Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 Hi Eva, did they give you this info over the phone, or send it to you? If they didn't send it, did you remember to ask them if they would send you a copy, by mail, or email? It's nice to have, because some on the list can explain everything to you, it may help put your mind at ease. I've had cml for a long time, but still have to ask someone smarter than me how to interpret the results, I don't remember a lot of technical stuff. Bobby eva brown <evaob365@...> wrote: Hi, I just got results from my bone marrow biopsy. They confirmed I have CML with a Philadelphia chromosone. My WBC is 231.0 the receptionist said. I have been told it will be about 3 weeks before I can get in to see a specialist.I dont know for sure what all this means but it has helped a lot to be able to read about everyones experiences. Thanks Eva. __________________________________________________________ Like solving puzzles? Then you'll love Flexicon! Play now! http://g.msn.ca/ca55/213 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 Thanks Bobby, no I didn't but I will. Sounds like a good idea. Do they have to give me a copy? I am in Canada , I dont know if it is different here. I was given trouble for looking through my file at my family doctors office once. Eva @...: rcd1929@...: Tue, 11 Mar 2008 15:08:17 -0700Subject: Re: [ ] Eva Hi Eva, did they give you this info over the phone, or send it to you? If they didn't send it, did you remember to ask them if they would send you a copy, by mail, or email? It's nice to have, because some on the list can explain everything to you, it may help put your mind at ease. I've had cml for a long time, but still have to ask someone smarter than me how to interpret the results, I don't remember a lot of technical stuff. Bobbyeva brown <evaob365@...> wrote: Hi, I just got results from my bone marrow biopsy. They confirmed I have CML with a Philadelphia chromosone. My WBC is 231.0 the receptionist said. I have been told it will be about 3 weeks before I can get in to see a specialist.I dont know for sure what all this means but it has helped a lot to be able to read about everyones experiences. Thanks Eva.__________________________________________________________Like solving puzzles? Then you'll love Flexicon! Play now!http://g.msn.ca/ca55/213[Non-text portions of this message have been removed]a (Bobby) DoyleBrecksville, Ohio, USADX 05/199502/2000 - Gleevec Trial/OHSU06/2002 - Gleevec/Trisenox Trial/OHSU06/2003 - Gleevec/Zarnestra Trial/OHSU04/2004 - Sprycel Trial/MDACC, CCR in 10 months#840 - Zavie's Zero Club09/2006 - out of CCR[Non-text portions of this message have been removed] _________________________________________________________________ Spread the Love by installing 30 free Messenger Emoticons. Get them now! http://g.msn.ca/ca55/212 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 -hi eva; i'm the last one to greet you i'm aliza like you i'm new to the group also i was dx in Aug. of 2006. and I know how you must feel but don't be afraid I was totlly freaked out and coused myself needless stress: thank god for this group , you were smarter than me to connect with these wariors that have fought so hard for us the new generation of cml .meds work well and life does get better . you have friends on this group that truly care. aliza rochester n.y. -- In , eva brown <evaob365@...> wrote: > > > Hi, I just got results from my bone marrow biopsy. They confirmed I have CML with a Philadelphia chromosone. My WBC is 231.0 the receptionist said. I have been told it will be about 3 weeks before I can get in to see a specialist.I dont know for sure what all this means but it has helped a lot to be able to read about everyones experiences. Thanks Eva. > _________________________________________________________________ > Like solving puzzles? Then you'll love Flexicon! Play now! > http://g.msn.ca/ca55/213 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 Well in the good ole US of A, they will if they feel like it, and won't if they dont. Depends on your doctors. I have never had a problem, but then I have been in a trial one way or another for the last 8 years, and I think that may be why I get them. On the other hand I have heard of some drs. giving others a hard time. After all, it's our body, our blood, our life we are discussing here, one would think all the information about it would readily be forthcoming. It's worth a try, give the nurse a ring....Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 Thanks Aliza , you guys have already helped me so much. Hubby is a long distance truck driver so I am goin this alone for the most part. Eva @...: taina2044@...: Tue, 11 Mar 2008 22:12:01 +0000Subject: [ ] Re: Eva -hi eva; i'm the last one to greet you i'm aliza like you i'm new to the group also i was dx in Aug. of 2006. and I know how you must feel but don't be afraid I was totlly freaked out and coused myself needless stress: thank god for this group , you were smarter than me to connect with these wariors that have fought so hard for us the new generation of cml .meds work well and life does get better . you have friends on this group that truly care.aliza rochester n.y.-- In , eva brown <evaob365@...> wrote:>> > Hi, I just got results from my bone marrow biopsy. They confirmed I have CML with a Philadelphia chromosone. My WBC is 231.0 the receptionist said. I have been told it will be about 3 weeks before I can get in to see a specialist.I dont know for sure what all this means but it has helped a lot to be able to read about everyones experiences. Thanks Eva.> __________________________________________________________> Like solving puzzles? Then you'll love Flexicon! Play now!> http://g.msn.ca/ca55/213> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Hey Eva, Good luck and big hugs for tomorrow. Zavie is right (as always) about the tape recorder because the information is flowing so fast and your brain may still be on 'stunned'.? At least I was!? ? Another suggestion is to have a friend/family go with you and ask them to take notes so you can listen to the doc and look him (or her) in the eyes while they are answering.? Then at least you have the notes to check later. ? Ask for the doc, or the assistant's email so you can ask more questions later.? ? Breathe and think calm thoughts. We are with you in spirit! Blessings, Rhonda dx nov 2007 ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Thanks Rhonda, My girlfriend is going with me and she is taking a notebook. Thanks for the hugs, I needed that. Eva Brown @...: Sionito@...: Tue, 18 Mar 2008 20:18:10 -0400Subject: RE: [ ] Eva Hey Eva,Good luck and big hugs for tomorrow.Zavie is right (as always) about the tape recorder because the information is flowing so fast and your brain may still be on 'stunned'.? At least I was!? ?Another suggestion is to have a friend/family go with you and ask them to take notes so you can listen to the doc and look him (or her) in the eyes while they are answering.? Then at least you have the notes to check later.?Ask for the doc, or the assistant's email so you can ask more questions later.? ?Breathe and think calm thoughts.We are with you in spirit!Blessings,Rhondadx nov 2007?[Non-text portions of this message have been removed] _________________________________________________________________ At a loss for words? Find them by playing Seekadoo! Play now! http://g.msn.ca/ca55/208 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Hug hug hug hug to Eva Sharon _____ From: [mailto: ] On Behalf Of eva brown Sent: Tuesday, March 18, 2008 6:19 PM Subject: RE: [ ] Eva Thanks Rhonda, My girlfriend is going with me and she is taking a notebook. Thanks for the hugs, I needed that. Eva Brown groups (DOT) <mailto:%40From> comFrom: Sionitoaol (DOT) <mailto:Sionito%40aol.comDate> comDate: Tue, 18 Mar 2008 20:18:10 -0400Subject: RE: [ ] Eva Hey Eva,Good luck and big hugs for tomorrow.Zavie is right (as always) about the tape recorder because the information is flowing so fast and your brain may still be on 'stunned'.? At least I was!? ?Another suggestion is to have a friend/family go with you and ask them to take notes so you can listen to the doc and look him (or her) in the eyes while they are answering.? Then at least you have the notes to check later.?Ask for the doc, or the assistant's email so you can ask more questions later.? ?Breathe and think calm thoughts.We are with you in spirit!Blessings,Rhondadx nov 2007?[Non-text portions of this message have been removed] __________________________________________________________ At a loss for words? Find them by playing Seekadoo! Play now! http://g.msn. <http://g.msn.ca/ca55/208> ca/ca55/208 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 HI all, I go see Dr. Talpaz Thurs. for labs, a bma and a visit with him. My daughter goes with me to keep notes, as I could never remember everything he says. I am also going to meet up with Len and Ernie Paschal, Len is in the XL228 ( I think I have that right) tiral there with Dr. Talpaz. We'll have dinner together, and I will spend the night, and we 3 girls are going shopping the next day. Len and I get electric scooters at the mall and just zoom all over, have lunch and in general just have a great girls day out. Anyone in the area? Feel free to join us, the more the merrier. And Eva, good luck to you tomorrow, and I thought I'd tell you guys, Lottie called, her computer is momentarily down....Bobby eva brown <evaob365@...> wrote: Thanks Rhonda, My girlfriend is going with me and she is taking a notebook. Thanks for the hugs, I needed that. Eva Brown @...: Sionito@...: Tue, 18 Mar 2008 20:18:10 -0400Subject: RE: [ ] Eva Hey Eva,Good luck and big hugs for tomorrow.Zavie is right (as always) about the tape recorder because the information is flowing so fast and your brain may still be on 'stunned'.? At least I was!? ?Another suggestion is to have a friend/family go with you and ask them to take notes so you can listen to the doc and look him (or her) in the eyes while they are answering.? Then at least you have the notes to check later.?Ask for the doc, or the assistant's email so you can ask more questions later.? ?Breathe and think calm thoughts.We are with you in spirit!Blessings,Rhondadx nov 2007?[Non-text portions of this message have been removed] __________________________________________________________ At a loss for words? Find them by playing Seekadoo! Play now! http://g.msn.ca/ca55/208 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Thanks Sharon. Eva Brown @...: onthewtr@...: Tue, 18 Mar 2008 19:12:31 -0700Subject: RE: [ ] Eva Hug hug hug hug to EvaSharon_____ From: [mailto: ] On Behalf Of evabrownSent: Tuesday, March 18, 2008 6:19 PM@...: RE: [ ] EvaThanks Rhonda, My girlfriend is going with me and she is taking a notebook.Thanks for the hugs, I needed that. Eva Browngroups (DOT) <mailto:%40From> comFrom:Sionitoaol (DOT) <mailto:Sionito%40aol.comDate> comDate: Tue, 18 Mar 200820:18:10 -0400Subject: RE: [ ] EvaHey Eva,Good luck and big hugs for tomorrow.Zavie is right (as always) aboutthe tape recorder because the information is flowing so fast and your brainmay still be on 'stunned'.? At least I was!? ?Another suggestion is to havea friend/family go with you and ask them to take notes so you can listen tothe doc and look him (or her) in the eyes while they are answering.? Then atleast you have the notes to check later.?Ask for the doc, or the assistant'semail so you can ask more questions later.? ?Breathe and think calmthoughts.We are with you in spirit!Blessings,Rhondadx nov 2007?[Non-textportions of this message have been removed] __________________________________________________________At a loss for words? Find them by playing Seekadoo! Play now!http://g.msn. <http://g.msn.ca/ca55/208> ca/ca55/208 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 That wasn't quite as scary as I expected. I am seeing a Dr. Stakiw who trained under Dr. Lipton at Princess Margaret Hospital in Toronto. My numbers are LKCS-231.0 HGB-100 HCT-0.304 MCW-99.0 RDW-1405 PLT-371 MPV-7.7 What all this means I do not know other than my white cell count is the same as 3 weeks ago . I am being started on 400 Mg Gleevec Hydrea, alloprins and lorazapam. I have to go back every week for the next four weeks and we will see how it goes. I also have to go to a chemo information meeting next Friday from 2-4. Thanks for all the hugs and support Eva Brown @...: evaob365@...: Wed, 19 Mar 2008 06:31:05 -0400Subject: RE: [ ] Eva Thanks Sharon. Eva Brown@...: onthewtr@...: Tue, 18 Mar 2008 19:12:31 -0700Subject: RE: [ ] EvaHug hug hug hug to EvaSharon_____ From: [mailto: ] On Behalf Of evabrownSent: Tuesday, March 18, 2008 6:19 PMTo: @...: RE: [ ] EvaThanks Rhonda, My girlfriend is going with me and she is taking a notebook.Thanks for the hugs, I needed that. Eva Browngroups (DOT) <mailto:%40From> comFrom:Sionitoaol (DOT) <mailto:Sionito%40aol.comDate> comDate: Tue, 18 Mar 200820:18:10 -0400Subject: RE: [ ] EvaHey Eva,Good luck and big hugs for tomorrow.Zavie is right (as always) aboutthe tape recorder because the information is flowing so fast and your brainmay still be on 'stunned'.? At least I was!? ?Another suggestion is to havea friend/family go with you and ask them to take notes so you can listen tothe doc and look him (or her) in the eyes while they are answering.? Then atleast you have the notes to check later.?Ask for the doc, or the assistant'semail so you can ask more questions later.? ?Breathe and think calmthoughts.We are with you in spirit!Blessings,Rhondadx nov 2007?[Non-textportions of this message have been removed] __________________________________________________________At a loss for words? Find them by playing Seekadoo! Play now!http://g.msn. <http://g.msn.ca/ca55/208> ca/ca55/208 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2008 Report Share Posted March 22, 2008 Hi Eva, I'm not sure what is happening to your postings but several of them have come back empty. In other words it seems like you're trying to reply to someone's post but when you send your reply, it's empty. Are you maybe hitting the " post " button before you write the post? Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2008 Report Share Posted March 22, 2008 _________________________________________________________________ Enter the Hunt & you could win a 2008 Eclipse Spyder! Click here to enter! http://g.msn.ca/ca55/213 Quote Link to comment Share on other sites More sharing options...
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