Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Sharon: The sudden deaths on the notice, are from QT Prolongation. If you are careful about the " no eating 2 hours before and 1 hour after " you should have nothing to worry about. Just remember to drink a lot of fluids, and make some of them electrolyte replacement drinks. If you eat or drink near the time you take it, the medication " spikes " in your system, meaning it becomes much more potent. I started on 800 mg, had a little adjustment, went down to 400 mg and am back on 800 mg and can honestly say it is so much better than my bout with Gleevec. Hang in their and enjoy the park. With warmest regards, Sunny Florida This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 3/12/2008 12:58:40 P.M. Eastern Daylight Time, onthewtr@... writes: Yes I know what you mean. Today I started 400mg of Tasigna and I am sitting around the house waiting for something to happen to me. It is awful!!! So I am having a pity party today.. I have a lot of support from my family especially my dear husband but sometimes you just don't want to complain anymore. I just " grin and bare it " But today is rough!!! I am honestly waiting to have a heart attack since I was told by my Dr. and Pharmasist and some one on the other chat room that there has been 4 sudden deaths on this medication..medication..<WBR>. I need to " get over it " and st So that is what I am going to do-I am going to take a shower and take my little dog to the park and enjoy the beauty around me. Sharon _____ From: _@..._ (mailto: ) [mailto:_@..._ (mailto: ) ] On Behalf Of ez Sent: Wednesday, March 12, 2008 9:49 AM _@..._ (mailto: ) Subject: [ ] Re: Aliza & I think we should all print out your response and give it to our families. For me, I think the fact that I can do so much and have come so far, when I do have a bad day or when I do have side affects that I need to address or " bitch about " no one seems to believe it or want to hear it. It's almost like I'm still here 8 years later (not dead) and they forget I have Cancer. I don't like the pitty but there are times when I really need that to be recognized. Thanks! ez [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Sharon: I think it is the Pixie Dust. I am a Finance major, pharmacology is not my thing. Plus I have never gotten to the bottom of some of the side effects, as far as the cause and effect. With warmest regards, Leader of the Florida CML Army This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 3/12/2008 1:28:11 P.M. Eastern Daylight Time, onthewtr@... writes: Matt. Thank you!!! Do you know why the other two medications, Gleevec and Sprycel do not cause this? What does Tasi have in it that the other two don't??? Sharon _____ From: _@..._ (mailto: ) [mailto:_@..._ (mailto: ) ] On Behalf Of _mtmaynor@..._ (mailto:mtmaynor@...) Sent: Wednesday, March 12, 2008 10:14 AM _@..._ (mailto: ) Subject: Re: [ ] Re: Aliza & Sharon: The sudden deaths on the notice, are from QT Prolongation. If you are careful about the " no eating 2 hours before and 1 hour after " you should have nothing to worry about. Just remember to drink a lot of fluids, and make some of them electrolyte replacement drinks. If you eat or drink near the time you take it, the medication " spikes " in your system, meaning it becomes much more potent. I started on 800 mg, had a little adjustment, went down to 400 mg and am back on 800 mg and can honestly say it is so much better than my bout with Gleevec. Hang in their and enjoy the park. With warmest regards, Sunny Florida This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 3/12/2008 12:58:40 P.M. Eastern Daylight Time, onthewtrdiscobay (DOT) <mailto:onthewtr%mailto:onthmai> net writes: Yes I know what you mean. Today I started 400mg of Tasigna and I am sitting around the house waiting for something to happen to me. It is awful!!! So I am having a pity party today.. I have a lot of support from my family especially my dear husband but sometimes you just don't want to complain anymore. I just " grin and bare it " But today is rough!!! I am honestly waiting to have a heart attack since I was told by my Dr. and Pharmasist and some one on the other chat room that there has been 4 sudden deaths on this medication..medication.m<WBR>. I need to " get over it " and st So that is what I am going to do-I am going to take a shower and take my little dog to the park and enjoy the beauty around me. Sharon _____ From: _groups (DOT) <mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:%mailto:%<Wmai> com) [mailto:_@[mailto:_@<WB<mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:%mailto:%<Wmai> com) ] On Behalf Of ez Sent: Wednesday, March 12, 2008 9:49 AM _groups (DOT) <mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:%mailto:%<Wmai> com) Subject: [ ] Re: Aliza & I think we should all print out your response and give it to our families. For me, I think the fact that I can do so much and have come so far, when I do have a bad day or when I do have side affects that I need to address or " bitch about " no one seems to believe it or want to hear it. It's almost like I'm still here 8 years later (not dead) and they forget I have Cancer. I don't like the pitty but there are times when I really need that to be recognized. Thanks! ez [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] ************************<WBR>**It's Tax Time! Get tips, forms, and advice & Finance. (_http://money._'>http://money._ (http://money./) <_http://money.http://moneyhttp://money.<WBhttp://mo_ (http://money.aol.com/tax?NCID=aolprf00030000000001) > aol.com/tax?aol.com/tax?<WBRaol.com/ta [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Hang in there Sharon, each new medication that comes out seems to be better than the previous one. Better in that it is more powerful, has better results and less side effects. Don't let the worry and angst get to you, but do try to see how technology and pharmacology is improving our situation each day. Each visit I make to the cancer center I make, I make them take an extra five or six vials of blood for research. It is hard for me to give that much at one time (I am not a good bleeder), but I do have hope that it will continue to improve things. My current CML specialist is excited about the advance- ments that continue to be made and each time he tells me that we hope to one day find a cure. In the mean time we need to try to have a good quality of life. With warmest regards, Matt This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 3/12/2008 1:53:10 P.M. Eastern Daylight Time, onthewtr@... writes: Ha ha Matt, You have a sense of humor!!! I love that. Maybe someone else will know and post. Sharon Leader of the California CML Army I wish _____ From: _@..._ (mailto: ) [mailto:_@..._ (mailto: ) ] On Behalf Of _mtmaynor@..._ (mailto:mtmaynor@...) Sent: Wednesday, March 12, 2008 10:44 AM _@..._ (mailto: ) Subject: Re: [ ] Re: Aliza & Sharon: I think it is the Pixie Dust. I am a Finance major, pharmacology is not my thing. Plus I have never gotten to the bottom of some of the side effects, as far as the cause and effect. With warmest regards, Leader of the Florida CML Army This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 3/12/2008 1:28:11 P.M. Eastern Daylight Time, onthewtrdiscobay (DOT) <mailto:onthewtr%mailto:onthmai> net writes: Matt. Thank you!!! Do you know why the other two medications, Gleevec and Sprycel do not cause this? What does Tasi have in it that the other two don't??? Sharon _____ From: _groups (DOT) <mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:%mailto:%<Wmai> com) [mailto:_@[mailto:_@<WB<mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:%mailto:%<Wmai> com) ] On Behalf Of _mtmaynoraol (DOT) <mailto:_mtmaynor%mailto:_m> mtm_ (mailto:mtmaynor@ mtm <mailto:mtmaynor%mailto:mt> com) Sent: Wednesday, March 12, 2008 10:14 AM _groups (DOT) <mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:%mailto:%<Wmai> com) Subject: Re: [ ] Re: Aliza & Sharon: The sudden deaths on the notice, are from QT Prolongation. If you are careful about the " no eating 2 hours before and 1 hour after " you should have nothing to worry about. Just remember to drink a lot of fluids, and make some of them electrolyte replacement drinks. If you eat or drink near the time you take it, the medication " spikes " in your system, meaning it becomes much more potent. I started on 800 mg, had a little adjustment, went down to 400 mg and am back on 800 mg and can honestly say it is so much better than my bout with Gleevec. Hang in their and enjoy the park. With warmest regards, Sunny Florida This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 3/12/2008 12:58:40 P.M. Eastern Daylight Time, onthewtrdiscobay (DOT) <mailto:onthewtr%mailto:onthewt> net writes: Yes I know what you mean. Today I started 400mg of Tasigna and I am sitting around the house waiting for something to happen to me. It is awful!!! So I am having a pity party today.. I have a lot of support from my family especially my dear husband but sometimes you just don't want to complain anymore. I just " grin and bare it " But today is rough!!! I am honestly waiting to have a heart attack since I was told by my Dr. and Pharmasist and some one on the other chat room that there has been 4 sudden deaths on this medication..medication.m<WBR>. I need to " get over it " and st So that is what I am going to do-I am going to take a shower and take my little dog to the park and enjoy the beauty around me. Sharon _____ From: _groups (DOT) <mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:mailto:<WBR>mailt<Wmai> com) [mailto:_@[mailto:_[mail<WB<<WBR>mailto:_<WBR>mailto:_<WB> CML_ (mailto:@(mailto:@<WBR<mailto:mailto:<WBR>mailt<Wmai> com) ] On Behalf Of ez Sent: Wednesday, March 12, 2008 9:49 AM _groups (DOT) <mailto:_%mailto:_%<WB> CML_ (mailto:@(mailto:@<WBR<mailto:mailto:<WBR>mailt<Wmai> com) Subject: [ ] Re: Aliza & I think we should all print out your response and give it to our families. For me, I think the fact that I can do so much and have come so far, when I do have a bad day or when I do have side affects that I need to address or " bitch about " no one seems to believe it or want to hear it. It's almost like I'm still here 8 years later (not dead) and they forget I have Cancer. I don't like the pitty but there are times when I really need that to be recognized. Thanks! ez [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] ************************<WBR>**<WBR>*It's Tax Time! Get tips, forms, and a & Finance. (__http://money._'>http://money._ (http://money./) <_http://money.h_'>http://money.h_ (http://money._/) > _ (_http://money._'>http://money._ (http://money./) <_http://money.h_'>http://money.h_ (http://money./) > /) <__http://money._'>http://money._ (http://money./) <_http://money.http://money.<WBhttp://_ (http://money.http/moneyhttp:/money.) > _http://moneyhttp:http://m_ (http://moneyhttp//money.) <_WBhttp://mo__ (wbhttp://mo_/) (_http://money._'>http://money._ (http://money./) <_http://money.http://moneyhttp://money.<WBhttp://mo_ (http://money.aol.com/tax?NCID=aolprf00030000000001) > aol.com/tax?aol.com/tax?<WBRaol.com/tax?<WB> aol.com/tax?aol.com/tax?<WBRaol.com/WB [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] ************************<WBR>**It's Tax Time! Get tips, forms, and adv & Finance. (_http://money._'>http://money._ (http://money./) <_http://money.http://moneyhttp://money.<WBhttp://mo_ (http://money.aol.com/tax?NCID=aolprf00030000000001) > aol.com/tax?aol.com/tax?<WBRaol.com/ta [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 I think we should all print out your response and give it to our families. For me, I think the fact that I can do so much and have come so far, when I do have a bad day or when I do have side affects that I need to address or " bitch about " no one seems to believe it or want to hear it. It's almost like I'm still here 8 years later (not dead) and they forget I have Cancer. I don't like the pitty but there are times when I really need that to be recognized. Thanks! ez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Yes I know what you mean. Today I started 400mg of Tasigna and I am sitting around the house waiting for something to happen to me. It is awful!!! So I am having a pity party today.. I have a lot of support from my family especially my dear husband but sometimes you just don't want to complain anymore. I just " grin and bare it " But today is rough!!! I am honestly waiting to have a heart attack since I was told by my Dr. and Pharmasist and some one on the other chat room that there has been 4 sudden deaths on this medication... I need to " get over it " and start living!!! So that is what I am going to do-I am going to take a shower and take my little dog to the park and enjoy the beauty around me. Sharon _____ From: [mailto: ] On Behalf Of ez Sent: Wednesday, March 12, 2008 9:49 AM Subject: [ ] Re: Aliza & I think we should all print out your response and give it to our families. For me, I think the fact that I can do so much and have come so far, when I do have a bad day or when I do have side affects that I need to address or " bitch about " no one seems to believe it or want to hear it. It's almost like I'm still here 8 years later (not dead) and they forget I have Cancer. I don't like the pitty but there are times when I really need that to be recognized. Thanks! ez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Matt. Thank you!!! Do you know why the other two medications, Gleevec and Sprycel do not cause this? What does Tasi have in it that the other two don't??? Sharon _____ From: [mailto: ] On Behalf Of mtmaynor@... Sent: Wednesday, March 12, 2008 10:14 AM Subject: Re: [ ] Re: Aliza & Sharon: The sudden deaths on the notice, are from QT Prolongation. If you are careful about the " no eating 2 hours before and 1 hour after " you should have nothing to worry about. Just remember to drink a lot of fluids, and make some of them electrolyte replacement drinks. If you eat or drink near the time you take it, the medication " spikes " in your system, meaning it becomes much more potent. I started on 800 mg, had a little adjustment, went down to 400 mg and am back on 800 mg and can honestly say it is so much better than my bout with Gleevec. Hang in their and enjoy the park. With warmest regards, Sunny Florida This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 3/12/2008 12:58:40 P.M. Eastern Daylight Time, onthewtrdiscobay (DOT) <mailto:onthewtr%40discobay.net> net writes: Yes I know what you mean. Today I started 400mg of Tasigna and I am sitting around the house waiting for something to happen to me. It is awful!!! So I am having a pity party today.. I have a lot of support from my family especially my dear husband but sometimes you just don't want to complain anymore. I just " grin and bare it " But today is rough!!! I am honestly waiting to have a heart attack since I was told by my Dr. and Pharmasist and some one on the other chat room that there has been 4 sudden deaths on this medication..medication..<WBR>. I need to " get over it " and st So that is what I am going to do-I am going to take a shower and take my little dog to the park and enjoy the beauty around me. Sharon _____ From: _groups (DOT) <mailto:_%40groups.CML> CML_ (mailto:groups (DOT) <mailto:%40> com) [mailto:_groups (DOT) <mailto:_%40groups.CML> CML_ (mailto:groups (DOT) <mailto:%40> com) ] On Behalf Of ez Sent: Wednesday, March 12, 2008 9:49 AM _groups (DOT) <mailto:_%40groups.CML> CML_ (mailto:groups (DOT) <mailto:%40> com) Subject: [ ] Re: Aliza & I think we should all print out your response and give it to our families. For me, I think the fact that I can do so much and have come so far, when I do have a bad day or when I do have side affects that I need to address or " bitch about " no one seems to believe it or want to hear it. It's almost like I'm still here 8 years later (not dead) and they forget I have Cancer. I don't like the pitty but there are times when I really need that to be recognized. Thanks! ez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Ha ha Matt, You have a sense of humor!!! I love that. Maybe someone else will know and post. Sharon Leader of the California CML Army I wish _____ From: [mailto: ] On Behalf Of mtmaynor@... Sent: Wednesday, March 12, 2008 10:44 AM Subject: Re: [ ] Re: Aliza & Sharon: I think it is the Pixie Dust. I am a Finance major, pharmacology is not my thing. Plus I have never gotten to the bottom of some of the side effects, as far as the cause and effect. With warmest regards, Leader of the Florida CML Army This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 3/12/2008 1:28:11 P.M. Eastern Daylight Time, onthewtrdiscobay (DOT) <mailto:onthewtr%40discobay.net> net writes: Matt. Thank you!!! Do you know why the other two medications, Gleevec and Sprycel do not cause this? What does Tasi have in it that the other two don't??? Sharon _____ From: _groups (DOT) <mailto:_%40groups.CML> CML_ (mailto:groups (DOT) <mailto:%40> com) [mailto:_groups (DOT) <mailto:_%40groups.CML> CML_ (mailto:groups (DOT) <mailto:%40> com) ] On Behalf Of _mtmaynoraol (DOT) <mailto:_mtmaynor%40aol.mtm> mtm_ (mailto:mtmaynoraol (DOT) <mailto:mtmaynor%40aol.com> com) Sent: Wednesday, March 12, 2008 10:14 AM _groups (DOT) <mailto:_%40groups.CML> CML_ (mailto:groups (DOT) <mailto:%40> com) Subject: Re: [ ] Re: Aliza & Sharon: The sudden deaths on the notice, are from QT Prolongation. If you are careful about the " no eating 2 hours before and 1 hour after " you should have nothing to worry about. Just remember to drink a lot of fluids, and make some of them electrolyte replacement drinks. If you eat or drink near the time you take it, the medication " spikes " in your system, meaning it becomes much more potent. I started on 800 mg, had a little adjustment, went down to 400 mg and am back on 800 mg and can honestly say it is so much better than my bout with Gleevec. Hang in their and enjoy the park. With warmest regards, Sunny Florida This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 3/12/2008 12:58:40 P.M. Eastern Daylight Time, onthewtrdiscobay (DOT) <mailto:onthewtr%mailto:onthmai> net writes: Yes I know what you mean. Today I started 400mg of Tasigna and I am sitting around the house waiting for something to happen to me. It is awful!!! So I am having a pity party today.. I have a lot of support from my family especially my dear husband but sometimes you just don't want to complain anymore. I just " grin and bare it " But today is rough!!! I am honestly waiting to have a heart attack since I was told by my Dr. and Pharmasist and some one on the other chat room that there has been 4 sudden deaths on this medication..medication.m<WBR>. I need to " get over it " and st So that is what I am going to do-I am going to take a shower and take my little dog to the park and enjoy the beauty around me. Sharon _____ From: _groups (DOT) <mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:%mailto:%<Wmai> com) [mailto:_@[mailto:_@<WB<mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:%mailto:%<Wmai> com) ] On Behalf Of ez Sent: Wednesday, March 12, 2008 9:49 AM _groups (DOT) <mailto:_%mailto:_%mai> CML_ (mailto:@(mailto:@<WBR<mailto:%mailto:%<Wmai> com) Subject: [ ] Re: Aliza & I think we should all print out your response and give it to our families. For me, I think the fact that I can do so much and have come so far, when I do have a bad day or when I do have side affects that I need to address or " bitch about " no one seems to believe it or want to hear it. It's almost like I'm still here 8 years later (not dead) and they forget I have Cancer. I don't like the pitty but there are times when I really need that to be recognized. Thanks! ez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 -i'm new to the group but i agree with lisa 100% aliza -- In , " ez " <lmartinez@...> wrote: > > I think we should all print out your response and give it to our > families. > > For me, I think the fact that I can do so much and have come so far, when I > do have a bad day or when I do have side affects that I need to address or > " bitch about " no one seems to believe it or want to hear it. > > It's almost like I'm still here 8 years later (not dead) and they forget I > have Cancer. > > > > I don't like the pitty but there are times when I really need that to be > recognized. > > Thanks! > > ez > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 Oh guys - I know what you mean! I was excited but full of trepidation when I started on Glivec having found this site and learnt about it's side effects. I had a huge week coming up when I started on the Thursday with a national accreditation audit happening on the following Wednesday. Prior to being dx, I had a plan worked out where I went on 2 weeks holidays, that left me with 6 weeks to finish off getting the procedure manuals and all the records and a huge report finished analyzing the previous 3 years services we provided. So what happened? I celebrated my 50th birthday, got dx with CML, had a hugh birthday bash, went on holidays, then came back to specialist appointments, BMB etc etc, while trying to deal with my dx and heaps of days off. So, I still had to get everything done at work and the week before the audit I started taking 400mg Glivec. Well - the first 3 days were a breeze, (HA HA, I thought to myself - this isn't going to affect ME) then the 4th day I woke up feeling like my head had been hit by a sledgehammer and I could barely see out of my eyes. Well by Wednesday to say I was under the weather is an understatement, but had pulled it all together (with the help of my wonderful staff) and the audit - well we got 20/20. That was what I was determined to get after the previous 3 years when we got 19.1/20. So .....a long winded moral to the story is, you can lie down and let this disease take you over and believe it or not it is a chronic disease that we can certainly live with or you " deal " with it. I choose to not let it control me - I am not that sort of person and probably not to my benefit at times, I have refused to " lie down " and carried on with my life. What we make out of life is what we put into it. I'm not saying I haven't had dark moments when in the middle of the night I have been awake crying. My husband is not a person to show much emotion - to give a lot of support as such....he never asks how I feel or comments when I have a s*** ful day, but if there is something I need done it happens....too bad about the flowers! Sometimes I want to thump him for not showing enough consideration! He just doesn't cope with sickness, hospitals etc and doesn't make me breaky in bed.....but I don't do that for him either LOL! However, my kids are great and having my work mates is great as they certainly lend an ear when I need to sound off - just like this group here which is fantastic for the support given, cos each and everyone of us has experienced what everyone else is going through. As we Aussies say - " we are all true blue dinky di mates! " Regards, from Downunder _____ From: [mailto: ] On Behalf Of Sharon & Denny Sent: Thursday, 13 March 2008 3:58 AM Subject: RE: [ ] Re: Aliza & Yes I know what you mean. Today I started 400mg of Tasigna and I am sitting around the house waiting for something to happen to me. It is awful!!! So I am having a pity party today.. I have a lot of support from my family especially my dear husband but sometimes you just don't want to complain anymore. I just " grin and bare it " But today is rough!!! I am honestly waiting to have a heart attack since I was told by my Dr. and Pharmasist and some one on the other chat room that there has been 4 sudden deaths on this medication... I need to " get over it " and start living!!! So that is what I am going to do-I am going to take a shower and take my little dog to the park and enjoy the beauty around me. Sharon _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of ez Sent: Wednesday, March 12, 2008 9:49 AM groups (DOT) <mailto:%40> com Subject: [ ] Re: Aliza & I think we should all print out your response and give it to our families. For me, I think the fact that I can do so much and have come so far, when I do have a bad day or when I do have side affects that I need to address or " bitch about " no one seems to believe it or want to hear it. It's almost like I'm still here 8 years later (not dead) and they forget I have Cancer. I don't like the pitty but there are times when I really need that to be recognized. Thanks! ez Quote Link to comment Share on other sites More sharing options...
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