Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 hey, i am the one who is in michigan and had question about ssdi, i went to my family doctor today and he is giving me lyrica for the cmt. has anyone else been on this med?? how did you like it. he is giving me 50 mg two times a day. let me know. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 You may want to search our Archives on Lyrica. There are over 100 posts on it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Hi friends, Just a thought, no matter what medications we put into your body, if they are not naural sustances, they are toxic to our bodies. Please educate yourselves on natural substances that can have the same results, or better than toxic drugs. I used to take 7 different medications, and now I drink Xango juice instead, all natural...let me know if you would like more information, be informed. Thanks so much! Suzan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 my husband michael was on it he wanted to kill him self they took him off it now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Sometimes it is necessary for persons with CMT to take medications. These can range from antidepressants, pain meds, muscle relaxants and tremor suppressors for example. Or Lyrica, which is an anti-epileptic like Neurontin. Please make sure your doctors (all of them if you have more than 1) have a list of medications contradinicated for CMT, and make sure the doctors understand the medications may cause worsening of CMT symptoms. Be open and honest with your doctors about any supplements/vitamins/herbals you are using, as combined with a prescription medication can also cause adverse effects. Lyrica is known to help neuropathic pain. However, it is not a treatment for CMT, nor will it arrest CMT. There have * not * been any studies published on CMT and Lyrica. For more info please visit http://www.lyrica.com/main_safety_information.aspx http://www.drugs.com/lyrica.html http://arthritis.about.com/od/pregabalin/a/Lyrica.htm Using your computer, you can find much more about it. Also, use our 10 years of Archived message posts from others about Lyrica (Pregablin) Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Hi Friends, I take lots of pharmaceuticals, too. And they have been incredibly helpful. Opiates and pain signal disruptors keep me out of tears and bed. Omeprazol, the generic name for prilosec keeps the excess stomach acid in check, buproprion, the generic name for wellbutrin keeps me from being so depressed I cannot leave the house. I'm dubious as to your assertion that drinking some kind of juice is going to relieve me of all that, and also the anxiety that a goodly dose of clonazepam does. Further, " natural substances, " means exactly nothing. Snake venom is a natural substance, as are arsenic and poison ivy. The idea that you can solve my problems with your juice is absolutely ridiculous, and I'll wager everything you have made selling this stuff that all that would happen is that I would have to go to the bathroom a bit more because I have had more to drink than usual. That is IF I am actually functional without the pharmaceuticals to make it to the bathroom. That is how much pain I am in. If you have the found the answers to the problems posed by neuromuscular conditions, you are in the wrong place. You need to go to the FDA and a pharmaceutical company ad arrange for testing and approval. Or you need to go to a university hospital with your assertions and sell someone there on this radical new medical discovery. In Amsterdam in 2005-06 I arranged to have magic mushrooms (legal when fresh at the time) tested to see if, as I thought, they helped me. The results were subjective, and did not fall outside of the area of statistical meaninglessness. Do you mean to suggest that we should just stop our medications, which in some cases can be fatal, and take up drinking your product because YOU SAY it worked for you? What were your symptoms, anyway? Curious, Quote Link to comment Share on other sites More sharing options...
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