Guest guest Posted March 22, 2008 Report Share Posted March 22, 2008 hi group, can anyone tell me if sprycel is considered a form of chemo? thanks, marion from maine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2008 Report Share Posted March 22, 2008 --- In , " stephenraymoore " <stephenraymoore@...> wrote: > > is anyone else on this new drug called sprycel? let me know please. > yes steven, i,ve been on sprycel about a year and a half and doing really well. i couldn,t take gleevic because i kept having bad reactions to my liver.i found out i had cml in 2001, marion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 my 19 year old daughter was taking gleevec, and it did not work for her, it was attacking her liver , she have been on sprycel for a year now, and she is doing good, she haves up and down , i guess like every body els, well i asume, wen she started them, she was very very tiyerd all the time, but her body got use to them, and now she is way better, she have a lot ,more energy,, sorry for my english, but im french, i hope you understand , sincerely jeanny @...: gbarthelmes@...: Tue, 15 Jul 2008 11:29:49 -0700Subject: [ ] sprycel Guys I have been taking Gleevec for over 2 years and it has been working well until last week. I went to get my results from my BMB. The doctor told me that out of the 20 cells sample the check 5 were PH+. Furthermore he told me that it seems that Gleevec stopped working. Thus Sprycel was the next step. I started Sprycel on Thursday last week. I have never been so tired before. I am sleeping up to 15 hours and after I wake up I feel light headed. Is this normal what else should I expect. I know so little about this new drug and to be honest I am kind of worry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 There is a site for Sprycel someone will let you know. Did you get a bcr/able/mu taint/annalises test!! [ ] Re: sprycel Can anyone give me more info about Sprycel? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 hi, everyone is different, and some people have no side effects, some are worse. I had headaches for about 2 weeks and they went away. It also depends on what your dose is. Most people adapt to the side effects in a month or so, some don't adapt at all. Did you tell your doctor how you feel? I am no longer on Sprycel, but there are many on this site that are, and perhaps will be able to help you, good luck, Bobby Guillermo Barthelmes <gbarthelmes@...> wrote: Guys I have been taking Gleevec for over 2 years and it has been working well until last week. I went to get my results from my BMB. The doctor told me that out of the 20 cells sample the check 5 were PH+. Furthermore he told me that it seems that Gleevec stopped working. Thus Sprycel was the next step. I started Sprycel on Thursday last week. I have never been so tired before. I am sleeping up to 15 hours and after I wake up I feel light headed. Is this normal what else should I expect. I know so little about this new drug and to be honest I am kind of worry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Hi Carolyn, I couldn't help but notice how different our experiences are -- except that we have the same outcome of PCRU which is what counts the most. I'm on 100 mg once a day with no discernible side effects. You have achieved PCRU on such a small dose which is amazing. I am sorry to hear you have side effects though. Glad you're seeing the glass half full which is sometimes so difficult to do. L [ ] sprycel I have been on sprycel for about a year and a half. I was started at 70mg bid and that was too strong so on the advice of my ono and the medical college of Milwaukee who confered it was decided to put me on 20mg bid with the thought they could alway go to a higher dose. I am still on 20mg bid and in a deep remission. There are side effects such as bone and joint pain, heart palpations and occassionaly light headedness. The side effects are livable and I am used to them. Sprycel is a miracle drug so far. I realize things could turn on a dime but then there will be something else on the horizon. I am thankful for each day and that we now have these miracle drugs that makes living a long life a very real probablity. Best of luck to you. Carolyn Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.