[CMLHope] Re: just got my cbc report back it is the worst I've ever had

[Guest guest]

Hi

Jeanie. sorry your having a spot of trouble,

well I hope this cheers you up just a wee bit.

My ANC was down below 300 and they did not stop

Nilotinib, my platelet count has been down to zero

keep on trucking with Nilotinib, my Hgb has been down

to 6500 and just keep putting in the 400mg a day.

My ANC came up all by itself until Thursday it was

1300. My doctor right or wrong feels I have no choice

and so does Norvitis. But I feel ok no major problems.

When I first go into med day for infusions

my blood pressure is about 145-150 but if I sit a few

mins it will go back down to 115 or so..even 130.

I suppose a lot of Docs would disagree with my doc,

but I have survived over 32 years and maybe longer,

that is being investigated now. I had to do a

complete life's history and week by week history of

the last 2.5 years or eversince I went on hydrea and

then Gleevec and when all the infusions started. Guess

they feel I have nothing to loose..LOL

so keep the good fight, you have alway be very kind to

me and I do keep all in my thoughts and prayers

every night..

and as the fox says to the little Prince

" it is only with the heart one see rightly, What

is essential is invisible to the eye.. "

--- ICANDOALLTTC@... wrote:

>

> Hi Greenie,

> I have had a similar experience.

> My blood pressure is a little high in the dr's

> office but when I go home and

> check it, it is good.

> I have tried to explain this to him, but the last

> time I went, he wanted me

> to take

> Toporol XL, and I got the prescription, but haven't

> taken it as of yet. I

> want to talk to my onc before I take it.

> I ask my PCD if this would be ok with Gleevec, and

> he said it would be fine.

> Now, he doesn't know anything about Gleevec, so how

> would he know this. Just

> another case of where the patient must take

> responsibility for the meds.

> You did the right thing. Check it out before taking

> it.

> Blessings,

> Jeanie<3

>

> In a message dated 3/29/2008 7:13:24 A.M. Pacific

> Daylight Time,

> Myvety2k@... writes:

>

> Had my stress test and passed but the Doctor put me

> on Atenolol 50 mg. My

> blood pressure is on the high side. After reading

> the info sheet that comes

> with the drug from Walgreen's they have a list of

> things that can happen a

> mile long. Scares the heck out of you. I called

> the Doctor put he won't be in

> until Monday afternoon. I'm not taking it until I

> talk to him. I told him

> I was on Gleevec, he never heard of it. And he's

> head of Cardiology. Has

> anyone else been on the drug and have you had any

> bad side effects? I hate

> taking new any like of new drugs. My BUN and

> CREATININE are at the high side

> of the scale, let me know if you have any input.

> Thanks,

>

>

> Greenie

>

>

>

>

>

>

>

> **************Create a Home Theater Like the Pros.

> Watch the video on AOL

> Home.

>

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\

000000001)

>

>

--~--~---------~--~----~------------~-------~--~----~

> [CMLHope]

> A support group of http://cmlhope.com

> -------------------------------------------------

>

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>

[Guest guest]

>

> >

> > Hi Greenie,

> > I have had a similar experience.

> > My blood pressure is a little high in the dr's

> > office but when I go home and

> > check it, it is good.

> > I have tried to explain this to him, but the last

> > time I went, he wanted me

> > to take

> > Toporol XL, and I got the prescription, but haven't

> > taken it as of yet. I

> > want to talk to my onc before I take it.

> > I ask my PCD if this would be ok with Gleevec, and

> > he said it would be fine.

> > Now, he doesn't know anything about Gleevec, so how

> > would he know this. Just

> > another case of where the patient must take

> > responsibility for the meds.

> > You did the right thing. Check it out before taking

> > it.

> > Blessings,

> > Jeanie<3

> >

> > In a message dated 3/29/2008 7:13:24 A.M. Pacific

> > Daylight Time,

> > Myvety2k@... writes:

> >

> > Had my stress test and passed but the Doctor put me

> > on Atenolol 50 mg. My

> > blood pressure is on the high side. After reading

> > the info sheet that comes

> > with the drug from Walgreen's they have a list of

> > things that can happen a

> > mile long. Scares the heck out of you. I called

> > the Doctor put he won't be in

> > until Monday afternoon. I'm not taking it until I

> > talk to him. I told him

> > I was on Gleevec, he never heard of it. And he's

> > head of Cardiology. Has

> > anyone else been on the drug and have you had any

> > bad side effects? I hate

> > taking new any like of new drugs. My BUN and

> > CREATININE are at the high side

> > of the scale, let me know if you have any input.

> > Thanks,

> >

> >

> > Greenie

> >

> >

> >

> >

> >

> >

> >

> > **************Create a Home Theater Like the Pros.

> > Watch the video on AOL

> > Home.

> >

> (http://home.aol.com/diy/home-improvement-eric-stromer?

video=15 & ncid=aolhom00030000000001)

> >

> >

> --~--~---------~--~----~------------~-------~--~----~

> > [CMLHope]

> > A support group of http://cmlhope.com

> > -------------------------------------------------

> >

> > You received this message because you are subscribed

> > to the Google Groups " CMLHope " group.

> > To post to this group, send email to

> > CMLHopegooglegroups

> >