Re: Old and new names

[Guest guest]

lottie do you personslly recomend the pneumonia shot for cml survivers? ai

usually get a flu shot and it really works for me i'm now on alergy shots to

prevent allergies from verything i'm alergic to.

i also stay away from places were ther may be a cold/flu going on also wana

share i drink alot of chlorophil with water 2x a day i find it clences the

insides and seems in my case anyway to grt rid of liquids. speaking of liqiuds

does anyone here drink coffee and whaat does the dr, say about it?

aliza

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[Guest guest]

hi lottie and group it was weird the way i found out that I was mr it still

hasn't soacked im perhaps because the news came at the time i've felt worse go

figure , but that has knocked me into having to learn about this bug, i've

been in denail since i started gleevec first I was numb for a year, and

indiffent for the balance of time

not to mention scared to death especially since i lost a dear friend this

week who was dx in 2000she developed legions in her lungs and went downhill from

there; i'm totally heartbroken especial that her bloodwork was normal. This

woke me up and i realilzed that meant nothing that there most be different

levels

of so called remission. thank god i found you guys the info has made me

realize that unless my time is up i have to do the home work myself the docs

become confused and dx whatever the think rsther than realy check now i am armed

with info that i will shre with them and perhaps i can get some real answers

i've benn told to accept the fact that I hv cancer but i don't accet defeat

rather to go out of my way to survive with it and the quality of my life. Today

i went to temple witch I hvn't done in a year got a hair cut and actually

dressed up. Now i realized what my onc. meant whaen she said " the cml doesn't

worry me its the infections "

at the time i took it the wrong way now I understand. amazing hoe sencitive

one becomes. well keep fighting all.

lov aliza

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[Guest guest]

> speaking of liqiuds

> does anyone here drink coffee and whaat does the dr, say about it?

> aliza

*****************************************

Hi Aliza,

I drink coffee occasionally. Mostly when I'm trying to get rid of some

extra fluid as I find that it works as a diuretic. If I start to drink

it too regularly, the diuretic effect stops working because I guess my

system gets used to it.

As far as I know, coffee in moderation isn't a problem although it can

sometimes exacerbate the diarreah effect from Gleevec.

Tracey

[Guest guest]

Hi Lottie,

FYI: SOB is heartspeak for short of breath.

[ ] Old and new names

Dear Group,

Thank you for the warm welcome, even though I had posted previously, I

had not properly introduced myself. I see some old names as well as new

ones. I wanted to mention to Aliza that was a strange way of finding out

you were MR (do I have that right?). Let's hope that from here on, you have

no place to go but up the ladder and PCRU.

You all have amazing stories. Maybe we should refer to Zazzy as the

Bionic Woman. LOL. And anyone with small children at home, wow, thank you

Lord, my family was on their own. I am taken aback at how you all have

managed to hang in and you are all here to tell of your experiences. It's

like having a fireside chat, with one story behind the other. A nice cup of

hot cider to go with that would be nice. This is the place for a newbie to

be. I just need one clarification. I know what SOB means to me (LOL), but

what does it mean on this list? I don't have any small children to pick up

those acronyms, all I know is CHR, CCR, MMR, PCRU. LOL.

One in the group wanted to know what it felt like to have pleural

effusions. I couldn't tell the difference, I had pleural and pericardial

effusions, pneumonia, and the cardiologist said I had pulmonary edema and

was diagnosed with a serious lung infection, mycobacterium chelonae. I did

have pains mid-chest, it was tender to touch the chest and was so miserable

with chills and fever I don't remember what came first, the chicken or the

egg. LOL. When I breathed, I just wanted to take a deep breath and clear my

lungs, but when I took a deep breath, I couldn't exhale. That scared me and

my husband called an ambulance. All of the time preceeding this, no one

could tell me what was wrong with me, not even from an x-ray, but before I

even got in the ambulance, the EMT checked my vitals and told me I had

pneumonia in my left lung. It's possible as Bobby said that they mistook

the PE for pneumonia, but they did culture after culture and blood test

after blood test. They can tell from your blood if you have an infection.

Now mind you I never had pneumonia in my life and I get the pneumonia

vaccine every 5 years. Wow, 60,000 Americans die from it every year. I'm

glad you and I weren't one of them.

This information comes from the Mayo clinic web site:

Every year, more than 60,000 Americans die of pneumonia - an inflammation of

the lungs that's usually caused by infection with bacteria, viruses, fungi

or other organisms. Pneumonia is a particular concern for older adults and

people with chronic illnesses or impaired immune systems, but it can also

strike young, healthy people. Worldwide, it's a leading cause of death in

children.

There are many kinds of pneumonia ranging in seriousness from mild to

life-threatening. Pneumonia acquired while in the hospital can be

particularly virulent and deadly. Although signs and symptoms vary, many

cases of pneumonia develop suddenly, with chest pain, fever, chills, cough

and shortness of breath. Infection often follows a cold or the flu, but it

can also be associated with other illnesses or occur on its own.

Although antibiotics can treat some of the most common forms of bacterial

pneumonias, antibiotic-resistant strains are a growing problem. For that

reason, and because the disease can be very serious, it's best to try to

prevent infection in the first place.

Everyone stay well,

Lottie

[Guest guest]

Hi Aliza,

A pneumonia shot is a good idea. It doesn't cover every kind of pneumonia, but I

figure it helps. Can't remember how long they last though... 7 - 10 years?

I drink coffee... and Diet Pepsi. Onc doesn't say much about it at all.

Take care,

Zazzy

Re: [ ] Old and new names

lottie do you personslly recomend the pneumonia shot for cml survivers? ai

usually get a flu shot and it really works for me i'm now on alergy shots to

prevent allergies from verything i'm alergic to.

i also stay away from places were ther may be a cold/flu going on also wana

share i drink alot of chlorophil with water 2x a day i find it clences the

insides and seems in my case anyway to grt rid of liquids. speaking of liqiuds

does anyone here drink coffee and whaat does the dr, say about it?

aliza

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

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