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[Guest guest]

Hi folks, I just started posting to your site, thanks to Lottie. I thought I

would introduce myself.

I am 78 yrs old, I have 6 children, 11 grand children, 8 great grand children

and I was dx with cml in May of 1995. I live outside Cleveland, Ohio, and at

present I am still in the BMS trial for Sprycel. I entered it in July, 2004,

at MDACC, under Dr. Talpaz, and reached CCR in 10 months, on only 70 mg. a day,

5 days on and 2 days off. Unfortunately, after 2 1/2 yrs, the dreaded pleural

effusion caught up with me, and it's been on the drug, off the drug since Dec.

of 2006. Right now I am back on it, 40 mg, 5 days on, two days off, along with

30 mg Prednisone to help with the effusion. Seems to be working for me, I have

an appointment March 20 at the U. Of Mich, where Dr. Talpaz is now associated.

It's been quite a journey for me, in 2000 I was fortunate enough to get into

phase 2 of Dr. Druker's Gleevec trial. I never reached CCR, and was in two

other trials with Gleevec, one with Arsenec, and one with Zarnestra,both of them

at OHSU also, neither of them worked. So when Sprycel came along I was quite

willing to move to Houston for 3-6 months, or however long it took . In 3

months I was allowed to come back home, but had to fly back every month for the

next 7 months.

I was lucky enough to meets lots of great folks, all in the same trial,

including Lottie and her wonderful husband Jimmy. Now I'm seeing some of them

at the U. of Mich. It's like old home week every now and then.

So, that's about it, I have posted on Jerry's site, and the Asian site for

several years, but am always looking for new information, and new faces. It's

a pleasure to post here, blessings, Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

09/2006 - out of CCR