Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 , Don't be frustrated. I know how you feel I was there just a month ago. Same thing happened to me. But I did not have three cancers. I am sorry for that. I just wanted you to know that I am on Tasigna (3rd medication) after Sprycel. I have been on it for about 18 days now and have never felt better in my life. So Far!!! I am on only 400mg and my PCR was 0.011 when I started. I was in PCRU prior to stoppig the Sprycel. Hang in there and you will be fine. Take care and remember we are all here for you. Sharon _____ From: [mailto: ] On Behalf Of Fiol Sent: Saturday, March 29, 2008 8:40 AM Subject: [ ] pleural effusions & Sprycel Hi all, I just got out of the hospital yesterday and was told not to take Sprycel anymore. Fluid in the lungs and I couldn't breath. 2 chemo down how many more to go? I see my onc next week and she'll make a new decision. I'm ok mentally. but feeling frustrated, understandably. The thing that gets me is, I was in or near remission with both Gleevec and Sprycel. Has anyone ever had Thyroid Cancer? or any other cancer besides CML? This is my 3rd cancer...fun huh? Well I hope you all have a good weekend. Thanks for all your help and support. Peace, Light & Love --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 rachel: i am so sorry to hear about your hospitalization. you have to be frustrated. good luck next week. let us know what happens. ann [ ] pleural effusions & Sprycel Hi all, I just got out of the hospital yesterday and was told not to take Sprycel anymore. Fluid in the lungs and I couldn't breath. 2 chemo down how many more to go? I see my onc next week and she'll make a new decision. I'm ok mentally. but feeling frustrated, understandably. The thing that gets me is, I was in or near remission with both Gleevec and Sprycel. Has anyone ever had Thyroid Cancer? or any other cancer besides CML? This is my 3rd cancer...fun huh? Well I hope you all have a good weekend. Thanks for all your help and support. Peace, Light & Love --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Dear , my thoughts and prayers are with you . Eva Brown From: ann grimm Sent: Saturday, March 29, 2008 1:42 PM Subject: Re: [ ] pleural effusions & Sprycel rachel: i am so sorry to hear about your hospitalization. you have to be frustrated. good luck next week. let us know what happens. ann [ ] pleural effusions & Sprycel Hi all, I just got out of the hospital yesterday and was told not to take Sprycel anymore. Fluid in the lungs and I couldn't breath. 2 chemo down how many more to go? I see my onc next week and she'll make a new decision. I'm ok mentally. but feeling frustrated, understandably. The thing that gets me is, I was in or near remission with both Gleevec and Sprycel. Has anyone ever had Thyroid Cancer? or any other cancer besides CML? This is my 3rd cancer...fun huh? Well I hope you all have a good weekend. Thanks for all your help and support. Peace, Light & Love --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Hang in there , There are at least two others, (Nilotinib and SKI-606) that work really well for those people who can't tolerate Gleevec or Sprycel . Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 3.6 log reduction Sep/07 3.5 log reduction Feb/08 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of Fiol Sent: March 29, 2008 11:40 AM Subject: [ ] pleural effusions & Sprycel Hi all, I just got out of the hospital yesterday and was told not to take Sprycel anymore. Fluid in the lungs and I couldn't breath. 2 chemo down how many more to go? I see my onc next week and she'll make a new decision. I'm ok mentally. but feeling frustrated, understandably. The thing that gets me is, I was in or near remission with both Gleevec and Sprycel. Has anyone ever had Thyroid Cancer? or any other cancer besides CML? This is my 3rd cancer...fun huh? Well I hope you all have a good weekend. Thanks for all your help and support. Peace, Light & Love --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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