Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Could someone please go to: information@... and register to be able to pull up this article? I can't open it because I don't have enough memory due to a few graphics in this article. Thanks. Iris Researchers Identify Gene Involved in Autoimmune Disease Researchers have identified a gene that appears to be a critical factor in autoimmune disease, according to a study to be published in the July 26, 2002, issue of Science. The research, performed by scientists at the University of Virginia and the University of Vermont Schools of Medicine and colleagues at other universities.. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2003 Report Share Posted February 20, 2003 Hi Tess, I take Vitamin E, 500 mgs a day. My doctors have told me it's better than any supplement you can get from places like GNC. Hope this helps. Hugs, Al > Hi...what can I do to strengthen my immune system? Are there particular > supplements that help with this? > > Love... > > Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hi, Jane. I have been diagnosed with Lupus and Fibromyalgia. It has been difficult to accept this, but the people on this board have helped a great deal. --- In , " janebair73 " <janebair73@...> wrote: > > I have MGUS (monoclonal gammapathy of unknown significance) or referred > to by one dr. @ Hopkins as " underlying lymphoma. " Does anyone on this > site have problems with their immune system? I have an elevated IGM of > 1310 and my IGG is 632. I am regularly checked by a > hematologist/oncologist. If the IGM goes over 3000, then I am > treated. I was also exposed to many varieties of mold in my home for > many years. Just curious to see if anyone else have immune system > problems? Like mine? Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 > > > > I have MGUS (monoclonal gammapathy of unknown significance) or > referred > > to by one dr. @ Hopkins as " underlying lymphoma. " Does anyone on > this > > site have problems with their immune system? I have an elevated IGM > of > > 1310 and my IGG is 632. I am regularly checked by a > > hematologist/oncologist. If the IGM goes over 3000, then I am > > treated. I was also exposed to many varieties of mold in my home for > > many years. Just curious to see if anyone else have immune system > > problems? Like mine? Thanks in advance. > > >, Sorry to hear you have Lupus and Fibro. I do have fibro according to a dr. I saw @ Hopkins. Did you have abnormalties in your immune system? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Yep, I've been dx'd with lymphopenia (low T cells of unknown origin) and also have very low IgM (of unknown orgin). I was dx'd with CFIDS and IBS. I suspected an infectious cause and after 5 tests for Lyme, one finally came back positive. I also had mold exposures to boot. After 3 months on abx(and a lot of other 'stuff' in my protocol, my T cells are finally up into the normal range. I saw Dr Shoemaker and he was instrumental in helping me figure out what was going on. > > > > I have MGUS (monoclonal gammapathy of unknown significance) or > referred > > to by one dr. @ Hopkins as " underlying lymphoma. " Does anyone on > this > > site have problems with their immune system? I have an elevated IGM > of > > 1310 and my IGG is 632. I am regularly checked by a > > hematologist/oncologist. If the IGM goes over 3000, then I am > > treated. I was also exposed to many varieties of mold in my home for > > many years. Just curious to see if anyone else have immune system > > problems? Like mine? Thanks in advance. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 What kind of dr. gave you these diagnosis. My drs. don't help me. Thanks for answering. > > > > > > I have MGUS (monoclonal gammapathy of unknown significance) or > > referred > > > to by one dr. @ Hopkins as " underlying lymphoma. " Does anyone > on > > this > > > site have problems with their immune system? I have an elevated > IGM > > of > > > 1310 and my IGG is 632. I am regularly checked by a > > > hematologist/oncologist. If the IGM goes over 3000, then I am > > > treated. I was also exposed to many varieties of mold in my > home for > > > many years. Just curious to see if anyone else have immune > system > > > problems? Like mine? Thanks in advance. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 fontdog, So you went to OHSU and the doctors there were not capable of thinking outside the box, you say? Many of us on this board could have saved you a trip to OHSU. We already knew that OHSU is notorious for their " learned men " who cannot think outside the box. Witness box, that is. There are a few of the physicians there who are the mainstay for the defense in mold litigation on a prolific and national level. Bardana and Sudakin are the first two names that come to my mind. Although they generate much income off of the mold issue, they are worthless at actually treating those who have been exposed to mold. So sorry to hear this was your intro to the medical community with regard to mold induced illnesses. Sharon I was beening seen by an infectious disease specialist at OHSU in Portland, OR. I was TOTALLY unimpressed with OHSU. They were closed minded and were unable to grasp that I might be suffering from something that they couldn't understand. I did my own research and had to make a case for what tests to run. That's how 'we' (i say we, but it really was " I " ) discovered I had low T cells. Finding a good MD is hard. After making the trip to land to see Shoemaker, I am now seen by Dr. Marti at the FibroandFatigue Clinic in Seattle, since she is not 3000 miles away (like Shoemaker). They understand, and I am finally starting to get better. Most MD's are nothing more than highly trained technicians. Medical school teaches them to rely only on what they have learned, and not to think outside of the box. This means they can only solve problems that have already been solved before. I am a PhD Chemical Engineer, and I am trained to think out of the box, which is what is usually required to solve a new problem. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 I was beening seen by an infectious disease specialist at OHSU in Portland, OR. I was TOTALLY unimpressed with OHSU. They were closed minded and were unable to grasp that I might be suffering from something that they couldn't understand. I did my own research and had to make a case for what tests to run. That's how 'we' (i say we, but it really was " I " ) discovered I had low T cells. Finding a good MD is hard. After making the trip to land to see Shoemaker, I am now seen by Dr. Marti at the FibroandFatigue Clinic in Seattle, since she is not 3000 miles away (like Shoemaker). They understand, and I am finally starting to get better. Most MD's are nothing more than highly trained technicians. Medical school teaches them to rely only on what they have learned, and not to think outside of the box. This means they can only solve problems that have already been solved before. I am a PhD Chemical Engineer, and I am trained to think out of the box, which is what is usually required to solve a new problem. -c > > > > > > > > I have MGUS (monoclonal gammapathy of unknown significance) or > > > referred > > > > to by one dr. @ Hopkins as " underlying lymphoma. " Does anyone > > on > > > this > > > > site have problems with their immune system? I have an > elevated > > IGM > > > of > > > > 1310 and my IGG is 632. I am regularly checked by a > > > > hematologist/oncologist. If the IGM goes over 3000, then I am > > > > treated. I was also exposed to many varieties of mold in my > > home for > > > > many years. Just curious to see if anyone else have immune > > system > > > > problems? Like mine? Thanks in advance. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 And here is another myth - there is no such thing as an immune system. See www.foodnsport.com to read up on that. Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 He¹s got it on the ³try² list for one of our boys, too. We¹re not quite to the point of trying it, though (other med changes going on right now). Here¹s something I read in a summary of a presentation given by Dr. Cheney... I know he¹s a big name in CFIDS, but I¹m not sure what his protocol is... but for what it¹s worth, here¹s what it said... ³Immune modulation is the concept of augmenting the immune system that fights intracellular microbes; that's the TH1 system. There are a number of pharmaceuticals and nutriceuticals [nutritional supplements used therapeutically] that do that. The one I like the best is isoprinosine, a drug that unfortunately is not approved in this country but is approved in 51 other countries, made in Dublin, Ireland, by Rivex Pharmaceuticals, although discovered in this country. We have probably a couple of hundred people on isoprinosine. It's the only immunomodulator I've ever given where people actually call us back and tell us how much better they're doing. I've never had an immunomodulator that strong before. Kutapressin wasn't nearly that strong. Isonisoprine is relatively safe and relatively inexpensive. [Although isoprinosine (brand name Immunovir) is not approved in the U.S., Dr. Cheney sends a prescription to the Canadian supplier, which ships the drug to the patient. Some patients also obtain the drug directly from the manufacturer in Ireland.² Caroline G. From: dckgmiller <dckgmiller@...> Reply-< > Date: Thu, 21 Aug 2008 21:04:51 +0000 < > Subject: Immune System Hello, Does anyone use " immunovir " to help their child's immune system? Dr. G wants us to start using this but it is so expensive and can only be ordered out of Canada. Thanks, C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 What is the cost? Martha Immune System > > Hello, > Does anyone use " immunovir " to help their child's immune system? Dr. G > wants us to start using this but it is so expensive and can only be > ordered out of Canada. > Thanks, > C. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Hi - Sorry to butt in however, I've been researching and other things because of my son. I'm learning much of family history because they want to help my son so, I'm asking the 'hard' questions of my family members as well. My sister has now shown ANA titers of 1:640 w/ the representation of Lupus (second time in her life). She told me her results, on the same day I asked my sons doctor to start testing for more immune issues and ANA was one of them. This is very humbling to me because we're doing more Immune testing w/ my son. I never would have put him in the autoimmune category but he's fitting the profile. We have, now that MY family members are telling me, Ulceritive Colitis, Chrons, IBD, Diabetes (adult onset), high BP, Altzheimers, Heart Disease....that's only what I can get MY family members to tell me. My husbands side I can only glean, heart disease. They would be too *proud* to tell me about anything in their medical history because that would not be proper. The only thing I know for sure is that my MILs brother is Paranoid Schitzophrenic (sp?) and he fits the profile of onset. No discussion with his family of what meds are treating it but have to look into it soon. It's one of those things with his family if you don't talk about it - it doesn't exist. I'm looking for help because of my sons early onset GI issues and the presentation of immune issues even though he is not vaccinated - nor are my other children. I want to know why and if someone has the same presentation - I would love to hear about it. Any help/insight would be welcomed. Thank you to all! Laureen Quoting " cher.lowrance " <cher.lowrance@...>: > I'm sure that it is worth it for many kids and it probably would be > worth it for mine but you have to have the money to spend it. > > Cheryl > > On Aug 21, 2008, at 6:19 PM, Bill klimas wrote: > >> C miller >> This was recommended from Dr K *Board member " of and a >> CFS researcher out of U of M. The med increases the number of NK T >> cells (Natural Killer Cells) in you childs blood stream. These >> cells control the viruses and bacterial infections that are the >> root of the problem. To be clear Immunovir is as close to the >> immune modulating drugs Dr G is waiting for that is available at >> this time, a drug that heals the total system by boosting the >> production of the cells that balance/normalize the immune system >> and not just attack the invasive virus while the med is in the >> system. Yes it is worth the expense. It is the first available drug >> in a class of drugs that actually enhance the body's ability to >> self heal. >> Bill >> >> >> >> >>> From: dckgmiller <dckgmiller@...> >>> Subject: Immune System >>> >>> Date: Thursday, August 21, 2008, 5:04 PM >>> Hello, >>> Does anyone use " immunovir " to help their >>> child's immune system? Dr. G >>> wants us to start using this but it is so expensive and can >>> only be >>> ordered out of Canada. >>> Thanks, >>> C. >> >> >> >> >> ------------------------------------ >> >> Responsibility for the content of this message lies strictly with >> the original author(s), and is not necessarily endorsed by or the >> opinion of the Research Institute, the Parent Coalition, >> or the list moderator(s). >> Quote Link to comment Share on other sites More sharing options...
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