Re: Re: Down Syndrome births drop in state (TN)

[Guest guest]

In a message dated 9/6/2006 1:28:20 PM Central Standard Time,

imdsapresident@... writes:

Hi ,

there is a gene in the 21st chromosome that causes Leukemia. Although there

is not a lot of research done to know exactly how it all happens.

Please don't let things like this bother you too much. The risk is always

there, but there are always risks with every single child no matter what they

do or do not have.

Kristy

I read this article....I knew kids with DS have a high instance of Leukemia

but I didn't know the odds were that bad! Why is that? Does it have something

to do with their messed up DNA?

HI (playing catch up mail)

When my Mom was alive she was a research nurse for our University hospital

and she came across a study done on the connection between DS and Leukemia (on

the gov medical study website ... I think) It was the children born without

platelets or low platelets that were at high risk for leukemia, I think it

said it was a precursor. She knew Sara was born with low platelets, why she was

is ICU for 2 weeks after birth. I bet if I did a search I could find that

info ..... I'll try this week

Kathy mom to Sara 14

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

[Guest guest]

In a message dated 9/16/2006 8:21:52 P.M. Pacific Daylight Time,

b4alltoday@... writes:

platelets or low platelets that were at high risk for leukemia, I think it

said it was a precursor. She knew Sara was born with low platelets, why she

was

is ICU for 2 weeks after birth. I bet if I did a search I could find that

info ..... I'll try this week

Kathy mom to Sara 14

Hi Kathy,

My baby was born with very low platelets too........do you know if she was

at more at risk then or now for leukemia?? In other words, does the risk drop

when their platelets improve?

Thanks so much,

Laurie

Mommy to Kayla 13 mo.

[Guest guest]

In a message dated 9/17/2006 10:26:41 AM Central Standard Time,

trier9@... writes:

Hi Kathy,

My baby was born with very low platelets too........do you know if she was

at more at risk then or now for leukemia?? In other words, does the risk

drop

when their platelets improve?

Thanks so much,

Laurie

Mommy to Kayla 13 mo.

HI Laurie

I just had one of those moments where you look at the phone and think " I'll

just call Mom " its only a second or two but they still happen anyway I did

a google search and found this article

_http://www.ndss.org/content.cfm?fuseaction=InfoRes.HlthArticle & article=201_

(http://www.ndss.org/content.cfm?fuseaction=InfoRes.HlthArticle & article=201)

Diseases of the Blood in Down Syndrome

By: Dr. Len Leshin, MD, FAAP

Source: www.ds-health.com; reposted by permission of Len Leshin, M.D.

Im still looking for that study I talked about earlier, I cant remember the

site name but I know it lists all or most of the studies done (gov site) I

went to it awhile back and used my moms name in their search engine, she worked

on many studies and was listed as one of the authors, cool to see your mom's

name in print like that lol I also inherited all of her cancer medical books,

so I can look there too.

Please don't worry about any of this, believe me if it was an issue or a

serious risk my Mom would have taken Sara herself to the Drs. about it heehee

Its funny how you really miss a mothers nag lol

Oh I was wondering, did your child have to have transfusions? Sara did, just

curious

Kathy mom to Sara 14

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

[Guest guest]

In a message dated 9/17/2006 11:57:06 AM Central Standard Time,

scarlson1@... writes:

This scares the stuffin outta me if I think about it.

Although.. I should know better than anyone that this can happen to anyone

DS or not. I, myself, developed Thrombocytopenia when I was four. Course, that

scares me more cause of a family history.. LOL.. they never found the cause

of mine. And it cleared up with lots of prednisone ( for about 6 months ) ..

Boy did I have a set of chipmunk cheeks !

Steph

HI Steph

It scares me too .........

My Mom died of streptococcal toxic shock syndrome, during her last 3 days of

life the Drs. uncovered some unknown (to Mom and me) lab results. Mom being a

nurse was aware and knowledgeable of the tests and the results and all the

meds they gave her (like a certain antibiotic used for cancer patients). One

of the blood test/results gave her a suspicion that she also had leukemia

........... on top of her organs shutting down.

My sisters and I made a HUGE error of NOT opting on a bone marrow test. If

Mom had shown signs of recovery the Drs. were going to order that test but

since the test was a hard one they didn't do it, and we didn't order an

autopsy.

In after thoughts we all wish we had, you know to just know if this was in

our family history now. A DR friend of mine told me to list it in our family

history since odds are she did have leukemia.

I think its time for a physical for Sara, its been awhile

Kathy mom to Sara 14

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

[Guest guest]

<http://www.ds-health.com/hemat.htm> http://www.ds-health.com/hemat.htm

The link is broke.. but here is the original….

This scares the stuffin outta me if I think about it.

Although.. I should know better than anyone that this can happen to

anyone DS or not. I, myself, developed Thrombocytopenia when I was four.

Course, that scares me more cause of a family history.. LOL.. they never

found the cause of mine. And it cleared up with lots of prednisone ( for

about 6 months ) .. Boy did I have a set of chipmunk cheeks !

Steph

Re: Re: Down Syndrome births drop in state (TN)

In a message dated 9/17/2006 10:26:41 AM Central Standard Time,

trier9@... <mailto:trier9%40aol.com> writes:

Hi Kathy,

My baby was born with very low platelets too........do you know if she

was

at more at risk then or now for leukemia?? In other words, does the risk

drop

when their platelets improve?

Thanks so much,

Laurie

Mommy to Kayla 13 mo.

HI Laurie

I just had one of those moments where you look at the phone and think

" I'll

just call Mom " its only a second or two but they still happen anyway

I did

a google search and found this article

_http://www.ndss.

<http://www.ndss.org/content.cfm?fuseaction=InfoRes.HlthArticle & article=

201_> org/content.cfm?fuseaction=InfoRes.HlthArticle & article=201_

(http://www.ndss.

<http://www.ndss.org/content.cfm?fuseaction=InfoRes.HlthArticle & article=

201> org/content.cfm?fuseaction=InfoRes.HlthArticle & article=201)

Diseases of the Blood in Down Syndrome

By: Dr. Len Leshin, MD, FAAP

Source: www.ds-health.com; reposted by permission of Len Leshin, M.D.

Im still looking for that study I talked about earlier, I cant remember

the

site name but I know it lists all or most of the studies done (gov site)

I

went to it awhile back and used my moms name in their search engine, she

worked

on many studies and was listed as one of the authors, cool to see your

mom's

name in print like that lol I also inherited all of her cancer medical

books,

so I can look there too.

Please don't worry about any of this, believe me if it was an issue or a

serious risk my Mom would have taken Sara herself to the Drs. about it

heehee

Its funny how you really miss a mothers nag lol

Oh I was wondering, did your child have to have transfusions? Sara did,

just

curious

Kathy mom to Sara 14

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

[Guest guest]

In a message dated 9/17/2006 9:04:34 A.M. Pacific Daylight Time, B4alltoday

writes:

Oh I was wondering, did your child have to have transfusions? Sara did, just

curious

Hi ,

Thanks so much for your help. I am so sorry that your Mom is not here to

pick up the phone and call! What an awesome woman she sounds like......and she

left many great reminders of herself and her works here on earth!

To answer your question, no, our Kayla didn't have a transfusion.

Hugs,

Laurie

[Guest guest]

In a message dated 9/17/2006 9:57:06 A.M. Pacific Daylight Time,

scarlson1@... writes:

_http://www.ds-health.com/hemat.htm_ (http://www.ds-health.com/hemat.htm)

The link is broke.. but here is the original….

Thanks for the link Steph! It works now! =)

Laurie