Re: Re: Sprycel problems, rash......

[Guest guest]

Aliza-

I haven't yet but I intend to call me MD in the morning and see if I can get

in before Thursday. With the rash and my belly/weight gain I figure I need

to probably get seen and get labs checked out. I am SOB(exertional) with the

weight and swollen gut, which then makes me increased fatigue and crabby.

Ya'll know how it goes, the vicious circle...... I'm whinning. Sorry, I know

everyone here suffers with their issues. Just been a rough 48 hours. I am

sure by the time I wake up tomorrow morning, everything will feel better and

I will be better. Tomorrow is always a brighter day.

Peace and love to all and thanks for writing back Aliza, I appreciate the

thoughts and support.

Hugs and Hope-

35

CML 5/13/05

Gleevec 800mg until 8/07

Spyrcel 100 mg since 9/07

Wife and mother of 3 (12,9,7)

# 907 in Zavie's Zero Club

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[Guest guest]

seems okay. I mean I am going. I am trying to drink plenty and I am going

as well.

I am sure this shall pass. I'll follow up with MD tomorrow if I feel yucky

in morning.

Thanks for your concern and help. its appreciated. XOXOXOX

Hugs and Hope-

35

CML 5/13/05

Gleevec 800mg until 8/07

Spyrcel 100 mg since 9/07

Wife and mother of 3 (12,9,7)

# 907 in Zavie's Zero Club

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

[Guest guest]

Hope you feel better soon .

Eva

@...: vegasrnjen@...: Sun, 16 Mar 2008 21:22:57

-0400Subject: Re: [ ] Re: Sprycel problems, rash......

Aliza-I haven't yet but I intend to call me MD in the morning and see if I can

get in before Thursday. With the rash and my belly/weight gain I figure I need

to probably get seen and get labs checked out. I am SOB(exertional) with the

weight and swollen gut, which then makes me increased fatigue and crabby. Ya'll

know how it goes, the vicious circle...... I'm whinning. Sorry, I know everyone

here suffers with their issues. Just been a rough 48 hours. I am sure by the

time I wake up tomorrow morning, everything will feel better and I will be

better. Tomorrow is always a brighter day.Peace and love to all and thanks for

writing back Aliza, I appreciate the thoughts and support. Hugs and

Hope- 35CML 5/13/05Gleevec 800mg until 8/07Spyrcel 100 mg since 9/07Wife

and mother of 3 (12,9,7)# 907 in Zavie's Zero Club**************It's Tax Time!

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[Guest guest]

the scalp pain... I have it every now ans again... Hurts to touch,

brush hair... it will subside, and yes it is very painful. Hope it gets better

Anita

alizayaffagutierrez <taina2044@...> wrote:

-jenifer

have you seen a dermatologist? perhaps they can do a culture of some

kind and help with something

aliza yaffa

-- In , " seloew12 " <seloew12@...> wrote:

>

> ,

>

> Sounds to me like you're used to having side effects and for some

reason you don't complain much. You have a PLETHORA of symptoms that

all sound very bothersome and inconvenient. I think there are CML

warriors who feel that we've been fortunate to have all these

newfangled drugs and you're right. . . but, you have a right and

really a responsibility to yourself to find out how to treat these

symptoms.

>

> I have heard of the rash and it seems to vary from person to

person. I do not know about treatment as I've been on Sprycel (100

mg a.m.) and the side effects I've had were dealt with by taking me

off the drug for 2 1/2 weeks.

>

> I do hope you're talking to your onc about this. You actually

listed bone pain as an afterthought! It can be a truly horrendous

experience. I had it on Gleevec and the only treatment that worked

was Ativan. Honest. They had me on truly addictive painkillers for

awhile and it ended up that Ativan and finally Clonopin were the best

answers. It went away altogether and now I'm on Sprycel.

>

> Sorry to go on and on but I hate to think of people suffering for

the privilege and relief of taking a medication that holds so much

promise. I do hope you find relief right away, .

>

> Sincerely,

>

> L

> [ ] Sprycel problems, rash......

>

>

> Hey all-

>

> I was wondering if anyone on Spyrcel or that has been on Spyrcel

could offer

> some advice.....

> I have been on it since September 07 and I am having some issues

and

> wondering if this is Spyrcel related.

> About a week ago I developed a rashy thing on the left temporal

side of my

> face. It is small bumps in a red patchy area that itches like

crazy and the

> more I itch the more it burns. It seems to come and go in

severity but has

> never disappeared.....

> Also, I am having gastro issues. I am bloated (look 4-5 months

pregnant)

> and having gassy, small loose stool with fluid). What a nice

picture this is

> painting for ya, sorry about being so specific/graphic.

> I also have the usual extreme fatigue, muscle aches, sweating

like crazy

> with any activity, itching, scalp hurts but the gastro and rash

thing is really

> bothersome. Any ideas/suggestion?

>

> I am on 100mg daily that I take at bedtime without any problems.

If I wake

> up during the night I am having muscle and bone pain but nothing

else really.

>

>

> Is a rash common with this drug? I know it was with Gleevec....

>

> Hugs and Hope-

>

> 35

> CML 5/13/05

> Gleevec 800mg until 8/07

> Spyrcel 100 mg since 9/07

> Wife and mother of 3 (12,9,7)

> # 907 in Zavie's Zero Club

>

> **************It's Tax Time! Get tips, forms, and advice on AOL

Money &

> Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

>

>