Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 Dear Eva, I'm so sorry you have to spend so much time alone, but if your husband wants to maintain his job, he has to be away from home for long periods, but you still have us. Does LLS have any programs where they have speakers to come in and speak to patients? There should be something in your vicinity that you can get involved in where you can learn more and be with people who also have CML. We invite all of your posts, that's what it's intent is here, to be here for each other and I think we are a diversified group and you will surely find someone who will understand your situation. Your computer can be a great asset to you, to do resesarch on the subjects that come up and to commicate with the group. I find that books can also be good company, a diversion from the junk on TV. Just remember that we care and there is somebody who is in the same boat who would be glad to talk to you. Take care, because we care, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Thanks so much , just trying to come to grips with this.I dont have a doctor to deal with this until I see a specialist. He told me they will look after what my treatment is. I have already known of my high WBC since Febuary 21st. I just feel like I am sitting here waiting to keel over. Thanks Eva @...: lotajam@...: Thu, 13 Mar 2008 00:08:45 -0500Subject: [ ] Staying alone Dear Eva,I'm so sorry you have to spend so much time alone, but if your husband wants to maintain his job, he has to be away from home for long periods, but you still have us. Does LLS have any programs where they have speakers to come in and speak to patients? There should be something in your vicinity that you can get involved in where you can learn more and be with people who also have CML. We invite all of your posts, that's what it's intent is here, to be here for each other and I think we are a diversified group and you will surely find someone who will understand your situation. Your computer can be a great asset to you, to do resesarch on the subjects that come up and to commicate with the group. I find that books can also be good company, a diversion from the junk on TV. Just remember that we care and there is somebody who is in the same boat who would be glad to talk to you. Take care, because we care,Lottie[Non-text portions of this message have been removed] _________________________________________________________________ At a loss for words? Find them by playing Seekadoo! Play now! http://g.msn.ca/ca55/208 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Hi Eva, While there's no real rush to start Gleevec when you're first diagnosed, anyone with a white count over 50 or 75 should be given Hydrea to get the white count down. You should also be getting blood tests every week at this point. If you are not getting any treatment or blood tests since Feb 21, you really need to call your doctor. This isn't standard treatment at all. Tracey > > > Thanks so much , just trying to come to grips with this.I dont have a doctor to deal with this until I see a specialist. He told me they will look after what my treatment is. I have already known of my high WBC since Febuary 21st. I just feel like I am sitting here waiting to keel over. Thanks Eva > > > @...: lotajam@...: Thu, 13 Mar 2008 00:08:45 -0500Subject: [ ] Staying alone > > > > > Dear Eva,I'm so sorry you have to spend so much time alone, but if your husband wants to maintain his job, he has to be away from home for long periods, but you still have us. Does LLS have any programs where they have speakers to come in and speak to patients? There should be something in your vicinity that you can get involved in where you can learn more and be with people who also have CML. We invite all of your posts, that's what it's intent is here, to be here for each other and I think we are a diversified group and you will surely find someone who will understand your situation. Your computer can be a great asset to you, to do resesarch on the subjects that come up and to commicate with the group. I find that books can also be good company, a diversion from the junk on TV. Just remember that we care and there is somebody who is in the same boat who would be glad to talk to you. Take care, because we care,Lottie[Non-text portions of this message have been removed] > > > > > > > _________________________________________________________________ > At a loss for words? Find them by playing Seekadoo! Play now! > http://g.msn.ca/ca55/208 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Way to go Pam, you are a strong women. Congrats on your new, strong, solid life. Many blessings ahead for you! Hugs and Hope- 35 CML 5/13/05 Gleevec 800mg until 8/07 Spyrcel 100 mg since 9/07 Wife and mother of 3 (12,9,7) # 907 in Zavie's Zero Club **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Hi Eva, Hang in there my dear. When I was Dxed in 04 my wife left me shortly after. Needless to say I was a mess for a long time. But there are many very good people here for you. Please feel free to post anytime you need to talk. I remember when I first joined I opened up to the group and if it was not for many on here I would be in a much worse place mentally and emotionally then I am now. I am going to be getting divorced again unfortunately, but when I found my soon to be ex was stealing my pain meds, and then started being rather mean to my son(His name is Nick and he is only 14) I decided enough was enough and left. Needless to say I have no intention of EVER marrying again. I will stick to having friends with benefits and concentrate on my son, and helping out as much as I can within our group. It is scary as hell when you first learn of our little disease, but hang in there, I am living proof that things will get better and you will get through this. Believe it or not you have more friends than you might think. I consider everyone in this group part of my extended family and friends. We are here for you:D Terry Dailey 41 years old Dxed April 04 On Thu, Mar 13, 2008 at 6:14 PM, Tracey <traceyincanada@...> wrote: > Hi Eva, > > While there's no real rush to start Gleevec when you're first > diagnosed, anyone with a white count over 50 or 75 should be given > Hydrea to get the white count down. You should also be getting blood > tests every week at this point. > > If you are not getting any treatment or blood tests since Feb 21, you > really need to call your doctor. This isn't standard treatment at > all. > > Tracey > > > > > > > > Thanks so much , just trying to come to grips with this.I dont have > a doctor to deal with this until I see a specialist. He told me they > will look after what my treatment is. I have already known of my high > WBC since Febuary 21st. I just feel like I am sitting here waiting to > keel over. Thanks Eva > > > > > > @...: lotajam@...: Thu, 13 Mar 2008 00:08:45 -0500Subject: > [ ] Staying alone > > > > > > > > > > Dear Eva,I'm so sorry you have to spend so much time alone, but if > your husband wants to maintain his job, he has to be away from home > for long periods, but you still have us. Does LLS have any programs > where they have speakers to come in and speak to patients? There > should be something in your vicinity that you can get involved in > where you can learn more and be with people who also have CML. We > invite all of your posts, that's what it's intent is here, to be here > for each other and I think we are a diversified group and you will > surely find someone who will understand your situation. Your computer > can be a great asset to you, to do resesarch on the subjects that > come up and to commicate with the group. I find that books can also > be good company, a diversion from the junk on TV. Just remember that > we care and there is somebody who is in the same boat who would be > glad to talk to you. Take care, because we care,Lottie[Non-text > portions of this message have been removed] > > > > > > > > > > > > > > __________________________________________________________ > > At a loss for words? Find them by playing Seekadoo! Play now! > > http://g.msn.ca/ca55/208 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 I found out being alone vs being in an abusive marriage is wonderful. I left my husband this past June. Filed for divorce but that's another story. Along with major issues in the marriage no concern was shown on his when I was dx'd. Time to get out! I'm content in my personal life and have found the support and concern thru this group. As I have stated before, I don't post often but read all. Thanks for the info and support!! Pam Terry Dailey <terrydailey@...> wrote: Hi Eva, Hang in there my dear. When I was Dxed in 04 my wife left me shortly after. Needless to say I was a mess for a long time. But there are many very good people here for you. Please feel free to post anytime you need to talk. I remember when I first joined I opened up to the group and if it was not for many on here I would be in a much worse place mentally and emotionally then I am now. I am going to be getting divorced again unfortunately, but when I found my soon to be ex was stealing my pain meds, and then started being rather mean to my son(His name is Nick and he is only 14) I decided enough was enough and left. Needless to say I have no intention of EVER marrying again. I will stick to having friends with benefits and concentrate on my son, and helping out as much as I can within our group. It is scary as hell when you first learn of our little disease, but hang in there, I am living proof that things will get better and you will get through this. Believe it or not you have more friends than you might think. I consider everyone in this group part of my extended family and friends. We are here for you:D Terry Dailey 41 years old Dxed April 04 On Thu, Mar 13, 2008 at 6:14 PM, Tracey <traceyincanada@...> wrote: > Hi Eva, > > While there's no real rush to start Gleevec when you're first > diagnosed, anyone with a white count over 50 or 75 should be given > Hydrea to get the white count down. You should also be getting blood > tests every week at this point. > > If you are not getting any treatment or blood tests since Feb 21, you > really need to call your doctor. This isn't standard treatment at > all. > > Tracey > > > > > > > > Thanks so much , just trying to come to grips with this.I dont have > a doctor to deal with this until I see a specialist. He told me they > will look after what my treatment is. I have already known of my high > WBC since Febuary 21st. I just feel like I am sitting here waiting to > keel over. Thanks Eva > > > > > > @...: lotajam@...: Thu, 13 Mar 2008 00:08:45 -0500Subject: > [ ] Staying alone > > > > > > > > > > Dear Eva,I'm so sorry you have to spend so much time alone, but if > your husband wants to maintain his job, he has to be away from home > for long periods, but you still have us. Does LLS have any programs > where they have speakers to come in and speak to patients? There > should be something in your vicinity that you can get involved in > where you can learn more and be with people who also have CML. We > invite all of your posts, that's what it's intent is here, to be here > for each other and I think we are a diversified group and you will > surely find someone who will understand your situation. Your computer > can be a great asset to you, to do resesarch on the subjects that > come up and to commicate with the group. I find that books can also > be good company, a diversion from the junk on TV. Just remember that > we care and there is somebody who is in the same boat who would be > glad to talk to you. Take care, because we care,Lottie[Non-text > portions of this message have been removed] > > > > > > > > > > > > > > __________________________________________________________ > > At a loss for words? Find them by playing Seekadoo! Play now! > > http://g.msn.ca/ca55/208 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 I totally agree with , good for you. I have had to get rid of myspace and anything like that on the net because even after our divorce my ex kept trying to get into my business. I am sorry you had to deal with such a jerk, maybe we should hook my ex up with yours so they can abuse each other..lol Hang in the Pam, Terry On Fri, Mar 14, 2008 at 12:12 PM, <vegasrnjen@...> wrote: > Way to go Pam, you are a strong women. Congrats on your new, strong, > solid > life. Many blessings ahead for you! > Hugs and Hope- > > 35 > CML 5/13/05 > Gleevec 800mg until 8/07 > Spyrcel 100 mg since 9/07 > Wife and mother of 3 (12,9,7) > # 907 in Zavie's Zero Club > > **************It's Tax Time! Get tips, forms, and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) > > Quote Link to comment Share on other sites More sharing options...
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