  Keep checking in....

 

My update is:  My battery is at 2.64 and we replace at 2.61, so I

will be up for my FOURTH ICD relatively soon.  This one has been 6 1/2

years so far...  I will be 54 in a few days, and

was originally implanted at the age of 41!  It will be

interesting to see what sort of new unit is available today.  My leads are

going on 13 years old, no one is talking replacement yet.  I am not in a

hurry to have them replaced, but since I have very small veins, I'd rather have

them replaced sooner, rather than later!

 

Great to hear from everyone!

~guin

 

 

[Guest guest]

My doctor at the Mayo warned me of that 1% chance and it scares me. He said it happened to one of his patients.I need to have something done at some point!Sent from my iPhoneOn Jul 19, 2012, at 6:55 PM, Guin Van Dyke <guin@...> wrote:

Yes, Ruth, my arteries, some were so small they couldn't even put one lead in... I don't look forward to lead removal but I would rather have them removed, while I am younger, and the lead hasn't been in for years an years... The sooner they come out, the easier it is... Of course we need skilled surgeons, and we need to make sure a thorasic surgeon is standing by in case you bleed out and a have to be opened up for immediate repair. This happens in 1% of lead removal, and I have only heard of it happening once - to my friend this last Monday. One of her veins developed a hole and bled out - she had to be opened for immediate repair. She is fine, but it will be alooong recovery.

Don't be afraid to ask questions, and definately ask what there % rate is of infection, or having to be opened up... Also talk about abandoning the lead in the vein, and finding a new vein for the new lead.

Good luck!~guinOn Thu, Jul 19, 2012 at 1:02 PM, McIntosh <winmmacranch@...> wrote:

Oh Ruth, ouch! What questions should I be asking as I'm going to be due for replacement too and u have one if those faulty Fidelis leads. They want to remove, but I am so afraid I can't make myself do it. Replacement doesn't bother me, it's the lead removal.

Judi McIntosh, President/CEOSwimsational Swim School, LLCwww.swimsational.netOn Jul 19, 2012, at 2:37 PM, "Ruth Hirsch" <sishirsch@...> wrote:

Guin,

I also have very small veins and last year

when they had to replace a wire, he put 2 wires in the same artery. He said

it was quite tight but he did it. My left arm now swells some and he told me

if it swells a lot that I need to call him. It really makes me nervous that I

am going to have to get leads taken out next time I need a new one.

Ruth

From: [mailto: ] On Behalf Of Guin Van Dyke

Sent: Monday, July 16, 2012 9:02

PM

Subject: Re: CHECK - IN

!!! Turk? Bill?

Hi Guys;

We are all doing a good job of checking in. I am worried that we

have not heard from Turk or Bill yet. Bill lives a few hours away from

me, and goes to the same Clinic as I, so perhaps I can do some research...

Anyone close to Turk in New

York??

Everyone: Keep checking in....

My update is: My battery is at 2.64 and we replace at 2.61, so I

will be up for my FOURTH ICD relatively soon. This one has been 6 1/2

years so far... I will be 54 in a few days, and

was originally implanted at the age of 41! It will be

interesting to see what sort of new unit is available today. My leads are

going on 13 years old, no one is talking replacement yet. I am not in a

hurry to have them replaced, but since I have very small veins, I'd rather have

them replaced sooner, rather than later!

Great to hear from everyone!

~guin

[Guest guest]

Guin,

Thanks for the information. I really

appreciate hearing anything I can about this process.

Ruth

From: [mailto: ] On Behalf Of Guin Van Dyke

Sent: Thursday, July 19, 2012 7:55

PM

Subject: Re: CHECK - IN

!!! Turk? Bill?

Yes,

Ruth, my arteries, some were so small they couldn't even put one lead in...

I don't look forward to lead removal but I would rather have

them removed, while I am younger, and the lead hasn't been in for years an

years... The sooner they come out, the easier it is... Of course we

need skilled surgeons, and we need to make sure a thorasic surgeon is standing

by in case you bleed out and a have to be opened up for immediate repair.

This happens in 1% of lead removal, and I have only heard of it happening

once - to my friend this last Monday. One of her veins developed a hole

and bled out - she had to be opened for immediate repair. She is fine,

but it will be alooong recovery.

Don't be afraid to ask questions, and definately ask what there % rate

is of infection, or having to be opened up... Also talk

about abandoning the lead in the vein, and finding a new vein for the

new lead.

Good luck!

~guin

On Thu, Jul 19, 2012 at 1:02 PM, McIntosh <winmmacranch@...>

wrote:

Oh Ruth, ouch! What questions should I be asking as I'm going to

be due for replacement too and u have one if those faulty Fidelis leads.

They want to remove, but I am so afraid I can't make myself do it.

Replacement doesn't bother me, it's the lead removal.

Judi McIntosh, President/CEO

Swimsational

Swim School,

LLC

www.swimsational.net

On Jul 19, 2012, at 2:37 PM, " Ruth Hirsch " <sishirsch@...>

wrote:

Guin,

I also have very small veins and last year when they had to replace

a wire, he put 2 wires in the same artery. He said it was quite

tight but he did it. My left arm now swells some and he told me if

it swells a lot that I need to call him. It really makes me nervous that

I am going to have to get leads taken out next time I need a new one.

Ruth

From: [mailto: ]

On Behalf Of Guin Van Dyke

Sent: Monday, July 16, 2012 9:02

PM

Subject: Re: CHECK - IN

!!! Turk? Bill?

Hi Guys;

We are all doing a

good job of checking in. I am worried that we have not heard from Turk or

Bill yet. Bill lives a few hours away from me, and goes to the same

Clinic as I, so perhaps I can do some research... Anyone close to Turk in

New York??

Everyone:

Keep checking in....

My update is:

My battery is at 2.64 and we replace at 2.61, so I will be up for my

FOURTH ICD relatively soon. This one has been 6 1/2 years so far...

I will be 54 in a few days, and was originally implanted at the

age of 41! It will be interesting to see what sort of new unit is

available today. My leads are going on 13 years old, no one is talking

replacement yet. I am not in a hurry to have them replaced, but since I

have very small veins, I'd rather have them replaced sooner, rather than later!

Great to hear from

everyone!

~guin

[Guest guest]

My fears exactly.Judi McIntosh, President/CEOSwimsational Swim School, LLCwww.swimsational.netOn Jul 19, 2012, at 7:09 PM, Falness <marshmello1982@...> wrote:

My doctor at the Mayo warned me of that 1% chance and it scares me. He said it happened to one of his patients.I need to have something done at some point!Sent from my iPhoneOn Jul 19, 2012, at 6:55 PM, Guin Van Dyke <guin@...> wrote:

Yes, Ruth, my arteries, some were so small they couldn't even put one lead in... I don't look forward to lead removal but I would rather have them removed, while I am younger, and the lead hasn't been in for years an years... The sooner they come out, the easier it is... Of course we need skilled surgeons, and we need to make sure a thorasic surgeon is standing by in case you bleed out and a have to be opened up for immediate repair. This happens in 1% of lead removal, and I have only heard of it happening once - to my friend this last Monday. One of her veins developed a hole and bled out - she had to be opened for immediate repair. She is fine, but it will be alooong recovery.

Don't be afraid to ask questions, and definately ask what there % rate is of infection, or having to be opened up... Also talk about abandoning the lead in the vein, and finding a new vein for the new lead.

Good luck!~guinOn Thu, Jul 19, 2012 at 1:02 PM, McIntosh <winmmacranch@...> wrote:

Oh Ruth, ouch! What questions should I be asking as I'm going to be due for replacement too and u have one if those faulty Fidelis leads. They want to remove, but I am so afraid I can't make myself do it. Replacement doesn't bother me, it's the lead removal.

Judi McIntosh, President/CEOSwimsational Swim School, LLCwww.swimsational.netOn Jul 19, 2012, at 2:37 PM, "Ruth Hirsch" <sishirsch@...> wrote:

Guin,

I also have very small veins and last year

when they had to replace a wire, he put 2 wires in the same artery. He said

it was quite tight but he did it. My left arm now swells some and he told me

if it swells a lot that I need to call him. It really makes me nervous that I

am going to have to get leads taken out next time I need a new one.

Ruth

From: [mailto: ] On Behalf Of Guin Van Dyke

Sent: Monday, July 16, 2012 9:02

PM

Subject: Re: CHECK - IN

!!! Turk? Bill?

Hi Guys;

We are all doing a good job of checking in. I am worried that we

have not heard from Turk or Bill yet. Bill lives a few hours away from

me, and goes to the same Clinic as I, so perhaps I can do some research...

Anyone close to Turk in New

York??

Everyone: Keep checking in....

My update is: My battery is at 2.64 and we replace at 2.61, so I

will be up for my FOURTH ICD relatively soon. This one has been 6 1/2

years so far... I will be 54 in a few days, and

was originally implanted at the age of 41! It will be

interesting to see what sort of new unit is available today. My leads are

going on 13 years old, no one is talking replacement yet. I am not in a

hurry to have them replaced, but since I have very small veins, I'd rather have

them replaced sooner, rather than later!

Great to hear from everyone!

~guin