RE: Sorting out the members

Posted March 14, 2008 · March 14, 2008

you got it tracey ;-)

aliza yaffa rochester n.y.

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Posted March 14, 2008 · March 14, 2008

graet news eva now to kick the bug in the pants good luck keep us posted

we'll be sending good thoughtd and prayers your way

aliza yaffa rochester n.y.

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Posted March 14, 2008 · March 14, 2008

Hi , I have a appt finally with a specialist on Wed. March 19th . Hopefully we

will get this show on the road . Thanks for all your help. You guys are great.

Eva

@...: traceyincanada@...: Fri, 14 Mar 2008

14:31:34 +0000Subject: [ ] Sorting out the members

I believe the confusion is with two new members to the group, one of which is

newly diagnosed and the other not newly diagnosed but new to the group. Eva is

the very newly diagnosed member who is still waiting to see a doctor and start

treatment.Aliza is the new member who is doing very well, having had a major

molecular response. Not new to CML but new to us in the group.And finally there

is . She is not a new member nor is she newly diagnosed. She's a long time

member who's doing very well though. In fact, she's actually PCRU.I hope I got

this right,Tracey

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Posted March 15, 2008 · March 15, 2008

Thanks for your support!! Eva

@...: taina2044@...: Fri, 14 Mar 2008 19:04:49

-0400Subject: Re: [ ] Sorting out the members

graet news eva now to kick the bug in the pants good luck keep us posted we'll

be sending good thoughtd and prayers your way aliza yaffa rochester

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Posted March 15, 2008 · March 15, 2008

Sharon:

I am not sure that the doctor really is that knowledgeable

about Leukemia. I certainly have never heard it described

that way. I think they found a general oncologist to make

comments, not a Leukemia expert, for the article.

Matt

Florida

In a message dated 3/15/2008 12:16:36 P.M. Eastern Daylight Time,

onthewtr@... writes:

New subject that I thought some of you would be interested in. this is an

article I found online about Kenechi Udeze from the Minn, Vikings. I never

knew that when you are dx later in life it is Cronic and younger is not???

First time I heard that. Anyone know what this dr. is talking about??

Dr. Joe Leach of Park Nicollet Clinic and Methodist Hospital in St. Louis

Park said there are dozens of different types of leukemia, which he

described as cancer of the blood and specifically the bone marrow, where

blood is made.

" We generally break them into two broad categories: acute or fast-growing

leukemias, and chronic or slow-growing leukemias, " Leach said. " Someone like

Kenechi Udeze would most likely have acute leukemia just because of his age

(24). Chronic leukemias by and large tend to be diseases of older people, so

we don't usually see those until people get up in their 40s, 50s and really

60s and above. "

Leach described acute leukemia as an " aggressive but curable " disease,

requiring intensive chemotherapy treatment and a prolonged hospital stay.

Sharon

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Posted March 15, 2008 · March 15, 2008

hi sharon

are you sure it's safe to take tasi and then lay down? i'm only asking

because i've been doing that with gleevec and i've developed reflux problems

(witch are beeing worked out)and my gatro was shocked that i had not been told

by

my hemo/onc that cml drugs can be harsh on the stomach and when taken before

laying down can cause corrosion of the asophagus just wandering if that

might be the case for all cml drugs???

aliza yaffa rochester n.y.

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Posted March 15, 2008 · March 15, 2008

i know nothing of sprycel or tasi so don't go by me or allow me to confuse

you , the best thing is to ask your doctor but it's always something to think

about. i didn't know tasi could be taken on an empty stomach .Actually i'm

glad you said that in case i ever need to switch it's all good to know.

aliza yaffa

rochester n.y.

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Posted March 15, 2008 · March 15, 2008

New subject that I thought some of you would be interested in. this is an

article I found online about Kenechi Udeze from the Minn, Vikings. I never

knew that when you are dx later in life it is Cronic and younger is not???

First time I heard that. Anyone know what this dr. is talking about??

Dr. Joe Leach of Park Nicollet Clinic and Methodist Hospital in St. Louis

Park said there are dozens of different types of leukemia, which he

described as cancer of the blood and specifically the bone marrow, where

blood is made.

" We generally break them into two broad categories: acute or fast-growing

leukemias, and chronic or slow-growing leukemias, " Leach said. " Someone like

Kenechi Udeze would most likely have acute leukemia just because of his age

(24). Chronic leukemias by and large tend to be diseases of older people, so

we don't usually see those until people get up in their 40s, 50s and really

60s and above. "

Leach described acute leukemia as an " aggressive but curable " disease,

requiring intensive chemotherapy treatment and a prolonged hospital stay.

Sharon

_____

From: [mailto: ] On Behalf Of eva

brown

Sent: Saturday, March 15, 2008 5:11 AM

Subject: RE: [ ] Sorting out the members

Thanks for your support!! Eva

groups (DOT) <mailto:%40From> comFrom:

taina2044aol (DOT) <mailto:taina2044%40aol.comDate> comDate: Fri, 14 Mar 2008

19:04:49 -0400Subject: Re: [ ] Sorting out the members

graet news eva now to kick the bug in the pants good luck keep us posted

we'll be sending good thoughtd and prayers your way aliza yaffa rochester

n.y.**************It's Tax Time! Get tips, forms, and advice on AOL Money &

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Posted March 15, 2008 · March 15, 2008

Hi Matt,

Well I feel sorry for Kenechi.And those were my exact thoughts.

By the way: I am on my 4th day of 400mg of Tasi and I feel great so far!

What I do is I wake at 5:30 in the morning (I always do to go to the

bathroom) and at that time I take my pills and go back to bed. Then when I

get up at 7:30ish-I am ready to have my coffee. Works for me so far.

Althouggh I am no longer PCRU my PCR results came in yesterday. These were

taken after I had dropped to 50mg of sprycel for three months because of bad

side effects and after being off all medication for almost a month. It went

up to 0.011. My doctor said that they should go down soon since I started

Tasigna -does he really know???

Hope all is well with you

Sharon

California

_____

From: [mailto: ] On Behalf Of

mtmaynor@...

Sent: Saturday, March 15, 2008 9:46 AM

Subject: Re: [ ] Sorting out the members

Sharon:

I am not sure that the doctor really is that knowledgeable

about Leukemia. I certainly have never heard it described

that way. I think they found a general oncologist to make

comments, not a Leukemia expert, for the article.

Matt

Florida

In a message dated 3/15/2008 12:16:36 P.M. Eastern Daylight Time,

onthewtrdiscobay (DOT) <mailto:onthewtr%40discobay.net> net writes:

New subject that I thought some of you would be interested in. this is an

article I found online about Kenechi Udeze from the Minn, Vikings. I never

knew that when you are dx later in life it is Cronic and younger is not???

First time I heard that. Anyone know what this dr. is talking about??

Dr. Joe Leach of Park Nicollet Clinic and Methodist Hospital in St. Louis

Park said there are dozens of different types of leukemia, which he

described as cancer of the blood and specifically the bone marrow, where

blood is made.

" We generally break them into two broad categories: acute or fast-growing

leukemias, and chronic or slow-growing leukemias, " Leach said. " Someone like

Kenechi Udeze would most likely have acute leukemia just because of his age

(24). Chronic leukemias by and large tend to be diseases of older people, so

we don't usually see those until people get up in their 40s, 50s and really

60s and above. "

Leach described acute leukemia as an " aggressive but curable " disease,

requiring intensive chemotherapy treatment and a prolonged hospital stay.

Sharon

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Posted March 15, 2008 · March 15, 2008

Aliza Yafa,

Gosh!!! You have given me something to think about. So far I have had no

problems. Sprycel and Gleevec affected my stomach but so far Tasi does not

and that is one of the Good things about Tasi.so I have been told. I drink

it with a full glass of water. Gleevec you had to eat with it-Sprycel you

did not. And Tasi you don't either. Infact you Must have an empty stomach on

Tasi---There is a danger of QT prolongation if you don't...I don't know what

is right and what is wrong???? I will ask my Dr.

So confusing.

Sharon

_____

From: [mailto: ] On Behalf Of

taina2044@...

Sent: Saturday, March 15, 2008 10:51 AM

Subject: Re: [ ] Sorting out the members

hi sharon

are you sure it's safe to take tasi and then lay down? i'm only asking

because i've been doing that with gleevec and i've developed reflux problems

(witch are beeing worked out)and my gatro was shocked that i had not been

told by

my hemo/onc that cml drugs can be harsh on the stomach and when taken before

laying down can cause corrosion of the asophagus just wandering if that

might be the case for all cml drugs???

aliza yaffa rochester n.y.

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Posted March 15, 2008 · March 15, 2008

hi group;

personally and this is my opinion,i think that most if not all medications

beeing a blend of chemicals (with side affects) should be taken with care ,

some should be taken on empty stomach for maximum effect however i think our

system functions better when we are in movement mode, unless otherwise

specified: but then that is my opinion.I have days that all i want to do is lay

down

but I have learned to at least sit up with many pillows for several hours

untill the meds have left my stomach all together sometimes i fall asleep in

the

proccess i've become an expert at creating a confortable siting sleeping

space as you well know every now and again we become exausted.

aliza yaffa

rochester n.y. p.s. today was agreat day for I went to temple after not

going for a long time it was great to see old faces and most of all I actually

felt great!!

just wanted to share after sharing so many complaints with you all.:0)

thankx again

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Posted March 15, 2008 · March 15, 2008

shn; since i've had cml and taking meds. i have to fight with myself to go

anywhere i've spent so much time at home, that its become the norm for me so i

have lost a lot of stamina I also have the d.....m athsma especially during

winter months,that shortens my breath and i'm not terribly patient with myself

so I get disgusted and convince myself not to go anywhere . Take for

instance yesturday , it was the first of beautiful days i should have been out

there

no matter wheather i was going anywhere or not,well I told myself that I had

things to do (nothing got done)and the day went by and i never made it out.

Thank god spring will be here soon lets see what excuse i come up with.Half

the battle is to get moving nothing strainous just moving.

well i hope we all take better care of ourselves so 30 yrs. from now we'll

be having this conversation

take care.

aliza yaffa rochester n.y.

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Posted March 15, 2008 · March 15, 2008

sharon;

why did you change to tasi from sprycell "

aliza yaffa

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Posted March 15, 2008 · March 15, 2008

i'm 63 divorsed and my only daughter is married and gone i'm at the me stage

of my life even tough i have a house full on the sabath but, other times i'm

on my own o yes i cook for a couple three hours a day made myself take the

position. it's amazing how I can fool myself into telling myself i need the

rest Ha ha ha I'm doing better though i'm giving myself dicipline. thats what

happens when you work all your life and the cml It took me a year to come out

of the stupper'

stay active there's nothing like kids to bring joy into one's life

aliza yaffa

rochester n.y.

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Posted March 15, 2008 · March 15, 2008

When I was dx, 13 yrs. ago, my onc. told me most young people to not get cml,

and if they do it is very serious, more so than when older people get it. She

said it was harder to treat in young people and at that time, they usually did

not live long. But with todays new meds I'm sure that picture has changed a

great deal, thank goodness. Bobby

Sharon & Denny <onthewtr@...> wrote:

New subject that I thought some of you would be interested in. this is

an

article I found online about Kenechi Udeze from the Minn, Vikings. I never

knew that when you are dx later in life it is Cronic and younger is not???

First time I heard that. Anyone know what this dr. is talking about??

Dr. Joe Leach of Park Nicollet Clinic and Methodist Hospital in St. Louis

Park said there are dozens of different types of leukemia, which he

described as cancer of the blood and specifically the bone marrow, where

blood is made.

" We generally break them into two broad categories: acute or fast-growing

leukemias, and chronic or slow-growing leukemias, " Leach said. " Someone like

Kenechi Udeze would most likely have acute leukemia just because of his age

(24). Chronic leukemias by and large tend to be diseases of older people, so

we don't usually see those until people get up in their 40s, 50s and really

60s and above. "

Leach described acute leukemia as an " aggressive but curable " disease,

requiring intensive chemotherapy treatment and a prolonged hospital stay.

Sharon

_____

From: [mailto: ] On Behalf Of eva

brown

Sent: Saturday, March 15, 2008 5:11 AM

Subject: RE: [ ] Sorting out the members

Thanks for your support!! Eva

groups (DOT) <mailto:%40From> comFrom:

taina2044aol (DOT) <mailto:taina2044%40aol.comDate> comDate: Fri, 14 Mar 2008

19:04:49 -0400Subject: Re: [ ] Sorting out the members

graet news eva now to kick the bug in the pants good luck keep us posted

we'll be sending good thoughtd and prayers your way aliza yaffa rochester

n.y.**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money. <http://money.aol.com/tax?NCID=aolprf00030000000001>

aol.com/tax?NCID=aolprf00030000000001)[Non-text portions of this message

have been removed]

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Posted March 15, 2008 · March 15, 2008

When I was dx, 13 yrs. ago, my onc. told me most young people to not get cml,

and if they do it is very serious, more so than when older people get it. She

said it was harder to treat in young people and at that time, they usually did

not live long. But with todays new meds I'm sure that picture has changed a

great deal, thank goodness. Bobby

Sharon & Denny <onthewtr@...> wrote:

New subject that I thought some of you would be interested in. this is

an

article I found online about Kenechi Udeze from the Minn, Vikings. I never

knew that when you are dx later in life it is Cronic and younger is not???

First time I heard that. Anyone know what this dr. is talking about??

Dr. Joe Leach of Park Nicollet Clinic and Methodist Hospital in St. Louis

Park said there are dozens of different types of leukemia, which he

described as cancer of the blood and specifically the bone marrow, where

blood is made.

" We generally break them into two broad categories: acute or fast-growing

leukemias, and chronic or slow-growing leukemias, " Leach said. " Someone like

Kenechi Udeze would most likely have acute leukemia just because of his age

(24). Chronic leukemias by and large tend to be diseases of older people, so

we don't usually see those until people get up in their 40s, 50s and really

60s and above. "

Leach described acute leukemia as an " aggressive but curable " disease,

requiring intensive chemotherapy treatment and a prolonged hospital stay.

Sharon

_____

From: [mailto: ] On Behalf Of eva

brown

Sent: Saturday, March 15, 2008 5:11 AM

Subject: RE: [ ] Sorting out the members

Thanks for your support!! Eva

groups (DOT) <mailto:%40From> comFrom:

taina2044aol (DOT) <mailto:taina2044%40aol.comDate> comDate: Fri, 14 Mar 2008

19:04:49 -0400Subject: Re: [ ] Sorting out the members

graet news eva now to kick the bug in the pants good luck keep us posted

we'll be sending good thoughtd and prayers your way aliza yaffa rochester

n.y.**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money. <http://money.aol.com/tax?NCID=aolprf00030000000001>

aol.com/tax?NCID=aolprf00030000000001)[Non-text portions of this message

have been removed]

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Posted March 15, 2008 · March 15, 2008

When I was dx, 13 yrs. ago, my onc. told me most young people to not get cml,

and if they do it is very serious, more so than when older people get it. She

said it was harder to treat in young people and at that time, they usually did

not live long. But with todays new meds I'm sure that picture has changed a

great deal, thank goodness. Bobby

Sharon & Denny <onthewtr@...> wrote:

New subject that I thought some of you would be interested in. this is

an

article I found online about Kenechi Udeze from the Minn, Vikings. I never

knew that when you are dx later in life it is Cronic and younger is not???

First time I heard that. Anyone know what this dr. is talking about??

Dr. Joe Leach of Park Nicollet Clinic and Methodist Hospital in St. Louis

Park said there are dozens of different types of leukemia, which he

described as cancer of the blood and specifically the bone marrow, where

blood is made.

" We generally break them into two broad categories: acute or fast-growing

leukemias, and chronic or slow-growing leukemias, " Leach said. " Someone like

Kenechi Udeze would most likely have acute leukemia just because of his age

(24). Chronic leukemias by and large tend to be diseases of older people, so

we don't usually see those until people get up in their 40s, 50s and really

60s and above. "

Leach described acute leukemia as an " aggressive but curable " disease,

requiring intensive chemotherapy treatment and a prolonged hospital stay.

Sharon

_____

From: [mailto: ] On Behalf Of eva

brown

Sent: Saturday, March 15, 2008 5:11 AM

Subject: RE: [ ] Sorting out the members

Thanks for your support!! Eva

groups (DOT) <mailto:%40From> comFrom:

taina2044aol (DOT) <mailto:taina2044%40aol.comDate> comDate: Fri, 14 Mar 2008

19:04:49 -0400Subject: Re: [ ] Sorting out the members

graet news eva now to kick the bug in the pants good luck keep us posted

we'll be sending good thoughtd and prayers your way aliza yaffa rochester

n.y.**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money. <http://money.aol.com/tax?NCID=aolprf00030000000001>

aol.com/tax?NCID=aolprf00030000000001)[Non-text portions of this message

have been removed]

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Posted March 15, 2008 · March 15, 2008

wow sharon you amaze me YOU GO GIRL

aliza yaffa

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Posted March 15, 2008 · March 15, 2008

I don't know about Tasi, I'm not on it YET, but they told us do not lie down

directly after taking Gleevec. Bobby

taina2044@... wrote: hi sharon

are you sure it's safe to take tasi and then lay down? i'm only asking

because i've been doing that with gleevec and i've developed reflux problems

(witch are beeing worked out)and my gatro was shocked that i had not been told

by

my hemo/onc that cml drugs can be harsh on the stomach and when taken before

laying down can cause corrosion of the asophagus just wandering if that

might be the case for all cml drugs???

aliza yaffa rochester n.y.

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Posted March 15, 2008 · March 15, 2008

Yes Bobby they told me that when I was on Gleevec. Not on Sprycel tho or

Tasi. But I will check..

Makes sense to me to not lie down but now I have to change my whole routine.

Darn I thought I had it all figures out.!!

Thank you

Sharon

_____

From: [mailto: ] On Behalf Of

ROBERTA DOYLE

Sent: Saturday, March 15, 2008 12:39 PM

Subject: Re: [ ] Sorting out the members

I don't know about Tasi, I'm not on it YET, but they told us do not lie down

directly after taking Gleevec. Bobby

taina2044aol (DOT) <mailto:taina2044%40aol.com> com wrote: hi sharon

are you sure it's safe to take tasi and then lay down? i'm only asking

because i've been doing that with gleevec and i've developed reflux problems

(witch are beeing worked out)and my gatro was shocked that i had not been

told by

my hemo/onc that cml drugs can be harsh on the stomach and when taken before

laying down can cause corrosion of the asophagus just wandering if that

might be the case for all cml drugs???

aliza yaffa rochester n.y.

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money. <http://money.aol.com/tax?NCID=aolprf00030000000001>

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Posted March 15, 2008 · March 15, 2008

Take your pills, go back to sleep, but prop up your head! use 2 pillows, maybe

that will

" keep anything down that wants to come up " .....

Sharon & Denny <onthewtr@...> wrote:

Yes Bobby they told me that when I was on Gleevec. Not on Sprycel tho

or

Tasi. But I will check..

Makes sense to me to not lie down but now I have to change my whole routine.

Darn I thought I had it all figures out.!!

Thank you

Sharon

_____

From: [mailto: ] On Behalf Of

ROBERTA DOYLE

Sent: Saturday, March 15, 2008 12:39 PM

Subject: Re: [ ] Sorting out the members

I don't know about Tasi, I'm not on it YET, but they told us do not lie down

directly after taking Gleevec. Bobby

taina2044aol (DOT) <mailto:taina2044%40aol.com> com wrote: hi sharon

are you sure it's safe to take tasi and then lay down? i'm only asking

because i've been doing that with gleevec and i've developed reflux problems

(witch are beeing worked out)and my gatro was shocked that i had not been

told by

my hemo/onc that cml drugs can be harsh on the stomach and when taken before

laying down can cause corrosion of the asophagus just wandering if that

might be the case for all cml drugs???

aliza yaffa rochester n.y.

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money. <http://money.aol.com/tax?NCID=aolprf00030000000001>

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Posted March 15, 2008 · March 15, 2008

Aliza Yaffa,

I think you are right. I have a theory as to why I got Plural Effusion---I

was on Sprycel for three years with hardly any side effects to speak of then

I fell on my back while bowling and I could hardly walk for three week, all

I did was lay around, take ibuprofen and I know inactivity causes problems

and I think pneumonia is one of them. I truly feel that that did not help me

at all. I did not get pneumonia but I did get plural effusion. This is

just my theory. What I should do is wake at 6am-take my pill (Tasi) then go

for an hour walk. If I could just get motivated. I am trying because I know

exercise is important.

Sharon

_____

From: [mailto: ] On Behalf Of

taina2044@...

Sent: Saturday, March 15, 2008 3:10 PM

Subject: Re: [ ] Sorting out the members

hi group;

personally and this is my opinion,i think that most if not all medications

beeing a blend of chemicals (with side affects) should be taken with care ,

some should be taken on empty stomach for maximum effect however i think our

system functions better when we are in movement mode, unless otherwise

specified: but then that is my opinion.I have days that all i want to do is

lay down

but I have learned to at least sit up with many pillows for several hours

untill the meds have left my stomach all together sometimes i fall asleep in

the

proccess i've become an expert at creating a confortable siting sleeping

space as you well know every now and again we become exausted.

aliza yaffa

rochester n.y. p.s. today was agreat day for I went to temple after not

going for a long time it was great to see old faces and most of all I

actually

felt great!!

just wanted to share after sharing so many complaints with you all.:0)

thankx again

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money. <http://money.aol.com/tax?NCID=aolprf00030000000001>

aol.com/tax?NCID=aolprf00030000000001)

Posted March 15, 2008 · March 15, 2008

Dear Aliza

I am 65 and have 11 grand children. Three of which I see at least once a

week sometimes twice. I watch the 18month old every Tuesday so his mom (my

daughter in law) can work at the two older children's school in their

classroom. I know how you feel. Believe me---if I did exactly what I wanted

to do I would read, watch tv and sleep all day but I do not allow myself to

do it. Are you married?

Where do you live?

You need to have a passion in life to keep going. I have several-my

grandchildren, and reading. I read about two books a month.

You need to have a passion!!!

You need to have a passion.

Yes Spring is here and it so beautiful!!! Just look around and you should

feel happy!!!

You know that doing nothing is not good.

I wish you lived close to me so we could do things to make us feel better.

Take care

Sharon

_____

From: [mailto: ] On Behalf Of

taina2044@...

Sent: Saturday, March 15, 2008 3:40 PM

Subject: Re: [ ] Sorting out the members

shn; since i've had cml and taking meds. i have to fight with myself to go

anywhere i've spent so much time at home, that its become the norm for me so

i

have lost a lot of stamina I also have the d.....m athsma especially during

winter months,that shortens my breath and i'm not terribly patient with

myself

so I get disgusted and convince myself not to go anywhere . Take for

instance yesturday , it was the first of beautiful days i should have been

out there

no matter wheather i was going anywhere or not,well I told myself that I had

things to do (nothing got done)and the day went by and i never made it out.

Thank god spring will be here soon lets see what excuse i come up with.Half

the battle is to get moving nothing strainous just moving.

well i hope we all take better care of ourselves so 30 yrs. from now we'll

be having this conversation

take care.

aliza yaffa rochester n.y.

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Posted March 15, 2008 · March 15, 2008

Ok here is my history

July 2004 dx

Gleevec for about 8 months of which 6 of them was suffering from terrible

side affects.The rash was the worst!!

Switched to Sprycel March of 2005. Did real real well and was PCRU for the

last year---then all of a sudden one morning I woke with swollen eyes, and

pains in my muscles. After three years. I had also being have terrible

diarrhea but I learned to live with that side effect. But then I had a

chest x ray and I had plural Effusion. They drained 1 quart from my lungs.

So they switched me to Tasi. I have only been on it since Wednesday. I was

so afraid to leave the house on the first day because of all the side

effects I was told about-heart problems-I thought I was going to have a

heart attack so I did not want to go anywhere. About 1pm I decided I was

being ridiculous and I called my husband and told him to meet me at the

park, So we got sandwhiches and I took our little dog for a walk at the part

then we had lunch. We discussed how I felt and that made me realize that

life is too short to worry so much. Like I said I am 65 and have had a

wonderful life.and I intend to live another 10 or 15 at least.

Yesterday my Dr. called and told me that my PCR went up to 0.011..and again

I got depressed about that.

There are so many ups and downs but we have to learn to handle them. I

think my PCR went up because 3 months ago we lowered my sprycel to 50mg

twice a day(I ws taking 70M twice a day) then when I got the Plural Effusion

I was off all meds for a month before starting Tasi. My Dr has sort of

agreed with me-but y ou know they don't ever want to say " oh yes you are

right "

So that is my story.

Sharon

_____

From: [mailto: ] On Behalf Of

taina2044@...

Sent: Saturday, March 15, 2008 3:41 PM

Subject: Re: [ ] Sorting out the members

sharon;

why did you change to tasi from sprycell "

aliza yaffa

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Posted March 16, 2008 · March 16, 2008

You might be quite right there. I live a very sedentary life, and have had

many problems with PE. So from now on I will make myself work out every day,

pedal my bike, hop on my treadmill and go back to the pool for my twice a week

work out. I guess that makes perfect sense as your body breaths harder and your

heart pumps more when you work out.

also, on another site I read where they have supposedly linked PE to people

having had the rash while on Gleevec. Well, I sure had the rash from hell while

on that drug. And while I'm being a good girl and working out, I promise myself

I will quit eating peanut butter and cookies, and eat salads and only good

stuff!!!!!! work out, eat good; work out, eat good;

work out, eat good, gee, think I can remember that by tomorrow!! Bobby