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Re: Thank you to everyone

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Hi Carey, My name is Lynn. I have 2 daughters, now age 11 and 8 and

I've had CML for almost 5 years now. I have similar side effects to

you.

We are all in this together, through the good and bad. You will find

and make some amazing friendships with this fantastic group of people

who make up this support group. I think we've all gone through

the " this sucks " attitude. We all share this together:survivors, and

caretakers and loved ones. Be good and true to yourself, learn what

you can, and give that family of yours extra special love. They need

you.

Be well, Lynn

dx'd 12/03

PCRU at 300 mgs gleevec but not well.

going to try Tasigna soon.

>

> for the warm welcome.

>

> I would post to each person, but I have not been feeling very well

the

> last few days. I have noticed that my side effect seem to come and

go

> in cycles. This week I seem to have a bit of everything. I am

TIRED,

> neausous, and I have bad water retention so I gave in and took

lasix.

>

> It's so hard to feel yucky with a 9yo and a 7yo.

>

> OK, pitty party over.

>

> Carey

>

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  • 2 years later...

Warm thoughts and prayers

Eva

From: A

Sent: Tuesday, February 08, 2011 6:24 PM

Subject: [ ] Thank You to Everyone

Hi: I cannot sit at the computer for long, as they do not want me to keep my

legs bent. I want to Thank Everyone for their prayers and concern for my DVT

problem. I have a very huge blood clot, and just praying that they can dissolve

it without disturbing my platelets.

They already reduced my dosage today, due to my blood being too thin now. Trying

to walk to keep the circulation going etc.

I try to read what is going on when I can. Hope to be able to get onto the

messages more often.

Love to All

A.

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