Re: The Five Stages -- Kubler Ross theory

[Guest guest]

Hi Tracey, my 6 kids went through a couple of those stages. But for the most

part, they must have thought I was going to die, and real soon, as they kept

asking me to lunch, to dinner, to parties, and after about a month I begged them

to leave me alone! I would end up weighing 500 lbs at the rate we were going to

dinner!! Now, 13 years later, everyone is so used to it, if I even mention the

possibility of dying they have a fit, now I'm going to live to be 100 at least.

But, in the beginning, the word Chronic threw me. People live with chronic

highblood pressure, chronic migraines, chronic alcoholism, so what's to be

worried about with chronic leukemia? It's something you can live with, and

that's what I do.

By the way, I had my visit in Ann Arbor with Dr. Talpaz last Thurs. My pcr

has gone from 2.7 % the last time, to 5.5% this time. It has been as low as

0.087. Dr. Talpaz thinks I should stay on Sprycel, 40mg. for another month,

and possibly go into the XL228 trial. He also mentioned the Ariad trial coming

up in the future, so I'm not worried, he's the expert...Take care, Bobby

Tracey <traceyincanada@...> wrote:

Hi Bobby,

You brought up how a nurse had once warned you that you would go

through 3 stages of accepting your disease after you were diagnosed.

There is a well known theory that Kubler-Ross came up with that

outlines 5 stages that people are supposed to go through when they

get diagnosed with a life threatening disease. The stages are:

1) Denial

2) Anger

3) Bargaining

4) Depression

5) Acceptance

Like you, I didn't go through any of the first stages either, I seem

to have skipped straight away to number 5. Interestingly though, I

did watch my husband go through the first two stages. He was sure

that the lab had made a mistake and he was very angry about it.

I wonder how many people went through the stages as outlined and how

many skipped a few stages.

Tracey

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

SKYPE: RCD1929

[Guest guest]

LOL Bobby, my mother and aunt were sure that I was going to die

too....and real soon.

I went from getting phone calls twice a month to getting calls every

single day (sometimes a few times a day) and my mother bought me a

fancy pair of pyjama's, all gift wrapped. I think she figured that

I'd be too sick to get out of bed so I needed lots of pj's.

I really can't say that I blame them though, I was also convinced

that my days were numbered. I remember writing goodbye letters to my

kids and arranging all their baby pictures in individual albums

because I wanted them to have their pictures sorted out. If I left

them the way they were, they wouldn't know who was who when they got

older because they looked so much alike so this way, everything was

sorted out.

It's exciting to see that drug trials are still coming along the pipe

line. If Sprycel doesn't work for you, it's very reassuring to know

that you'll have other options waiting for you!

Tracey

> Hi Bobby,

>

> You brought up how a nurse had once warned you that you would go

> through 3 stages of accepting your disease after you were

diagnosed.

> There is a well known theory that Kubler-Ross came up with that

> outlines 5 stages that people are supposed to go through when they

> get diagnosed with a life threatening disease. The stages are:

>

> 1) Denial

> 2) Anger

> 3) Bargaining

> 4) Depression

> 5) Acceptance

>

> Like you, I didn't go through any of the first stages either, I

seem

> to have skipped straight away to number 5. Interestingly though, I

> did watch my husband go through the first two stages. He was sure

> that the lab had made a mistake and he was very angry about it.

>

> I wonder how many people went through the stages as outlined and

how

> many skipped a few stages.

>

> Tracey

>

>

>

>

>

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840 - Zavie's Zero Club

> 09/2006 - out of CCR

> SKYPE: RCD1929

>

>

>

[Guest guest]

Tracey, and everyone,

I think I went straight to " DEPRESSION " in a big way....took to my

bed, felt absolutely wretched and then slowly came out of it to

acceptance, and as I did that, my depression lifted and I began to

get more and more energy and functionality....now I am working full

time, tending my two boys, and barely even thinking about CML unless

I get into some boggle with the insurance company or something...it

is weird how it can be completely out of my consciousness these days,

when it so consumed me just a few months ago. I attribute a lot of

my feeling better to intensive prayer and realizing that God was

still right here beside me, and I could get through whatever it was

going to be with his help. So that is where I am now...busy, crazy,

I just received a new wire fox terrier puppy that is an absolute

maniac--and we just try not to think about CML! Life is good

Vicki

> > Hi Bobby,

> >

> > You brought up how a nurse had once warned you that you would go

> > through 3 stages of accepting your disease after you were

> diagnosed.

> > There is a well known theory that Kubler-Ross came up with that

> > outlines 5 stages that people are supposed to go through when

they

> > get diagnosed with a life threatening disease. The stages are:

> >

> > 1) Denial

> > 2) Anger

> > 3) Bargaining

> > 4) Depression

> > 5) Acceptance

> >

> > Like you, I didn't go through any of the first stages either, I

> seem

> > to have skipped straight away to number 5. Interestingly though,

I

> > did watch my husband go through the first two stages. He was sure

> > that the lab had made a mistake and he was very angry about it.

> >

> > I wonder how many people went through the stages as outlined and

> how

> > many skipped a few stages.

> >

> > Tracey

> >

> >

> >

> >

> >

> >

> > a (Bobby) Doyle

> > Brecksville, Ohio, USA

> > DX 05/1995

> > 02/2000 - Gleevec Trial/OHSU

> > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > #840 - Zavie's Zero Club

> > 09/2006 - out of CCR

> > SKYPE: RCD1929

> >

> >

> >