Re: Sprycel follow up for the first 2 months

[Guest guest]

As for early visits with Oncologist after switching to a new drug it is

recommended, but not an absolute rule, that you be seen weekly for the

first 2 months.

What is typically being looked for are any chemical and cell count

changes after the switch. It looks as if your visits are being spread

out the longer you go on. Maybe the Oncologist has not seen any trends

of anything getting to low that requires some action.

[Guest guest]

Hello Marri,

Please see my notes of the last few weeks to various people in the group about

my recent findings after 3 years on Imatinib (Gleevec) and about 2 years on

Sprycel. I too had the peripheral neuropathy (numbness and tingling) but it hit

all 10 fingertips and then pleural effusion. I couldn't type or write and my

doc on the dasatinib (Sprycel) trial took me off the drug for several weeks.

I'm symptom-free but know that none of the drugs we have apparently cure CML but

that's what the trials are fore -- to determine what kind of changes they make

in our treatment and how they affect quality of Life. Enjoy!

There is a lot of information on the net and another good place to look (if you

don't know yet) is www.newcmldrug.com).

All the best,

L.

[ ] Sprycel follow up for the first 2 months

Hi everyone,

Once again I turn to the " specialists " It's day 34 on Sprycel. I have

seen doc three times (5 days, 12 days and 24 days). I thought I should

be in every week for the first 2 months..... I'm the sprycel patient

there. In process of consult another onco. My current onco says come

back in month....enjoying all the usual fare of s/e... mostly worried

about the numbness and tingling in my feet. They just don't want to

address...thoughts? What have you all been given or had done if

anything for this and how often should I have blood draws and when will

I know more about remission....isn't there like a time limit on that?

I just had dose changed from 140 to 70mg a day now back up to 100mg

today (waited for 50mg tabs from pharm co.) I would appreciate your

feedback as always..........AND OF COURSE.....HAPPY VALENTINES....

They should make Sprycel chocolate covered.....yum..Marri