Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 I am near Mississauga, Ontario Canada. (Toronto). Eva @...: lotajam@...: Thu, 13 Mar 2008 00:34:19 -0500Subject: [ ] Wbc 231 Dear Eva, I'm not sure I get your letter right, as it was connected to another message. Did you say your WBC is 231 and can't get meds for 3 weeks. My dear Eva, you should be on Hydrea until you can see a specialist and get your new meds, whatever that will be. Can't you call the doctor and ask him to give you a prescription. Being without any meds for 3 weeks after diagnosis would be very scary for me. Please do inquire about it for your own satisfaction. Where do you live that you have to wait that long to see a specialist. It would seem to me they would get you in ASAP. You have to be your own advocate, if you are alone most of the time. Sometimes you have to make a little noise to get attention. I'm glad you found us so soon, Eva, and I hope you will stay in touch. I'm very sorry you got the diagnosis, but it is not the end of the world. I think we could have worse things than CML, because it is so treatable today. So what if we have to take medicine the rest of our lives, don't other people who have chronic disease? Keep track of your reports, ask for copies and store them in a notebook. Write down the questions you need to ask. Read about Andres Schorr and his survival with CML. http://tinyurl.com/36bbrtHere are questions you can ask your doctor: a.. What treatment choices do I have? b.. Which treatment do you recommend, and why? c.. What side effects are there to the treatments that you recommend? d.. What can I do to help reduce the side effects I may have from treatment? e.. What are the chances that my leukemia will come back once I am in remission?Here is the entire website if you want to learn the basics about CML. It is very informative for the newly diagnosed patient. http://www.antigenics.com/diseases/cml.htmlIf you live in the US, here is a good site to learn about clinical trials.http://www.clinicaltrials.gov/ct2/results?term=CML+clinical+trialsLet us know if you have needs, Eva,Lottie[Non-text portions of this message have been removed] _________________________________________________________________ At a loss for words? Find them by playing Seekadoo! Play now! http://g.msn.ca/ca55/208 Quote Link to comment Share on other sites More sharing options...
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