Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 , Check the Good Doctors list on Co-Cure (www.co-cure.org) - there should be some doctors listed in Connecticut. The CFIDS organization of Connecticut is also quite active. Peggy In a message dated 10/9/00 4:47:12 PM, egroups writes: << From: michelle cervera <cuteangel54321@...> Subject: Re: Re: Is this a symptom of CFIDS i work with a nauopath so i no he cant perscribe florinoff. How would i find a doc in conncticut that nos about NMH i dont think my reg doc would givew it to me he has no clue about cfs. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Hi Mitzi, welcome to the group. Were you dx'd with AIH? If so, there is a lot of information here. It's been a lifesaver to me to know that others out there understand me. in Louisiana AIH 99' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Hi , I took Paxil for Fibromyalgia, but it didn't help. I had no side effects whatsoever either. Now I'm on Zoloft, and it really helps me. in LA AIH 99' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2001 Report Share Posted January 16, 2001 > From: " Sandy Mintz " <sandym@...> > Subject: Re: Digest Number 1276 > > , Then is my point still a valid one? That there will always be risk > re:breastfeeding as a method of birth control, because in many cases you > would ovulate before menstruating the first time, so that many women would > be at risk for an unwanted pregnancy were they to use the absence of > menstruation as a sign that they hadn't ovulated yet? Yes - let me just make some points to clarify: 1. Every woman is different, and every woman's body will react differently under different circumstances - some women will start menstruating before ovulating and some women will ovulate first (I still believe this is the more common occurrence). Some women will start menstruating postpartum at a few weeks, and some women will take years to start again. 2. This is why we all know some women who have great success with natural family planning, and we all know women whose babies are spaced closer than they would have liked. To use methods such as this you really need to know what you're doing for it to be successful, so I would only recommend it as a form of birth control, especially right after childbirth, to someone who is motivated to learn how to do it properly. Personally I think is a wonderful method and should be taught to girls from a very young age, at the very least to give them a great sense of their bodies and their anatomy and physiology, and to empower them, by the time they are sexually active, to say " no, I don't want to have sex " , or " no, I'm not going to have sex with you now " (and this empowerment could also serve as protection against sexual abuse and harrassment) > > ________________________________________________________________________ > ________________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Hi : I take 12,000 mg of MSM a day and have for quite awhile. Some people have great success with it and others see no difference. Also, for some it takes a while, perhaps months, to see a difference. My feeling is that it has helped with my allergies, and it boosts energy. It also makes your hair and nails grow unusually fast. I don't think it has much effect on my RA. I would definitely encourage you to stick with it, though, because you could be one of the people who is helped a lot. Rhonda _____________________________________________________________ > ________________________________________________________________________ > > Message: 9 > Date: Fri, 18 May 2001 20:08:53 -0400 > From: " O'Connor " <RNMSW@...> > Subject: MSM > > I have been taking 8,000mg. of MSM for four day. There are days that I > have felt worse. Has anyone else felt that way? Shouldn't I feel better at > this point with that high a dosage? > > Earn While You Surf > http://www.spedia.net/cgi-bin/TZ.cgi?run=show_svc & fl=8 & rid=1318440 > http://www.deltaclick.com/default.asp?referrer=newfpup > > > > > ________________________________________________________________________ > _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 What is MSM? I know ya'll have talked about it on here in the past but I have no idea what it is or what it is suppose to do. I know the doxy made my hair and nails grow quicker and they were healthier. I would also say that four days is not enough time to know how you might do on something new. Unless it was making you really sick I would stick with it and give it some time. I know some of doc's have to remind me of that so I have finally learned... bout time I guess!! Peace, Sherry Hi :I take 12,000 mg of MSM a day and have for quite awhile. Some people havegreat success with it and others see no difference. Also, for some it takesa while, perhaps months, to see a difference.My feeling is that it has helped with my allergies, and it boosts energy. Italso makes your hair and nails grow unusually fast. I don't think it hasmuch effect on my RA.I would definitely encourage you to stick with it, though, because you couldbe one of the people who is helped a lot.Rhonda_____________________________________________________________> ________________________________________________________________________>> Message: 9> Date: Fri, 18 May 2001 20:08:53 -0400> From: " O'Connor" <RNMSW@...>> Subject: MSM>> I have been taking 8,000mg. of MSM for four day. There are days that I> have felt worse. Has anyone else felt that way? Shouldn't I feel better at> this point with that high a dosage?> > Earn While You Surf> http://www.spedia.net/cgi-bin/TZ.cgi?run=show_svc & fl=8 & rid=1318440> http://www.deltaclick.com/default.asp?referrer=newfpup>>>>> ________________________________________________________________________> _To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Hi, I have Chronic Fatigue Syndrome, and I was wondering if adding charcoal to my diet,if that would help to absorb the toxins in my body, I've posted here before and never got a reply, if charcoal would help, could i be told what type to get and how much, thank you Caloson@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 In a message dated 9/13/2002 2:23:59 PM Eastern Standard Time, writes: > We switched Callum to evening primrose (Efamol seems to be the best > brand) and cold-pressed sunflower oil. Steve, I am very interested in this, as my ds dev. ped. just recommended starting him on Omega 3 EFA, particularly from fish. Where do you get the Efamol brand you mentioned? Also, what form is it in. DS has not yet learned to swallow pills. If it`s in a pill form, is it available in other forms. Our DAN dr. recommended a combination oil with both the sesame seed oil (omega 6) and flaxseed oil in it.But the dev. ped. said she has heard of better results with the Omega 3 oils from fish (not flax seed). Also, where did you get the cold-pressed sunflower oil? I think I would either prefer to start with the combination or just the Omega 6 as you suggest. Appreciate any advice you can give me. Thanks. Debbie in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 Debbie, Your dev.paed is correct. Omega 3s are what you need. Fish oil is rich in EPA which is anti-inflammatory, anti-thrombotic and anti-arrythmic. It also ´regulates the permeability of cell membranes. Loading the body up with omega 6 is not wise. These throw your body into a pro-inflammatory state with the exception of EPO which is anti-inflammatory. If you are taking Omega 3s it is absolutely ESSENTIAL to balance with Omega 3s. With all the bowel problems especially the " irritated " bowels common to autistic children, loading with Omega 6s is absolutey the wrong strategy! You must always balance the EFAs. Should be Omega 3:Omega 6 in a ratio of 1:4. When balancing consider the Western Diet is already rich n Omega 6s. Sunflower, corn oil ( mazola), safflower, red meats and all cow dairy products are teaming with Omega 6. Commercially prepared foods are high in Omega 6 also. If CLO caused behaviour problems I would suggest you change brands. I suspect there is something in this CLO used by a previous poster which is causing the problem. Omega 3s in themselves shouldn't cause children to " deteriorate " . there might be in rare situations fat absorption problems but then this would occur with Omega 6 also. Maybe there was some heavy metal residue in the CLO or maybe some other components like colouring or very likely the CLO was " rancid " . Liquid CLO when it is fresh should smell like baked salmon. Also extremely important when using fatty acids, is supplementing with at least 400IU of Vitamin E to prevent rancidity in the body. Lastly if you find your child is low in both Omega 3 and 6, consider that heavy metals can oxidise fatty acids. So detox to reduce the heavy metals. Best regards, Re: Digest Number 1285 In a message dated 9/13/2002 2:23:59 PM Eastern Standard Time, writes: > We switched Callum to evening primrose (Efamol seems to be the best > brand) and cold-pressed sunflower oil. Steve, I am very interested in this, as my ds dev. ped. just recommended starting him on Omega 3 EFA, particularly from fish. Where do you get the Efamol brand you mentioned? Also, what form is it in. DS has not yet learned to swallow pills. If it`s in a pill form, is it available in other forms. Our DAN dr. recommended a combination oil with both the sesame seed oil (omega 6) and flaxseed oil in it.But the dev. ped. said she has heard of better results with the Omega 3 oils from fish (not flax seed). Also, where did you get the cold-pressed sunflower oil? I think I would either prefer to start with the combination or just the Omega 6 as you suggest. Appreciate any advice you can give me. Thanks. Debbie in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 Sorry typo error. " If you are taking Omega 3s, you should balance with Omega 3s " should read " If you are taking Omega 6s, you should balance with Omega 3s " . Sorry about that. Re: Digest Number 1285 In a message dated 9/13/2002 2:23:59 PM Eastern Standard Time, writes: > We switched Callum to evening primrose (Efamol seems to be the best > brand) and cold-pressed sunflower oil. Steve, I am very interested in this, as my ds dev. ped. just recommended starting him on Omega 3 EFA, particularly from fish. Where do you get the Efamol brand you mentioned? Also, what form is it in. DS has not yet learned to swallow pills. If it`s in a pill form, is it available in other forms. Our DAN dr. recommended a combination oil with both the sesame seed oil (omega 6) and flaxseed oil in it.But the dev. ped. said she has heard of better results with the Omega 3 oils from fish (not flax seed). Also, where did you get the cold-pressed sunflower oil? I think I would either prefer to start with the combination or just the Omega 6 as you suggest. Appreciate any advice you can give me. Thanks. Debbie in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 In a message dated 10/29/03 12:35:28 PM Eastern Standard Time, writes: > Subject: Re: Re: Mark. H>/ toxicity and 's early epilepsy > > i can't really tell you what it could be!!!!! i'll tell you something else > alot of dr's today are just in it for the money and nothing else. they will > try to push pills down your throat just so they make more money. > Mark How do doctors make more money by pushing pills down your throat? MJH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 i've had them try to push so many different kinds of pills on me,at one time i was taking ten different medicines they even tried to tell me i was crazy and needed prozac. i new better because i new i wasn't crazy so,i quit going to those dr's. foxhillers@... wrote:In a message dated 10/29/03 12:35:28 PM Eastern Standard Time, writes: > Subject: Re: Re: Mark. H>/ toxicity and 's early epilepsy > > i can't really tell you what it could be!!!!! i'll tell you something else > alot of dr's today are just in it for the money and nothing else. they will > try to push pills down your throat just so they make more money. > Mark How do doctors make more money by pushing pills down your throat? MJH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 Hi. A few things. I did not see that foaming bath truffle recipe and I would love to! Could you post it again? I am also interested in finding out how to sterilize plastic jars and bottles. I am really new at this. I wanted to make some scrubs for Christmas, so I bought a sugar scrub base, and added eo and fo, as well as a jojoba body wash base. I did not add any preservatives. Within a few weeks, the remainder of the scrubs was hard as a rock. Literally like concrete. What did I do wrong? Also, does anybody have any suggestions on how to make a product smell really good? I love bath & body stuff for 2 reasons....what they do for your skin/how they make you feel, and...how they smell. I bought my oils from Sweetcakes and they smelled okay, but I want to know if it's possible to get things to smell as good as the commercial products do? Any suggestions on where to buy great fos or how to mix fragrances? Also, how much fo to add, say to a scrub? body wash? body lotion? Thanks! Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 No, not been to Israel yet. Did you want to fly me there and give me a tour? I've been in much of western Europe, more than once, and have been in parts of Africa, but no Israel. Have been to Passover more than once and can read my part from the back of the book to the front. Does that count? Nucleus Volunteer From: chinamoses@... Subject: Re: Yeah Moses , besides Brooklyn have you been to Israel? regards, moses Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Thes Docs just make it up as they Go......why do they do Total T and when it comes out Low say its not important...... As for Free T....they need to use Dyalasis to find the free fraction...a lot of docs will estimate by calculating the Total T/SHBG ratio.......this calculation has been discredited in men.....and in any case consider the folloowing example....This guy has three Molecules of Testosterone in his entire body...I mean he isd at deaths door.....but wait, it turns outr he also has three molecules of SHBG......Free T fration is 50%.....he's fine...must be all in his head.......these calculations are tools toi Estimate with......bottom line is there is no magic figure.....differenmt people feel better with different levels....... Low T makes you soft, a pushover You have to get tough with these people, but in as controlled and deliberate way.......If you argue you case on a point by point basis.....with almost legal sceintific rigour, show them your evidence, blood results, research articles etc.....symptoms then ask them to prove their diagnosis.......If something s wrong it will not styand up to rigourous argument.........I cannot understand that most of these Docs are Guys....You would think they would understand...........or at least sympathise........I feel that it is simple elitism.......Its almost like they are saying You small insignifcant worm, I have a Phd who are you to talk to me about medecine......I will tell you you are wrong not becuae you are but because I can...and there is f* & k all you can do about it..... There is something in this Low T stuff, but im f=damned iuf I can understans why there is so much opposition torecognising & treating Re: High Prolactin Levels > > > > Thanks for the info . I will mention Dostinex to my Doctor. > I'm very interested to hear his take on my symptoms. This will be my > first visit to an endo. So far my regular doc and urologist haven't > been a great help. > > >> >> > >> > >> > Hello all. I'm knew to this forum and this is my >> > first post. So far >> > I've found a ton of great info......Thx >> > >> > A little background. I'm 35yrs old. I have all the >> > symptoms of low >> > test: low sex drive, trouble with erections, >> > fatigue, etc. >> > Had lab work done last week. I'm concerned about the >> > high prolactin >> > level. Here are some of the results: >> > >> > Test, Free: 102.1 (norm 50-210) >> > % Free Test: 2.04 (1.0-2.7) >> > Test, Total: 500 (260-1000) >> > >> > Prolactin: 21.5 (1.61-18.77) >> > FSH 6.9 (1-8) >> > LH 4.3 (2.00-12.00) >> > TSH 2.00 (0.49-4.67) >> > >> > I am concerned about the Prolactin level. My >> > urologist really seems >> > clueless on things. Thank god he referred me to a >> > specialist (Endo) >> > doc. I see him in 2 weeks. >> > Could the high prolactin level be causing my >> > symptoms? What can lower >> > these levels? >> > Thanks guys! >> > >> > >> > >> > >> > >> > >> > >> >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Hi and welcome I know the problems you guys are having in the UK and we have the same trouble. But for us if means going from one Dr. to the other untill we find a good one. Could you post your Test levels and the ranges. I have a link that gives you the normal levels by age if you could take a copy to the Dr. it may help. But before going on treatment you need to know why you have a problem. http://www.natural-hrt.com/andropause04.html http://www.aace.com/clin/guidelines/hypogonadism.pdf These links come from are links and file's section at the home page check it out you may find more help there. Phil Peirson <adessafe@...> wrote: Thes Docs just make it up as they Go......why do they do Total T and when it comes out Low say its not important...... As for Free T....they need to use Dyalasis to find the free fraction...a lot of docs will estimate by calculating the Total T/SHBG ratio.......this calculation has been discredited in men.....and in any case consider the folloowing example....This guy has three Molecules of Testosterone in his entire body...I mean he isd at deaths door.....but wait, it turns outr he also has three molecules of SHBG......Free T fration is 50%.....he's fine...must be all in his head.......these calculations are tools toi Estimate with......bottom line is there is no magic figure.....differenmt people feel better with different levels....... Low T makes you soft, a pushover You have to get tough with these people, but in as controlled and deliberate way.......If you argue you case on a point by point basis.....with almost legal sceintific rigour, show them your evidence, blood results, research articles etc.....symptoms then ask them to prove their diagnosis.......If something s wrong it will not styand up to rigourous argument.........I cannot understand that most of these Docs are Guys....You would think they would understand...........or at least sympathise........I feel that it is simple elitism.......Its almost like they are saying You small insignifcant worm, I have a Phd who are you to talk to me about medecine......I will tell you you are wrong not becuae you are but because I can...and there is f* & k all you can do about it..... There is something in this Low T stuff, but im f=damned iuf I can understans why there is so much opposition torecognising & treating Re: High Prolactin Levels > > > > Thanks for the info . I will mention Dostinex to my Doctor. > I'm very interested to hear his take on my symptoms. This will be my > first visit to an endo. So far my regular doc and urologist haven't > been a great help. > > >> >> > >> > >> > Hello all. I'm knew to this forum and this is my >> > first post. So far >> > I've found a ton of great info......Thx >> > >> > A little background. I'm 35yrs old. I have all the >> > symptoms of low >> > test: low sex drive, trouble with erections, >> > fatigue, etc. >> > Had lab work done last week. I'm concerned about the >> > high prolactin >> > level. Here are some of the results: >> > >> > Test, Free: 102.1 (norm 50-210) >> > % Free Test: 2.04 (1.0-2.7) >> > Test, Total: 500 (260-1000) >> > >> > Prolactin: 21.5 (1.61-18.77) >> > FSH 6.9 (1-8) >> > LH 4.3 (2.00-12.00) >> > TSH 2.00 (0.49-4.67) >> > >> > I am concerned about the Prolactin level. My >> > urologist really seems >> > clueless on things. Thank god he referred me to a >> > specialist (Endo) >> > doc. I see him in 2 weeks. >> > Could the high prolactin level be causing my >> > symptoms? What can lower >> > these levels? >> > Thanks guys! >> > >> > >> > >> > >> > >> > >> > >> >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Incompetent & insensitive endocrinologists really frost my balls. Fortunately there are some good docs out there, finding them is difficult but worth the effort. > >> > >> > > >> > > >> > Hello all. I'm knew to this forum and this is my > >> > first post. So far > >> > I've found a ton of great info......Thx > >> > > >> > A little background. I'm 35yrs old. I have all the > >> > symptoms of low > >> > test: low sex drive, trouble with erections, > >> > fatigue, etc. > >> > Had lab work done last week. I'm concerned about the > >> > high prolactin > >> > level. Here are some of the results: > >> > > >> > Test, Free: 102.1 (norm 50-210) > >> > % Free Test: 2.04 (1.0-2.7) > >> > Test, Total: 500 (260-1000) > >> > > >> > Prolactin: 21.5 (1.61-18.77) > >> > FSH 6.9 (1-8) > >> > LH 4.3 (2.00-12.00) > >> > TSH 2.00 (0.49-4.67) > >> > > >> > I am concerned about the Prolactin level. My > >> > urologist really seems > >> > clueless on things. Thank god he referred me to a > >> > specialist (Endo) > >> > doc. I see him in 2 weeks. > >> > Could the high prolactin level be causing my > >> > symptoms? What can lower > >> > these levels? > >> > Thanks guys! > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > >> > >> __________________________________________________ > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Hi.. I am ..don't post much..but wanted to welcome you Mike..i find your information interesting..especially on nutrition. Good Luck with your treatment..Treatment is so hard, but just having Hepatitis is difficult to get family members to understand how you feel. I always applauded those that had a s/o that stood by them..It takes a lot of love and commitment. You seem like such a nice guy. But my own daughter does not care how i feel or want to understand..cannot understand why sometimes i can't take the baby and 4 yr old..or make a commitment because i am not sure all the time how i will feel 2 or 3 days or even tommorow. I wish you the best. Michele..i truly wish you the best..i know it is hard..my ex, also was end stage. If you have a good support system..makes all the difference. Also, i was very interested about the 6 hour memory test. How do you go about getting it done.? Do you have to pay..or will Medical pay? Probably not..i know my sister had a Family History testing done about depression and it costs. But what you said makes so much sense. Maybe i will research it some. But it sure explains alot to me...thanks so much for posting that. I hate the term 'brain fog'..but this i can relate to..Working memory nonfunctional!! Again, Mike..welcome.. and thanks Michele... take care* -Sue In a message dated 12/10/2005 1:09:47 PM Pacific Standard Time, Hepatitis C writes: Message: 5 Date: Sat, 10 Dec 2005 10:25:25 -0800 (PST) From: Michele Kiger <mishkiger@...> Subject: Re: new member Wow, Mike, It sure seems like you've got the nutrient plan down, not much anyone can tell you. That's so cool! Besides the protein powder I just try to eat lots of fresh veges and fruits for the antioxidant and general nutrients. I usually put the powder in a fruit mix: milk, fresh berries, limeade, vanilla yogurt, banana, stuff like that. Oh, fresh ginger and coconut flakes, too. I LOVE fresh ginger, add it to tuna salad, etc. I eat a lot of Oriental food since I was raised for 5 years in Korea. I'm convinced kimchee is one of the healthiest things to eat. I'm one of those people who has always had normal ALT/AST, even as the damage was occuring. So we just look at the viral load as a indication of how well the treatment did. This last one, though, brought my platelets and WBC up, so there was further confirmation I had what my doctor calls " a biochemical reaction " to the drug. So it's improved my condition. Even though I still have a viral load. I didn't find out about my hepatitis until it was at end-stage, no where else to go. So that has simplified my decisions. I got divorced a year before I got my diagnosis, and 3 years after we knew something was really wrong with me. My husband complained that I was " No fun anymore " and was " acting old " . Well, I was looking at things from the angle of how tired would I get, didn't want to ski anymore or climb mountains, etc. I was sick! And I'm actually glad we broke up before the diagnosis, he would have had a hard time with it because everything was about him. So he'd have less money if I didn't work, he (God forbid!) might have to take care of me and worry. So it was much better for me to go throught the trauma of divorce before the trauma of being diagnosed and deciding what to do. It's just clearer this way, less people to accomodate, and it's brought me MUCH closer to my two sisters. We were always close, but this really brought it home. They both got checked out to see if they could become living donors (neither of them can), one sister took me in when I could not work anymore, and the other one continues to be totally supportive. So that's a really good thing that's come out of this. We're all making plans to live on the same piece of property when we retire, build a house for my little sister who has a husband and child, and apartments for us two old maids. So we can spend our declining years together, and my neice can have two adoring aunties at her beck and call. So despite the severity of my disease, I have a lot to live for and plan to be a fiesty old lady. It's good to keep those long-term plans in my mind when I get overwhelmed with the daily stuff. How much longer is your treatment? I'm glad you can tolerate such a high dose of Ribavirin - I just couldn't and that may have something to do with why mine failed. And OF COURSE I didn't lose any weight on treatment, I just ate bland, white foods which kept me fat. No, no, I wouldn't be so lucky as to lose weight like everybody else does! My mom got malaria in Korea and took quinine when she had a relapse. Hmmm, I never thought of taking that, just took some anti-inflammatories and piled up the blankets the first few nights after a shot. Good idea! I take Lexepro, which is an anti-anxiety as well as an anti-depressant. I went through a period of real anger re: losing my husband, my health, my job, and then my stuff (furniture, belongings which were packed away in storage) when I moved in with my sister. And she wasn't used to living with anyone yet, so it was quite an adjustment. So Lexepro really leveled the mood out so we could talk about what was bothering me instead of me yelling and slamming doors. I took a 6-hour memory testing from a psychologist, and I suspect what he told me holds true for a lot of us with HepC. He said my long-term and short-term memory were both excellent - it was my working memory, or ability to multi-task, which was nonfuctional. We confuse that with short-term memory, but there is a difference. I could remember what he told me, but when he asked me to work out a story problem, I couldn't keep one sum in my head while I figured out what another sum was - that's multi-tasking. Like he asked me if apples were 1.25 each and I bought 3 and the tax was .12 per apple, what was the total? I could have figured it out just fine on paper, but keeping the sums in my head was not happening. He said we draw from our long and short-term memory to help, but we should do things like make a lot of lists, keep something handy to write down thoughts when we have them, and be really careful about driving. In fact, I didin't drive for about a year when I was on treatment. It's better now, but I still have to be aware of being vigilant or I'll find myself drifting over towards the bike lane or something. OK, it was great to talk to you, I'm 52 by the way and have had this for 31 years. Thank God it's a slow virus, huh? Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 ; I had my MD order the test from a psychologist who did memory testing. My insurance (through work) paid for half, but I had to pay the total up front and then he repaid me what the insurance paid him. So I had to front like $600. If you or your doctor can find a psychologist who takes Medi-cal, then it can be done. I doubt if Medi-Cal pays for it, but if they did they'd want your doctor to fill out a pre-authorization form. It wouldn't hurt to ask. Best wishes, Michele --- Csue7782@... wrote: > > Hi.. > I am ..don't post much..but wanted to > welcome you Mike..i find your > information interesting..especially on nutrition. > Good Luck with your treatment..Treatment is so hard, > but just having > Hepatitis is > difficult to get family members to understand how > you feel. I always > applauded those > that had a s/o that stood by them..It takes a lot of > love and commitment. > You seem like such a nice guy. > But my own daughter does not care how i feel or want > to understand..cannot > understand > why sometimes i can't take the baby and 4 yr old..or > make a commitment > because i > am not sure all the time how i will feel 2 or 3 days > or even tommorow. > I wish you the best. > Michele..i truly wish you the best..i know it is > hard..my ex, also was end > stage. > If you have a good support system..makes all the > difference. > Also, i was very interested about the 6 hour memory > test. > How do you go about getting it done.? Do you have > to pay..or will Medical > pay? > Probably not..i know my sister had a Family History > testing done about > depression and > it costs. > But what you said makes so much sense. Maybe i will > research it some. > But it sure explains alot to me...thanks so much for > posting that. > I hate the term 'brain fog'..but this i can relate > to..Working memory > nonfunctional!! > > Again, Mike..welcome.. > and thanks Michele... > take care* > -Sue > > > > In a message dated 12/10/2005 1:09:47 PM Pacific > Standard Time, > Hepatitis C writes: > > Message: 5 > Date: Sat, 10 Dec 2005 10:25:25 -0800 (PST) > From: Michele Kiger <mishkiger@...> > Subject: Re: new member > > Wow, Mike, > It sure seems like you've got the nutrient plan > down, > not much anyone can tell you. That's so cool! > Besides > the protein powder I just try to eat lots of fresh > veges and fruits for the antioxidant and general > nutrients. I usually put the powder in a fruit mix: > milk, fresh berries, limeade, vanilla > yogurt, banana, stuff like that. Oh, fresh ginger > and > coconut flakes, too. I LOVE fresh ginger, add it to > tuna salad, etc. I eat a lot of Oriental food since > I > was raised for 5 years in Korea. I'm convinced > kimchee > is one of the healthiest things to eat. > > I'm one of those people who has always had normal > ALT/AST, even as the damage was occuring. So we > just > look at the viral load as a indication of how well > the > treatment did. This last one, though, brought my > platelets and WBC up, so there was further > confirmation I had what my doctor calls " a > biochemical > reaction " to the drug. So it's improved my > condition. > Even though I still have a viral load. > > I didn't find out about my hepatitis until it was > at > end-stage, no where else to go. So that has > simplified > my decisions. > > I got divorced a year before I got my diagnosis, > and 3 > years after we knew something was really wrong with > me. My husband complained that I was " No fun > anymore " > and was " acting old " . Well, I was looking at things > from the angle of how tired would I get, didn't > want > to ski anymore or climb mountains, etc. I was sick! > > And I'm actually glad we broke up before the > diagnosis, he would have had a hard time with it > because everything was about him. So he'd have less > money if I didn't work, he (God forbid!) might have > to > take care of me and worry. So it was much better > for > me to go throught the trauma of divorce before the > trauma of being diagnosed and deciding what to do. > It's just clearer this way, less people to > accomodate, > and it's brought me MUCH closer to my two sisters. > We > were always close, but this really brought it > home. > They both got checked out to see if they could > become > living donors (neither of them can), one sister took > me in when I could not work anymore, and the other > one > continues to be totally supportive. So that's a > really > good thing that's come out of this. We're all > making > plans to live on the same piece of property when we > retire, build a house for my little sister who has > a > husband and child, and apartments for us two old > maids. So we can spend our declining years > together, > and my neice can have two adoring aunties at her > beck > and call. > > So despite the severity of my disease, I have a lot > to > live for and plan to be a fiesty old lady. It's > good > to keep those long-term plans in my mind when I get > overwhelmed with the daily stuff. > > How much longer is your treatment? I'm glad you can > tolerate such a high dose of Ribavirin - I just > couldn't and that may have something to do with why > mine failed. And OF COURSE I didn't lose any weight > on > treatment, I just ate bland, white foods which kept > me > fat. No, no, I wouldn't > be so lucky as to lose weight like everybody else > does! > > > My mom got malaria in Korea and took quinine when > she > had a relapse. Hmmm, I never thought of taking > that, > just took some anti-inflammatories and piled up the > blankets the first few nights after a shot. Good > idea! > > I take Lexepro, which is an anti-anxiety as well as > an > anti-depressant. I went through a period of real > anger > re: losing my husband, my health, my job, and then > my > stuff (furniture, belongings which were packed away > in > storage) when I moved in with my sister. And she > wasn't used to living with anyone yet, so it was > quite > an adjustment. So Lexepro really leveled the mood > out > so we could talk about what was bothering me > instead > of me yelling and slamming doors. > > I took a 6-hour memory testing from a psychologist, > and I suspect what he told me holds true for a lot > of > us with HepC. He said my long-term and short-term > memory were both excellent - it was my working > memory, > or ability to multi-task, which was nonfuctional. > We > confuse that with short-term memory, but there is a > difference. I could remember what he told me, but > when > he asked me to work out a story problem, I couldn't > keep one sum in my head while I figured out what > another sum was - that's multi-tasking. Like he > asked > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Hi , Thanks for the welcome. Mike > > > Hi.. > I am ..don't post much..but wanted to welcome you Mike..i find your > information interesting..especially on nutrition. > Good Luck with your treatment..Treatment is so hard, but just having > Hepatitis is > difficult to get family members to understand how you feel. I always > applauded those > that had a s/o that stood by them..It takes a lot of love and commitment. > You seem like such a nice guy. > But my own daughter does not care how i feel or want to understand..cannot > understand > why sometimes i can't take the baby and 4 yr old..or make a commitment > because i > am not sure all the time how i will feel 2 or 3 days or even tommorow. > I wish you the best. > Michele..i truly wish you the best..i know it is hard..my ex, also was end > stage. > If you have a good support system..makes all the difference. > Also, i was very interested about the 6 hour memory test. > How do you go about getting it done.? Do you have to pay..or will Medical > pay? > Probably not..i know my sister had a Family History testing done about > depression and > it costs. > But what you said makes so much sense. Maybe i will research it some. > But it sure explains alot to me...thanks so much for posting that. > I hate the term 'brain fog'..but this i can relate to..Working memory > nonfunctional!! > > Again, Mike..welcome.. > and thanks Michele... > take care* > -Sue > > > > In a message dated 12/10/2005 1:09:47 PM Pacific Standard Time, > Hepatitis C writes: > > Message: 5 > Date: Sat, 10 Dec 2005 10:25:25 -0800 (PST) > From: Michele Kiger <mishkiger@y...> > Subject: Re: new member > > Wow, Mike, > It sure seems like you've got the nutrient plan down, > not much anyone can tell you. That's so cool! Besides > the protein powder I just try to eat lots of fresh > veges and fruits for the antioxidant and general > nutrients. I usually put the powder in a fruit mix: > milk, fresh berries, limeade, vanilla > yogurt, banana, stuff like that. Oh, fresh ginger and > coconut flakes, too. I LOVE fresh ginger, add it to > tuna salad, etc. I eat a lot of Oriental food since I > was raised for 5 years in Korea. I'm convinced kimchee > is one of the healthiest things to eat. > > I'm one of those people who has always had normal > ALT/AST, even as the damage was occuring. So we just > look at the viral load as a indication of how well the > treatment did. This last one, though, brought my > platelets and WBC up, so there was further > confirmation I had what my doctor calls " a biochemical > reaction " to the drug. So it's improved my condition. > Even though I still have a viral load. > > I didn't find out about my hepatitis until it was at > end-stage, no where else to go. So that has simplified > my decisions. > > I got divorced a year before I got my diagnosis, and 3 > years after we knew something was really wrong with > me. My husband complained that I was " No fun anymore " > and was " acting old " . Well, I was looking at things > from the angle of how tired would I get, didn't want > to ski anymore or climb mountains, etc. I was sick! > And I'm actually glad we broke up before the > diagnosis, he would have had a hard time with it > because everything was about him. So he'd have less > money if I didn't work, he (God forbid!) might have to > take care of me and worry. So it was much better for > me to go throught the trauma of divorce before the > trauma of being diagnosed and deciding what to do. > It's just clearer this way, less people to accomodate, > and it's brought me MUCH closer to my two sisters. We > were always close, but this really brought it home. > They both got checked out to see if they could become > living donors (neither of them can), one sister took > me in when I could not work anymore, and the other one > continues to be totally supportive. So that's a really > good thing that's come out of this. We're all making > plans to live on the same piece of property when we > retire, build a house for my little sister who has a > husband and child, and apartments for us two old > maids. So we can spend our declining years together, > and my neice can have two adoring aunties at her beck > and call. > > So despite the severity of my disease, I have a lot to > live for and plan to be a fiesty old lady. It's good > to keep those long-term plans in my mind when I get > overwhelmed with the daily stuff. > > How much longer is your treatment? I'm glad you can > tolerate such a high dose of Ribavirin - I just > couldn't and that may have something to do with why > mine failed. And OF COURSE I didn't lose any weight on > treatment, I just ate bland, white foods which kept me > fat. No, no, I wouldn't > be so lucky as to lose weight like everybody else > does! > > > My mom got malaria in Korea and took quinine when she > had a relapse. Hmmm, I never thought of taking that, > just took some anti-inflammatories and piled up the > blankets the first few nights after a shot. Good idea! > > I take Lexepro, which is an anti-anxiety as well as an > anti-depressant. I went through a period of real anger > re: losing my husband, my health, my job, and then my > stuff (furniture, belongings which were packed away in > storage) when I moved in with my sister. And she > wasn't used to living with anyone yet, so it was quite > an adjustment. So Lexepro really leveled the mood out > so we could talk about what was bothering me instead > of me yelling and slamming doors. > > I took a 6-hour memory testing from a psychologist, > and I suspect what he told me holds true for a lot of > us with HepC. He said my long-term and short-term > memory were both excellent - it was my working memory, > or ability to multi-task, which was nonfuctional. We > confuse that with short-term memory, but there is a > difference. I could remember what he told me, but when > he asked me to work out a story problem, I couldn't > keep one sum in my head while I figured out what > another sum was - that's multi-tasking. Like he asked > me if apples were 1.25 each and I bought 3 and the tax > was .12 per apple, what was the total? I could have > figured it out just fine on paper, but keeping the > sums in my head was not happening. He said we draw > from our long and short-term memory to help, but we > should do things like make a lot of lists, keep > something handy to write down thoughts when we have > them, and be really careful about driving. In fact, I > didin't drive for about a year when I was on > treatment. It's better now, but I still have to be > aware of being vigilant or I'll find myself drifting > over towards the bike lane or something. > > OK, it was great to talk to you, I'm 52 by the way and > have had this for 31 years. Thank God it's a slow > virus, huh? > > Michele > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 hi my email address is _.taina2044@..._ (mailto:.taina2044@...) thankx **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Hey Aliza. . . Welcome to the club that no one wants to be a member of. . .but glad you found us this early in your survival. I have a WNL~~Welcome Newbie Letter that I send to Newly diagnosed Survivors after their posts to the group. I've been released from the hospital less than 2 days ago and I am perusing over 200 emails. Forward your email address to me attached to this email and I will send you the WNL over the weekend. This is a New Life that you are embracing and one can become somewhat overwhelmed with too much/too soon that may not be accurate for You or necessary for Your Survival. In almost 4 years, I have never had a Newbie email me negatively regarding my WNL. Take care, I have added you to my prayers. . . " K " " K " " I AIN'T FINISHED YET " !!! Quote Link to comment Share on other sites More sharing options...
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